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Successful Reversal

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Posted by JD90, on Tue Jun 18, 2019 2:06 pm

It's been awhile since I have posted but wanted to give everyone an update on my reversal.  I had my reversal done on 12/4/2018 and it's been a little over 6 months since the surgery.  I am doing well and feeling better each day.  The surgery was a success and I never had any problems with bowel control.  At first I was going 3-4 times a morning but now I have 1-2 BM's in the morning before work and fine the rest of the day.  Each day it seems like the BM's get a little easier.  I am on a high fiber diet to keep things moving along each day.  My only complaint is that a damn little internal hemorrhoid that must have never fully healed while I had my colostomy for 3 years is back and bleeds from time to time.  Other than that, I am happy I went along with the surgery.  Doc said it will take 6 - 8 months before I really feel well, so I just keep on trucking. 

I hope my success story helps ease some minds that are considering having a reversal done.  I read a lot of horror stories but I kept a positive mind and will continue to keep a positive mind and hope I feel even better after 8 months, 1 year, 2 years and so on. 

 
Reply by Sasquatch, on Tue Jun 18, 2019 4:36 pm

Congrats, if you're getting 1-2 per day that is in the rockstar category my surgeon talked to me about when I was trying to decide which route to take.  Modern medicine can do wonders these days!

 
Reply by Angelicamarie, on Tue Jun 18, 2019 5:01 pm

That’s great news!

 
Reply by Puppyluv56, on Tue Jun 18, 2019 7:34 pm

Great News! Congratulations! Thanks for sharing your positive news. Some Ostomates have a chance to go back to pooing normally! They only hear the bad stuff! Yours sounds as if it is the best ever!

Conntinued good luck! 

Puppyluv

 
Reply by Bagface, on Tue Jun 18, 2019 9:18 pm

I also am one of the lucky ones who has had a successful reversal. Mine was done on February 5th. I don't have a colon now, but I can pretty much eat what I want,except rich or greasy food! I feel great. Even though I go about 5 times per day, I find it "doo-doo"-able!

 

 

 

 
Reply by Bill, on Wed Jun 19, 2019 2:34 am

Hello JD90. Thanks so much for sharing your story as it is refreshing to hear of the successes. Thanks also to Bagface for joijning in and sharing his own good fortune in this regard. 

Best wishes

Bill

 
Reply by Bagface, on Wed Jun 19, 2019 9:42 am

Bill! Hope all is well with you!

 
Reply by JD90, on Wed Jun 19, 2019 1:19 pm

Best wishes to you too Bill.

 

Sasquatch, if you are considering having a reversal done, go for it.  My surgeon told me that if my health turned bad again, I can always have another operation to have a colostomy again.  So if you're surgeon tells you the same thing, then you will have a piece of mind knowing that you can always turn back to a bag if need be. 

 
Reply by Sasquatch, on Wed Jun 19, 2019 4:34 pm

To late for that now, I had my rectal stump removed at the end of last year.  I was skeptical about my body adjusting to it, besides, I didn't want the extra surgeries involved with it.  I handle the bag well, so I stuck with it.

JD90 wrote:

Best wishes to you too Bill.

 

Sasquatch, if you are considering having a reversal done, go for it.  My surgeon told me that if my health turned bad again, I can always have another operation to have a colostomy again.  So if you're surgeon tells you the same thing, then you will have a piece of mind knowing that you can always turn back to a bag if need be. 



 
Reply by Kirsty12, on Fri Jun 21, 2019 6:52 pm

That’s great glad to hear your ok. I had my reversal on 17/6/19 so still sore any tips on coping with pain to get a comfortable nights sleep x

 
Reply by izipizi, on Sun Jun 23, 2019 12:59 pm

Wow great to hear your great news .I am scheduled for ileostomy reversal soon. Nervous of course. How long before you went back to work?I would like to get back to work as soon as possible.

 
Reply by dadnabbit, on Sun Jun 23, 2019 11:12 pm

Bagface, I was interested in your comment that you had a successful reversal even though you have NO colon.  Was your entire large intestine removed ?  My entire large intestine (colon) was removed and my surgeon??? stated that a reversal would be unsuccessful because without a large colon I would constantly need a bathroom.  I have no faith in him (very long old story) so I found your success very interesting...

Dadnabbit

 
Reply by Bagface, on Mon Jun 24, 2019 7:33 am

dadnabit-After I had surgery for toxic megacolon, I was left with a small stump of colon, so basically I have no colon.I had an ileo for 6 months, then the reversal. At first I was running to the bathroom 10-12 times a day. Now I go around 5 times a day. I steer clear of rich and greasy food. Stool is always very soft. I've read stories of people who have had their entire colons removed and still had reversals. Seeing as you have no faith in your surgeon, I would definitely seek out a second or even third opinion. I was very fortunate to have a good, experienced surgeon whom I refer to as my guardian angel!

 
Reply by Bagface, on Mon Jun 24, 2019 7:35 am

Dadnabit-I'll be interested to hear how you make out. Good luck!

 
Reply by dadnabbit, on Mon Jun 24, 2019 3:33 pm

Bagface, Thanx for the info.  My issues at this point stem from lack of faith.  I went into the hospital with a blood clot in my leg.  Two botched surgeries from vascuolar and being fed meds that I refused because of a history of causing severe diarrhea and bleeding from antibiotics.  The reaction brought in colon/rectal surgeon after I refused them, but they were administered secretly via IV telling me it was nutrients.  Multiple (14- I think) transfusions later they told me I had C DIFF and precancerous cells and needed surgery.  There was NO c diff and NO precancerous cells, but these FACTS were not available to me until AFTER I was able to get my records.  He took my entire colon (inflammed from meds) a right ovary (THOUGHT he saw something, there was NOTHING, it was healthy) and a gall bladder with a tiny .2mm stone (needing no attention and causing no issues) He had the pathology that verified the reality, withheld it from me and ignored it. At this point he was looking to cover his butt.  I now have an enormous incisional ventral abdominal hernia with three loops of small intestine looped up into my stomach.  He insisted THAT was NOT a hernia, but my PCP insisted on a CT scan and verified what it was.   I refused to see any other surgeon at that time--trust issues.   The original c/r surgeon is no longer practicing at the same hospital but he still practices and the discussions and ideas of lawsuit go on and on.  Statute of limitations do not apply to four class H felonies and rape (rape-using a position of power and authority to take something from an unwilling victim)  in this state. I did not bother with malpractice because hospitals/surgeons here are VERY WELL protected here.  The hospital is just as liable as they insisted he get me to agree to surgery because I was in ICU for 10 days (which became 22 after his surgery), even though the hematologist refused to sign off on a surgery.  Quite the mess.  SOOOO, I'm short of trust and haven't left my home in the past five years except for doctor's appts and legal advice.  I am getting better about people and I do still entertain the thought of reversal so your success really interested me.  I think I'd go anywhere for a surgeon I trusted.  Building that trust is the hard part, especially when considering the legalities surrounding my already existing situation.  If ever I'm able to sincerely believe in a surgeon again, the first thing I would do is a reversal at which time the hernia can be fixed. Until then, I'll just stay in my small little world and ignor the butts out there.  Glad it went so well for you (and just slightly jealous !!)

Peace

Dadnabbit

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