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Blockages

 
Posted by Past Member, on Wed Apr 03, 2019 8:53 am

Okay my peeps, the doctors can’t figure this out so I’m asking the experts. 

I got my permanent colostomy on August 22, 2018. At first it seemed to work fine. I don’t eat much so when my out put developed a pattern of no output for a couple of days followed by regular output for a couple of days with what felt like pretty significant gas pains in between I didn’t think much of it. 

In January I was hospitalized for my first true blockage and I’ve been fighting them ever since. I’m on a completely liquid diet of four protein fortified fruit smoothies a day. The doc said solid foods as tolerated but every thing solid that I eat causes a blockage.
I experience excruciating pains about two inches above my belly button and about two inches below my zyphoid process, so dead center.
I’ve had ct scans that are clean, so it’s not a new tumor but the doctors can’t decide if it’s in my small bowel or my transverse colon.
I’m waiting to get in with the gastro specialists and already know they’ll be doing an endoscopy and a colonoscopy through my stoma.
In the meantime I’m living on fruit smoothies and suffering enormously whenever I try solids.
When I get the blockage symptoms there is absolutely no output (even gas), I’m in agonizing pain and start vomiting repeatedly. I can’t keep down water and am unable to stand up straight because of the pain.
That pretty much covers it. Any ideas or anyone who’s had a similar situation?

 
Reply by ron in mich, on Wed Apr 03, 2019 9:17 am
Hi Sparky that sounds like my last bout with a stricture that barely let fluids through and it was caused by years of crohns that left my ileo. almost totally blocked so I had resection surgery done last april. Good luck I hope the figure it out.
 
Reply by Past Member, on Wed Apr 03, 2019 9:20 am

Thank you for the reply. I’m thinking along similar lines although I’ve never been diagnosed with ibs. I’m a Stage III rectal cancer patient and that’s why I ended up with the colostomy. 

Thanks again!

 
Reply by Past Member, on Wed Apr 03, 2019 9:24 am

How did they find your problem?

 
Reply by withed, on Wed Apr 03, 2019 3:11 pm

If you do eat solid foods, what do you usually eat?

Maybe you ate something you deem harmless? For example I threw away a package of coconut cookies this morning. Apperantly I get small blockages and cramps from eating coconutfibers.

 
Reply by Xerxes, on Thu Apr 04, 2019 12:15 pm

Sparky,

I'm sorry about what you're going through. I'm sure the endoscopy and colonoscopy will reveal the cause of the blockage. The fact that the scans are negative is a good sign. I hope you're better soon.

 
Reply by Cat6, on Mon Apr 08, 2019 5:07 pm

Hi, I also had a lot of pain and no output for couple days followed by lots of pain. Docs attributed it to constipation. However, new gastro dr. saying it sounds like IBS symptoms and prescribed dicyclomine 20 mg. A muscle relaxer for guts not muscular skeletal so I don’t feel like Gumby after taking....and I find they work really well. Maybe you could suggest to your doctor and see if it’s an option for you. 

Most sincerely,

cat6

 
Reply by Gwen, on Mon Apr 08, 2019 5:23 pm

It sounds like a small bowel obstruction, probably caused by adhesions (scar tissue from surgery). These are tricky, because adhesions themselves can’t be caught on a scan, but I would think they would see a small bowel obstruction on the Ct. 

the symptoms line up with what I have had several times, all ending in trip to ER for pain meds, only thing that would help, and inpatient with NG tube because of the vomiting. They would put me on liquid diet u til my bowel recovered. I would see if they will do a CT enterocolysis, a scan in which they put an NG tube down nose and throat, and release a contrast though the tube, so small bowel is really easy to see on CT. 

 

With them happening so frequently though

 
Reply by Gwen, on Mon Apr 08, 2019 5:25 pm

Don’t be afraid to push doctors for answers though, since it is happening so frequently and affecting your quality of life so much. Make them exhaust their options until you have an answer

 
Reply by VeritasSeeker, on Mon Apr 08, 2019 5:34 pm

I have an ileostomy, so what I'm about to describe probably won't apply, but I could be wrong!! I've had several blockages that have cleared on their own. I know I have one when it starts to feel like a pulled groin muscle and then I realize I haven't had any output for several hours. I then walk and do position changes and it'll clear after another hour or so. Sometimes more like 5 hours. My surgeon told me to "self dilate" in the shower every 3-6 months. So I put on a latex glove and slowly insert a finger. Very strange the first time....very strange! But no blockages since. IF I were you I would ask a doc first obviously. I used to work in the medical field so I get suggestions that some others may not. Feel better.

 
Reply by Rider1000rr, on Tue Apr 09, 2019 12:56 am

Did you have any Issues after your resection. I am having mine in May. Trying to figure out what to expect

 
Reply by Sammie, on Tue Apr 09, 2019 1:03 am

I had a clostomy in 2004 and have gone through the usual encounters and DVT since 2012 brought on by agressive chemo. I have had occasional blockage with crampimg a few times over the years but I also have a few diverticulitis pockets that caught granola, nuts, etc but these episodes eventually irrupted out my stoma with a pressurized mess.  However recently I had a totally blockage after a heavy diet of highly dense oriental food. I was also sleeping on a very hard surface and in different motels for a few weeks. My experience was very similar to Gwen's. I was hospitalized 3 days with an NG and eventually a contrast CT that was like a barium enema that broke loose the blockage and gave me relief. The DO thinks likewise that prevous scar tissue was the blockage cause. Very painful but you get through it. You have the answer. Keep the Faith !

 
Reply by fordf65, on Tue Apr 09, 2019 1:03 pm

hi sparky, have the same problem except for the puking. had colon rectal cancer in 2003 and resulted in a colostomy. then again in 2006 similar operation for polops. started gettin the pains around 2010, had a few colonostmies and a down thw throat thing a gall bladder check and a few other things i can't even remember.  was told its scare tissue and drink a lot a water.  what i do now is i take a stool softner every mornong with a glass of orange juice. i stay away from starchy foods.  i limit myself to dounuts,cake,pancakes,bread and any of that sort. i can eat most any meat, but get this, i can eat thin french fries and medium cut is a little tricky,but steak fries gives me the pains every time. my theory is if you trow it at the wall and it sticks, stay away from it, if it slides down the wall your chances are better it will not clog you up.  its at the point that i can look at some food and say no way. i still get the pains every now and then but not as bad as i used too. and don't go lifting heavy stuff, and keep from bending over to much. i take excedrin extra strength migraine headache pills for the pain when it happens. i also was able to get social security disabilty for this because some days i just couldn't go to work. i do find that some days i just have to sit and relax and don't do a dam thing.  to much activity can irritate the thing. also tried miralax and all that other colon cleansing stuff and didn't work. i hoped this helped you a little bit.  bob

 
Reply by Dunja, on Wed Apr 10, 2019 11:01 am

Morning‼️ Man I finally was lucky to get a blockage, Not‼️But 7 yrs after my illiostomy. I’ve been told to use enemas monthly to prevent. Never eat nuts by the way. Bad choice. As for food to eat. I’ve eaten tons of mashed potatoes, rice, & applesauce. Crazy as it sounds I also eat a small bag of salt-n-vinegar chips. It might help. Also in your smoothies make sure you are not useing fruit with seeds or skins. Such as Blueberries .Hope this helps. Wish all goes well for you‼️💐

 
Reply by HeyHey, on Wed Apr 10, 2019 1:40 pm

Hi Dear,

I have an ileostomy and have had blockages. Certain foods I avoid: dried coconut and sprouted mung beans (the bean part).

Here is what gets me through: 

Juices: coconut water!!!! tomato juice !!!  orange juice!! chamomile tea.

Hot baths: massage back, curl legs toward chest. heating pads in bed.

Imagery: imagine output like water coming out of a fire hose

Prayer: send an email to your family and friends and have them do the same imagery and see you feeling fine

Body work: pelvic floor physical therapy, myofascial abdominal massage. Someone with experience working with old scar tissue.

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