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Cymbalta

Thu Jul 21, 2022 7:20 am
"This is the best website for people with an Ostomy, hands down. So much understanding. Everyone should join."

I’m still having pain issues and it effects my quality of life severely. Currently take oxycodone 15mg every 4 hours I’m awake for breakthrough pain and wear a 75 mcgh fentanyl patch and all that plus some medicinal cannabis barely touches the pain, a pain level of 7 is a good day for me.

My doctor suggested we add cymbalta to the mix of the other many and assorted medications, I was all for it, I felt no difference the fist few day except nausea so I lost a few more pounds and didn’t want to eat. Well that side effect went away about 5 days into it and much to my surprise I started feeling much better, I managed to do 40 minutes of weeding a day, (Alex’s yard makes me jealous) well then the next side effect took hold, dizziness, I was not prepared for this at all, found myself on the floor twice and that wasn’t where I started. Contacted doctor and was told to discontinue immediately, one doctor told me try taking a liter of saline to see if that abated my issues, unfortunately it did not, the medication took roughly a week to get out of my system and now the pain is back with a vengeance, the dizziness remains at a much lower lever however. I also have hypotension so random dizziness is an issue but I can tell when it coming, cymbalta gave no warnings and was just random.

I managed to get a lot done but now I have zero energy again to complete my yard projects. 

I guess the good news is I managed to change my appliance before my laziness forced me to do it. I also started Remicade and have my second loading dose tomorrow, last time I went my bag sprung a leak 10 minutes into the 2hr infusion, so for about 3.5 hours I held a washcloth over my leak until I made it back home and did a full change.

I hope the remicade is part of what was making me feel better and that this next dose will allow me to continue in my yard.

I’ve weeded the biggest mulch bed and am prepping it to plant my mothers ashes under a rose bush. She loved roses and when I moved across the country I wasn’t able to dig up and bring her rose bush with me, it’s bothered me for years. There will be three rose bushes with her being the middle rose bush, her variety is called Rio Samba, it’s a coral colored rose, Mom’s were yellow and I don’t care for that color. And on either side will be a rose called dark night that has yellowish petals with deep red tips.

Thu Jul 21, 2022 7:21 am

MeetAnOstoMate - 27,382 members
Thu Jul 21, 2022 7:21 am

Thu Jul 21, 2022 7:22 am

Before

Thu Jul 21, 2022 7:23 am

After

Thu Jul 21, 2022 7:27 am

Sorry y’all I don’t know how to insert more than one pic in a post 

Thu Jul 21, 2022 7:40 am

Hi.  I identify with the pain and have been on oxy for 2 years-3-4x daily 15 mg.  Even though I have no colon, (have a k pouch) I developed a skin condition from UC that is taking too long to heal and is very painful.  Can't wait for pot to be legal-I think it will help me.  Where is your pain?

Thu Jul 21, 2022 7:58 am


liznyc wrote:

Hi.  I identify with the pain and have been on oxy for 2 years-3-4x daily 15 mg.  Even though I have no colon, (have a k pouch) I developed a skin condition from UC that is taking too long to hea...

My pain is everywhere, my body feels like I went to the gym for the first time in a decade everyday, I get sharp ice pick stabbing pains in my rectum out of nowhere. And to top it off I also get migraines. All of my joints hurt and I’m using a cane these days. About the only thing that doesn’t hurt is my prolapsed ileostomy. 
I’m waiting on my next  2 scope procedures next Friday the 29th to make sure there is no cancer, once that’s confirmed it’s Barbie butt time. I have some deep abscesses in my rectum and a massive fistula tract, that’s where my pain starts. 
Tha cannabis helps me to relax and calms muscle spasms. It certainly isn’t for everyone and doctors are zero help with cannabis dosing. 
Medical Marijuana as it’s called in NY is available, it costs about $150 to get your med card and it’s worth every penny in my opinion. I was a med patient for MMJ in WA state and now in MA. Having the med card saves me over $150 in taxes over the year when I go buy my medicine there. And renewing you authorization usually drops to $100 per year. Curaleaf is a decent company and you could call them to get started if you so choose. 

Thu Jul 21, 2022 8:59 am

Yard looks good and those roses will add some beautiful color. 👍 Can’t help ya with the pain as I don’t experience any but I hope it gets better for ya. 

Thu Jul 21, 2022 11:51 am

The one side effect I felt after the surgery is extreme fatigue, which would come on and off but stamina was way off. My brother highly recommended a product that Andean people up on the highlands of the Andes use as a potent source of energy. It is called Maca, must be the darkest one, the black one. I buy mine from a cooperative high on the Andes. I drink a four ounce of Kefir each day, and take seven pills of Maca, and gives me enormous energy. Kefir comes in many flavors and it's very tasty. Maca is a root, they consume it in many ways in the Andes for the energy it gives. It has worked for me in a big way, used to feel tired all day, getting energy was a struggle. It's worth a thought. I'm fascinated by South American cultures, planning a trip there a couply of years perhaps. The Kefir alone gives you energy, but combined with the Maca gives me a jolt of energy.

Thu Jul 21, 2022 12:21 pm


Mr.Heart2Win wrote:

The one side effect I felt after the surgery is extreme fatigue, which would come on and off but stamina was way off. My brother highly recommended a product that Andean people up on the highlands ...

Isn’t that kinda like false energy though? If you don’t take it, you don’t have the energy.  Especially on a regular basis. I’m guessing a lot of the fatigue comes from being dehydrated from having output constantly and losing nutrients from food too fast to get absorbed properly. Then, trying to hydrate enough flushes things out even faster. 

Thu Jul 21, 2022 1:14 pm


Abefroman1969 wrote:

That is absolutely stunning Paul xx

Thu Jul 21, 2022 1:37 pm


Caz67 wrote:

That is absolutely stunning Paul xx

Thanks Caz

Thu Jul 21, 2022 1:45 pm


Mr.Heart2Win wrote:

The one side effect I felt after the surgery is extreme fatigue, which would come on and off but stamina was way off. My brother highly recommended a product that Andean people up on the highlands ...

I’ve tried kefir in smoothies and plain drinking as it comes, I don’t care for it, not sure what it is about it. I’ll look into the Maca.

Thu Jul 21, 2022 1:46 pm


Abefroman1969 wrote:

My pain is everywhere, my body feels like I went to the gym for the first time in a decade everyday, I get sharp ice pick stabbing pains in my rectum out of nowhere. And to top it off I also get mi...

I’ve also been through a lot the last couple years so I’m working back into being able to do things outside. Just trying to keep up with basics around the house has been a challenge. I just want to get a few big sized things done before the surgery as then I’ll once again be laid up, I have hidrenitis and that will make the grafting more difficult as well as fixing the prolapse. 

Thu Jul 21, 2022 2:50 pm


Abefroman1969 wrote:

WOW !!! What a beautiful Rose !! 👍👍.. Which one is that , is there a name ?  Mom would be proud of that one Abe !! 👍☘👍

Thu Jul 21, 2022 2:51 pm


Abefroman1969 wrote:

WOW !!! What a beautiful Rose !! 👍👍.. Which one is that , is there a name ?  Mom would be proud of that one Abe !! 👍☘👍

Thu Jul 21, 2022 4:32 pm


Mayoman wrote:

WOW !!! What a beautiful Rose !! 👍👍.. Which one is that , is there a name ?  Mom would be proud of that one Abe !! 👍☘👍

The unlabeled one is called dark night, Rio Samba is the one closest to the roses I couldn’t dig up and move in color. 
Rose garden will be Dark Night, Rio Samba(Mom), Dark Night. 
I may change my mind on Rio Samba but whatever I do choose for her living urn will be renamed Rose Diane 



Last edited by Abefroman1969 on Fri Jul 22, 2022 5:15 pm; edited 1 time in total
Thu Jul 21, 2022 7:04 pm

I get migraines, too. Not horrible like in the past but chronic. I tried the antidepressant Nortriptyline which is for anxiety, depression and nerve pain. I stopped it because it dried the hell out of me (I was on a high dose for the migraines) and I figured I didn't need to be any drier since my ostomy can dehydrate me already. Maybe a lower dose can work for you? I'm so sorry about your pain level. That truly sucks......

What a beautiful rose and what a beautiful way to honor your mother's memory.

Fri Jul 22, 2022 9:58 am

Beautiful what you are making for your mom. ❤️

Fri Jul 22, 2022 5:11 pm


SallyK wrote:

Beautiful what you are making for your mom. ❤️

I wasn’t quite ready but my fat finger ordered the urn/planter last night when I was checking shipping rates. Also if anyone else is thinking of doing this I recommend their shop on Shopify, if I had been hip to that I could have saved $10.

Thank you Sally, I can’t wait for spring to put it all in! The roses are best planted in the spring and my choices are currently sold out

I’m so lucky to have Ma and Papa still here to help me, Ma is my sisters Mother and Papa is her partner, and as far as I’m concerned as well as they telling me so, I’m their son period. No half, no step, just their son, that makes me very happy and made my Mom very happy before she passed away  that they had accepted me as such. Just do t want folks getting confused when I say Ma is helping me out. If I say my Mom or Mother I'm talking about the roses and the woman who raised me, if I say Ma it’s my 2nd Mom and to avoid confusing me and out of respect for my Mother I call her Ma! 
Abe 

aka

Paul

Fri Jul 22, 2022 5:17 pm


eefyjig wrote:

I get migraines, too. Not horrible like in the past but chronic. I tried the antidepressant Nortriptyline which is for anxiety, depression and nerve pain. I stopped it because it dried the hell out...

Thank you for the info, I’ll ask my doc about Nortriptyline next Thursday on my visit. I drink a gallon of water and a half gallon of Gatorade everyday, so far I have not gotten dehydrated and I don’t want to! 

Fri Jul 22, 2022 11:21 pm


Abefroman1969 wrote:

Thank you for the info, I’ll ask my doc about Nortriptyline next Thursday on my visit. I drink a gallon of water and a half gallon of Gatorade everyday, so far I have not gotten dehydrated and I ...

Holy crap, that’s ALOT of liquid. 

Fri Jul 22, 2022 11:41 pm

I hope you find an answer to your pain ..having chronic pain is exhausting..Humeria was my lifesaver.

Sat Jul 23, 2022 8:45 am


AlexT wrote:

Holy crap, that’s ALOT of liquid. 

You are right, and oddly enough the bathroom trips to unload it vary wildly from day to day. Doctor told me to cut out 1/2 the Gatorade and to cut down my coffee from 2 to 1 cup. I’ll try the Gatorade bit first. This constant take away his coffee is very disappointing, I’ll just use a bigger mug of course. He’s been wrong about the coffee before so I’m confident that’s not it.
Always appreciate your comments and get it done attitude and genuine personality my friend. Thank you.

Please give Cooper the snow leopard a scratch for me! 

Sun Jul 24, 2022 7:55 am


Abefroman1969 wrote:

You are right, and oddly enough the bathroom trips to unload it vary wildly from day to day. Doctor told me to cut out 1/2 the Gatorade and to cut down my coffee from 2 to 1 cup. I’ll try the Gat...

Good day Happy Sunday time flys July 24 already but anyway 

I can relate to EVERYONE because we all are different abd I suffer with pain every day and have what many people go through and uncomfortable 🥵 feelings and can’t eat everything or things others can and drink coffee sometimes it helps me and sometimes he don’t anyway I just wanted to put my 2 cents I’m sorry 

I’m happy for people that don’t have pain and that’s awesome 😊🙏🏻😇 

But again. We all have different issues and stuff we go through and it’s not fun! 
just sharing my thoughts to and pray we all are ok and what ever your doing it’s ok 

Becareful and stay safe I love ❤️ you all and let’s all reach out and touch somebody every day! Have a great day! Thank you 😊 

Its a NewLifeVictoria 😇🙏🏻❤️🤗

Sun Jul 24, 2022 8:01 am


NewlifeVictoria wrote:

Good day Happy Sunday time flys July 24 already but anyway 

I can relate to EVERYONE because we all are different abd I suffer with pain every day and have what many people go through and uncomfo...

Ops forgot to say I drink a lot of coffee and water electron

and have to be careful what I eat can’t eat what others do (anything,)sometimes it gives me to much pain and had had blockage,but anyway I’m careful what I eat we’ll try to be 

also not sure if you know this

Coffee and grape juice helps if your in pain some I think the pain is we have to poop 💩 yikes did I say that 😊🙏🏻😇

Mon Aug 01, 2022 1:02 pm

Get rid of the oxycodone its so addictive I take slow release 30mg 2 times a day and 10 mg fast release.

I been on the since 2008 I had a compression in my back left untreated for 6 day cause so much damage I lost my bladder and bowel functions so have 2 bags. I have loads of problem my bladder went septic I have had 3 massive hernia ops for stoma refashions as I have granulars 

I am having my 14th op soon they are moving my colostomy to above my wee stoma its a big op as they got to use my small Intestine. These granulars have eaten the stoma they bleed I fill a bag of blood daily. I am anemic I have to have b12 injections. All because I was sent home from hospital with untreated cauda equine syndrome when was was finally admitted I was left for 6 days in all so much spine nerve damage I have had a further back op I got rods plates cages. I have had c5 c6 c7 plates cages fused. I sued the hospital and the did not even contest it so I am a rich unhealth man. I miss my old left golf going out. So sorry I gone on I take alot of meds like u. I agreed to have this stoma moved in November but I have been asked to have pre operation on 22nd Aug so the bloods and ct have got some thing my consultant as spot. At least I have in my caravan near the sea on the Kent coast Romney Marsh Kent uk.

Mon Aug 01, 2022 7:41 pm


liznyc wrote:

Hi.  I identify with the pain and have been on oxy for 2 years-3-4x daily 15 mg.  Even though I have no colon, (have a k pouch) I developed a skin condition from UC that is taking too long to hea...

CBD works for pain and CBN allows me a full nights sleep with no side effects. Can you drive up to Maine??

Tue Aug 02, 2022 7:00 pm

Cannabis products have gotten me off all prescription painkillers and I'm happier and healthier for it. The various oxys and the morphine pills

made me a very sad and constipated person. Washington state, your mileage may vary...

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