3 members & 5 visitors
I am new to this forum. I had an
ileostomy for one year and just had it reversed in
August of 2014. I am having a difficult time
and would like to meet individuals and have them
share their experiences with me. I am
seriously considering going back to the bag as I
definitely feel that my quality of life was
better. I should have done more research on
my own. However, my surgeon explained as if
it was a simple: five to six BMs a day
controlled with imodium a...
Problems with ileostomy
I've been having problems with my ileostomy for
well over a year and been in and out of A&E
with severe abdominal pain several times. The
A&E doctors only seem concerned that the stoma
still has output. It stops working while I'm
having the episodes of pain but there is always
eventually some output. Once output resumes I'm
treated as a pain management case and turfed out
I'm taking Oramorph when in pain, Ondansetron
for the constant nausea and Lyrica twice a day.
Need help for my mother ... emergency ileostomy and reversal
Hi all. My mother was recently in a head on car
accident (oct 03 '14) in Spain - visiting from the
UK for a friends birthday - and it resulted in her
having some of small bowel removed under emergency
conditions due to heamoraging, I am here to find
some advice for her.
She now has an ileostomy from this surgery (05
oct). After about a week in ICU she is now in a
*normal* room with her husband staying there.
She has been told she can have a reversal with
in the next week, this...
Ileostomy reversal - unsure what to do
I have just joined this site and thank you to
everyone for their candour and support for each
i hope you can help me. I have had acute
Crohn's since 2000 when I turned 30. I am now 43,
have 2 children (miraculously) and had an
ileostomy bag put in 4 years ago. I did
suffer from the anal fistulas and fissures ,
incontinence, cramping and severe pain.
Constant hospitalisations, inability to work
and function meant host I had the bag.<
I now have consta...
Vicodin and ileostomy blockage?
I am 1 year post-op after my ileostomy surgery
I had performed at the Mayo Clinic. I still have
daily pain from the hernia involved - most days
are manageable but some days are very painful.
After my surgery, the Mayo Clinic told me I cannot
take Vicodin for pain management because it will
cause a blockage. I had a particularly painful
weekend so I saw my local GP doctor this week and
brought up this issue. He sees no reason I cannot
take Vicodin - the only side effect might be a
Getting an ileostomy - please help
In 2008 at the age of 20 I inherited a
neurological disorder that caused 15 daily BMs and
a constant fecal smell. Other than nerve problems
of the internal sphincter, my health & fitness
In July 2013 I got an
elective sigmoid colostomy. I still smell like
feces and have been severely bloated since
surgery. I'm very lean and barely eating but have
a huge stomach most of the time. Its extremely
uncomfortable, to the point where I can barely
sleep at night. I irrig...
Hello all you good people out there --
Has anyone had to have an ileostomy because of
Radiation Damage? In January 2012 I had a major
operation for Cancer. The operation was successful
and the tumour removed from my womb. THEN I was
advised to have Radiotherapy just in case?? ---I
had six weeks every day Radiotherapy and started
to complain of symptons from the second week.
Uncontrollable diarrohea, abdo pains etc but each
time told they were just side effects and would
subside in ti...
Ileostomy patient for 2 years
Hello. I wanted to get some feedback from
any people who have an ileostomy and have
had any issues with proctitis.
If you have had this, please let me know any
treatment(s) you tried and the outcome.
Ulcerative colitis surgery (permanent or temp ileostomy?)
Hiya everyone. I am soon to have surgery for
ulcerative colitis. I'm just very confused which
surgical option to choose.
- I can either choose to have a total colectomy
with removal of rectum and anus and have a
- I can have a j-pouch formed and have a
temporary ileostomy while it heals and then have
it reconnected later on.
- or if undecided they said they can leave the
rectal stump, remove the colon and then decide a
year down the line whet...
Constipation?!!! and ileostomy
the last few days I have had this horrible
feeling the way that I felt pre surgery when I had
constipation. I have been taking tramadol due to
abdominal pain and Im wondering if this could have
caused constipation. Is it possible to have
constipation with an ileostomy?
Ileostomy and very wet,,,need help!!
<p>Hello dragon2 (griffin); but its his mum
JULIE POSTING THIS!!</p>
<p>I need some help and ideas about griffin,
he has to drink so much to be hydrated that at
night he is so wet urine that we have not had a
dry night yet!! I was very angry the other day
when someone said to griffin" i think u
should stop drinking at 12 pm and then u
will be dry during the night,",,i didnt know
this person had said this so i thought WOW he dry
we may be getting somewhere,,...
Ileostomy and the new toilets
I have an ileostomy and my stool is pretty much
all liquid. Recently did some home
renovation and put in an American Standard low
flow toilet. I didn't realize the new
toilets have a different compound in the
ingredients that prohibits mold, mildew, stains
and such from building up. It's about
time! However, due to the extreme
chemicals in liquid stool, they are not compatible
with the new toilets. You can't use the old
fashioned cleaners in the toilet, or you'll...
Incredibly sick after ileostomy reversal
Hi all. Been a while since I've
posted. On March 4th I finally went in
for my reversal. Since that time I've
been incredibly sick. I've lost 10
lbs. My nausea has been the worst ever
and I've got constant abdominal pain (not surgical
pain but gut pain). To top it off,
unlike most who undergo a reversal and suffer with
diarrhea, I am incredibly constipated and unable
to go. I was just hospitalized again
for extreme dehyd...
Hi everyone! Just had my reversal 3
weeks ago. I woke up with a huge hole
in my belly but is healing up pretty
good. I guess its the new thing not to
sew you up and let it heal from the inside
out. I have a hard time looking at it
but my husbands takes the flashlight and likes to
look into my belly. YUK! I
am pooing 8-14 times a day and my butt hurts. My
stools are small like finger size and smaller but
shaped like a triangle...
Just got my ileostomy yesterday. And oh my stars!
It is noisy! I hate it! When air passes through
it, it literally startles me because it's so loud!
And it's so embarrassing! I don't see myself going
out in public with this noisy thing... EVER! Does
anyone have any tips/suggestions for
How often will I have to empty my ileostomy per
day? I know it's different for everyone, but
hoping to get a general idea. Also, will I have to
set my alarm at night to get up and empty it
several times a night? I have surgery March 21,
2014 to get an ileostomy. I am not thrilled. :-/
26yr old with an ileostomy; success story :)
I've not been on here for
such a long time. Last time I was on here my
boyfriend was facing the prospect of stoma surgery
back in the summer, and now here we are, 5 months
later, with a very special little friend we've
affectionately named "Rocky".
Having Rocky in our
lives has changed everything. Mostly, I'm pleased
to say, for the better. My boyfriend has adapted
to life with an ileostomy amazingly well, with
very few down d...
After ileostomy surgery
I am 9 days after surgery. Nothing could have
prepared me for this. The pain, not feeling well,
the constant trips to bathroom. Its hard work. I
have had leaks and dont know why. Not being able
to do much for myself. They kept telling me in the
hospital "your doing great, your doing
great". When I got home totally did not feel
like Im doing great. My ostomy nurse ordered me
supplies and now I have so much stuff I dont know
what is what. I am extremely overwhelmed and feel
Need guidance - getting a reversal for my loop ileostomy
Hi all. It's been a while since I've written. I am
happy to say I've been given the green light to
proceed with an ileostomy reversal but I'm nervous
as hell. I've tried to find input from
others on this site but find there's not much out
there on reversals. Looking for any
advice from those who have experienced a
Hi everyone, serious newbie here.
I am due to have an ileostomy in a few months
time. I have had a stoma for about 15 yrs due to
having an ACE button. But having an ileostomy bag
is scaring me to death, although I know it's going
to make my life easier and hopefully I will be
able to start going out and about again and not be
tied to a loo for hours on end!
I was just
hoping if anyone can tell me the sort of things to
expect after the op..whilst still in hosp. And
Does ileostomy output have mucus from digestive tract.......
in it like normal bowel movements do?
still have 90% of my colon and was wondering if
mucous from the digestive tract is also present in
ileostomy output like it is in regular bowel
I know ileostomy output has
digestive enzymes NOT present in normal bowel
movements that make it corrosive to the skin
should your bag explode or leak. So, when the
output comes in contact with your skin, it thinks
its "digesting" it so it gets all red
New to site, new ti ileostomy
hi, i just wanted to introduce myself and ask a
Ive recently had surgery
and have been left with (i hope) a temporary
colostomy, im still trying to recover from the
surgery and having a lot of concern about living
with a bag. i know it will be difficult at first.
i work full time, but have been off sick for 6
months already. im extremely concerned about how
this will effect my work, i work in close
proximity to lots of people and have reservations
regarding the noise/smel...
Preparing for final part of ileostomy reversal
I joined this forum recently
in search of people to talk to who have already
been through a reversal of the colostomy bag. I
myself have undergone the first part of the
reversal, and i'm due to have the second part at
the begining of june. I'm looking for advice on
ways to prepare for this, mentally and physically!
I also welcome any questions people may
have about what i have gone through so far and
Discoloration of ileostomy
I noticed this morning that I have a
discolored area at the opening of my
ileostomy; it is a small brown/gray
area (not discolored from any residual
There is no pain or any other
Irrigation if not ileostomy
Hi my name is
neil I have a colostomy since August 2013 I have a
large lump its hernia which is causing pain
and discomfort and leaks the surgeon said he will
fix the problem wants me to irradiate if that dont
work as my colon ant in great shape he will give
me a ileostomy dont know how well irrigation will
work or how much more work a ileostomy is if you
can help with anything<
I have had an ileostomy since last april due to a
small bowel resection, they took about
feet from me. I am wandering about a
reversal, wandering if they will be able to do it.
doctor was worried about adhensions. If any
one has any suggestions I would love to hear
Is an ileostomy reversal at 5 months too soon???
Hi all. Looking for feedback from
anyone who has had a reversal or is being
considered for one. I am 3-1/2 months
post ileostomy and my surgeon has said I am a
candidate for a reversal. He wants to
scope me next month to make sure everything
"looks good and healed" and if it does
he plans to do a reversal in March which will put
me at 5 months post
ileostomy. Originally he told me six
months minimum so this caught me off
Ileostomy and salads
Fairly new to this site, not too sure
if I am in the right place, just wanted to know if
Is any info or what is every one's take
on salads, that seems to be the one thing I miss
Not eating, has any one here ate them and if
you had any problem like with the lettuce. Thanks
for any input.
I am new to this, so I will tell my story and then
see what comments are made. Ok, well
back in 2011 I was diagnosed with cervical cancer
so I started chemo and radiation. I had 35
radiation and 4 weeks of chemo and also 4 internal
radiation. went back to work felt fine even thru
2012. well Jan. 3 2013 my stomach started hurting
severly went to dr they thought it was gall b
ladder so they took it out. well I still was
hurting so I ended up going to another hospital, I
was there 9 week...
Worried - slow output from ileostomy
It's been a while since I've written and here I
find myself again looking to you all for
advice. For the past 10 weeks since my
surgery my stoma has produced a consistent
flow. However, now in my 11th week, I
barely have any output for the past 5
days. I don't have discomfort or pain,
I just don't seem to have much output yet I'm
eating more now than before. I should
mention my stoma is recessed into my belly a bit
and my skin is not good because of th...
Back pain since ileostomy
So, I posted once before about the constant back
pain I now have since surgery. Well, at my second
follow-up I brought it up to my doctor who
"assured" me that he's never heard of
such a thing. Am I just crazy or aren't
there plenty of you out there who now suffer with
back pain. I should mention I have an
ileostomy. Needless to say, Christmas
shopping has been just about impossible because of
the back pain.
Open colostomy reversal and new temporary ileostomy
short: On April 20, 2013 my
colon perforated due to
diverticulitis. I arrived by ambulance
to the hospital already in full blown septic
shock. I was in the operating room for
5 hours and then transferred to ICU on life
support. My family was told that if I
was alive in 72 hours I might have a chance but
they should hope for the best and prepare for
Hello my Ileostomy bag keeps filling up with water
been doctors they gave me dirolyte and immoduim
but nothing working. Can someone help me please ?
I had the ileostomy
reversal a month ago I am still feeling a lot of
rectal pain and am trying to control my
elimination but often have accidents
daily. Does anyone know how long it
takes to stop hurting and to get
control? I kind of feel like I have uc
again. I'm glad the ostomy is gone
Back pain after ileostomy surgery
I have never suffered from back pain until
now. I am now 4 weeks post op and find
the littlest amount of walking and/or standing
causes me terrible back pain. Even when I'm
sitting down I must prop pillows behind my back to
avoid the pain and discomfort. I'm wondering if
anyone else had this problem
post-op. I'm hoping this is maybe
because I had a large incision cut down my
belly. Any input is
Rectal pain and pressure post ileostomy
I'm four weeks post op today and am having the
worst day yet. I've had occasional days
of rectal pain and pressure which has usually
meant I need to pass some mucus and once I do I
have relief. Well, today starting
around 7am I have been in constant pain with
pressure and can't get any relief. I've
tried a couple times to sit on the toilet and see
if I couldn't push out some mucus and nothing is
coming out!! I am
miserable. The only thing gi...
Recent ileostomy and passing stool from my rectum - worried
Once again I am turning to you all for
advice. My surgeon had told me that
once in a while I might find that I pass mucus
from my rectum even a small amount of
stool. He did remove about 1/3 of my
rectum but said I still have enough of a
functioning rectum that this could
occur. Well, in 3 weeks since my
surgery I have now passed stool 5
times. This seems crazy to
me. It's always a small amount but
still I really don't get how it's happening...
Me again. I keep writing because I find
myself so lost in this whole
thing. Question for anyone out there
that has undergone ileostomy
reversal. I've been told if all goes
well and I heal well I should be able to undergo
ileostomy reversal in 6 months but before that I
will have to successfully complete a defecating
proctogram. Because my rectal muscles
don't work real well I did not do well taking this
test prior to surgery. I'm wondering
Hi. Had my ileostomy 10 days ago and
struggling with my output. Doctor and
ostomy nurse say I should have output of 800cc's a
day and I'm having about 400cc's a
day. Doing my best to follow the low
residue diet and drink plenty but can't seem to
increase output. Should I be
concerned? Any advice is appreciated.
Possible hernia after ileostomy surgery
Looking for some advice. Had ileostomy
surgery 11 days ago and now that I am home have
noticed a bulge to the left of my stoma which is
quite painful. I should mention I had
this bulge after surgery but the sharp, burning
pain began two days ago. This area is
very tender to the touch and hurts
considerably. Every where else pain has
diminished significantly. Should I be
concerned about the possibility of
hernia? What symptoms shou...
Open skin wounds developing around ileostomy stoma
I have had my ileostomy since 1991 when I was 19.
I am now 42 and have started having open wounds
develop on the skin immediately surrounding the
stoma starting about a year ago. I have never had
this occur in all these years. These wounds are
not being caused by any excoriation issues,
changes in skin care products, my hygiene routine,
etc or anything else I can possibly think of. I am
a registered nurse and have very good hygiene and
take exellent care of my stoma and use
Night drainage for ileostomy?
I purchased a urostomy container so I can plug it
into my ostomy and empty at night. I think the
tubing is too small and it won't work.
Are there night drainage devices for an
Ileostomy and food
Hello does anyone know what food to stay away from
or what is good. I only had this done so I am all
new to this.
Hi I just had the ileostomy but im finding it
leaking. Is this normal ?
How do you gain weight after an ileostomy?
Hi - I guess this is the correct forum to ask post
this. My husband has bilateral
nephrostomies, a urostomy, and now an ileostomy.
He hates Ensure, Boost, Special K breakfast drink,
and Carnation Instant Breakfast. I've mixed them
with ice cream and fruit and he just can't take
stand the taste of them anymore. I've been trying
to get him to drink two or three milkshakes each
day - today was whole milk, vanilla ice cream,
powdered milk, three mini 3 Musketeers bars, and 3
tbsp peanut b...
Spinach dip after ileostomy
I know that cooked spinach is a bad idea with
ileostomy, I was wondering if anyone had tried
spinach dip? There is some in the fridge and it is
looking very good.
Possible hernia symptoms with ileostomy
I have ostomy on my left lower abdomen. For the
last year I have been experiencing a burning
sensation from left hip bone to left edge of
ostomy. No pain but the burning at times is very
uncomfortable. I have a nice size raised area
underneath the sticky portion of my wafer hence
making the wafer on the left side pull away from
my skin and having to change it. I seem to be
changing it every day where as before the
'hernia', I would change every 5-7 or 10 days. I
have a GI appointment at Walter R...
Ileostomy and colonoscopy
I am scheduled for a colonoscopy on Thursday and
pretty confused. I still have my colon,
but due to abscesses on my colon and a fistula, I
was given a (temporary?) ileostomy. Trying to get
a correct diagnosis. My question is:
why do I need to do this movie prep and fleet
enema when my colon should be empty from all the
testing they did in my two week stay at hospital.
Also, can anyone advise me on what I can
eat that won't go right through me so fast. I eat
Ileostomy and kidney stones
I've had my Ileostomy since November 2005.
Everything has been going fine with the Ostomy
EXCEPT. I seem to have reoccurring kidney stones.
Has anyone else experienced the same problems? I
drink plenty of water and try to watch what I eat
but I still keep making them. Right now I have a
stone (size of a peanut) in my right kidney. My
Urologist just completed blasting and
clearing my left kidney with a stone about the
same size. We are getting ready to start working
on the right kidney...
Ileostomy reversal- successful...positive....a must read
Hi ...i had a emergency ileostomy done in feb
2012. I was on life support and in a coma in icu
for over 4 weeks.
It was a shock to wake
up with this bag hanging off me....they said they
could do a reversal....in a few
Well a few months turned into
15 months....because i had a infection and plus
the surgery was scheduled 4 times and
cancelled....twice by the doctor..to put a
emergency in my spot and twice i made it to the
operating room only to have it cancelled becaus...
Total proctocolectomy with permanent ileostomy.
Can it be reversed? Ive searched and searched for
any info on it and i'm coming up with
nothing. I'm OK with living with the
bag I just didn't know if maybe sometime down the
road i wanted to reverse it, I could? Anyone know
anything about that?
Medications with an ileostomy
I am on quite a few medications, including several
that are timed released. After asking my
pharmacist, I found out that most of them are
absorbed in the colon. Since I no longer have
a colon, I am very concerned that I am
not absorbing enough of my meds. I see the little
white balls of medication just released in my
Do any of you have this
problem? Have you had to have any of your meds
'compounded'? My pharmacist has helped very little
and I thought since t...
Ileostomy due to fap- additional issues
I had my colon, rectum and anus removed due to a
diagnosis of FAP, but now they are saying that I
have hundreds of polyps in my
Is there anyone
else on here who has FAP and any problems with
their duodenum? I'm trying to figure
out my options but the surgeon I spoke to seemed
clueless when I mentioned the PSD surgery over a
Whipple. It was rather frightening to
see that I might know more than a surgeon. But
thankfully I am not opposed to trave...
Ileostomy / urostomy
Hi all i have ileostomy since 1981 now i have been
told i need a urostomy!.Has this happened to
hi some1 must be to give me some advice, i had my
operation september 2010, i get phantom poo pains
on a daily basis but the last couple of weeks i
felt more severe cramps and
pain. usually just mucus would weep
from my bottom but now it seems its actual poo in
my passage, i have tried to strain but the pain
worsens and gets un-bearable and bleeds, has any1
had this problem? if so what did you do?,,,,
awaiting any advice
3 months into an ileostomy, have questions
Have a temporary Ileostomy which is scheduled to
be reversed in January. I've had a bunch of
problems with leakage, ended up going with a
Hollister wafer for low profile stomas along with
high tension on the ostomy belt and that really
seemed to help.
After that I started
having issues with leakage between the wafer and
the bag. Started using superglue to hold them
together and it worked with minimal results then
tried ostomy paste and so far no
Still having some leakag...
Ileostomy reversal after having bowel obstruction
I struggled with bowel
obstruction for about 10 years and after plenty of
operations to remove obstructions I ended up with
an Ileostomy. Is there anyone here that
has had a similar thing happen to them and what
are the chances of reversal?
I have had my ileostomy for three years now and
still have not gotten used to it. If I eat after
2pm in the afternoon I am up all night having to
empty my bag or in fear that I will have a break
because a thicker consistency will break through
the barrier. This ensures that I only eat once a
day really and I am constantly hungry. Also, I
have yet to figure out which product will work to
make sure I don't have breaks due to thicker
output and how to ensure my skin around the stoma
is not sore and...
Gall bladder removal and ileostomy
I'm considering having my
gall bladder removed, and would welcome any
information from ostomates who have had this
I have an ileostomy (no large
colon at all) and am interested to hear others'
experiences of how the constant flow of bile
affects digestion and output etc.
anyone has any tips on how to avoid gall bladder
removal, that would be brilliant
Ileostomy output - very inconsistent texture!
Ileostomy due to rectal cancer surgery here - just
4 weeks in. Still getting used to
Some days it's like peanut butter,
but for the past 2 days it's been complete
liquid. I know this is based on what I
eat, but I had lots of pasta yesterday so I'm
worried about the output.
MAJOR MAJOR gas
too! I'm going to try the marshmellow
and BEANO advice you've all given
Is it always going to be
inconsistent textures like this?
Loop ileostomy revision? is this possible?
Hello ostomates! First time posting,
but I lurk some on this
I have to say that I
did search for this subject on here, but couldn't
find anything specific for a temporary loop
Quick story: my
colon came out in November in an emergency surgery
after 11 years of ulcerative colitis. I
had an end ileostomy that I could deal with until
this past surgery in August - where they
constructed my J pouch and loop ileostomy. ...
Ileostomy reversal question
I had C.diff for over 4 years
and had tried every medication that was avaliable,
I had 2 fecal transplants, and it was starting to
effect other parts of my health. My kidneys were
only functioning in the 70%s and I was retaining
over 20 lbs of water, I couldnt sleep, I couldnt
go out, I was constantly on the toliet. I had seen
many different GI specialists and Colo-Rectal
surgeons and they had me tested for other things
just to make sure they werent taking me colon out
New to ileostomy
Had my ileostomy five months now, just begining to
get my head around it.
I live near Lincoln
and would love to chat and share
Ileostomy - scar tissue and pain
About 8 months ago, I (ilostomy
'09, proctectomy '11) started hgaving some
intermittent, occasional pain to the right of my
ostomy (about 1 to 1.5 inches from the
Saw GP who seemed to ask the
right questions and said it was probably muscle
related (ostomy working fine). I had had a
particularly active few months ... so with my poor
abdominal strength/muscles, his diagnosis seemed
Slowly got worse. Pain is worse
(knife like) and now hurts with...
Post ileostomy stomach flu- like sypmtoms
I had an ileostomy in 1976 at age 28 for
ulcerative colitis with no after effects. I know
how lucky I am. In my early 30's I went to Europe
and got terrible stomach or what is left of my
small intestine pains, with vomiting and liquid
output. I lost about 10lbs in weight due to fluid
Nothing signifant after that until
I was in my fifties and now I continue get this
intermittently. It is really painful and lasts
about ten days each time.
Has anyone had
a similar experience...
Colonoscopy preparation with an ileostomy
I am having my first colonoscopy this week and I
have an ileostomy. I dont understand
why they have mailed me the golightly and pills to
take after I heard that someone with an Ileo
should never take laxatives.
dangerous to drink a gallon of that vile demon
So i have an ileostomy
July 3 i seen my dr for a check up every-thing is
ok . After exame he gave me my opptions
bsp; 1) do nothing
nbsp; 2) remove rectum stump sew up
Hi I am an almost 23 yr old female who just had to
have her colon removed for having severe C.Diff
for over 3 1/2 years and it was causing major
problems causing my kidney function to go down to
low 70's and exreme water retention around 15
lb's. I was wondering from other people who have
had there colons removed how much weight they have
lost in the 3 weeks after surgery. Different
doctors have given me way different numbers but I
just wanted to know from some people who actually
had the surger...
1st date after my ileostomy
Hello all I have had my little friend since
December 2011. I did think it was hard enough
finding a fella as a single mum but this makes
things that much more harder.
I met a
guy on a dating site so have had the chance to get
to no him and him me before meeting. Well the time
has come to bite the bullet and will be going on a
date tomorrow night. The only thing im worried
about is telling him about my stoma and have said
from the start that I would tell who ever I go out
with about it ...
Anyone with an ileostomy done slimming world/low carb diet?
I have recently been
told that my bowel resection/reversal is likely to
be in September this year which is earlier than I
thought. Great news but less time to lose weight
before surgery. surgeon says it will make things
easier - want to lose weight gained recently in
any event. In the past prior to ileostomy and
gastro problems had a lot of success with Slimming
World which essentially for those who don't know
focuses on excluding fat, sugar and refined carbs
eg white b...
Ileostomy & dehydration
Hello all! I need some advice. I have had my
ileostomy since 10/11 & we are just now
getting into the heat here in the South. I was at
my daughter's softball tournament yesterday &
it was about 90 degrees here in Georgia. I drank
ALOT of water & Gatorade yesterday & also
ate fruit, but was really dehydrated & zapped
from the sun yesterday. I am afraid that I have
seem a glimpse of things to come for the summer
& I want to know if any of yall have any magic
potions or tips...
I have had an ileostomy (Crohn's related) for 9
months now. At the start it recessed, then a few
months ago began protruding, now is about 15cm
out. But at nigh when lying down, it often
retracts all the way back.
have read about a surgical technique using a
stapling device, where the surgery lasts 15 - 30
minutes and it is done under
Anyone experienced with having
such a prolapse repaired? If so, how was it
repaired and did the repair last?
I am angry, embarrassed and I don't
Whenever I have been to see my GI
doc, who I have seen since 1988, and love him
dearly, I'm asked how I'm doing, number of poop
runs per day, eating, you all know the routine. I
have always answered very honestly. When I'm asked
about " any problems you have?",I tell
him yes I have stomach cramps, chills, a squeaky
sound on my right lower quadrant after I eat. I
cuddle up with my pal the heating pad and a cup of
hot tea u...
A pooh and an ileostomy
I have had Norman for 2 1/2 years now and appart
from the occasional urge to pass mucus which I was
pre-warned about, have this week been for a pooh
twice!!! It is real pooh, the same colour as it
used to be, and I am quite concerned. My stoma is
working but at the same time this has happened??
I have had stomach aches a bit like the
old monthly pains and my back has been hurting but
why is this happening. I thought that when I had
the ileostomy the tube was cut and one end was
Ileostomy reversal finally done
I was a newbie to the site last year
when I underwent an emergency Ileostomy and the
doctors were surprised that I had no prior
symptoms or illness other than the ones I
presented them with on the day. I
havent been too good this last few months so
havent been online much.
I spent nearly
two months in hospital from July 1st last year, I
felt abandoned by my gp and dietician and
gradually over the months I lost two stone in
weight and by the end of it I couldnt ...
Medication and ileostomy
Surgery a few weeks ago reconnected my colon
eliminating an colonostomy but resulting in a
temporary ileostomy. I've been seeing my
medications (full pills) spilling out of my bag.
I've switched to liquid ibuprofen and
acetaminophen which seems to be attacking the
pain- but other meds don't come in liquid
I'm wondering if others have had
this problem and what if anything you've done to
ensure the medications are getting digested. I'm
also concerned that vitamins are being lost too...
Weight gain after ileostomy
sp; first time posting, I have an ileostomy
since xmas eve 2009. (emergancy surgery). I am 55
year old female and live in Australia. I have
gained 30kgs since then. Cant seem to loose any
weight, getting a bit depressed about it. Just
wondering if anybody else has had the same
problem. If you can help me please let me know.
Prostate biopsy after ileostomy
Have any males had to have a Prostate biopsy after
their rectum has been removed and if so, how was
Can you wear your ileostomy pouch sideways?
I was wondering if anyone has any experience with
wearinig their pouch sideways. I use a
two-piece pouch system. My stoma is
located in a kind of different area - pretty much
in the front/center of my abdomen, just to the
right and above my belly
button. Therefore, the pouch hangs
pretty much down the center of my body from just
under my bust to my crotch. Normally, I
wear long blouses to cover past the bottom of the
I was t...
Ileostomy reversal, i will let you know how it goes
Guess I will start from the beginning. 2 1/2 years
ago I had a sudden onset of abdominal pain which
got worse over 48 hours. Having no insurance
coverage, I held out as long as I could before
going to the ER with the abdominal pain and no B/M
for over 72 hours.
8 hours after
arriving in the ED, I was in surgery and 12 hours
later I had a colostomy.
I will give a
blow by blow in later posts but after an
unsuccessful attempt at reversal last September
that resulted in an ilesoto...
Ileostomy, diarreha and metamucil
Here's my question does any one have the first two
condition's and do they use
Metamucil? I was just wondering if I
should start using the Metamucil again, would it
help with the diarrhea and or what other benefits
that I might get from using it.
Thanks a bunch
Who has both an ileostomy and ileal conduit?
I have an ileostomy since I was 18. Now
at 72 I have been newly diagnosed with bladder
cancer which quite possibly will result in radical
surgery...the removal of my bladder and
reconstructive surgery after proscribed
The end result may be an ileal
conduit or urostomy.
I would welcome talking
with an OstoMate who has both.
Information on ileostomy reversal
So in March of last year, I had surgery to have a
total colectomy with end ileostomy. I was told
that since it was a final determination of
ulcerative colitis, that I could later on have a
reversal if I wished. I'm looking to get
information from anyone who has had this done, or
knows someone who has, to get information
regarding this process. I know that if I do have
the reversal done, it will be a two surgery
process, first to create a small pouch with part
of my small intestine, and the secon...
Hi everyone! I am new to this kinda thing!
So i had my operation last August due to
severe ulcerative colitis. I was wasn't suffering
very long and the fact i had a major operation
very quickly was a bit of a shock! I had to have a
sub total colectomy and an ileostomy. So far
everything is going ok luckily enough! I have a
choice of getting the ileostomy reversed later
this year. The surgeon did mention to me that it
was a more difficult operation & there are
complications that can...
Hello, all. I'm so happy I've found
this website! My mother who is 79 had
surgery last October, and most of her large
intestine was removed. She now has an
illeostomy bag. Since Mom doesn't own a
computer, she doesn't have access to any kind of
support group, so I'd like to ask a few questions
on her behalf.
She has been hospitalized 3
times since her surgery, due to blockages in
what's left of her small intestine, which is
How long can you live with an ileostomy
?i have had an ileostomy for 51 years. does anyone
have any information on long a person has lived
with an ostomy? Also, any information about
conditions that are caused by having ileostomy for
so many years would be appreciated.
Watery leakage every morning - ileostomy done 1 yr. ago
I have a question that I am hoping someone can
answer for me. I first had a
"straight-thru" (small intestine hooked
directly to anus) sub-total colectomy done in
2009. this didn't work out for me
because I was having 15-20 bowel movements per day
with lots of "butt-burn." I
decided that I had to have an ileostomy and had it
done in Nov. 2010. Actually ever since
the sub-total colectomy I have a "morning
Dating with an ileostomy - any advice
hi. i have had my ileostomy for 2 years now. I was
single before my operation and have 2 lovely
girls. I would like to meet some special,
I have tried dating and obviously
have had to tell potential new boyfriends. I found
that very hard as I cant really come to terms with
They have been reassuring that it
makes no difference.
Why do I feel after
telling them I am not good enough, begin to feel
they dont really like and iv put
Diabetes & ileostomy
Does anyone have ileostomy &
Diabetes? Difficult to stay on a
diabetic diet because of foods cannot tolerate due
to the fiber. Any suggestions? Would
like to talk to someone like me.
Two-piece ileostomy bag
Does anyone have problems with making the
underneath part of this bag (the part that
attaches to the skin) last 3 days like they're
supposed to? I do!
nurses/doctors say that seeing a white line around
where the bag is fitted after a day is normal, but
I think It's a constant worry, because after just
hours of having a fresh one on, it feels as though
it's going to crinkle or tear. So I check it out
and ruin the seal to make sure it fits well enough
to last 3 days.
Drinking with an ileostomy
Due to recent events in my life, have been feeling
the need to go out and get absolutely
previously I have only had a
glass or two of wine with dinner (and had no
problems) was wondering if I have a few
more (and I'm talking the
hard liquor lads here...Jack, Jim and Jose!), that
my ileo will freak out and not be able to handle
I am not planning on making a habit
of it, but am in serious need of becoming...
Urostomy and ileostomy
I just have been diagnosed with recurrant bowel
cancer, my question is has anyone got a ileostomy
and a urostomy. this might be a question that will
have to answer to if i get the option after my pet
scan results. I would like to make an informed
choice on this matter.
If i'm lucky enough to
get this option. As it is ,i will be getting my
whole pelvis cleared. Will it be worth it? Can
anyone help me? PLease suzy
Colostomy reversal, hernia repair and new ileostomy
I need some advice on what to expect and
encouragement. I have crohns disease
which was very active in the decending colon and
rectum. I had a permanent colostomy formed and my
decending colon and rectum removed with the hope
that it would cure all my problems. My
remaining tranverse colon was deemed to be
unaffected by the crohns. That surgery
was two years ago and since then the crohns has
appeared in my remaining colon and I also have a
severe parastomal herni...
Weight gain after ileostomy?
Can I ask what others experience has been with
weight gain (or lack thereof) following an
I had my Ileostomy coming up
to a year ago (it will be a year in May). This was
after suffering from an acute attack of Severe
Before the illness I
was about 75 kgs. I'm 5 ft 9, so I wasn't a muscle
man to start with, but was a fairly respectable
After the operation and a
combination of the illness, loss of appetite and
NHS food I was down...
New with concerns about ileostomy
My doctor, a colorectal surgeon, has recommended a
temporary ileostomy for puborectalis contraction
and constipation that have resisted other
treatment for years. I'm trying to seek out ALL
the information I can beforehand. I want to be
prepared particularly for the smaller details I
should expect. I want as much of the stress and
shock as possible over with while I'm not sick
either from a colon prep or surgical
I'm sure I'll think of more,
but right now I've got three top co...
Surgery to remove rectum, post-ileostomy.
I have to have one last surgery to take out the
rectum (can't leave it due to cancer risk) as I've
decided not to re-attach. Haven't had
any issues since my ileostomy 4 years ago and
don't really want to go through the recovery and
possible complications of re-attachment. The main
problem is that I am healthy and have to go in for
surgery which will make me feel
crappy. It's easy to go in if you're
sick because the point is to make you
better. This will make me b...
Flying in the uk with an ileostomy?
What are others experiences of
flying in the UK with an ileostomy?
specialist assures me it is safe to fly, but why
do I get the feeling you have to have been there
to really know what it's like?
to fly next month (internal flight) but am a bit
concerned about security checks - presumably my
device will show up on the bodyscanner - am I then
asked to step into a door for further
I have a card from Charter
Child with ileostomy ?
Anyone on here got a child with an Ileostomy ? My
son is 13 and had his when he was 11. We dont know
any other children with one and we just muddle
along and get on with things. Im worried about his
growth, he is tiny. He is nowhere near puberty and
all his mates are now big strapping youths with
deep voices, spots and attitude ! The doctors
assure us puberty will come but it will be years
behind everyone else. Im also worried about how he
will cope when girlfriends come along and all the
Dumped because of ileostomy
I have just joined this
site. Not sure how it quite works yet.
I have a ileostomy and I am
single. When I seem to meet guys and
you tell them you have a Ileostomy they quickly
Just wondering if anybody
else has this problem?
Help with eating and appliances for a permanent ileostomy
Hello all. I am new to this and would
like to introduce myself and my
concerns. I am the fiancee of a 46 yo
man with a permanent ileostomy. He was
diagnosised with colorectal cancer last
Feb. He underwent chemo and radiation
to shrink the rectal tumor, but it was not
affective and the cancer spread
everywhere. He had extensive peritoneal
carcenomas. He underwent emergent
surgery in June 2010 for debulking and removal of
Ds, ileostomy and transition to adulthood
Hi I'm new to this forum and I hope you can help.
My son is 21. He has Down syndrome and
an ileostomy. In June he will be graduating from
high school. His future is filled with
opportunities for jobs and community activities.
He needs to learn how to change and patch his
wafer, so he can pursue these. I would like a
professional or paraprofessional to teach him how
to manage his ostomy. The training should be
provided by a male, in a variety of environments
so that he learns to deal wi...
Breast cancer and ileostomy
Hi: I am a 53 year old woman who has had an
ileostomy since January 1996 due to ulcerative
colitis. I haven't had too many
problems over the years expect for a few blockages
due to bad food and taking codeine for a toothache
pain. But last month (October 2010) I
was diagnosed with breast cancer. Thus
I have 2 questions: (1) I am worried
about the side-effects of the upcoming chemo, meds
and radiation treatments. Has anyone
else with an ileos...
Ileostomy to a j-pouch and reversal
Has anyone had an ileo then gotten a j-pouch made
and been reversed? I have a preop visit with the
surgeon in a few weeks and am pretty nervous about
the coming surgery. I want to know what I am in
for. I'm not thrilled about having an ileo but in
some ways its not so bad
Abs of mashed potato following ileostomy!
Ok, before my op I did not have abs of steel. Had
the mid-life lady body type where every extra
ounce went to the midriff and my activity level
would never give me a six pack. So I was middle
soft with a little muffin top.
... I definitely have abs of mashed potato. Any
other ladies (or guys for that matter) notice that
it seems as if the removal of the colon left an
'empty' space that is rather foldy and soft? Kind
of like a stuffed toy with some stuffing removed
Life after an ileostomy...
I am curious, do others with ileostomies catch
colds or stomach bugs easier after you lost your
colons? Do you fatigue easier?
because it seems that ever since I lost my colon,
I get sick much more often.
Just had colostomy converted to ileostomy
Hey, it's Maryland Gal. I had my
surgery July 13th. Surgery went well. Took 6 hours
because I had so many adhesions. My
surgeon was able to bring the small bowel through
the same hole.
I had many other complications
that kept me in the hospital for 3 1/2
weeks. Had pluracy, a lower collapsed
lung. Then found out I had a blood clot
in my leg and was put on blood
thinners. Well doctors did not know nor
did I, I had ulcers. The f...
Having surgery to convert colostomy to ileostomy. have ?'s
Hi all, I have posted before and I have
to have the rest of my large bowel removed due to
a severe stricture along with severe motility
issues which have caused me to be on TPN and do
not allow my colon to work. I know I
have to get this done in order to get off the TPN
and try to lead a more normal life and be able to
eat again. All my doctors and friends have said I
should get this done, so I will be getting my
surgery date when I see my surgeon on Thursday
July 1st. ...
Colostomy reversal now ileostomy - help!
I had an attempted colostomy reversal, they found
yet another leak and now I have an
ileostomy. I am having trouble getting
my bag on before any output and it's made the skin
below my stoma very red and raw. Anyone
have tips or suggestions?
Colostomy verses ileostomy?
Hi, I am new to the site and had a few
I had to have a
colostomy just over a year ago due to a doctor
screwing up my back. I have cauda
equine syndrome ( No bladder function and my
nerves to my rectum stopped working) Since the
colostomy I have had two revisions. For some
reason my stoma keeps closing up. The doctor tried
to put a scope through it to see what the problem
was, but they could not even get the scope in an
inch or two. I also have col...
I recently had surgery to remove my entire large
intestine, the surgeon then joined my small bowel
to my rectum. I am trying to balance
the food/liquid problem because my bum is
suffering from trips to the bathroom 8-15 times in
a 24 hour period.....ouch! Can anyone
share info on vitamins/minerals etc that might
help replace what i'm losing.
Question about changing an ileostomy appliance
I'm a registered nurse that has just
started working on a general surgery
unit. I don't have that much experience with
changing ileostomy appliances. I had one patient
the other night who's ileo appliance is always
leaking. Sometimes her appliance is changed 1-3
times in a 24 hour periord. We use eaken to fill
in any skin depression in order to increase the
seal... The problem is that everytime we change
her appliance I run into a lot of problem when
trying to clean peri...
3 months post ileostomy reversal update
I wanted to put a quick update here to let those
interested know how I'm doing since my ileostomy
reversal 3 months ago.
I had good progress for
the first 2 months but the past 3 weeks seem to
have gone backwards. I'm still in a lot
of pain and spending too much time in the bathroom
(8 - 12 x daily). I am housebound all
morning and if I need to go out at all, I fast
beforehand. Gas and cramping are a huge
The surgeon is fairly happy with
Diapers for anal leakage?? how long after ileostomy?
I am trying to find out how long everyone had to
wear diapers after their surgeries. my boyfriend
had an ileostomy and is still having issues with
anal leakage. he is still in diapers 8 weeks post
surgery. please help
Cuba & ileostomy
Hi, I am heading to Cuba in 2 weeks and
wondering if anyone travelling has had any
problems with bringing supplies and having to
explain your supplies.....Anybody with any advice
or travel tips......
Ileostomy contacts costa blanca
I am considering coming to live in Spain in 2011,
in the region of Cuidad Quesada. I am
72 and had my stoma since 1988. My
question is will I still receive my prescription
items free of charge.
I would like to
meet someone preferably a lady living in that area
who I can talk to about several matters relating
to Ileostomy. I shall be staying in
Spain, on holiday from 11th April 2010 and
returning to England on 29th April 2010
Greetings! I'm asking this question on behalf of
my husband who has been an ileostomate for 10
months now. While he's adjusted admirably, there
is one issue that is ongoing and causing him quite
a bit of stress.
It seems that everytime
he removes a bag in order to replace it, his stoma
will expand. We aren't sure if it's the air
hitting it, or if it's because he does it
immediately after taking a hot shower. The problem
is that once the stoma has expanded, he must cut a
hole in his rep...
Colostomia- colostomy /ileostomia - ileostomy
This video will help explain colostomy
and ileostomy surgery. Joy Hooper, RN,
CWOCN & Italo Santana explain the surgery in
English and Spanish. If you have any questions
concerning the information in this video, please
contact me or the United Ostomy Association of
Well friends once again I'm in need of
information. A little background, two months ago I
had to buy new jeans so I got them a couple of
inches larger than normal, next I put on my braces
to keep my pants from falling to my knees. As i
sit here now, no braces, no belt, top button open.
This started about two weeks ago after getting
some sharp pains above and below the stoma and a
circle about six or seven inches in diameter and
has swollen outward about an inch and a half, hard
to tell. can anyo...
Ileostomy - still have uc in rectal stump - depressed
Just over a month since my perm ileostomy. Have
had moderate to heavy anal discharge and thought
it was the rectum healing/weeping (surgeon left a
rectal stump) or an infection.
surgeon last week ... he's saying it's the UC in
what's left of the rectum .
I see my GI specialist
Darn - I still have to use a
heavy menstrual pad and am back on the Salofalk
suppositories. And I'll still have the
unpredicatbility of flares. Pre-op,...
Intimacy with ileostomy
I would like to share tips, secrets, anything that
helps intimacy be more alluring to
others. Dont be shy, I need answers.
Hernia prevention & ileostomy appliance support
I'm going blind (and not finding what I know much
be out there) looking at the websites -- so maybe
someone can lead me in the right direction.
I'm interested in getting a support belt. Not
one of the narrow ones that attaches to the pouch
and just holds it down better against your
Something wider (hopefully not too
cumbersome) that goes around the body, supports
the abdominal area, and accommodates a vertical
I'm fairly active
**second surgery to relocate ileostomy-whoa advice is needed
This is my third
question to this forum since I found it very
useful and so many good people offer great
As communicated before, my mom had
a TME surgery (permanent ileostomy) about six
weeks ago; currently my mom ...
Need tips for reducing feces fluids in ileostomy
= o ns =
My mom has an Ileostomy since October this
year. She have many feces fluids with any bowel
movement which cause leakage, any diet t...
Ileostomy versus colostomy????
Hi Guys ........
It looks like I will
need to make a decision before long as to whether
to have an ileostomy or a colostomy which I will
have to have for the rest of my life
.....(currently have an ileo...) I am
fortunate enough NOT to actually have any 'bowel
problems' per se as do many of you, but wondered
if anyone out there had any experience of having
both? What are the pros and cons, which is the
easiest to manage etc etc.... Also
whether or not to have my re...
Last week i had an ileostomy loop reversal,can anybods help
recently had my ileostomy loop refersal after 2
and half years of haveing a stomer bag i started
with a colostomy then i had an ileostomy,then i
had to have my intestine repaired for it was not
possible to have a reversal due to the scar tissue
blocking the flight path so to speak.last week i had my
ileostomy loop refersal,which at the moment all
seems to be well apart from servere cramps and big
Irrigation for ileostomy obstruction (blockage)
Yesterday afternoon, shortly after lunch, I was
surprised by a sudden blockage. I was so busy that
I didn't even realize that I had no output ALL
day. It was 3:00 pm. Cramping, nausea, pain, and
belly distension had me paralyzed in pain.
This was my first obstruction that was not
post operative adhesion related so I was shocked
but not scared.
I massaged the area.
Drank hot tea. Prayed. Cried. Moaned. Then crawled
to the phone, went to the pantry, grabbed a big
syringe that i...
Whats a good diet for a ileostomy?
Hi Iam new here, had my
ileostomy a yr ago, I'd like to know what we can
does anyone have a good diet to
I love salads but afraid to try them,
was wondering if anyone has, and how it worked
Pregnancy with ileostomy
I'm hoping someone can help me...I've had Crohn's
for many years and had an ileostomy done more than
10 years ago. I've recently had a complete
proctocolectomy and my husband and I are wanting
to start a family. Anyone out there been pregnant?
I've heard that fertility decreases due to the
crohn's and surgery? What can I expect during
pregnancy? Will I be able to care for my stoma
myself?Is there any special needs for extra
nutrients/diet during pregnancy?
Ileostomy with large parastomal hernia
Hello, I'm new to this site so still finding my
way, that is if my memory...what's that! will
allow me to remember where I've been before.
However despite all that I have a question
regarding quite a large parastomal hernia. I
acquired this Ileostomy as a surprise after an
operation on my spine. I was told I developed a
blockage which caused a rupture of the colon. I
did have a good stoma nurse available where I was
living when I had the operation but have since
moved house and the support I hav...
I really need help with ileostomy
Hoping someone out there can give me some words of
wisdom. I had ileostomy done 2 1/2
years ago. Due to chrones and my colon
exploding in seventeen different biopsied pieces,
I had a Very Good outlook of my surprised surgery
after a colonoscopy, mainly cuz I was no longer in
awful pain 24/7 anylonger. However, my
great mood has slowly turned into a very depressed
(even tho I fight it) and angry mood. I
have continuiosly had leaking
Rectal constipation with ileostomy
Help! I've had an loop ileostomy for 4 months
(colostomy for 10 months prior to this).
still have a small amount of faecal matter passing
through my large bowel and due to the Imodium to
slow my bowels done, I am now really
I've tried Fleet Enemas,
Microlax, Fleet Mineral Oil, Cooking Oil and water
but nothing is shifting it and I'm in a lot of
Does anyone have any suggestions?
Liver and ileostomy
i want to know if a ileostomy surgery with the
pass of time affect the liver?
i have a 24
years surgery and now the liver enzyme are a
little be high...thank you bye
Ileostomy and ms
Anyone out there with the strange combinatio of
ileostomy and Multiple Sclerosis. Am I unique?
Does anybody out there have a continent ileostomy?
I had an ileostomy in April 1983, then in October
1987 I had a (BCIR) Barnett Continent Ileostomy!
Does anybody out there have one? I was in
Mississippi and met 2 people; however, I cannot
find them? Freka and John Busan?