Have neurogenic bladder for 3 years. Intermittent catheterization caused too many infections and pain. Now have suprapubic catheter for 6 plus years. Suprapubic catheter is now causing constant bladder spasms and infections, despite bladder medications and several rounds of Botox. Saw new urologist, he is suggesting radical cystectomy with ileal conduit. He said the infections are messing up my kidneys and can cause them to fail. I'm at my wits' end and scared. Botox several different times, anti-spasm medications (oxybutynin, Detrol, Myrbetriq) all cause constipation. Urologist says, "You need to take care of your kidneys." I also am diabetic type 2.
Why Join MeetAnOstoMate?
First off, this is a pretty cool site with 33,450 members. Get inside and you will see.
It's not all about ostomy. Everything is being discussed.
Many come here for advice or to give advice 🗣, others have found good friends 🤗, and there are also those who have found love 💓. Most of all, people are honest and truly care.
Privacy is very important - the website has many features that are only visible to members.
Create an account and you will be amazed.
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Hollister
Are you a caregiver for a child with an ostomy? In the summer months, this can become more challenging, thanks to heat, humidity, water activities, and travel plans.
Learn more about caring for children with an ostomy on vacation.
Learn more about caring for children with an ostomy on vacation.
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Hollister
Your stoma doesn't have to get in the way of sampling local cuisine and activities when you're on vacation.
Check out our travel tips on diet and fitness.
Check out our travel tips on diet and fitness.