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Elective Colectomy/Ileostomy?

Posted by zanzi1, on Sun Jun 30, 2019 2:29 am

Just curious, do you still have constant pain or didn't you have that with UC

Reply by Ruppy08, on Tue Jul 02, 2019 5:41 pm

I wouldn’t say constant pain, but definitely pain every time I use the restroom and then abdominal pain off and on throughout the day. 

Reply by Ruppy08, on Tue Jul 02, 2019 5:52 pm

Than you bryancohnracing! I appreciate your honest response. I am so glad to hear that you're cancer free- congratulations!, but so sorry to hear about the issues with your bag that you have been dealing with! That is definitely one thing that I am afraid of- that I'll wind up with the same issues, just in a different location. However, I really like what you said at the end. I feel like if I don't try, then I'll always wonder...and who knows, maybe it will work out. And if I do try and it doesn't work out, at least I tried.

Reply by Jennie, on Fri Jul 05, 2019 10:55 pm
I have Crohn's. Getting an ostomy was not elective for me. What are your options? I delayed mine for a while due to fear, but was at the time in enough pain that I eventually decided it was best to have it. I have never regretted, even with the nuisance of it.
I have a lot of gas, so not sure I can help you with that one.
Reply by Jennie, on Sun Jul 07, 2019 5:07 pm
NJ Bain wrote:

Miss Nicole,

  There are so many factors to consider with having ostomy surgery.  Definitely continue to do your research and that includes finding a good surgeon and an ET nurse.  Several of the members here had to have emergency ostomy surgery and a lot of us chose it electively.

  I myself chose to have the surgery at 23 years old.  I was diagnosed with Crohns Disease at age 14 and attempted to manage it with medications until I couldn't take it anymore.  In and out of the hospital for flare ups, 6 different types of medication 3-4 times a day, no social life, school was hell and working was even worse.  Luckily, I had a job that worked with me and there were no issues.  The internet was just becoming popular so there was no real way of finding information other than support groups, doctors, ET nurses, etc.  But now, you can look up anything and everything there is to know about ostomies.

  I was stuck in the hospital for over a month due to abscesses but everything was SOOOO much better.  I no longer had to be on medication for Crohns, I was no longer in pain or had to worry about not making it to the bathroom in time.  It gives your sense of control back.  After a few months, I was better than my old self.

  It sounds like if you elected to have the surgery, you would probably get an ileostomy.  They would perform a total or subtotal collectomy to remove your colon.  The stoma would probably be on the right side of your abdomen.  Out of the hospital in 1-2 weeks, back to normal after about 4-6 months depending on how well/fast you recover.  That is best case scenario.

  You also have to confer with your husband.  How will he feel about you having the appliance.  All in all, you have to do what's best for you.  I'd be happy to share any other information with you.  If you have any questions, please let us know.

 

Bain

 

That was very supportive, Bain.  Good for you!  Jennie



Reply by NJ Bain, on Mon Jul 08, 2019 12:13 pm

Thanks Jennie.  I try...lol

 

Bain

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