Hi all, I'm new to this site although I have had my ileostomy for 18 months now. Just to bore you (hopefully not too much), I was diagnosed with cervical cancer in 2008 and after having chemo and radiotherapy, I also had to have brachytherapy. Unfortunately, the brachytherapy caused 2 complex fistulas, although not until nearly 2 years after the treatment. This left me doubly incontinent. The pain from the fecal incontinence was unbearable, so I was taken in for emergency surgery in January 2011. The ileostomy was 'in a dip' due to massive weight loss (4 stone in less than 4 months), so I have always had problems with leaks. So that's what happened. My question (and confession) is that in 18 months, I haven't changed the measurements on the bag. I struggled to deal with the fact I had a bag. So, does anyone have any tips on the best way to do it? I struggle to look at the stoma and would never dream of touching it. I'm sure people think I'm daft, but I am where I am and I know that in the long run, it's got to be done.
Sorry for the long post, but that was quite cathartic.
Why Join MeetAnOstoMate?
First off, this is a pretty cool site with 33,504 members. Get inside and you will see.
It's not all about ostomy. Everything is being discussed.
Many come here for advice or to give advice 🗣, others have found good friends 🤗, and there are also those who have found love 💓. Most of all, people are honest and truly care.
Privacy is very important - the website has many features that are only visible to members.
Create an account and you will be amazed.
Advertisement
Hollister
Read our tips to help you prepare for air, ground, or cruise travel with a stoma.
Advertisement
Hollister
When traveling, you need to pay special attention to your unique needs, issues, and potential hazards.
Learn about special travel considerations for your ostomy type, so you can be worry-free.
Learn about special travel considerations for your ostomy type, so you can be worry-free.