Ostomy Support Forum

After having a J pouch for a number of years, it failed and I went back to an ileostomy. Fast forward 18 years later, I decided to have the inactive J pouch removed due to frequent bouts of pouchitis. The surgery was 8 weeks ago - the J pouch was removed, the surgeon spent 90% of his time cleaning up the adhesions, and gave me a new stoma. However, my output has been quite high (2500 ml in a 2 ...

Hi all, first time posting here.
I wanted to get more scientific information about J-pouch and wanted to know if there are any recent journals in the past 5 years that discuss the subject.
Anecdotes are okay, but not what I'm looking for.

A staple magically appeared at the bottom of my stoma 2 days ago. I went to the doctor today, and they said it should work itself out. As long as I don't have any issues and am still pooping properly, and it isn't causing me any discomfort, I should leave it alone. Have any of you ever experienced something like this? I still feel a little nervous about it.

As I've said before, I have a urostomy and ileostomy. Recently, I've been told that my ileostomy can't be reversed due to radiation damage, etc. The only option now is a permanent colostomy. Devastating. I don't know how I'm going to deal with this. Really struggling, dark thoughts. Any tips about f'ing living with a urostomy and colostomy?

I have been using Cavilon Skin Barrier Wands since my old Dermarite Wands are so hard to find. Well, I noticed that in the shower now my barrier starts to come unglued. That is not a desirable effect if I want to go swimming any time soon. If water is going to cause my barrier to come unstuck, then I can't go swimming. This never happened with my Dermarite Wands. They worked to keep my barrier ...

Hi everyone
Not your usual topic title...
But bound to get some attention
Lately, I've been feeling an overwhelming urge to pee when emptying my ostomy bag.
Is this a common thing for most of us, or maybe a sign I'm getting older?
Love some feedback

I am almost 3 weeks out from my surgery, and I still am in pain. A stinging, stabbing pain when I walk on the right side of my colostomy bag, stabbing pain from 6 incision points on my left, and somehow I woke up with severe hip pain after surgery. I have a lot of swelling in my lower stomach that has caused rubbing, and now I have the most horrible heat rash. So I can say I am thoroughly mise ...

I have a 4" round hernia under my stoma and at least 3/4-1" high! Just found out 1-1/2 years after having surgery! I have to wear stretchy larger size pants to accommodate the hernia. I look horrible when I get dressed up... don't go out much anymore. Very uncomfortable, especially sleeping. I feel like I'm pregnant again, except with no beautiful outcome, and it lasts longer than 9 months! An ...

Hi everyone, hope you are all having the best day you can.
I have had my colostomy for 4 years following treatment for colorectal cancer and have been plodding along okay, or so I thought. Over the last 12 to 18 months, the fatigue and pain levels had been gradually building again until I realized that I felt the same way as when I was having radiation therapy. Blood tests and GP visits have r ...

Hello
My question of the Membership should not be viewed as a negative one - but rather as a discussion concerning the elements involved and at what points a personal 'get on/get off' comes about.
My own circumstances are those whereby I am continuing to have intermittent blockage symptoms, despite careful diet and routine management over time - i.e., I am an experienced patient having had my ...

Just above where my base plate ends, I have horrendous pain. Can anyone tell me why putting a hot water bottle on it helps? It makes it less painful, but it still hurts. If I don't do this, I cannot stand, walk, or function when it happens. It's like a contraction, but 20 times worse. I would definitely have a baby over this pain any day. Any thoughts, please? It seems to move things along ins ...