Ostomy Support Forum

I am one and a half years with an ileostomy. I have black output since this morning. I feel fine, no cramping. The only change in my diet was yesterday when I had a couple of cranberry and vodka drinks. I do have a call into my gastroenterologist, but haven't heard back. Anybody have any experience with black output?

IF YOU ARE AN EARLY RISER, like me, you are keeping company with other well-known morning persons like Ben Franklin and Henry David Thoreau. “Cultivate the habit of early rising,” suggested Thoreau. “It is unwise to keep the head long on a level with the feet.” This is especially true for people with an ostomy, since we have a natural need to allow gravity to work its magic on our C ...

So I went for a coffee date yesterday; everything was going great (or so I thought). We talked about all the generic stuff that you do, etc. And then we got onto the subject of my stoma (bearing in mind I make it clear at all times to do research or ask me questions before a date). Well, suffice it to say it rapidly went downhill from there. It turns out not only did she not do much research, ...

Greetings..

Having spoken to Kas we both have decided to purge our inventory of unused, mostly expired, donated from others, osty supplies.

She and I will be listing our inventory for you to decide if you'd like some spare supplies for those " oh shizt" moments u run out or can't stop leaking.

It pays to have extra supplies.

There should be no issue with expired supplies. Some...not ...

I've been thinking that someday it would be nice to swim again but wonder if it's going to be too much trouble. I searched for "waterproof ostomy cover for swimming" on Amazon but I'm not sure I saw anything that's right for me. I have a big waist and wear size 3x-4x pants. Does anybody who's large-waisted swim? I'd like a product that keeps my ostomy pouch and wafer dry while swimming.

Sooooo, I've been dealing with this for a while and trying all sorts of things. The latest has been the Eakins circle thingie; I forget what it's called. I tried the marathon stuff, and it didn't really help and also created a very uneven surface by coating the injured skin and not coating the uninjured skin. It also did sting for me. I tried the flow assist thing, and that helped some, but mo ...

Hi,
My husband is 7 weeks post-loop colostomy for Crohn's disease. He has had 4 episodes of severe cramping/abdominal pain in the past 2 weeks, coupled with high ostomy output. He has never had these episodes before, and when small amounts of stool come out, he does not have this experience. He is describing 10/10 pain. He has some relief when he evacuates mucus from the rectum. Does anyone kn ...

After having a J pouch for a number of years, it failed and I went back to an ileostomy. Fast forward 18 years later, I decided to have the inactive J pouch removed due to frequent bouts of pouchitis. The surgery was 8 weeks ago - the J pouch was removed, the surgeon spent 90% of his time cleaning up the adhesions, and gave me a new stoma. However, my output has been quite high (2500 ml in a 2 ...

Hi, I'm 9 weeks post-surgery. I had a Hickman procedure and have a stomach requiring convex bags. At the beginning, my stomach was quite far in, and a number of the stitches came adrift in the first few days. I've now gained around 6 kg (I'd lost 14 kg prior to surgery), which has pushed the stoma out slightly, but I now have a small hole where feces comes out - not always, but it's extremely ...

Hello! The edges of my ileostomy are raw. I've used the stoma powder and also tried calamine lotion, but once the pouch is on, it stings. I've also poured some water in the pouch. Any suggestions?
Peace

Hi, question here. What is it called when you flush your colon with water daily, instead of wearing a bag? Does anyone here do that? What's it like?
Thanks