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Eye surgery with an ostomy? Help!

Posted: Sun Nov 04, 2018 5:10 pm

Tomorrow a.m. I am scheduled for a surgery to re-attach my retina and...well I should know the name but a mild macular detachment. The dr. Scheduled it Friday right at closing for Monday at opening due to it being an emergency surgery, so I did not get to ask questions.

 

So...asking "doctor Google" says I must lay face/stomach down for sleep. Ummm....how to do that with an ostomy? Other googling said lay on your side opposite your eye surgery which is....my stoma side. When I lay on that side, I get blow outs or whatever you want to call it. And so stomach sleeping seems to cause the same I bet.  Maybe there are little like....stoma and ostomy bag cradles? Although I don't know how to find that with surgery so soon and I doubt I will be fond of shopping after surgery, head stuck down, and a drive of 2 hours (not counting traffic) ....anyway...

 

Also if anyone has ever had this surgery even before their stoma I would love some feedback. That eye had a vision of 20/1000 (yes that blind) before it detached. Now its...nothing...literally. it is 100% black. So will I even get my awful vision back? 

Posted: Sun Nov 04, 2018 6:44 pm

I haven't had surgery but I would think maybe some long body pillows above and below your stoma might help keep you from actually laying on your stoma when you are on your stomach? There are those butt pillows, the kind that have the center taken out so you basically have just a ring but I would fear I would roll off of it and then end up on the stoma.

As far as your vision, I sure will keep you in prayer that you do get it back. Best wishes with it all!

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Posted: Sun Nov 04, 2018 9:15 pm

Thanks for your prayers (trust me they mean a lot) and easy advice to cradle my stoma.

Posted: Mon Nov 05, 2018 2:14 am

Hello Gemd.  No advice on sleeping arrangements I'm afraid as I have a special bed for my purposes. I just thought I would wish you the best for your operation, which hopefully will be successful.

Bill

Posted: Tue Nov 06, 2018 4:13 am

Be sure to empty right before your surgery.  Let the doctor know and I am sure they will be able to find a suitable solution.  Good luck to you!

Posted: Thu Nov 08, 2018 1:52 pm

Did all go well with your eye surgery? We all all want to know.  Did you ask your Doc about your sleep positions? How are you feeling and did all go according to plan?  I had YAG surgery on both eyes (weeks apart, of course), in 2018, after my cancer and resulting stoma creation in 2017. Besides using drops, I found that sleeping on my side or flat back worked the best for me--no leakage and no eye pain.  For me, sleeping face down was not an option for a week after each eye surgery.

Posted: Thu Nov 15, 2018 11:51 am

I sleep face down into a donut shaped pillow propped up for airflow....and a pillow on my upper torso and waist so the ostomy bag kinda is able to rest in a little nest of sorts. I emptied my bag before surgery and since I couldn't say or drink before surgery, it stayed rather empty. I didn't have an appetite and so I only had soup for dinner. Three days later I got my first chemo infusion. My husband had to drive me and walk me around as I could only stare at my feet. Either the chemo, then head down position from eye surgery, or both gave me a migraine but I didn't realise it because I was so tired and disoriented. Finally three days later I took some meds for the migraie.m I am 10 days post op and still heads down 24/7 which makes my equilibrium weird so I am constantly dizzy and fighting nausea. I also had two ostomy bag leaks during this time. Sad I am hoping to be face up soon so I can join te world again as face down I just feel misreravle

 The good news is that my eye is indeed healing as it should. But I keep it close because looking through a blurry wiggly gas bubble makes me want to vomit. 

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