I am 6 months in and I feel like I just got out of my 3-week hospital stay. At first, I was having terrible leakage problems and I still do at times. Now the issue is making this 'appliance' adhere to my skin, especially at the top. I have tried lying down when I change my bag, but this needs the assistance of someone else. I have also tried standing up when applying, sitting down, etc. I empty frequently for I have a very active ileostomy, but also I don't want the weight to pull on the adhesion. The placement of my stoma is directly under my right breast and I wonder if that is an issue. I am sure that the site is dry when applying, but lately, I live in fear of leakage. In all honesty, I thought by now I would be over all of the inconveniences, but they still remain an issue. I feel like I am 'hermitizing' and not wanting to go out just in case. Your thoughts would be greatly appreciated.
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We sat down with two influential people in the ostomy community, to find out how they cope during challenging times.
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Ostomy surgery is stressful both for the patient and the caregiver, and creates a major life change for both people in a relationship.
Learn how to care for your loved one, while still taking care of yourself.
Learn how to care for your loved one, while still taking care of yourself.