I am facing a change. I have developed a parestomal hernia and the colorectal surgeon suggested an IRA. They could try to patch the hernia with mesh but it would likely reoccur. He said no to a Jpouch because I have Crohn’s and he just will not do that. I have 10 inches of colon including rectum to reattach to. I’ve have had my Ileostomy for 29 1/2 years and have longed to be reconnected ever since. I have not had any flare ups since the original Ileostomy surgery. All scopes have been negative for Crohn’s. I’ve asked my gastroenterologist several times over the years if I could be reattached and each time he said no because of the original diagnosis of Crohn’s. Now this presents itself. I feel It’s a very difficult decision and an easy one at the same time. I truly believe I wouldn’t be here today if I hadn’t had the colectomy/ileostomy years ago and I am so grateful for the pain-free years I have had.
But I feel I have to go ahead with the IRA, it’s what I always wanted, I hate how my body looks now, always self conscious… I’ve done some research and understand the risks. Yes, I am scared of the unknown but I think I would regret it if I passed up the opportunity now while I’m not too old(57) to have it. I pray that those unused parts remember what to do when attached😟. I guess I just need to hear from this group to talk it out but I haven’t seen anyone in a similar situation to chat with. I’d love to hear if anyone has heard of someone being reattached after almost 30 years. ?💜