Reply to kittybou
Kitty,
So many of us were ill prepared for realities - even those , who like me, spent many sessions of hospitalisation in the run up to the collectomy - which in my case I fought tooth and nail not to have ...... and then having healed so very very well, and having deepline feeding to make one strong enought for a schedulled final surgery. I personally underwent massive challenges when perforation of a section of gut - unsavable - happened before the SCHEDULLED THEATRE
..... Even after all that 'preparation' .......
I was not prepared for consequences that followed.
In fact in my case. it was the intellectual understanding, when undergoing my final treatment of deepline feeding and other preparation for surgery was all in plaace - IT WAS MY OWN EXPECTATION, an intellectual acceptance - resignation in other words - that could, IN NO WAY HAVE PREPARED ME FOR THE HEAVY CHALLENGES THAT ACTAULLY FOLLOWED.
But, not withstanding any chapters of ones journey, there are STAGES OF RECOVERY AND GENUINE GRATITUDE - AMIDST FRUSTRATION that EVOLVE!
The CONCEPT OF EVOLVEMENT - IS PART OF LIFE - in that respect, nothing changes - we LIVE OUR JOURNEY!
POstive motivational attittude, stiff upper lips, and much tanacity gets us through to live the good bits, excell, and learn to love the less good so that we may help ourselves and others.
What I am trying to say here - veryy ineptly, is, IMHE it seems that whether we - historically had long chronic illness - with good periods - or not - OR WTHETHER WE HAVE AN EMERGENCY SURGERY WITHOUT ANY PREPARATION - when final surgery happened ....... rather as you suggest, the Weakened Patient - whether so called prepared - or not, IS IN ACTUAL FACT .... emotionally, and I will repeat EMOTIONALLY UNPREPARED ...... even when we think, that intellectually we are informed - well motivated - doing all the "right" or "helpful" things !
SO I TOTALLY AGREE with your comment Kitty Bou- from the point of view that "NOTHING HAS REALLY CHANGED".
Clearly there are exceptions with a few enlightened physcians and indeed some attuned surgeons, but it is my belief, that until such a time as PATIENT CARER FAMILY AND MEDIC RESOURCE SITES become more inclusively ACCESSIBLE, there is little real opportunity for change within Hospital or Private Clinic environments.
BECAUSE
At the end of the day - it is the Human Story that helps, through empathetic exchange to grow a more gentle understanding.
And it is within these environments - such as here - and elsewhere , where sharing takes place, where there is likely CHANGE in active sense, - for in sharing we foster that change - gradully, by degrees.
And so it seems to me that those folk who host such environments as MAOstomate and invest in Site developemnt - with related resources, who will actually facilitate the difference.
It is up to us You, me , and ALL folk who interact , it is our willingness, to learn, and to expose our own vulnerabilities - BUT WITHOUT PLAYING THE VICTIM - It is the very Membership who ARE, LIVE as we all key our words and thoughts, RIGHT NOW - it is US who COLLECTIVELY aid change over time.
Thank You Administration and the developes and investors who facilitate our exchange today!
I do so very much hope, that this site - as others, are able to continue to evolve - especially with develpment of resources within AI applications which WILL I BELIEVE AID OUR PERSONAL ONE OFF SHARINGS TO BECOME THE EVOVEMENT FOR POSITIVE CHANGE AND GREATER INTEGRATION ....
Just perhaps, as the death of the search engine as we know them , and the integration of the Nuro processor - maybe then, truely, things may change - for AS WE ALL CONTRIBUTE THEN SURELY CHANGE WILL EVOLVE - BUT just PERHAPS IN THE FINAL ANALYSIS MORE humanely, nothwithstanding the integration of machine learning!
KEEP UP THE FACILITY PLEASE - for we are ALL GRATEFUL FOR IT
Thanks,
Jayne