Question: What are some recommended books by medical professionals on living with a stoma?
Answer: The forum discussions provide several book recommendations by medical professionals on living with a stoma. These include:
- "Holistic Stoma Care" by P.K. Black, which is cited in Phoenix magazine.
- "Living with a Stoma" by Dr. Craig A. White, available through Sheldon Press.
- "The Ostomy Book: Living Comfortably with Colostomies and Ileostomies" by Barbara Dorr Mullen and Kerry Anne McGinn.
- ...
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Question: Are there any books by medical professionals about ostomies?
Answer: Yes, there are several books written by medical professionals about ostomies. One notable book is "Abdominal Stomas and Their Skin Disorders," which is a reference book containing photographs and medical terminology for various peristomal skin complications, along with standard treatment options. Another book is "Abdominal Stomas: Indications, Operative Technique and Patient Care" by Jerome S. Abr ...
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Question: Has anyone experienced sharp, burning pain at the stoma opening during output with an ileostomy?
Answer: Based on the forum discussions, here are some insights and advice related to the described pain:
- Pain Characteristics: Sharp, burning pain at the stoma opening, especially during output, can sometimes be related to nerve-related issues or mechanical irritation.
- Mechanical Causes: Ensure that the ostomy appliance is fitted correctly. A poorly fitting barrier or pouch can cause pressure or irr ...
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Question: When should I mention my colostomy to someone I'm dating?
Answer: Based on the discussions from the forum, here are some insights on dating with a colostomy:
- Timing of Disclosure: There is no universal rule for when to disclose your ostomy. Some people choose to mention it early in the relationship, while others wait until a connection is established. The key is to choose a timing that feels comfortable for you.
- Building Confidence: Confidence and self-acc ...
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Question: How can I store ostomy supplies in a small bathroom?
Answer: Based on the forum discussions, here are some storage solutions for ostomy supplies in small spaces:
- Compact Storage Units: Consider using slim storage units that fit in tight spaces, such as between the toilet and cabinet. These can be found on platforms like Wayfair or Amazon and are effective for organizing supplies discreetly.
- Narrow Plastic Drawers: Affordable narrow plastic storage dra ...
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Question: How can I remove stubborn adhesive residue from my colostomy bag?
Answer: Based on the forum discussions, here are some methods to effectively remove stubborn adhesive residue:
1. Adhesive Remover Products: Use a combination of adhesive remover spray and wipes. Apply the spray around the edge of the adhesive, wait a few seconds, and then gently peel off the adhesive while supporting the skin. Follow up with wipes to clean any remaining residue.
2. Household Oils: Cons ...
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Question: Has anyone experienced a skin ulcer under their stoma bag that won't heal, and how did you treat it?
Answer: Based on the forum discussions, here are some strategies that have been suggested for managing and healing peristomal skin ulcers:
1. Barrier Seals and Dressings:
- Consider using ConvaTec Ostomy Barrier Seal rings or Eakin Seals to protect the skin and prevent leakage.
- Use DuoDERM Extra Thin CGF Dressing to "picture-frame" the peristomal skin, which can help clear chronic skin issues and ...
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Question: Is it normal to have trouble keeping a colostomy bag on after surgery, and does it improve as the skin heals?
Answer: It is common to experience challenges with ostomy bag adhesion shortly after surgery, especially if the stoma is located in a moist area. As the surgical site heals, the moisture levels may decrease, potentially improving adhesion. Here are some general tips to help with adhesion:
- Ensure the peristomal skin is completely dry before applying the appliance. Use a hair-dryer on a cool setting or b ...
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Question: What ostomy bag works for an innie stoma without needing a belt to prevent leaks?
Answer: For managing an "innie" or retracted stoma without relying on an ostomy belt, consider the following options based on forum discussions:
1. Convex Appliances: Many users have found success with convex wafers or pouches, which apply gentle pressure around the stoma to help it protrude slightly and improve the seal. Products like the ConvaTec 2-piece Convex Moldable Wafer and Coloplast SenSura Mio ...
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Question: Is hair loss normal after ostomy surgery?
Answer: Experiencing hair loss after ostomy surgery is a common concern among ostomates. This type of hair loss is often referred to as "telogen effluvium," which is a temporary condition triggered by the physical stress of surgery, anesthesia, or significant changes in health. It typically begins 2-4 months post-surgery and can last several months before regrowth starts. Most individuals report that thei ...
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Question: How can I help my mom manage nausea and appetite issues after her ostomy reversal?
Answer: Based on the forum discussions, here are some general guidelines and advice for managing eating and appetite issues after an ostomy reversal:
- Diet Progression: Start with a liquid or very soft diet and gradually reintroduce solid foods as tolerated. This can help manage nausea and ease the digestive system back into normal function.
- Small Portions: Encourage eating small, frequent meals or s ...
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Question: What can cause pelvic pain after colectomy surgery?
Answer: The forum discussions provide several insights and advice that may be relevant to your situation:
- Pelvic Floor Dysfunction: Pelvic pain and muscle tightness can be related to pelvic floor dysfunction. Consider seeking a pelvic floor therapist or a chronic pelvic pain clinic for evaluation and treatment.
- Imaging and Specialist Evaluation: If the pain persists, it may be beneficial to undergo ...
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Question: Can I wear a corset with an ostomy, and how can I modify it for comfort?
Answer: The forum discussions provide several insights and suggestions for wearing corsets or similar garments with an ostomy:
- Corset Use: Some users have successfully used corsets to conceal their ostomy pouch during intimate moments, provided the pouch is emptied first. Adjustments may be needed afterward to ensure comfort.
- Alternative Garments: Consider using garments like the Ostomy Secrets Wrap ...
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Question: When is it safe to resume intimacy after ileostomy surgery, and are there any recommended positions?
Answer: Based on the forum discussions, here are some general insights and advice regarding resuming intimacy after ileostomy surgery:
1. Consultation with Professionals: It is advisable to confirm with a healthcare professional, such as a surgeon or ostomy nurse, to ensure that healing is sufficient and there are no specific medical concerns that might affect resuming sexual activity.
2. Timing and Rea ...
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Question: What do you eat daily with an end ileostomy to avoid blockages?
Answer: Based on the forum discussions, here are some dietary suggestions for someone with an end ileostomy who is cautious about blockages:
- Breakfast Options:
- Oatmeal (5-minute, not instant) for soluble fiber and satiety.
- Scrambled or hard-boiled eggs.
- Smoothies with peeled fruits and yogurt.
- White bread with peanut butter or cheese.
- Lunch Ideas:
- Grilled chicken or turkey breast ...
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Question: What are some jeans options for a petite person with an ileostomy looking for low-rise styles?
Answer: Based on the discussions from MeetAnOstoMate, here are some suggestions for finding jeans that accommodate an ileostomy, particularly for someone seeking low-rise, flared, or wide-leg styles in petite sizes:
- Low-rise or Mid-rise Options: These styles can be more comfortable as they avoid placing pressure directly on the stoma. Pairing them with longer tops can help cover the pouch area.
- Stre ...
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Question: Are GLP-1 medications safe for someone with a colostomy and a history of bowel disease?
Answer: The discussions on MeetAnOstoMate provide insights into the use of GLP-1 medications like Ozempic for individuals with a colostomy. Here are some key points:
- GLP-1 Effects: These medications, including Ozempic, can slow stomach emptying and intestinal motility, potentially leading to constipation or reduced stoma output. This is particularly relevant for those with a colostomy, as the output ma ...
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Question: How can I prevent skin breakdown around my end ileostomy?
Answer: Based on the forum discussions, here are some strategies to address skin breakdown around an ileostomy:
1. Appliance Fit and Leakage Prevention:
- Ensure the wafer fits properly around the stoma to prevent leaks. Measure the stoma regularly as its size can change.
- Consider using a convex wafer if the stoma is flush or recessed to improve the seal.
- Use barrier rings or moldable seals ...
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Question: Has anyone experienced an infection near their stoma, and how did you treat it?
Answer: Based on the forum discussions, here are some general steps you can take if you suspect an infection near your stoma:
1. Seek Immediate Medical Attention: If the infection is worsening, it is crucial to consult a healthcare professional as soon as possible. Persistent pain, pus, and bleeding may require prompt medical evaluation to prevent further complications.
2. Professional Assessment: Conta ...
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Question: Can I use a convex wafer with an ileostomy and still work a desk job without leaks?
Answer: Based on the discussions, using a convex wafer can help manage leaks, especially if the stoma is flush or retracted. Convex wafers are designed to apply gentle pressure around the stoma, helping to create a better seal and reduce leaks. Many users have reported success with convex wafers in similar situations, even when dealing with a hernia.
For someone with a desk job that involves walking and ...
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