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Ostomy

Obtaining ostomy bags abroad

Hi all, has anybody had experiences, either good or bad, in obtaining ostomy bags when travelling abroad. I have heard you can take your own supply for a short period, but what about if somebody is staying abroad for longer periods, or even thinking of permanently relocating. Is it a case of contacting the foreign health authority to see if bags can be obtained on prescription, or bought, etc. Has any body had any issues with deliveries. Also, if some one has a permanent ostomy bag, is t...


Views: 215 Replies: 3



Belching and gas in my ostomy bag

I am experiencing large gas buildups in my bag along with large mouth belches.

This is new to me after 8 yrs running fine.

I have been eatingl ettuce salads and celery.  Is this the cause ?  Other than that I am on the same old food following the diet rules.

Anyone have an opinion or suggestion?

 

Thank you




Views: 615 Replies: 4


Ostomy surgery questions

My 11 year old daughter has been suffering from gastrointestinal issues for several years now, and recently went in for another test. From the results of this test, the doctor came out and told me that he wanted her to be admitted into the hospital to clean out her system, do a test that would show the contractions of her intestines,  and also do a surgery that would be an ostomy that would place a button on her belly button so that she could push it and it would clean her system everyda...


Views: 959 Replies: 10



Best new ostomy products!!

Safe n Simple Conforming Adhesive Seals: This is a new product that looks and feels just like Eakin or Adapt rings and are used in the same way. They look like regular rings, but they perform differently.  The Safe n Simple Conforming Seals absorb moisture and actually "conform" to the stoma (like a turtle-necking effect), which prevents leaks onto my skin and increases my wear time. I can go 7 days without changing out my flange since I started using them. *Two thumbs up*

Sure S...


Views: 575 Replies: 3



Hilarious ostomy fails

So, sometimes with the challenges that an ostomy brings we forget to do one really important thing - laugh about it.  So I want to hear some funny ostomy fails!  Here's some of mine:

 

1.  I have a two piece appliance, and here I am in the bathroom AT WORK with of course multiple stalls.  I have to pee BAD and can barely hold it (I've had three kids, what do you want?  LOL).  I rip my pants down before I wet myself and the tail clip gets caug...


Views: 619 Replies: 5



Ostomy supplies in israel

I am travelling to Israel at the beginning of June.

Where can I get ostomy supplies if I have an emergency?

Yosef

954-629-5919




Views: 299 Replies: 1


Barbie butt clothes to wear after a permanent ostomy

what is Barbie butt and can you explain this too me I am having a permanent bag put on also have a fistula. also any advice on clothes to wear that are comfortable and not visible of the bag also can I lay in the pool safely


Views: 927 Replies: 8


Ostomy pouches etc.

Hello all,   from New Zealand.
I'm probably a long way from most of you.  But I love this web site and you have all helped me so much with your great hints and ideas.  Though the  problems are the same here as the rest of the world it seems.
I was wondering if anyone uses the pouch I do. "Eakin Pelican Convex Drainable".  It's a 1 piece.  I have had a permanent  colostomy for 5 years.  And I thought...


Views: 947 Replies: 11


Ostomy deodrant

Just thought I would add what I found to be useful. Someone suggested tic tac for the pouch deodrants, I personaly do not like the over the counter products,but tic tac are not strong enough. What I found to be good is ---extra strong Fisherman's friend--, not expensive and works good. Just wanted to pass that on.


Views: 249 Replies: 0


Ostomy products in canadaa

Hi everyone. If anyone in Canada is looking for ostomy products please try Helping Hands. They are in our classifieds. They have got me up and running, dealt with my insurance company. I dont have to do a thing! They are delivering right to my door and deal with all companies. Im even getting new products from USA not available in canada yet. If u need any help please check them out. I feel like I can relax a little now. I actually feel happy for the first time in a while!! If you cant find ther...


Views: 288 Replies: 0


Ostomy belt advice

hi all, ive been reading through this sites many useful posts and im still unclear as to the use, pro's and con's of the ostomy belt.

ive been to many websites and there are dozens to choose from, Ive been nearly six weeks post op for my stoma and am starting to get out more and with a view to returning to work in a month or so.  the advice given is helpful but as an osto 'noob' im still unclear as to the benefits of using a belt.
my care nurse never mentioned anything to...


Views: 1445 Replies: 16


Ostomy website

uncoverostomy.org a website created by a young woman to rid the stigma of being an ostomate.
You might check it out. She also has a facebook page.


Views: 429 Replies: 2


Ostomy reversal

just had it a week ago and still on low residue diet  .  is it ok to get gas cramping
thanks


Views: 661 Replies: 4


Ostomy site scam alert

Just a heads up guys.......I'm sure some of you have caught on already and are hopefully warning others, but just in case

  BEWARE....Looks like "glorylunama4u" is a fraud and sending the same email to every man on this site!!!!!!   DON'T BE SCAMMED MY FRIENDS......so sad there are such scum in the world.......      &n bsp;     YOU SHOULD BE ASHAMED!!!!!!


Views: 3196 Replies: 33


Ostomy reversal

I had my colostomy five months ago. My doc says now is time for the reversal surgery but I'm more than a bit worried. I'm 72, 25 pound overweight but otherwise in good health. Surgery itself scares me but I'm mostly concerned about post surgery. I keep reading about loss of control, leakage, mad dashes to the toilet, diaper pads etc.. Maybe I'm better off with the bag?
Advice, suggestions, experiences  needed so I can make an informed decision.  Thanks heaps!


Views: 484 Replies: 1


Ostomy

I had an ileostomy 2 months ago. The surgeon did an ileal conduit, using a section of ilea for a conduit from the ureters to the stoma. My question is this: After 78 years of carrying poop, this piece of Ilea is now carrying urine. How can it adapt from the chemistry of the poop to the chemistry of the urine?




Views: 459 Replies: 4


Ostomy products questions

I read about this product by 3M "Cavilon" No Sting Barrier Film. I've had my ileostomy since 1990, due to uncontrollable ulcerative colitis. When changing my wafer, I have used Bard Protective Barrier Film, but have had a problem with leakage and having to change the wafer every 2 days, instead of every 7 days. This has only been going on for the past year. What I did like about the Bard product is that it left the skin sticky, when dry, so better for the wafer to adhere to.  ...


Views: 376 Replies: 2


Free ostomy supplies

i recently had a hernia repair and had to switch products. in the search for something that would work post-op i got quite a few samples from several makers. i ended up with quite a bit of mixed supplies that i no longer need. if anyone wants them i`ll ship them to you free {usa only please}. would prefer to give them to someone on here . just send me your contact info and i`ll send them to you. if you cant use them, then you can pass them to someone who possibly can.


Views: 475 Replies: 1


Alcohol / beer bad for someone waiting for ostomy reversal?

Hello all this is my first post here, i am 25 years old, when i was 23, i was robbed and shot point blank in the stomach, i woke up with 37 staples and a colostomy bag, i was initially promised a reversal 4 months after my stomach wound healed up, the doctor lied to me so many times i really dont wanna go into it

i have taken all tests required to do a colostomy reversal and i am good to go, besides the fact i no longer have insurance, and the minimum they want to start is $27,000 Cash ...


Views: 1328 Replies: 8


Greetings - advice sought on upcoming ostomy reversal

Greetings all.  I stumbled across this web site last night and would really appreciate any advice from the community here on a potential upcoming ostomy reversal.  This is my first post here and I apologize in advance for the length.

I’m ~6 weeks out of the hospital from emergency surgery that involved: removal of a (non-cancerous as it turns ou...


Views: 1535 Replies: 10


Shoulder surgery with ostomy

I am having major shoulder surgery in a few weeks. I have had a continent ostomy for over 30 years. and besides the obvious stress about the surgery, pain, not being able to move or work, I am very concerned about handling my ostomy. It requires two hands to intubate and irrigate and the doctor does not want me moving anything other than my wrist. I have yet to figure out how I am going to manage that! No one in the medical community where I live has any e...


Views: 804 Replies: 6


Ostomy, reversal to permanent ostomy!

Hi, I had my lg intestine removed in Feb. of 2013 was given an ileostomy in May it was reversed. I had major problems with the reversal, it should have never been reversed and I think my surgeon knew that. Now I am headed back for a permanent ileostomy Jan. 22, 2014. Never thought I would be relieved to have my ostomy back again, I have been through six months of torture!


Views: 1323 Replies: 10


Wright & filippis will only supply ostomy products thru

I heard today when I ordered my supplies that Wright & Filippis will discontinue with ostomy supplies at the end of December 2013.  They will be directing all their customers to Edge Park.  Does anyone have any feed back with dealing with Edge Park for ostomy supplies?  Thanks.  Penguins7


Views: 1781 Replies: 18


A great ostomy supplies site

I just wanted to pass along a site that I frequent a lot for my ostomy supplies.  They have a large selection and low prices.  Not the slickest web site though.  I would like others to share sites that they know of too.  I am finding that more often my insurance does not cover the supplies I want to try.  Thank you.

http://www.bestbuyostomy.com


Views: 732 Replies: 5


Needing help with ostomy supplies

Hi, I was wondering if anyone knows of any organizations that might help ostomates get ostomy supplies? I have three ostomies that i need bags for (1) is for my ilieostomy (2) is for where the doctors tried to put a j-tube for feeding me in 2002 but they didn't make the tract long enough and the hole drains a liquid substance that has a horrible stinge so I have to wear an ostomy bag over it to catch the drainage and (3) is where the doctors had a j-tube for feeding me and they pulled the tube o...


Views: 556 Replies: 1


Dating with an ostomy stories

If you've been on the dating scene since undergoing your ostomy surgery, what kind of dating experiences have you had when you told a prospective romantic partner about your ostomy? How and when did you choose to disclose? What was their reaction and how did it affect you?

I think it would be interesting and helpful to have a dedicated thread for real life dating with an ostomy stories. If it's positive it gives others hope and inspiration, if it's negative we can encourage and uplift e...


Views: 2124 Replies: 8


Dating with an ostomy stories

If you're single with a bag or were single with a bag (but now paired, partnered, or married) what kind of dating experiences did you have when told a prospective romantic partner about your ostomy? How and when did you choose to disclose?

Let's get some interesting reading and discussions going about dating with an ostomy. Please chime in with your story!


Views: 829 Replies: 4


Young gay guy with ostomy scared of future

I am 28 and gay with an ostomy bag. I feel like the only one, even though I know there must be others, I don't know any. I am concerned that I won't be able to find anyone who will date me because I have a bag. The possibility of ending up alone scares and depresses me. I truly want a partner and family one day and I just feel that people may discount what I have to offer simply because of my ostomy bag.


Views: 4952 Replies: 34


Tattoos near my ostomy


     HI all, triesd to post this in the forum but for some reason I could just not get it to work!<

>

    & nbsp;Im quite keen to get a tattoo incorporating my scar. The problem i have is that its right near the edge of the bag, only about a couple of centimeteres space. Was wondering if anyone had any ideas on what I could have done? And if youve got pics from because you have one then I would love to see them! Thanks<

>

Views: 1916 Replies: 7


Ostomy reversal question

I was asked by my colo-rectal surgeon if I would like to consider a reversal?? Think about it, he said.
I have a cecostomy for more than 6 years now and still open the other end. I have 3 ventral hernia repairs in my belly and one at the sygmoid area. All repaired with mesh.

20 some years ago my colon perforated because no one was able to diagnose that I had diverticulitis  and I was getting constant issues, so the perforation and peretonitis, to...


Views: 1058 Replies: 4


New unused hollister ostomy supplies - $375

I HAVE 18 NEW UNUSED BOXES OF HOLLISTER 14908'S SKIN BARRIERS- FLOATING FLANGE & TAPE'S & 9 NEW UNUSED BOXES OF 18003'S DRAINABLE POUCHES. THE COMBINED RETAIL COST OF THEM WAS $1378.53. I AM ASKING TO GET $375 FOR ALL OF THEM COMBINED.













Views: 1048 Replies: 3


Exercise and your ostomy

Is this lack of energy part of Crohns and IBD diseases? even when i know the benefits of exercise.

I was feeling non-energetic this morning and my plan was/is to ride my BMX to the local shopping plaza. I also find during exercise when i've taken a break, when i'm about to start again i feel really non-energetic, then i'm ok once i get going.

Mentally, i'm ready to exercise, i want to exercise, i really love getting out there. I think extreme sports are the best. I am concer...


Views: 2544 Replies: 20


Ostomy questions


     Hi<

>
     I am 225 lb  51 year old female with an ostomey    my doctor will not do the surgery unless i loose 25 lbs.  did anyone else have to lose weight before they got the reveral.  my doctor is dead set against it because of complications and he said if i lose the weight he can do it laproscopicaly  <

>

&nbs p;    its going on a year in sept....


Views: 1106 Replies: 10


Thankfull to the community and ostomy reversal

I want to thank everyone in this page; my journey into the ostomy world was made a lot easier by those writing here. I am sure you know, but I want to really say thanks. I can say most of what has been making my life easier was learn on this site. I hope someone will find this story helpful
I had an obstruction april2012 and after a month of struggling and 20 pounds less l...


Views: 1010 Replies: 2


Ostomy belt

I had a illiostomy and am going on my 6th week after surgery.  Can I wear the ostomy belt now?


Views: 611 Replies: 1


Ostomy supplies

I am losing my insurance coverage at the end of the month and am looking for ostomy supplies.  I have a colostomy and have no source of income so am looking for cheap or free supplies.  If anyone has any ideas please let me know.  Thank you.


Views: 1383 Replies: 10


Hi new to the ostomy world

Hi I'm getting an ileostomy done on the 29th are there any tips or advise u guys can give me


Views: 1649 Replies: 12


Socializing your ostomy bag

I have had an ostomy bag since last October and one of the things that really bothers me is when I go to someone's house for dinner or a get together with other people.  When the need comes to "burp" the bag I get extremely stressed out as I don't want to smell up their bathroom.  I have the Hollister two-piece system with the filter (which I don't think too much of either and usually put tape over it), and it also makes a lot of crinkly noise....embarrasing! Does a...


Views: 2703 Replies: 14


Making a flat ostomy wafer into a convex wafer

Help!  How can I make a flat wafer into a convex wafer?  I have tried to build it up, but then my stoma does not protrude enough an it leaks under the wafer.  Results, red, blistered skin!  Thanks!


Views: 1075 Replies: 4


Ostomy men in north bay

Hi, I'm very interested in meeting and dating a good man who lives in North Bay, Ontario.  I am so very new at dating.  I promise I am not at all boring.  I love to cook, and I love food, I even know how to clean fish. I've heard that this is important to men in the north.  I am a smoker (of cigarettes). So, if you are interested, and want to know more about me; there's only one way and that's to meet.

Views: 621 Replies: 0


Problems with new ostomy appearance and smell

I had a sigmoid colostomy 2 weeks ago and am having constant problems with appearance and smell.

I have a small diaphragm so they were forced to place the stoma right next to the belly button. To offset the increased risk of hernia in this location they brought it out a full 1.5". Of course sex is impossible because the stoma would be in the way and I can't use my abs. But the main problem from location is that whenever I go out there's a giant point in my shirt, and everyone stare...


Views: 2656 Replies: 15


Ostomy reversal - hartmanns procedure

I have bee rubbish on here - only made a few posts and then vanished to 'normal' life but I think that's a good thing.  I am a 33 year old professional single mum of one and I coped pretty well I think with having a stoma for 2 years.  I have just had my final appointment with the nurse (for dressing checking) four weeks after my reversal surgery.  

I'd be happy to chat with anyone who's recently 'gained' a stoma and wants to talk to someone who's been in t...


Views: 1656 Replies: 5


Ostomy area swelling

I've had my ileostomy for 3 months now and yesterday when I was getting my wound care done they noticed I had swelling about 2 inches to the left of my ostomy site on my abdomen. I'm wondering if this is anything to be concerned over?? It's a little tender but don't throb or anything like that.. I have a lot of abdominal pain but that's from my surgeries. I don't see my doctor till next Monday and not sure if I Need to call in and report this....Anyone else have a problem like this??  ...


Views: 738 Replies: 1


Trying to deal with a new ostomy

I got diagnosed with a very tiny spot of cancer in my low colon in early march. Had surgery two weeks later. I begged the doctors no bag please!! I can't deal with it. I already have enough on my shoulders without the headaches of a total life change so to speak..they said they will do their best no promises or guarantee not to get one..I prayed so hard for days for God to not let me have one..but after ten and a half hours of surgery I found myself with a colostomy. I was so upset. Well, severa...


Views: 3790 Replies: 30


Ostomy plugs

Does anyone know of a vendor other than Coloplast that makes stoma plugs? Apparently Coloplast has discontinued the making of them. I've heard good things, but not many seem to even know about them.


Views: 3101 Replies: 8


Successful ostomy reversal

I am almost 3 weeks since reversal date and all has gone well.  Haven't needed pain meds for 3 days now and am sleeping on my sides again so all that is big progress for me.  The large gaping hole where my stoma was is closing up more each day.  I have times where I am running to the bathroom to get there on time, but not always.  I mostly feel in control but am comforted by being able to have a restroom nearby available.  There are days I go sev...


Views: 7617 Replies: 49


Ostomy in the pool

well i have an ostomy pouch since october of 2012 the doctor told me in order to do the reversal i would have to lose almost 25lbs which is very very hard with holidays and life   anyway now we are approaching summer and i still have it   i am scared to put a bathing suit on and how do i go in the water  i have a pool and not haveing it get loose  and having fecis all in pool  never mind being embarrassed.  idk what to do  &nb...


Views: 1931 Replies: 8


Ostomy reversed

Well I had my reversal surgery on the 17th. Got out of the hospital this past friday. I am happy it is over, but nervous the diverticulitis will come back. Good luck to everyone with ostomys and without we should wear our scars proudly.


Views: 1100 Replies: 3


How do you bring up an ostomy?

I have a date this weekend and am not sure how to bring up the subject of my ostomy.  I don't think anything is going to happen, but it was a fairly important event in my life....and something that I should probably tell her about.

I'm not secretive about it and not ashamed of it by any means...but I also tend to be a little flippant..."oh yeah, four years ago i almost died.  Spent a month in the hospital...I'm better now though.  Well, mostly. &n...


Views: 5087 Replies: 25


Blockages and pain after ostomy

Its my 3rd week after my Ileostomy and I'm experiencing stabbing pain around my stoma and I'm currently experiencing my third blockage. For my ileostomy they took out my entire colon, which gave the small intestine room to move around and get itself knotted while doing so. Is there anyone who can help give advice or provide answers to how i can prevent this from happening?


Views: 3185 Replies: 17


Wilderness camping with an ostomy

This is for the outdoorsy ostomates - anyone have any good wilderness camping tips or kayak tips to share with me?  I just got an ileostomy 6 months ago, and before surgery I went on kayak trips and went tenting deep in the woods for days at a time - no bathrooms, no electricity.  I don't intend to let having a stoma curb any of these activities, but I want to be prepared and hear a little from an ostomate who's ALREADY done this stuff.  So, any advice for me? ...


Views: 4109 Replies: 19


Ostomy problem during warm weather and exercise

does anyone have problems with the adhesive holding ostomy appliance secure when outside "playing " in the garden,esp on a warm day..Mine tends to spring a leak when I do much bending.Don't know if it's location of ostomy(ileostomy) which is barely below waist line or adhesive not being strong enough to hold stress of exercise...Spring is finally getting here and I love being outside playing in the dirt!!!Thanks for any and all suggestions..


Views: 3075 Replies: 15


Open wounds next to the ostomy

Has anyone ever experienced random open wounds next to your ostomy and so, how did you treat the wounds?


Views: 1305 Replies: 3


Ostomy belts that clip onto pouch

I have been wearing the ostomy belt since my surgery in October 2012 pretty much 24/7.  Then I was thinking is it really helping?  Any advice on the belt would be appreciated.  Thanks.  Penguin s7


Views: 1127 Replies: 4


Ostomy supplies

Does anyone know of a discount medical supply house that accepts assignment from Medicare without paying a deductible? Since I only have Medicare & am on a Medicaid spend down I have to pay about $40.00 a month for my supplies. Presently I am dealing with Sterling Medical Supply. I have a Urostomy & colostomy, so I need both bags, very expensive.


Views: 868 Replies: 1


Love after an ostomy !

For those of you still looking for love after your Ostomy ....don't give up! One day when you least expect it there will be a message in your inbox....always remember that when your not looking life has a brilliant way of surprising you with someone in your life you have so much in common with and either your make a great new friend or you will find the person you were always looking for ! I for one thank God I found this website ........I was in a low place when I first started and now I've nev...


Views: 1203 Replies: 2


Pain after my apr and permanent ostomy please help

On the 1st of march I had to have a permanent colostomy with and APR due to rectum cancer.
Since then I have had so much pain in my anus/tailbone area. I can only seem to stand and sit for about 20 min at a time before I have to lay down because of the pain. The other thing is I also seem to have pain in my man jewels...sorry for that but I need the help. Is this normal and when should I be getting past this pain. Everything else seem to be healing up well it's just that ole butt that hurts....


Views: 1149 Replies: 5


Mediawiki for ibd/ostomy

I loved all the tips I found on this site and I'm currently developing a website that will have a mediawiki for all those tips and mini lessons on medical literacy and understanding IBD for those newcomers and experienced patients who suffer from IBD.  If I can prevent just a few people from experiencing some of the worst care, pain and emotional stress I went through during my illness than it will be worth all the work.

Any other suggestions, or topics that may help ostomates...


Views: 1064 Replies: 3


Ostomy too low for me to see

HI ALL,  DOES ANYONE OUT THERE HAVE AN OSTOMY TOO LOW TO SEE TO CHANGE THE APPLIANCE WITHOUT USING A MIRROR AND THEN USE ONE HAND TO PLACE THE APPLIANCE ON.  THE SURGERY WAS DONE OUT OF STATE AND NOW THE SURGEON SAYS BECAUSE MINE WAS AN EMERGENCY I WAS NOT MEASURED AND IT IS MUCH TOO LOW.  NOW MY HEALTH DOESN'T SEEM TO BE WELL ENOUGH FOR ANOTHER SURGERY TO CORRECT IT.  I GET LOTS OF PAIN AND WHEN I WALK BECAUSE OF THE POSITION THE APPLIANCE IS IN IT RUBS B...


Views: 953 Replies: 2


New ostomy (need help!!!)

I have a fistula that my surgeon is trying to allow to heal from the inside out and so I have a small open wound (fistula) on my stomach that I bandage and tend to daily... because of this fistulas history of dumping bile into my body cavity and basically killing me once... my surgeon didn't want to put me back on TPN but rather give the bowels a break/rest and so he gave me an ostomy/stoma.

This happened in November 2012 and I have had hardly one single day of real rest and relaxation...


Views: 1586 Replies: 6


Ostomy belts

Hi my fellow ostomates! I hope I find you all well! Does anyone of you used any of the belts like an ostomybagholder or stealthbelt?  Consider buying one of these belts to cover better my bag and for more security from leakages but I can't choose which of this belts will really do the best job.
So if someone uses one of this belts please let me give a helping.


Views: 1744 Replies: 7


Ostomy products

I lost my supplier recently and now I am having trouble finding a new supplier of ostomy products...pouches, paste, tape and wipes. Will some of you Indiana ostomates let me know where you get your supplies...thank you so much...


Views: 1375 Replies: 8


Canadian ostomy products!

Canadians ....
Has anyone every used a online company for there medical supplies? How do the prices compare to a shoppers home health center with 20% off and shoppers points!  If so what online company do you use? Thanks


Views: 1073 Replies: 3


Need the website for ostomy supplies/people paying cash

Hi, I had seen some one post a while back a website for ostomy supplies, I can't remember who had asked for the information, or what the website was, but it was a website that sold ostomy supplies to people who did not have insurance, or paying cash, I was wandering if anyone remembered this post, or had the website?


Views: 1747 Replies: 7


Funny ostomy bag covers

my friend and I are making funny ostomy covers and will be making a calandar with the pics,  also trying to start up a buisness making nice "bag" covers to sell so we can be stylish.  anyone have any thoughts on it?


Views: 1238 Replies: 1


Ostomy supplies

I have alot of Hollister two piece ostomy supplies (bags-18194, wafers-14604), No sting barrier film wipes, Adhesive remover wipes, Protective powder, 4" and 1" waterproof tape, some ostomy sissors, a few boxes of Osto-Gel, a few boxes of Hollister's (7805) version of the Eakin seal.  Contact me if you need anything, I'm not a full member so I can't do the features of full members.  Really looking to help out those folks in need.  Thanks


Views: 1055 Replies: 3


Ostomy supplies as in bags, bases and other items

My Stoma Nurse whom I spoke with lasty week said sahe is swamped with otomy bags and base plates from people who have either had reversals or died and were hoarding supplies. She is looking for a way to get rid of them but stipulated that they must not be sold. If anyone is willing to pay postage I can gather supplies for you and send them off. Just an idea.


Views: 1512 Replies: 5


Post ostomy exercises to rebuild abdominals

Question, Do exercises exist for post colostomy ops,and are they recommended by doctors? It seems like I've been "training" for well over a year and almost everything I attempt ends badly.Ie hernia, it's not like I'm trying to run marathons or swim channells, just everyday stuff like jogging to the mailbox and back without my heart racing like crazy.Or swimming any stroke that entails arms overhead.etc. My Doc says-no limitations-that just goes to show me how little he lnows about me a...


Views: 3822 Replies: 9


Let's be heard - world ostomy day 2012 video

Hi everyone,

I just thought I would let you know that I have entered a video contest for Convatec. I have posted it once before but after Hurricane Sandy hit, Convatec (who are located in New Jersey) were having some technical difficulties and voting was closed. They have since re opened it and I ask you again to please go take a peek at my video and please vote for me.
Feel free to share the link as well, the more votes the better.
I feel that even if it inspires ONE person, I ...


Views: 1570 Replies: 6


Ostomy reversal

Has anyone had a reversal even though you have short bowel syndrome and did it help?  
Is the stool still liquid after reversal and is it hard to control bowel movements?


Views: 2291 Replies: 8


Ostomy bags & ... cats?

This may sound like a really stupid post but here goes!

I adopted 2 rescue cats at the weekend and on the way home I kept one pet carrier on my knee n the car, we had to stop and change places part way home because little claws kept poking though the carrier and getting too close to my bag for comfort! Now we have them home their little mischevious things and keep climbing all over me, got a few scratches and plucks in my clothes which leads me to my question.. Has anyone ever had any m...


Views: 2834 Replies: 13


Hurricane sandy - does anyone need ostomy supplies?

I live on Long Island (Garden City) and was recently reversed. I have a box of supplies (Hollister bags, paste, powder, barrier wipes, and one Hollister wafer) that I no longer need. I'm hoping to give them to someone who is in need if them but the Red Cross and other organizations do not accept such donations. Unfortunately I have very little gas (which is in short supply) so I am unable t travel too far with them. Please let me know if anyone needs these or knows someone who does.


Views: 1099 Replies: 2


Ostomy- take down with a replacement button on stomach

I have been working with three doctors and talking about a surgery that could be in my future. I'm not sure of the name of the surgery but it has to do with having a button on your stomach and being able to clean yourself out after you put a tube in it. I'm not really sure and I was wondering if anyone had any information on this? I know there is a surgery called the Mace surgery which is someone similar. If anyone has any information please let me know!


Views: 1331 Replies: 2


Colonoscopy through ostomy

Hi everyone,
I'm scheduled to have a colonoscopy next week, and I'm a little nervous about this one.  I've had many in the past and never had problems except the last one.  I had a partial blockage, and I got very sick trying to do the prep (because of the partial blockage) and was told to stop the prep, plus wound up in the hospital the next day.  So I suppose that's why I'm dreading this one so much.  

The other worry is having this done w...


Views: 1886 Replies: 6


Anyone know a mail order ostomy place that takes blue cross?

Cant seem to find an ostomy supply place that takes insurance.  Any help out there?


Views: 3901 Replies: 15


Ostomy -how to change your appliance.

Hi all. In an effort to return the favor, for all I learned from forums and YouTube videos, I did my own how to video.
Hope it helps!
http://youtu.be /XekikZAJr1I


Views: 1024 Replies: 2


Skin reactions to adhesives on ostomy bags?

I've always had problems with adhesives remaining on my skin for longer than 24 hours.  I start getting itchy by the 2nd day, and by the 3rd, I find myself popping allergy pills like candy in an attempt to lessen the itches I can't scratch beneath the peel-n-stick part of my ostomy bags.  It's especially worse in the event that the adhesive gets the tiniest bit wet.  So sweating?  Bad.  And I have hot flashes from prednisone and pain medication w...


Views: 2677 Replies: 10


World ostomy day

  Happy world ostomy day everyone, hope y'all have a great day!   





Views: 1064 Replies: 2


Having problems finding an ostomy nurse

While in the hospital (5 days!) for my colostomy, my doctor never came by to see me. He did send his assistant who never followed through with anything. I never saw an ostomy nurse and my surgeon basically told me nothing. I was just thrilled that I would never have to self-stimulate, etc. (for 20 years!).

Now, after doing some research and having my surgeon finally tell me that I needed to see an ostomy nurse/therapist, I have found that the only ostomy nurse/therapist that I will be ...


Views: 2849 Replies: 12


Ostomy reversal, are there ever complications?

I had my operation just before Xmas 2011, and I will be talking to my surgeon in a few days about the possibility of a reversal. Are there any complications getting things to work again. What about leaks?
I have heard that reversal surgery is quite common.....That makes me wonder why they don't do it that way to start with?


Views: 3567 Replies: 13


Sore ostomy after blockage

I had a blockage about 5 days ago and my ileostomy is still swollen and sore when trying to pass waste..Anybody experience the ostomy pain for that long after a blockage?


Views: 882 Replies: 1


Ostomy question

Hello.  Once again I'm writing on behalf of my mom.  She's 79 and had an irreversible illeostomy surgery 2 years ago.
This week she noticed she had an urge for a bowel movement and when she went to the bathroom there was a discharge. She panicked and called the doctor who was unable to get back to her.  It happened again the next day, and this time she talked to a nurse who told her this was very normal, and was actually a mucous build up from part of her intest...


Views: 1040 Replies: 3


Ostomy and exercise

Hi !!
Hope everyone is doing great!! with summer winding down =( and the kiddo's getting ready to go back to school..I am thinking about getting into better shape..so..Can we do an insanity workout or I guess my question is with an ostomy what shouldnt you be doing..I use my treadmill but dont want to do something that could cause any kind of damage!...any advice??

thanks,
J.J


Views: 2223 Replies: 7


Clothing product to cover ostomy bag under clothes

Hi, I have read several different posts in which people reccomend different yummie tummie products, spanx products, and other things such as this. I am not sure which one to get or which one works best and these are things I dont think you can try on. My main issue is that when my bag starts to fill up its all at the bottom area and getting fatter and fatter. also when I wear jeans the surgeon and wcon said to make sure the stoma is above the jeans which is fine but Sometimes it d...


Views: 5781 Replies: 11


Question about things you can wear over ostomy bag

Hi, I have read several different posts in which people reccomend different yummie tummie products, spanx products, and other things such as this. I am not sure which one to get or which one works best and these are things I dont think you can try on. My main issue is that when my bag starts to fill up its all at the bottom area and getting fatter and fatter. also when I wear jeans the surgeon and wcon said to make sure the stoma is above the jeans which is fine but Sometimes it d...


Views: 1020 Replies: 1


Things to cover ostomy bag

Hi, I have read several different posts in which people reccomend different yummie tummie products, spanx products, and other things such as this. I am not sure which one to get or which one works best and these are things I dont think you can try on. My main issue is that when my bag starts to fill up its all at the bottom area and getting fatter and fatter. also when I wear jeans the surgeon and wcon said to make sure the stoma is above the jeans which is fine but Sometimes it doesnt work as w...


Views: 1207 Replies: 2


What do you do about ostomy gas in public places/situations?

Hi, I've had an ileostomy for a little over a year now. I'm a NHL cancer survivor so I acquired mine for reasons different than most and all this time I haven't been working or in school so when my bag makes noise usually whoever I'm around knows what's going on but since I will be going back to school this fall I am nervous about my bag making noise. I've been embarrassed at church and at a small birthday gathering too. I'm really excited to be going back to school but its bittersweet because I...


Views: 3404 Replies: 10


Ostomy support group in orlando, fl

Hi, I do not have a full membership yet, so I can't do email back and forth...this evening, I saw on this site a guy named jclove from Orlando, FL who is looking for a local support group. If you or anyone knows jclove, please let him know that there's a monthly Ostomy Association of Greater Orlando meeting on September 15th at 10:30AM. See website calendar below:
(http://www.ostomyassociationofg reaterorlando.com/favorit...


Views: 1157 Replies: 0


Report product flaws so ostomy products get better

I finally found a pouch and flange I felt comfortable with. After a year, I experienced leakage from the filter in bags from at least 4 different boxes with the same Lot#.  I called the company and they said they had not received any calls about leaking at the filter.  I found that so hard to believe.  They did send me replacement boxes, but amazingly to me, and of course them, some of the new bags did the balloon thing from gas.  ...


Views: 4637 Replies: 22


Ostomy toronto needs your help!!

**With UOAC Conference coming up I have EXTENDED this fundraiser until Aug 23. PLUS for the month of August most items in the catalog will be 10 % off!!!

I am hoping this fundraiser will be a good money maker for Ostomy Toronto. I would like to host one every month but need everyone's help to make this happen.

Please remember to share the link with your friends and family and ask for their support as well.


**U.S. orders are also accepted for our U.S. friends jus...


Views: 879 Replies: 0


People you've met with an ostomy

Just wondering how many people you've actually met in person that have an Ostomy. I can think of two I've met, how about you?
kbd


Views: 3776 Replies: 18


Pilates and ostomy with hernia

Hi everyone,

Love the help I get here!  Thanks to you I can now irrigate, though I am not doing it every day...but can when something is coming up that I want to be sure I have no output.

My question today is about pilates.  I don't mean just a pilates class at your local gym.  But rather going to a proper pilates studio where they use the reformer and Cadillac machines, and where the instructors are FULLY certified in the Pilates methods. &nb...


Views: 5214 Replies: 17


Possible rx help through gsk-not ostomy related

Hi all,

This has nothing to do with ostomies, but this information might still help some of us anyway. As always, I am researching help organizations for people who are medically uninsured or with low incomes (like me). I've found another website for help in paying for prescriptions made by Glaxo Smith Kline (GSK). This website is their patient assistant program for help in paying costs of Rx's and even for help with co-pays, etc. Since the program is supported by them, the list of medi...


Views: 928 Replies: 0


Ostomy without civilization

I have sometimes wondered how one would survive with an ostomy if they did not have modern conveniences. With the recent power outage here in the US Midwest I got to change my wafer by battery powered light, and it got me to wondering how hard it would be to deal with an ostomy outside of civilization. Have you ever found yourself in a situation or place where modern conveniences were few yet you had to deal with your ostomy?
Thanks.
kbd


Views: 2818 Replies: 13


Ostomy bikers

I just had a new patch made and had it sewn on my jacket,it says   OSTOMY RIDERS
Im hopeing to start a nationwide awareness that just because we have a bag we cant still do the things we like.I'll be out there advertising everyday.I know of a few riders here on this site and Im sure it will raise awareness.Theres no dues Im sure we have already paid with our lives.
takecare
bikerboy greg


Views: 4974 Replies: 19


Found lower cost ostomy supplies website

While I was again researching cheaper ostomy supplies for us, I came across another website called healthwarehouse.com. All of my supplies are on the site. The prices are so much cheaper than Liberator, Edgepark and other suppliers. I just ended up purchasing a box of 20 Hollister New Image mini 7" drainable w/filter pouches for $55 with free shipping. If I had used my medical insurance company, I would have paid tons more by using them becaus...


Views: 4559 Replies: 8


After reversal of ostomy

Hello all,     I had a ruptured intestine and had a colostomy end of December 2010.  I was fortunate to be able to have the reversal done which was end of July 2011.   I am careful with what I eat and up until now I have been feeling good.  I do eat fiber off and on but find that if I have too much my stomach bothers me, feel a little nauseous and I have constipation.  This is my problem now for the past week.   Just don'...


Views: 1391 Replies: 1


Has anyone tried the nu-hope non-adhesive ostomy system

Has anyone tried the Nu-Hope Non-Adhesive Ostomy or Ileostomy System?  I just ran across the system in The Parthenon Catalogue tonight. My husband has not accepted his ileostomy-after an attempted failed surgery and I don't know that he ever will.  His mood swings between depression and anger he is not very open minded about trying new products.  

I kind of have to sneak new products in but have learned to pick and choose my battles.  So....I wou...


Views: 5532 Replies: 14


Placement of ostomy

Has anyone ever had their ostomy surgically moved slightly over from original placement?


Views: 1591 Replies: 4


High ostomy output complications

Has anyone ever had to have a port put in to their arm to get iv's regularly because of dehydration problems that happen over and over again?  I have had my ostomy since 3/15/12 and been hospitalized 4 times since the surgery for dehydration.  Doctors say my body has not adjusted to the ostomy.  I have no colon so I have absolutely no options.  My J Pouch failed after 15 years so no options.  My attorney said she knew someone who had this problem...


Views: 2235 Replies: 5


Anyone with a hot tub and an ostomy??

Hi guys, I have arthritis, and the only thing that helps me is heat, and as I don't have a bath, only a shower, i'm thinking about getting a hot tub! anyone here with one and an ostomy? bluebell


Views: 1082 Replies: 1


Ostomy mom needs help!!! please!

Hello all!
My mom is 68yrs old and she underwent colostomy surgery, after getting diagnosed with rectal cancer. Its been a month after her surgery & she is having a horrible time keeping any food in her tummy. She is feeling nausea, vomiting & stomach cramps. We are taking every measure so that she avoids gas causing food. She is taking digestive enzymes & antacids too but it is not helping at all. She is loosing weight & its worrying me very much. Sad

Views: 4938 Replies: 12


New to ostomy and to this group---greetings!

Hi,  I just had surgery two weeks ago for rectal cancer and am recovering quite nicely.   I have an ileostomy and so far no problems.  It's taking some getting used to but nothing I can't cope with so far.  I just wanted to connect with ores out there and learn more about living with an ileostomy.    I will start chemo in about a month--mainly for precaution.  The labs after the surgery were god.

I am very grateful fo...


Views: 1534 Replies: 3


Colostomy / ostomy reversal

Had my colostomy reversed as well as a colostomy hernia repaired a few months ago after having it for around six months. Re connect surgery was successful and I am feeling pretty normal. A very bad case of diverticulitis brought it all on. I ignored a bad stomach ache that finally turned severe. I spent a month total in the hospital on strong antibiotics attempting to clear up the infection to no avail. My colon ruptered during the third week and had to have a section of colon removed. Had I loo...


Views: 3109 Replies: 1


United ostomy association of canada 13th conference toronto

Hi

     I was just curious as if there is anyone going.The Conference runs August 16-18. This will be my first time attending.


Views: 930 Replies: 0


Unwanted ostomy gear

Hi,  Does anyone know who could collect my unwanted ostomy gear?  I have lots of them.

I read that people abroad would love them, but how do I find out who to contact?

      &nbs p;    SKEETER


Views: 3877 Replies: 15


Ostomy and lap band

Is there anyone out there that has a colostomy and a LapBand?  Is there any reason that a surgeon would refuse LapBand surgery if someone has a colostomy?


Views: 1383 Replies: 1


Ostomy support meeting

I'm a member of my local UOAA and I signed up to do refreshments for this coming April meeting. I wanted to do something fun and ostomy related. We have members of all kinds of ostomies and ages. The group is majority older people 60yr+, there are a few of us youngins there. I'm pretty sure I'm the youngest at 29. I was wondering if anyone here had any fun ideas? Like brownies in the shape of a bag or lemonade for a drink.


Views: 1742 Replies: 5


Ostomy supplies

Hello - does anyone know of an ostomy supply company that charges a fair price for supplies? I just lost my health insurance and most companies in the US gouge people and want to profit from your misfortune. I'm sure it costs pennies to make the bags but they sell for around $4 each. I can't afford that. I guess I will have to use baggies and duct tape.


Views: 1329 Replies: 3


The skin around my ostomy

Had my ostomy since Nov 13, 2009.  My belly skin went all the way around my stoma very nicely.  Lately there is a spot of skin that has just gone.  Its about 1/8" in diamater.  Underneath the missing skin, I can see pink stoma.  Instead of the skin going all the way up and touch my stoma, this spot is not touching it. I don't know what caused this.  Is it serious?


Views: 864 Replies: 0


Ostomy supplier

Ive been using a supplier in Southern CA.  used them for many years and suddenly I go on medicare and the service and problems have gone thru the roof,  Im looking for a new supplier or at least a back up that takes medicare, twice my order hasnt been shipped and have had to go straigt OTC  and when I advised them their was nothing offered but an apology,  any one have a suggestion on a new supplier,   thanks   M.... in NV


Views: 1313 Replies: 3


Music festivals with an ostomy?

I have an ileostomy and wondered if anyone on here has been to a music festival post surgery?

Sorry if this seems a silly question but I was invited to one today and didn't feel confident enough to say yes because getting a spot close enough to the stage to see my favourite band would mean arriving at ten in the morning and leaving at ten at night, eg, a twelve hour day spent in a muddy field contending with using portaloos decorated by thousands of other music lovers. Then there's the...


Views: 3742 Replies: 11


How do you tell someone your dating that you have an ostomy?

I am a 37 year old, single mom of 3 and I am a colorectal cancer survivor going on 3 years now. I am dating and find it very difficult and stressful to try to tell someone I want to be intimate with, that I have an ostomy.  How do you tell someone? I would also like to know how can I  hide or keep my bag from getting in the way during intimacy. I am so worried that I will never find someone who will accept the fact that I have an ostomy. I feel so embarrassed asking these que...


Views: 24644 Replies: 107


What can i do with ostomy bags and flanges that i no longer?

hi
i often read what you all have to write and find it illuminating, sometimes sad and usually inspiring.
i have had my stoma re-sited and now i can't use the  many two piece bags and flanges i have. i would hate for them to go to waste when there are people desperate for them. does anyone have a contact with a charity that deals with this. i would appreciate any information.
thanks
margie


Views: 1875 Replies: 7


Prep fpr ostomy reversal

Hi everyone. I have been reading your posts since I had an emergency sigmoid colostomy performed on Oct 6. This is my first time posting. My reversal is scheduled for Monday Jan 30th and my doctor has prescribed a bowel prep called Moviprep. I took half the prescribed amount prior to my first surgery as I have a very sensitive colon. However my doctor is recommending the full 2 course prep this time and I am worried. I would appreciate any advice re the prep and what its like to cleanse the bowe...


Views: 3629 Replies: 6


Ostomy belt

Okay dumb question,how to wear the ostomy belt?? even with stoma or at your waist??Even with stoma and it squishes in hips,nice indentation with jeans on?
Thanks


Views: 4812 Replies: 17


Sex and diverticulitis and an ostomy bag

WARNING...THIS IS AN INTIMATE QUESTION AND I AM ONLY INTERESTED IN A SERIOUS ANSWER..Ok, this is kinda hard to talk about but im just going to come right out and ask... does anyone know if having anal sex could lead to diverticulitis.  My husband enjoys having it done to him on occasion (fisting to be exact) and now he has diverticulitis..so much so that he had to have surgery and now has an ostomy bag on his abdomen. Im not trying to be funny or to gross anyone out...this is a genuine...


Views: 3939 Replies: 1


Ostomy and paleo diet

Just wondering if any of you have tried the Paleo diet and how your stomach has reacted?  I do cross-fit and have just started Paleo. So far my Colostomy has had nothing but soft unformed output.  Very messy. Changing the whole 2 piece system once a day and the bag at least 3x a day. I think I can irrigate but I wonder if on this diet my output would allow me.  I have been an ostomate for 4 years. It has been very traumatic and haven't dealt with it really well.&nbs...


Views: 3350 Replies: 4


Surplus ostomy supplies

In prior years, I have always donated my surplus supplies to my ET nurse.  She told me this morning that they are no longer allowed to accept them due to a FDA ruling. She said that I could donate them to the American Cancer Society.  So if people are looking for supplies you might want to call your local ACS to see if they have them available.


Views: 1771 Replies: 3


First ostomy christmas

Wondering how many other first timers with an ostomy this Christmas? Very glad to be alive and enjoying my first Christmas with an ostomy. I was pretty much dying last Christmas, weight was way down, very weak, could hardly leave the house, couldn't enjoy food. What a difference a year makes. Enjoying everything this Christmas. I hope you are as well.
  Merry Christmas and God Bless!
  KBD


Views: 1748 Replies: 6


Ostomy patient with a miracle for the holidays

Hello all my ostomy friends.  I wanted to share my story with all of you as miracles do happen.  I had my colostomy done in 2009 due to cancer of the colon.  Like most of you surgery was not an easy thing for me and I was in rehab for 8 weeks after a long hospital stay.  I had very difficult times adjusting to my colostomy and still have problems with burning and sores,  Well I had a pet/ct done in May of 2011 and everything was ok.  Th...


Views: 2595 Replies: 10


Husbands ostomy reversal went well

My husband had an emergency colostomy August 2nd 2011 due to a bowel rupture and an E coli abcess in his abdomen from diverticulitis.  He had his reversal done on Nov. 16th.

Everything went very well.    Surgery was on Wednesday afternoon and he was home on Monday.  On 1st day post op - bowels started working and he was passing gas, and by Saturday had his first BM and all was fine.  He did have a longer surgery than expected since ther...


Views: 2300 Replies: 5


Ostomy reversal question

Hope someone can help. Had a colostomy last May. Went in for reversal operation Oct. 5th. OP did not go well and required two emergency operations during the 6 weeks I was hospitalized. Last op was 7 weeks ago. I suffer from daily diarrhea and actually lose control about every other day. Dr. ordered stool tests for c. diff which I have had and know this is not c. diff. What is going on?

Thanks/Don


Views: 4711 Replies: 20


Ostomy blowout?

I've had my illiostomy since April of this year.Had a few blowouts here at home,but I don't want to venture too far from home because of the fear of it happening away from home. Have you fellow ostomates had problems in public, what do you do?I'm tired of being a "prisoner" in my own house!!!!  HELP!!


Views: 5044 Replies: 19


Double ostomy

Hi everone.
I have read a lot of your problems and was hoping to see someone with a double ostomy. So far I have seen none. I have had a rare cancer and it took my bladder and part of my colon. I have a discharge coming from my rectum and it is very annoying. I have trouble enough with the double pouches let alone I have to wear a pad too.Is there anyone out there with this problem?


Views: 3569 Replies: 9


Ostomy w/hernia

I've watched the blogs for months but this is my 1st time writing.
This  is the 6 month anniversary of my ostomy.  The first  months I went thru the typical stages, disbelief, denial,  anger, depression embarrassment and finally  acceptance. My stoma was completely manageable, no problems,  In July  my hernia appeared and since then everything's changed; 5 out of 7 days my stoma is uncomfortable, sometimes an ulcer will d...


Views: 3657 Replies: 3


Finally the great ostomy pumpkin - hope this one works




if the pic is still missing here - it is loaded in my profile pics


Views: 3223 Replies: 8


Anyone had an ostomy due to medical negligence??

Hi guys,
I am at the start of suing the NHS for clinical negligence and I'm wondering if I'm the only one who has had an ostomy die to negligence.( i had solicitors clambering to take my case on)

i had pain in my belly for over 7 years and pressure in my bladder and dificulty emptying my bladder. I trancended 2 gPs, who refused to scan the whole of my belly. My bladder got scanned and had a cystoscopy, but nothing was wrong with my bladder and the last time i visited my gp she still...


Views: 4795 Replies: 17


Mask odors i ostomy bag

Have an ileoostomy and curious
I know that I should probably avoid certain foods having an ostomy would lessen odors, but I would appreciate any tips and tricks that people use to cover /mask odors in an ostomy. This includes certain tablets, herbs and the like.

Thanx!


Views: 6555 Replies: 19


London & district ostomy assc.

For those who live in London Ontario and the surrounding areas there is a Facebook group and page for the above they have stories tips and tricks, hold meetings and give support. I have found the group very friendly and supportive. There is also the same deal for the United Ostomy Assc. of Canada. I belong to both groups and have found them to be helpful.


Views: 992 Replies: 0


Reversal of an ostomy

I am having a reversal of my ostomy and a repair of a hernia the size of a grapefruit next week.
The doctor says I will be in the hospital a week.  Is there anything I should be looking out for?
It would be so nice to hear from someone who has had the surgery in the past.


Views: 3202 Replies: 12


Wearing safety harness and rigging with an ostomy

Hello All,

Does anyone out there have a job that requires a safety harness? I am contemplating becoming a wind turbine technician, the job requires the ok from a doctor. Am I wasting my time?

Any info would be helpful.

Thanks,

John


Views: 1406 Replies: 2


Help! major problems with ostomy from get go

hi guys
I have had an iliostomy after a failed J-Pouch surgery (the surgeon attempted to do it in one step and not 2 and the pouch failed) and have been having nothing but trouble with it since.  This is going on 2 years now.  After the pouch failed my surgeon said it was because I was to fat and that I needed to be down to 175 lbs before he will do it again.  I recently got the lapband done and have lost 50lbs...have 20 to go.

From the beginning there...


Views: 1625 Replies: 3


Colostomy / ostomy diet

Is there such a thing as an ostomy diet?
I am barely getting any output from my colostomy in at least a month, and I have absolutely no appetite.
Last year I was in hospital with what they thought was a partial small bowel obstruction.
My "diet" has been  small amount of baby oatmeal and some coffee at breakfast: maybe cup of soup for lunch. Small amount of yogurt, jars of baby fruit.
I tried to eat small amounts of well-cooked green beans with the carrots tod...


Views: 8534 Replies: 10


My ostomy gear - verse



MY OSTOMY GEAR.


Since I had an ostomy
So many things have come to me.
Sometimes I think I’ll disappear

Views: 1009 Replies: 0


Me & my ostomy verse



ME AND MY OSTOMY.


‘Twas not an answered prayer for me.
To ‘have’ to have an ‘Ostomy’.

It’s no more easy ...


Views: 1848 Replies: 5


Is it possible to be regular with an ostomy?

Hello Everyone! Is it possible to become regular with an ostomy? My dr told me to drink Citrucel everynight to become regular. I find its all day long, Is it possible to train your colon?


Views: 6731 Replies: 11


Recycling ostomy bags???

Has anyone ever heard of cleaning ostomy bags after use? I am all for recycling, but I am also concerned about the health risks.


Views: 8748 Replies: 15


What is an ostomy

Replacing previous post.

A friend called me for information. Another friend of hers had a colostomy and was asking what had happened and for help with general understanding. I couldn’t find a source, like ‘helpful information for family and friends’ so I put this together for her.  It is very basic and probably has...


Views: 2480 Replies: 7


Cymbalta and ostomy

?


Views: 1695 Replies: 2


Has anyone tried cymed ostomy co.

Has anyone ever tried this company Cymed Ostomy? They make A MicroSkin pouching system? I recieved my samples in the mail today and I have never seen anything like this product??Thanks~traci~


Views: 7679 Replies: 18


Changing your ostomy!




Views: 2328 Replies: 5


Very small ostomy supply bag.

I lost my emergency supply bag which I  use to carry a spare change of my ostomy  pouch, barrier and wipes and such. It was small,about 7 inches  square. Very handy to keep in an emergency when I am away from home. Does any one know where I can buy one?
I checked with my supplier and they do not carry any thing like it.


Views: 4084 Replies: 8


Disposing of a ostomy bag at a friend's house

I have an ileostomy and i like to use closed end pouches and change them twice a day.  I can carry an Ostaway Bag (black, thick, zip-lock) with me and keep a fresh closed end ostomy bag with me in my pocket.  Often when I am at someone's house i need to dispose of one bag and put on a fresh one.  I really prefer using the closed-ended pouches and i know there isn't any smell if they are put inside the black, thick, Ostaway Zip-Lock Bag.  My question is; do...


Views: 13331 Replies: 12


Naming my ostomy

I never thought of naming my stoma. I guess by now I would have to call it "old timer" as I have had it for 40 years now.....


Views: 3865 Replies: 6


What's the best way of telling someone you have an ostomy?

Hi there, I need some advice please...I've been going to my local nightclub for 5 years, I guy who's also gone there all that time (and longer apparently) is suddenly showing an interest in me. He's very shy, quiet and hardly talks to anyone but his close mate, they're both bachelors, it was my new 'hairdo' (my wig since hair loss due to low dose chemo for my crohn's) that did it, they were lightheartedly arguing whether it was me or not! I started chatting to the quiet guy, I've only ever said ...


Views: 7405 Replies: 12


Ostomy perks

Nevermind.....that was foul. see below


Views: 2629 Replies: 7


Crohn's flare with an ostomy.

HI...can anyone with an ileostomy tell me what they feel like when their Crohns flares?


Views: 4632 Replies: 7


Ostomy fart noise

Have any of you been at work or amonst strangers and your ostomy farts really loud? im a new ostomate and have had more than a few of these moments. I need some advice on what excuses I can use for this noise.


Views: 5680 Replies: 9


Crohn's considering ostomy... worth it?

Hi everybody,

First let me say this is a fantastic site!  A WOC nurse led me to you and I've learned so much from here in the past few days.  Maybe too much Smile  
Can it give me my life back like they say?

Would love to hear from any of you but am especially interested to hear from any ostomates who "opted" for the operation due to similar circumstances.  Was it worth it?  Any regr...


Views: 9158 Replies: 17


Has having an ostomy affected your marrage?

I was wondering ......After having your ostomy surgery,...How many woman have gotten a divorce from there partner? Do youthink that the stress from having an ostomy affects your marrage?Once you start dating people how soon do you tell them you have an ostomy?


Views: 4641 Replies: 18


Article on writer with an ostomy

Just discovered on facebook (thanks Rach!) that one of my favourite writers, Virginia Ironside, has an ostomy (see below link - hope it works - if not google her name!).

She wrote "No, I Don't Want to Join a Bookclub!", which is one of my all-time favourite books, felt like I was reading about myself in about 10-20 years time! Nice to know that being a grumpy old woman won't be so bad!

Views: 3976 Replies: 9


Ostomy armor

Here's a copy of my original post over on the UOAA website. I thought it might help some people:

I usually don't endorse products but this one here has made a difference to me. First a little background. My stoma is right on my waistline. I had figured out 4 choices on how to wear my pants. 1. Up high which I call the old man/Urkel style. 2. down low which I call gangsta/plumber style. 3. Loose waist and suspenders which I call the Elmer Fudd style. 4. Bib overalls which I call the fa...


Views: 8701 Replies: 14


Coloplast ostomy scissors

Hello
Could you let me know which online stores carry Coloplast ostomy scissors?
My ET nurse has very nice Coloplast scissors.
I like to to buy a pair of Coloplast Scissors, too.
And how expensive are they?

Thank you
Syd


Views: 4787 Replies: 9


Ostomy skin care along with psoriasis condition

IS THERE ANYONE WHO HAS LIKE ME THE SKIN DISORDER CALLED PSORIASIS,AND ALSO AN ILEOSTOMY,WHICH MEANS THE SKIN GETS IRRITATED DURING THE DRY WINTER MONTHS.
IF ANYONE SHARES THIS CONDITION WITH ME,PLEASE POST YOUR EXPERIENCES.
MIKE


Views: 1497 Replies: 1


Extra ostomy bags

I have a lot of ostomy bags with several different size openings. These were given to me by a friend. I would say I have about 100 but no flanges to fit them... Anyone have any suggestions? Like maybe we ccould barter, So many bags for so many flanges... Let me know


Views: 1415 Replies: 2


Intro - somewhat new to the forum and ostomy

Hello.

I am familiar with the message board/forum concept and I am really digging the chat room. I have a permanent colostomy that will be a year old next February. I just wanted to show myself since I've been lurking for a while now. Especially since i've given my profile enough tweaks to last me a while.

Not much of an intro, but i just wanted to make a first post that had "intro" in it somewhere.


Views: 4240 Replies: 16


Ostomy supplies

Hi, in England  all prescriptions for ostomy supplies are free I am told by my stoma nurse. I have not had my colostomy yet, due to go into hospital on 22nd November and op to take place on 23rd.
I have also been told that after my op all prescriptions will be free  even for non ostomy stuff. Don't know how it all works yet but expect I'll have plenty of time after the op.
Of course we say prescriptions are f...


Views: 2181 Replies: 2


Ostomy problems

I  have the same problem with my ostomy.I have a rash under my armpits and around my ostomy.I have been to my dermatoligist,allergy specialist,cancer doctor and my physician.I   also have been to two ostomy nurses. I have had prescription creams,powders and anything else you can name.I am on prednisone and that helps but as soon as I stop them it comes right back.At the bottom of my stoma where the tape goes my skin oozes and don't stick well.I have been in touch with convate...


Views: 2847 Replies: 5


Ostomy belt

Hi,
I'm from the UK and can't find ANY where to sell me an ostomy belt that is comfortable. So...I found an american site. It was expensive with the postage and packaging, but I can't believe how much wear I've got out of it!!
My ileo is placed just above my bellybutton so as soon as the tiniest bit enters the bag you can see if puffing up over the waist band of my trousers and skirts. This belt makes it flat to my body so I can wear tight T-shirts and dresses and alsorts now! I've neve...


Views: 2069 Replies: 1


Ostomy subsidy information needed

Hi, I am currently putting together some information on Ostomy Appliance Subsidies around the world and am seeking info on what countries have a government subsidy to help to cover the cost of their appliances. I would like to know how much is covered (%) and if there is a financial or quantity limit on appliances and how much plus anything else which could be of value.

Any information about any country would be very much appreciated. Thanks.


Views: 4987 Replies: 16


Hi output ostomy

Why is there NO information on High Output IlleOstomy's??


Views: 1522 Replies: 2


Uoaa ostomy awareness day

UOAA Ostomy Awareness Day
SUNDAY, JULY 25, 2010
UOAA is proud to announce its 1st National Ostomy Awareness Day!
Let’s celebrate by spreading awareness and increasing national visibility of those living with ostomies. We will break the silence and shine a positive light on what has saved so many lives.


Views: 1047 Replies: 0


Bowel movements with an ostomy

I had a colostomy in March of this year and am still trying to get used to it.   I have been having small bowel movements rectally.  At the beginning they said it was normal, as the instestine was healing and once in awhile stool would be released into the rectum.  It is still going on and some days it is actally quite a bit...at least I think it is.  It doesn't happen everyday, but it happens at least once or twice a week and some days more than once.&nbs...


Views: 14330 Replies: 5


Child with ostomy

Hello new friends.  I only just recently found this site and am very glad I did!!  I have a 2-year old born with Cloacal Exstrophy Sequence.  Any other men born with this defect? I'm looking to talk with people (boys) who are older and can give us input on how you have been handling life.  Thank you, in advance, for your support!!  -debbie


Views: 3215 Replies: 10


American ostomy pouch covers!

Has anyone else seen the American stoma bag covers at www.america nostomate.com  I got a Union Jack one from the same firm and it's fantastic. Had my picture taken wearing it and put it on the Ileostomy Association Gallery on their forum. Great fun!!!


Views: 2152 Replies: 1


Swimming with ostomy

I'm rather new at this and would like to know how others handle swimming when you have an ostomy--especially the men?  My wife and I are going on a cruise in about 2 weeks and I am really anxious about swimming.  My colostomy is high on the left (above the beltline).  I normally use Sensura 2-piece.  It has been suggested that I use a short-sleve wetsuit but I think that would be awfully hot in the tropics.  What do you think?


Views: 8675 Replies: 12


Gas and ostomy bag

I am scheduled to get a colostomy on May 18th. I've got a question that may sound stupid, but I am too embarrassed to ask my doctor. What about gas? When you have on an ostomy bag, and you have gas, does the bag fill up like a balloon? If so, does it have some sort of valve or something to let the gas out? Or do you go to the bathroom and remove the bag? This is all so new to me. Any advice would be helpful.


Views: 17507 Replies: 16


Ostomy skin bonding adhesive

Hello

I am using Talbot skin bonding glue for extra bonding power for my wafer.
But I can not use entire content of can because almost half of glue in a can gets dry and useless in few weeks.
Do you know any good skin bonding adhesive?

One ET nurse told me that good cement or glue ice hockey players use.
So I went to sports shop and looked around ice hockey section but I could fond nothing like adhesive or cement.

The reason I use adhesive is my stoma is bi...


Views: 7226 Replies: 6


Sore ostomy

Hi to all, this is my first post, so please excuse me if the topic has been covered before. I've had a 'temporary" ileostomy for 3 years now. When my surgery was performed, because my bowel had stopped functioning after 12 years of bowel infections (clostridium difficile) with constant diahrea, the Doc made a mistake and twisted the bowel. I had major problems with the ileosotmy that did not function correctly! Nothing came out of the stoma and everthing seeped from the skin level surroundi...


Views: 4734 Replies: 10


Ostomy q and a (copied from another site)

Q. What do you call an ostomate with excessive gas?
A. A Pouch Puffer
Q. What statement do ostomates include on their resume?
A. Have bag. Will travel.
Q. What is an ostomates favorite punctuation mark?
A. A semi-colon.
Q. Why wouldn't the urostomates pouch stay on?
A. It was pissed off.
Q. Why did the UC patient buy a dishwasher and refrigerator before surgery?
A. Because the doctor told him he'd need to get some appliances.


Views: 1641 Replies: 3


Ostomy trees ...?? lol

Looks like we're not the only ones   hehehee

OK...so I'm being silly.  I'm bored and can't sleep.    Here's a little peek at what surrounds me in North Central Wisconsin right now.  I'm suddenly hungry for pancakes.  We cook some of the best syrup around here!!   I remember when Gramps used to tap the trees when I was a girl, no blue osty-like bags back then...simple little silver pails hung off the spout taps and we...


Views: 2032 Replies: 5


Ostomy reversal timeline?

I had my (emergency) transverse colostomy on December 1st, after a bout with diverticulitis wouldn't resolve, abscesses formed and ruptured.  The doc said we need to wait 6-7 months, at least, before reversing it.  I am wondering what others' experience is in regards to the timeline for reversal.  It seems to me a good idea to wait until everything is healed and strong, yet it also seems like it would be good to do it while the body still remembers how to poop!
...


Views: 9633 Replies: 16


Dry skin around ostomy site

For the past thee week i have been having dry skin around my ostomy site. it is not painfull or reddish, but the old skin flakes off. Aside from the ostomy powder, can anyone recommend a solution(i.e. topical cream) for this problem. Thanks.


Views: 1899 Replies: 2


Ostomy supply swaps/trades? extras stuff? need something?

I just had this crazy idea about swapping brand new, unused ostomy supplies.  I have LOTS of extra night urinary drainage bags AND adhesive remover wipes, but NEED leg bags.  I'm out of work and have no insurance to cover supplies, so I do what I can to get more.  Hollister has been kind enough to send me a lot of FREE supplies for the past few months!  They're awesome people!

But, I now need a new leg bag and figured I might see if anyone has an ...


Views: 6584 Replies: 15


Ostomy exhibition

Once a year I get Invited to a Local Ostomy Exhibition, this arranged by my 2 local hospital Stoma depts , Stoma nurses ,appliance manufacturers & suppliers.

Knowing there is not a lot for me there as I have all my Appliances & supplies sorted I go to see what new inovations are about & have a look at the support wear , under ware & swim wear stands , to get some Ideas.

Then I scoot round all the stalls giving away freebies & goody bags, Its amazing what t...


Views: 3268 Replies: 13


Ostomy poem

Hey guys,

I found this on another website while browsing the web and thought to share it with you. Apparently it is found in a biography of J.B.S. Haldane. Haldane wrote it after being diagnosed with rectal cancer.

I wish I had the voice of Homer
To sing of rectal carcinoma,
Which kills a lot more chaps, in fact,
Than were bumped off when Troy was sacked.
Yet, thanks to modern surgeons' skills,
It can be killed before it kills
Upon a scientific basis <...


Views: 2283 Replies: 4


Quitting smoking with an ostomy

Hey guys,
      &nbs p;           Just curious how many of you currently smoke or have quit while an ostomate and how you did it??

I quit in October 2009 the day before my hysterectomy/emergency ostomy and at times,I still want a smoke! lol

Have a great day! xoxoxo, Hannah


Views: 5641 Replies: 19


What the ostomy has given me

For all of our trials and tribulations I want to share with everyone just what my pre ostomy life was like and the road i traveled....  UC for 24 years and accidents each and every week and the ability to focus on  my Anus only for fear that It would betray me on a daily and consistent basis, I lived in fear for 24 years.Having lived like that for so long I  forgot what normal was and became extremely detached from the world and extremely angry and non social..........


Views: 3981 Replies: 17


Prolapsed ur-ostomy

Does anyone have a prolapsed ur-ostomy?  Continuos burning pain 24/7.
Would appreciate hearing from you.


Views: 1588 Replies: 2


To all my perm and temp ostomy friends here&around the w

It has been a treat for me to be a part of this site and to share and read and laugh with you all............I do wish we all could live or be closer to one another but since we are not, this site makes it feel as though we are all neighbors and in some cases  like  family. &nbs p;How cool is that!!!!!!!!........Wishing you all Happy Holidays and  a Happy New Year..............Love Michael:)Smile


Views: 6287 Replies: 8


Ode to my ostomy...(a poem for my stoma)by hannah

ODE TO MY OSTOMY


What are you, on me hanging?
Why are you so stinky?
You make too much noise,
By the way, farting is not singing!
How did you get here?
I demand you go away!
Why arent you leaving??
Youre not here to stay??
Hey, wait a minute.
What are you doing???
What the hell is that..??
Are you actually pooing?!
You cant stay here,
I wont allow it.
I will talk to my doctor
Hell do something about it!
Ok,...


Views: 7465 Replies: 39


Ostomy lifestyle underwear model - rosemary

Here is another great video I found on YouTube:




Views: 11033 Replies: 15


Ostomy association

Hi,

Can anyone please tell me if you know of any ostomy association in Sydney?  Also, where can I purchase pouches? I am not a resident. Thanks.


Views: 1684 Replies: 2


There is hope of a relationship after an ostomy

A year and a half ago I had an Ileostomy done and became a widow at about the same time and never thought that I'd meet a man willing to be with a ostomate. Boy was I wrong !

I met the greatest man a month and a half ago, while I was fishing, thats fishing for fish , hehe not a man. we spent the day fishing side by side, he was a widower, and we became friends,
I think I met my soul mate... Iam 62 and this man makes me feel so loved and  like a kid again...meeting the rig...


Views: 7616 Replies: 33


Just had my identity stolen....they left my ostomy.

You would think they would have the decency to take the good with the bad.  If any one has a to-do list of things to check once you have had you life stolen online, I would appreciate it.  It seems like I am forgetting something obvious...Should I change carriers?  Go back to dial - up.  Stop using a computer?  I have called my cards, banks, police.  Please help, being a new ostomate was about all I could juggle.  I just order...


Views: 1607 Replies: 2


I have ostomy and i enjoy life to the fullest

Hi Everyone.

As most of you know, the month of August was proclaimed to be the month of Ostomy Awareness by the former USA president Ronald Reagan.

We, at MeetAnOstoMate.com, firmly believe that the ostomy surgery should not be known as the 'secret surgery', but rather as the 'life-saving surgery' which allows millions of people around the world to continue enjoying the beauties of our lives.

The goal of this website is to help everyone free their minds from negative t...


Views: 3217 Replies: 7


I'm looking for some one piece convexity ostomy bags

I'm needing some one piece drainable ostomy bags with convexity if anyone has any that the don't need. I've been wearing a convexity drainable pouch for years and now Arkansas Medicaid tells me that they will not pay for it anymore, well actually all of the companies around here have stopped taking Arkansas Medicaid because they won't pay enough for them to make money which I understand but what am I suppose to do? Arkansas Medicaid is all that I have and I won't qualify for medicare until I'm 6...


Views: 2958 Replies: 4


Taking care of my ostomy at church.....

A couple of weeks ago, just before the service was over, I went to the restroom because my bag was full and I didn't want to wait in line.  When I came in there were a couple of women in other stalls and as I sat there and opened up the bottom of my lock-n-roll bag, the women were washing up, chatting, and when they left they switched off the lights and it was REALLY dark.  

I sat there for a few moments holding up the end of the bag to keep it from draining, and th...


Views: 2337 Replies: 5


What type of ostomy?

Is there somewhere on personals that indicate what type of Ostomy each member has?  I am hoping to have a Colostomy reversal and was wondering how successful that is? I still have most of my colon so far....a rupture almost killed me.  Any suggestions on curing constipation?  If I can't correct it the whole colon goes when the colostomy is reversed....Please, any suggestions.


Views: 1582 Replies: 2


Opening my home to a ostomy support group

Hi, G' Morning, well seeing as I cannot find any ostomy support groups were I live in No. Eastern Conn. I've decided to open up my home, and start my own ostomy support group ...
If anyone lives in eastern conn. and wishes to join me, you can email me thu the site here, although I have limited access to email, and cannot email u back, I can read the mail..so if you email me you will have to give me your own addy in any email u send me, so I can get back to you....if interested..

tha...


Views: 2366 Replies: 5


Anyone going to ostomy conference in new orleans?

Hi, all. I'm considering attending the UOAA conference in Newe Orleans in early August. A long ways from the mountains of Nelson, BC, Canada, but I so want to meet other ostomates in person. It looks like a great line-up of information, networking and entertainment. Just curious if anyone here was considering attending.


Views: 3611 Replies: 8


Cymed ostomy is again available!

  CYMED ostomy stuff is back!  At least the pouches I've been using.  If I dare to mention a real supplier company, I just today found some in stock at Express Medical Supply, it's somewhere in Missouri.  If they have them others must as well.  Good hunting for all who really prefer the Cymed pouches.


Views: 2061 Replies: 1


Ostomy awareness month

Just a couple of days ago, I stumbled across something I did not know. Back in 1984, president Ronald Raegan proclaimed the month of August to be the month of Ostomy Awareness. Very interesting. Here is the text of the proclamation:



Proclamation 5231 -- Ostomy Awareness Month, 1984

August 28, 1984
By the President of the United States of America

A Proclamat...


Views: 1737 Replies: 1


Ostomy tips

I haven't seen any threads titled Tips, so I'm starting my own! I have a few tips that can make daily life with an ostomy a bit easier. If you have any, then post them. I'd really like to keep this thread strictly for tips so newcomers can find the information they need.


1. Carry and extra tailpiece clip with you at all times. This is in case you drop one while you're in the bathroom or if the hinge breaks. This hasn't happened to me yet, but I'm prepared!


2. Buy a bo...


Views: 25499 Replies: 54


Ostomy supplies

If you don't have health insurance, and have difficulty affording your supplies, Osto Group may be able to help you with reducing your costs. I was having this problem because I haven't returned to work yet and I don't have health insurance.  They are truly a blessing.  They are there specifically for people who can't afford the supplies and don't have health ins.  You can find them online.


Views: 1570 Replies: 1


Has anyone had a child with a ostomy?

HELLO ALL!!!
I AM A 32 YEAR OLD FEMALE AND CHILDLESS.  I WAS WONDERING IF ANYONE WHOS HAD THERE STOMA FOR AWHILE HAD ANY CHILDREN OR NEW OF ANYONE WHOS HAD A CHILD AND IF SO WAS THERE ANY DIFFICULTIES IF ANY?  THANK YOU IN ADVANCE FOR YOUR HELP.


Views: 4548 Replies: 12


People(ostomy) from india(ostomy association)

Hi Friends ,

       &nb sp;         ;    Most of the People from india met in the Ostomy Association Meeting in December2008 in Bangalore. It was very informative to New Ostomy people as well as Old People.

In that We  shared all our experiences .it was a good experience for me.I met so many People who are having ostomy(ileostoma,urostoma.).

It is better to share ou...


Views: 3807 Replies: 2


Re: please help! high output ostomy!

Hi, Jaidre.  Not sure if you are asking a legal question or are just looking for tips. If legal (and you live in the US) the Americans with Disabilities Act of 1969 would prevent anyone from discriminating against your employment due to your iliostomy. Either way, I'd check with www.uoaa.org & nbsp;       &nb sp;  Also, a group known as Advocacy for Patients with Chronic Illness, Inc. may be more helpfull...


Views: 1584 Replies: 1


Ostomy vs iliostomy

what is the difference between an ostomy and an iliostomy--I feel so stupid for asking. I am four months post op. I had my colon removed and I am new on your link.


Views: 6745 Replies: 7


   

 

 

 

 


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