Okay my peeps, the doctors can’t figure this out so I’m asking the experts.
I got my permanent colostomy on August 22, 2018. At first it seemed to work fine. I don’t eat much so when my out put developed a pattern of no output for a couple of days followed by regular output for a couple of days with what felt like pretty significant gas pains in between I didn’t think much of it.
In January I was hospitalized for my first true blockage and I’ve been fighting them ever since. I’m on a completely liquid diet of four protein fortified fruit smoothies a day. The doc said solid foods as tolerated but every thing solid that I eat causes a blockage.
I experience excruciating pains about two inches above my belly button and about two inches below my zyphoid process, so dead center.
I’ve had ct scans that are clean, so it’s not a new tumor but the doctors can’t decide if it’s in my small bowel or my transverse colon.
I’m waiting to get in with the gastro specialists and already know they’ll be doing an endoscopy and a colonoscopy through my stoma.
In the meantime I’m living on fruit smoothies and suffering enormously whenever I try solids.
When I get the blockage symptoms there is absolutely no output (even gas), I’m in agonizing pain and start vomiting repeatedly. I can’t keep down water and am unable to stand up straight because of the pain.
That pretty much covers it. Any ideas or anyone who’s had a similar situation?