Hi everyone I'm new here & looking for some advice I guess,
In Feb 2023 I became sick very sick, I had no illness up to date, lived a healthy life, until I started getting diarrhoea that tined bloody and I was going running to the toilet all day, I lost 3 stone in weight & I was admitted to hospital early March 2023, My consultant diagnosed me with UC, I never suffered from it before & I'm also pregnant 10 weeks, I was given two rounds of the inflexima infusion to treat UC, my body was not responding to the treatment,I needed 3 blood transfusions & as a result I needed to have life saving surgery as I was at high risk of getting sepsis as my bowel was about to burst, I had the surgery done March 22nd I was 13 weeks pregnant, my surgeons had given my baby 0% chance of surviving during and post surgery over the stress of the surgery, but miracles do happen & my baby survived and I had him delivered via C section on Aug 31st and he's 5 months old now & we are so blessed with him, we also have a 2 year old so v busy house,
I meet my consultant last week and he said I can either make my stoma permanent or have a J pouch,
My stoma is v well behaved ,no issues with it,and with the J pouch it's juts the unknown as I know it effects everyone differently, I would like to have the J pouch surgery again it's fear of more surgery & getting pouchitis & having accidents etc and not being active for my two little boys while I'm recovering from surgery,
I guess what I want to know is those who made there stoma permanent are you happy with your decision?
And those who had the J pouch stoma reversal how was your recovery & experience and how are you finding life without a stoma bag and juts using the toilet ?
Thanks a million