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Help, constant leaks

Posted by Gemd, on Sat Dec 29, 2018 7:06 pm

I have had a leak a day since my bday (dec 26. A leak was not a fun bday gift!) I usually use the opaque beige one piece trainable pouch hollister. But I tried convatec's simular version. Both have leaked. I change my pouch daily now because each pouch doesn't last even 24 hours before leaking. My output is normal amount and texture so what gives? 

Reply by Songbird16, on Sat Dec 29, 2018 8:07 pm

Hi Gemd

I have had crohn's disease for 50 years and an ileostomy for 38 yrs.  I have experience leaks for the past five years.  I tried everythihg!  Every product.  Nothing worked for me.  So now I am using three different kinds and the one that works (longer time frame) is Hollister 8661 (precut) to fit my stoma and the Bravo protective Seal from Coloplast and then use the Bravo Elastic Barrier Strips (half moon) also from Coloplast for more extra protection!  The Barrior has to be perfectly surrounding the stoma or it will leak.  I also began to eat healthy but smaller portions and pray often.   

The thing with being a believer in Jesus Christ is that even though I've been through it ALL...I am blessed with a calm and understanding that it all works out for the good.

I hope things work out for you and may God bless you and the new year!

Reply by Gemd, on Sat Dec 29, 2018 10:00 pm

I will look into the half moon as I use the protective deal...I think? It's like a gummy bear but donut shaped . And yes Jesus has been with me through this all....stage 3 cancer, 3 organs removed, celiac (or ??? My mucosal folds in my colon were flat), but i am still here to do His work. Amen to that and have a blessed 2019! 

Reply by Songbird16, on Sat Dec 29, 2018 10:43 pm

Wow!  We are similar in what we went through and our faith is great, I can honestly say I don't know any other kind of life.  I have always been sick with the worst severe crohnic crohn's disease a person can imagine, I can go into a grocery store, department store and have a leak and I just park my cart look for the ladies room clean up with safe n simple wipes, smith and nephew skin prep wipes change the pouch wash my hands and carry on with my groceries!  It became my normal and I don't know of anykind of other life anymore.  In my 20's I use to cry and fall to the floor at the mercy of God through Jesus and have  anxiety, you name it. I forgot how many times I've been hospitalized at least 20 or 25 times.  But with time and prayer and loving on other people somewhere along the way I was saved.  Now I am just thankful to stil be here and loving my life anyway!  One day at a time.

You have a good attitude and if ever need any help or questions, please send a message!

Again, take care!!! God Bless YOU Smile

 

Reply by Puppyluv56, on Sun Dec 30, 2018 12:12 am

Gem, 

i am using the Convetec two piece!!I have not had the first leak since I started using them in June! Two piece usually last me 6 days each. Once in a while I will go 7-8 and on occasion, I have changed on day 4 or 5. Not often though. I always liked the Coloplast bag so I have just received them but have not used them yet. This week. I also use the Bravo Y strips for extra confidence but the pouch flange itself has not leaked to require the help Morning the strip. I tried the rings but I think they weee worse than without! Call Convetec, and Coloplastbto request samples if you have not tried them yet and Hollister for a sample of the two piece! You may find them better! I hope you find the answer! It is horrible to not be comfortable leaving your home! 

Reply by countyclare, on Sun Dec 30, 2018 12:18 pm

Unless you're having excessive amounts of liquid output, you really should not be having leaks if your applying the pouch properly. 

Also, avoid eating or drinking anything several hour before going to bed. Eating or drinking prior to going bed can cause leaks because you are laying horizontally.  You may want  to consult with an enterstomal therapist (nurse) in your area for instruction / advice..  Best of luck. 

Reply by Longroad78, on Mon Dec 31, 2018 12:54 pm

Gemd,

You are going through so much and am greatful your staying so strong. Hope this helps a little.

I change my appliance out in the morning but to remove it I take a warm shower and let the water heat up the adhesive up and it comes off without having to use adhesive remover, it also allows the area to be cleaned off really well, no mosturizing soap because it can leave a firm that might cause a issue with adhesion. Wrap your stoma with tissue or toliet paper when you step out just it case when drying off and getting around in cause your friend has a mind of it's own. I use the coloplast sensura mio click but I learned with the cold weather we are having in Texas that the last two changes I am having issues with the adhesive sticking good close to the inside near the stoma. I use the paste product around the stoma. I found that my supplies were cold and the adhesive is temperature sensative. The colder it was the less sticky. The half moon adhesive stripes have saved me both times from a full out failure/ leak. I could feel my skin burning from the output but the half moon stripes stopped it from leaking out. Coloplast makes sensura Xpro click which is a extended wear product not the mio system. To me the adhesive was stronger and it is more resistant to the acidity of the output, give it a try they offer samples of that product. 

Great Luck hope this helps.

Reply by Axis308, on Mon Dec 31, 2018 5:54 pm

I had the same issues at one point. I switched to Convetec two peice with the moldable flange. I also use a Hollister adapt barrier ring as well and have not had any issues since. 

Reply by Gemd, on Tue Jan 01, 2019 1:31 pm

The cold Texas weather makes sense. Maybe I can use a blow dryer? 

 

I eat well before bed but..well my stoma produces right after I eat, a little output, and then 6-8 hours after a meal, I rid of that meal. But I have to have dinner and eat more often than 6 hours apart (seems my blood sugar crashes more easily without a colon) and cant eat dinner at, say, 3pm. Oh well. 

Reply by Longroad78, on Tue Jan 01, 2019 4:27 pm

 Sound like your stoma and digestive system is working like normal on your intact and output timing, do not feel like you need to stop eating and starve yourself to allow you a window to change your appliance. Just eat your normal meals but do not do like I do and eat large meals and to few of meals through the day. Do your normal small meals throughout the day and just do not eat to heavy after a certain time at night. You can still maintain your blood sugar levels. You probably see the normal predictable output at night and see in the morning your stoma is a little slow before the first cup of coffee and breakfast. Use that time to change things out. On the hairdryer I have heard people use that or a heating blanket or just placing their hand on the finish appliance to warm things up. I am checking on if it is the wafer is to cold to start off with before I use it and also if I am not able to put presser on the inside area closest to the stoma to allow the glue to adhere to the skin in that area allowing the output to get around the paste. Might sound strange but makes sense, one person I talked to uses a piece of pvc pipe fittings to go around  his stoma to push the wafer against his skin better and more evenly and that fixed his problem. Have not tried that yet. 

Reply by maddie50322, on Wed Jan 02, 2019 6:53 pm

Leaking is not uncommon, but should be minimal whe using the right products. Hollister products are the cheapest out there, which is why hospitals stock them. I personally don't like them. I have a few tips. The first is re-measure your stoma and see if it has changed size at all. The next is keep on trying samples until you find one that works for you. Most people love the coloplast products. Try a convex wafer vs a flat one. Use adhesive spray (glue basically ) and barrier strips. I use both of those and that was a game changer for me.  I went from 1-2 time daily changes to 2 changes a week on Monday and Thursday

Reply by Puppyluv56, on Sat Jan 05, 2019 10:27 pm

My hospital uses the Convetec one piece which are the crappiest pouches made! They leak and are only usable in the first week or so after surgery when you have little to no output! I Love the Convetec two piece but the pouch looks like an old sweater by the end of the week. It frays and looks picked! No leaks since I started using them In June!  I love the Coloplast two piece pouch so much better. The material is better, the closure is easier but I hate the clip in system. Convetec is easy but that click think is horrible on Coloplast! I cannot just burp the pouch for gas it is a trip to the bathroom to deal with the whole thing! I had the bright Idea to change everything over to Coloplast and now I am stuck! I will go back to the Convetec unless I get used to these. Hate to give that pouch up! 

Leaks will be the deciding factor! Above all else! That is what makes or breaks it for me! 

Puppy

Reply by Gemd, on Fri Jan 11, 2019 8:42 pm

I'm on Hollister opaque one pieces still even though I probably get a leak a week.  I tried convatec's newer opaque bag and loved it, no leaks, but then it was just a single free sample so who knows. But new year, new insurance deductible, so Hollister is more affordable at $38 for ten bags...sigh...those nice convatex ones were almost $100! So until my chemo costs rack up and I meet my deductible, its pricey-enough leaky Hollister. Luckily my diarrhea subsided so that lessens leak frequency.

Reply by Puppyluv56, on Sat Jan 12, 2019 2:21 pm
Gem,
Call Coloplast and ask for samples of their two piece drainable pouches and one piece convex pouches and their Brava y barrier strips! ( these two piece with y strips last me 10 days each now, no leaks! ) They will send you three of each. Since you have had the Convetec one piece as samples, ask them for samples of their two piece. That will give you a chance to try some really good pouches and the price may be worth it if you are using ten times less!
Puppy
Reply by iMacG5, on Thu Jan 24, 2019 11:32 pm

I use the same system as Axix308 with very good results.  I posted "Eakin Seals or Hollister Adapt Flat barrier Rings" some time ago.  Some folks replied with helpful information.  I think it's worth checking out.

Respectfully,

Mike

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