What's New

Last week I had my 6 month visit with my VA physician. I brought up to her again that my thumb and forearm were still numb.  This has been going on since February of 2017.  I have discussed this with my doctor numerous times.  She followed regular protocol,  having several rounds of Physical Therapy and disc replacement in my C5/C6 area of my neck.  As of last week, my symptoms remain the same.  I told my doctor that I had a feeling of fullness under my right armpit and that It feels like there is something pressing inside my armpit space and that I believe that it is pressing on my nerve in my arm.  I requested that I be given an ultrasound to rule out any masses that may be inside my arm.  I had the ultrasound last Friday and was called by the doctor several hours later, stating that I was right, there is a mass under my right arm.  I will be having a cat scan and a needle biopsy within the next week.  I have also found a new bump on my left arm, just above my wrist.  In the last month, I have experienced extreme left hip and leg pain and have asked that it also be investigated.  I am the same age my mother was when she was diagnosed with Non-Hodgkins Lymphoma.  I can tell you that I am very concerned and scared about of all of this.  Through my research, I have discovered that the lymph nodes can swell and press on nerves under the arm, in the back and the neck. I read where it can cause a great deal of pain in the lower back, flank, hip and buttocks.  I am worried because this has been going on now for over two years and it was not followed up on after I continued to report it.  Since the death of my lower bowel in July of 2017 and the redo of my ileostomy in February of 2018, my doctor pays more attention to me and my concerns but if I have something bad, it very well could have been treated earlier.  However, none of the blood tests showed anything wrong so they did not pay as much attention as I feel they should have.  Now I am very worried that I may have Cancer!!  I will update after the cat scan and biopsy but your positive energy would be greatly appreciated.

Okay, so I have a colostomy. Had an ileostomy, then surgeon talked me into a permanent colostomy. I've had it a couple years now. I like the two-piece bags, but I'm having trouble with my wafer staying attached. There are two things causing it two come off with bad timing...well, three, but the third one I can handle..

When I'm not sick I like to be outdoors working on cars or doing yard work, and I sweat like a stuck hog. I mean, really, I've got central air in the house and also a window unit in my room I sweat so much. But as I sweat the adhesive breaks down. The border swells up and comes lose from my skin. Then the outside will eventually come loose, and I will soil myself. Many times I have to hold a towel or take my shirt off to hold it in one place till I can get to a place to clean it up and change it. I've tried antiperspirant around it and on my chest. I've tried wrapping a towel or taping a towel just above it. I'm out of ideas, my sweat breaks it down from the inside out. From underneath the appliance. If I could stop sweating under the thing it would help, but I don't know how... Any ideas?

The other problem is when I wear pants. The waistband seems to enjoy separating my bag from my wafer. Usually only when I'm bending at the waist. Like when I'm working on something. I suppose I could wear jogging pants, but I don't like to work in them. Outside of wearing one-piece appliances, does anyone have any ideas?

Any ideas would be greatly appreciated. Thank you, and hope anyone reading this is doing well.

Motivated by Angelicamarie. 'smile'.

Hello world.

I can't wax lyrical like many.

After Sue 21/10/18 croaked, died, past, left or whatever your choice of
terminology suits you..

Some here may or may not know, I built her coffin, picked Sue up
from the mortuary then took her to the crem, Sues son and 3 mates
helped to help carry her in and placed Sue on the catafalque.
No service, we had decided long before.

Sues son and we went for a few beers after, about 10am at a pub
who opened for me, Nicola was working for me that day.
Anyway, the day didn't work out my way.

I'd spent all night making Sues coffin look good, I made a stupid
mistake by using a toluene based wax in an enclosed, warm enviroment,
I was found on the steps to my gaff about 1pm later the day of Sues funeral.
It took 3 days before my breathing became ok lol.

Digression ..

Since Sues demise life has been and is crap, the amount of her clothing
et.c paper work, photo's to clear out was a lot but many trips down memory
lane, that was so so hard..

I'm very sure many on here know this, not many talk though, I can understand.

I'm not sure what the future holds for me, at
this point I really don't overly care, but shortly I'm moving to the
east coast of yorkshire and watch the sea while practising building
sandcastles.

Seems like a good place to start to me, a dog maybe.We concluded aliens abducted our
last one, pic.

So, I want to appologise. To some I already have, for maybe being
a bit 'curt' too sharp or grumpy to some and maybe not listening loud
enough.

I've had a low tolerance level for a while, but I still try to
help anyone, even though being nice tends to come back and bite my
ass, too many perceive nice as a weakness.

Often the ignorance of people annoys me, as I'm sure it does many, just a
thank you for taking your time to reply would be nice.

Yap Yap Yadda Yadda

Angelicamarie, in your recent post to me it ended in 'smile'.

I'm not sure how to post pics on here but..

One of my drivers, Nicola, holds down three jobs, inc me, she
is 31yr old single mother of two 8/5yr old lads.

I employed her before Sue left and if anyone has given me a
reason to be here it's Nicola, I so wish she was my daughter.

So before I move I've treated her to flying lessons, I wasn't sure
if she would like it, she loves it.

My point now. Sometimes if you can give someone a chance then why the hell not.

Nicolas Smile was radiant, until she 'departs' she will never
forget this journey in her life.

What price a smile

Best wishes folk

steve

I was going to have an endoscopy to look for polyps in everywhere digestion related plus a colonoscopy but o reminded the dr I dont even have a nanometer of colon left. So they switched to flexible sigmoidoscopy through my stoma.

I've never heard of such a thing and I dont know if the scope will fit in my stoma? Will it hurt? Will I be awake and feeling it? Will it bleed after? Whats the sigmoidoscopy see? As I want to make sure there's no polyps anywhere in my whole system. 

I would ask my dr/surgeon but he is in clinic all week and the actual sigmoid dr says ask your dr/surgeon. And the nurse kist says see the paperwork I sent. Except its paperwork for colonoscopy and endoscopy.

Thanks

Motivated by Angelicamarie. 'smile'.

Hello world.

I can't wax lyrical like many.

After Sue 21/10/18 croaked, died, past, left or whatever your choice of
terminology suits you..

Some here may or may not know, I built her coffin, picked Sue up
from the mortuary then took her to the crem, Sues son and 3 mates
helped to help carry her in and placed Sue on the catafalque.
No service, we had decided long before.

Sues son and we went for a few beers after, about 10am at a pub
who opened for me, Nicola was working for me that day.
Anyway, the day didn't work out my way.

I'd spent all night making Sues coffin look good, I made a stupid
mistake by using a toluene based wax in an enclosed, warm enviroment,
I was found on the steps to my gaff about 1pm later the day of Sues funeral.
It took 3 days before my breathing became ok lol.

Digression ..

Since Sues demise life has been and is crap, the amount of her clothing
et.c paper work, photo's to clear out was a lot but many trips down memory
lane, that was so so hard..

I'm very sure many on here know this, not many talk though, I can understand.

I'm not sure what the future holds for me, at
this point I really don't overly care, but shortly I'm moving to the
east coast of yorkshire and watch the sea while practising building
sandcastles.

Seems like a good place to start to me, a dog maybe.We concluded aliens abducted our
last one, pic.

So, I want to appologise. To some I already have, for maybe being
a bit 'curt' too sharp or grumpy to some and maybe not listening loud
enough.

I've had a low tolerance level for a while, but I still try to
help anyone, even though being nice tends to come back and bite my
ass, too many perceive nice as a weakness.

Often the ignorance of people annoys me, as I'm sure it does many, just a
thank you for taking your time to reply would be nice.

Yap Yap Yadda Yadda

Angelicamarie, in your recent post to me it ended in 'smile'.

I'm not sure how to post pics on here but..

One of my drivers, Nicola, holds down three jobs, inc me, she
is 31yr old single mother of two 8/5yr old lads.

I employed her before Sue left and if anyone has given me a
reason to be here it's Nicola, I so wish she was my daughter.

So before I move I've treated her to flying lessons, I wasn't sure
if she would like it, she loves it.

My point now. Sometimes if you can give someone a chance then why the hell not.

Nicolas Smile was radiant, until she 'departs' she will never
forget this journey in her life.

What price a smile

Best wishes folk

steve

A baby lives in the womb for nine months. The baby is comfortable and don't have to do anything. He/she gets food from the mother, gets carried around all day.

Sleeps whenever he/she wants to, it's peaceful and calm and life is good. For a season that's healthy , the baby is growing and maturing that's the ways it's designed,

If the infant stays in the womb too long, he/she outgrows the space. When it comes through the birth canal  it's tight, uncomfortable and traumatic.

Now all HELL breaks loose! he/she thinks what is wrong with mama? Have she lost her mind? He/she is being pushed, squeezed and pressured. Finally he/she comes out and breathes new life.

Using tha above as an analogy, it brings me to this point. Before sickness hit, I was in my comfort zone. Then I was pushed because of surgery that changed and saved my life. We all go through different changes after that.

Some are listed below:

Rejected/husband,wife and lover

Betrayal/Someone whom we thought was a friend

Loss/Someone or something

Persecution

New birth has occurred-yes a door was closed but another opened. I wouldn't have known my strength, what looked like a dissapointment was a birth.

Today is a new Day!

Best Wishes,

Angelicamarie

Hi everyone , this is the first time I've ever posted anything but I need help. I've been married to my soul mate for 10 years now and  We have two beautiful kids. My issue is my wife has confessed that she doesn't know if she can stay with me having a colostomy. I had surgery October 29, 2018 and it hasn't been easy. My bowls blocked on three separate occasions causing me to spend more time in the hospital. And my bag has exploded during the night 4 or 5 Times with my wife waking me up with me sitting in a pool of feces. Because of this she now is terrified to wake up covered in it or having it leake or explode while we're being intimate. We had the hardest discussion I've ever had when she admitted that there is a possibility that she cant stay with me. Granted, i have been very introverted due to some other personal issues then with the diagnosis of cancer and the subsequent surgery. Please help, i just can't lose her. I knew she was my soul mate from our first date when she sat in my car.

https://podcast-a.akamaihd.net/mp3/podcasts/whitecoat-fhdPg1Xs-20190228.mp3

Hi, this is an oldie, some of you may have felt this way .I have! Some may have it, lost it, or just yearn. Thank goodness for memories.... 

Delfonics:For The love I Gave To You- Utube

Angelicamarie

Writing will be interesting to those who have good writing skill. They do not feel writing as work. They will enjoy writing essays as it is their passion. Others may find writing as a very difficult task. They will feel like it is very hard to finish the writing work on time. However, by following certain tips we can make writing a more interesting task. This will help us to complete our works in a faster way. Some of the things that steal our time to write in a faster way are given as follows:
1. Assign a specific time to be spent on writing. We have to use this time fully for the purpose of writing. No other activities should be done during this time. This will help us to give more focus on writing.
2. We spent a lot of time on entertainment activities and games. We have to cut short this time and spend it on other useful activities. This time can be used for writing the essays.
3. We have to start our work much before the date of submission. Last minute writing of the essay will spoil our work. We have to start at least two weeks before the date of submission. This will give enough time to collect all the data needed and arrange them into a good essay.
4. Set a goal. Here we have to set a time limit within which we have to complete a certain part of the work. We should put our maximum effort to finish our task within that time limit. In the beginning, we may find it a little hard to achieve this goal. But we will become successful if we regularly try for it.
These are some of the tips to complete our writing works within a given time. We can even take the help of an essay service who will assist us in writing the essay.

Early one Sunday morning while in church, everything was going great. That was until a lightning bolt hit the santuary.

When the smoke cleared satan himself was standing behind the podium. People panicked and took off running. Everyone that is, except for one lady.

She sat there as calm as she could. Satan was appalled! he said, "Lady do you know who I am?"

She said, "I sure do!" He said, "Aren't you afraid of me?" She said, "Not in the least bit. I've been married to your brother for thirty years.

Angelicamarie

Please, I need advice.

How to apply makeup without looking like a Renaissance painting?

I use sunscreen everyday but i do not usually put on makeup. As I am going to become a public figure I need to get ready for public events. I have tried a lot of products but it seems my skin is too dry. I would appreciate any beauty tips.

Thanks in advance.

Just wanted to say hi to everyone and whatever life throws at you..you got this and will be okay😊

Hi all I am due to going travelling for the first time since my illeostomy in a few weeks. I was just wondering if anyone has had any difficultees whilst traveling like airport security etc or is it pretty straight forward. Any hints and tips would be most welcome Thanks