Hello Osomates.... Since June 2018, I have been enduring bleeding of the stoma and swelling. My stoma nurse and surgeon are following these episodes. My stoma nurse said because my stoma is not predictable ; I'm to change one to two days. Yes I do irrigate however my surgeon didnt tell me about irrigation. I learned about irrigation on this site. First of all there all kinds of cures happening today.. It took effort and people who suffered with illnesses to come together.
I reside in the state of Kentucky, as of 2017, the population was 4,454 miillion . One letter to anyone will not persuade anyone, nor get attention. Ostomates if we want a change we have to write our lobbyist, senators and congressmen/women. Some of us who will never be reversed this is food for thought. Insurances will only pay for so much , simply because they want to save, however do they wear a pouch with waste? Yes there are ignorant people simply, because they do not know (about ostomates). Yes this site is our refuge and we understand one another, though each of us arrived for diffrent reasons we arrived.
We as ostomates must educate individuals thats responsible for change. If that means take our equipment off and show them I'm willing if we can just get there. If you want change , we must take action.
We have no more control, then they do when they have diarreah , the difference is, they have tissue. we need supplies.
Thanks for your time.
Last edited by Angelicamarie on Fri Aug 31, 2018 3:33 pm; edited 6 times in total