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Posted by Cheekymonkey111, on Sat Mar 09, 2019 12:06 pm

Hi all I am due to going travelling for the first time since my illeostomy in a few weeks. I was just wondering if anyone has had any difficultees whilst traveling like airport security etc or is it pretty straight forward. Any hints and tips would be most welcome Thanks

Reply by xnine, on Sat Mar 09, 2019 1:17 pm

I use this travel certificate. . Travel is mostly straight forward. Pack twice the supplies as you need. Not that easy to find them if you run out. Look at Premium Content, lots of posts on travel.

Reply by mild_mannered_super_hero, on Sat Mar 09, 2019 3:03 pm

i travel a couple times a year. i just tell the person running the scanner that "i have an ostomy, on my left side, just above the beltline". they will pass you thru and sometimes have you touch the area ...then swab your hand for the explosives test. this just takes a few mins. no problems so far for me.

Reply by Morning glory , on Sat Mar 09, 2019 4:55 pm

Hi Cheeky, I have never had a problem with air travel or security. I was randomly picked for a pat down once. You can request to go in a private room. There is a card you can get from your ostomy nurse. This is just to show  discreetly,just in case you need to go to restroom when seatbelt sign is on. I think you might be able to download this from this site. Just be sure you travel with plenty of supplies. I had to do a change in the airport once. Lol

Happy travels,


Reply by LetsGoGolfing, on Sun Mar 10, 2019 7:24 am

Lots of good advice and traveling tips here... I fly monthly for work so I signed up for TSA precheck to avoid the x-ray scanning. You can simply tell the agent before or after you go through the scanner that you have an ostomy pouch.  They usually swab your hands or they do a light pat down.  Never embarrassing.   Best tip for flying... keep extra pouch clips in your pocket. Emptying your pouch in those tiny airplane restrooms can be a challenge.   😁. Safe travels.  

Reply by Penguins7, on Sun Mar 10, 2019 10:07 am

I have the TSA precheck and it is a breeze to get throuh security.  Make sure you carry some of your supplies on board with you in case your suitcase gets misplaced.  Stay well.  Penguins7

Reply by cruiseguy, on Sun Mar 10, 2019 1:33 pm

I would say since you have an ileostomy to stay hydrated, because air travel and travel in general can make you dehydrated. Also you may want to carry some kind of medical alert card that states you have an ostomy as well as any medicines you take and allergies you may have. This can be very helpful in a medical emergency.

Reply by Cheekymonkey111, on Sun Mar 10, 2019 3:36 pm

Thanks for all the tips and info guys. 

Makes me feel alot less worried about my up coming travels.


thank you

Reply by Puppyluv56, on Sun Mar 10, 2019 5:01 pm

Good luck Monkey!

Have not flown since my surgery but have cruised with no issues. No body scanners to go through though. Just metal and of course that is not an issue! 


Reply by NJ Bain, on Mon Mar 11, 2019 12:15 pm

  I also have TSA precheck like LetsGoGolfing and Penguins7.  I fly all the time for work.  All good advice.  I only have to tell TSA I have an ileostomy if the scanner is being used.  As said, they make you rub your clothes over your pouch and then swab your hands for the explosives test.

  Also, I try to avoid eating before I get on the plane depending on how long the flight is.  My output happens about 4-5 hours after I eat so I try to time it so it doesn't fill up when I fly.  Also, chewing gum will cause a little bit of gas and you might notice some extra air in your pouch.  I chew gum anyway and I usually stand to empty my pouch on the plane if I have to use the plane restroom.



Reply by Sdp85, on Mon Mar 11, 2019 10:43 pm

Make sure to bring extra supplies. If carrying on your luggage, pre-cut your wafers, they don't allow the scissors. The new heat sensors they have instead of metal detectors will sense the bag but it's no big deal. Tell security what it is. They will take you aside for a quick test where they run a paper over your clothes looking for chemicals. It takes a few minutes so give yourself extra time. They never asked me to show my bag and this was all done over clothes, it's not invasive. 

Reply by GraphX12, on Mon Mar 11, 2019 11:11 pm

I pack ALL my ileostomy supplies (including extras) in a fishing tackle box and ALWAYS carry it on the plane with me. They can lose my luggage but they CAN'T lose my supplies. My doctor wrote me a letter stating I need these supplies for my medical condition. I've never been denied any liquids, scissors, etc. that I have in my box.

Oh, and I always have people in the airplane ask me, "How was the fishing?" LOL!

Reply by paulaAZ, on Mon Mar 11, 2019 11:35 pm

I travel quite a bit domestically in the U.S. and internationally.  I also have TSA precheck and unless I am being scanned, I do not say a word.  The scanner will pick up your bag, the walkthrough detector will not, so I just say something if I am being scanned.  And as others have said, just tell them you have an ostomy and it is a matter of having your hands swiped after you pass your hand over your clothes where your bag is located.  I also pack extra supplies in my carry on; the majority of the supplies are in my checked luggage.  I do not have to change my appliance very often at all (strange for an ileostomate, but I am extremely fortunate) ... so what I take in my carry on will usually suffice should my luggage get lost.  So adapt to your particular circumstances but definitely plan in case your checked luggage does get lost.  Happy traveling!  

You can get the blue card that indicates you are an ostomate on the UOAA website at



Last edited by paulaAZ on Tue Mar 12, 2019 8:22 am; edited 1 time in total
Reply by snugger, on Tue Mar 12, 2019 8:18 am

I tavel often but my replacement knee sends alarms off. I am TSA but ran into a very new TSA person who insisted I remove my belt . I mentioned to him I had a bag but he wanted belt off. I agreed to remove belt if he would clean up the poop off the floor. His next step..." We need a supervisor at ck out 3" Issue resolved by supervisor. Now the same TSA person is very plesant to me.  

Reply by GraphX12, on Tue Mar 12, 2019 8:38 pm

Thank you for posting the blue card link paulaAZ!

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