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JustMeRLB

Surgery moved and changed

Nov 20, 2023 - Nov 22, 2023
Hi all!
so I was able to get my surgery moved to another facility and surgeon. This surgeon is taking a more conservative approach and doing a colectomy first on November 27. I will then have the rectum/anus/Barbie bum surgery in June. His reasons make sense. He wants me to heal, get off prednisone, move toward my normal weight, and get healthier minus a diseased colon before he does the othe ...
7 replies | 175 views
Shawn57

For the "Fifty year" ostomy club,

Dec 03, 2023 - Dec 05, 2023
If you've had your ostomy for over 50 years you probably had it as a child or at least a young adult. I had mine when I was 12 (after two years with ulcerative colitis). Looking back, I'm wondering what the long-timers feel has been the good and the bad, gratitude versus regrets. .

For me, I was healthier post-surgery, and resumed normal growing. And while not worried about being close to a ...
5 replies | 101 views
kennybob94zz

Thanks to all of you and the forum

Nov 30, 2023 - Dec 06, 2023
Since i got my stoma no bigger than a nickel. Well 17 years ago. I dreamed of having a shop. I restore old cars on the side. I do everything with out electric tools. So tomorrow going down get my business percent. Going to open kennybobs restoration. I have had a lot of people tell me to do so. My dad had a shop. But since I been on here I have realized hey don't escape in the woods and hid ...
9 replies | 207 views
OSOHubby

My wife’s not acting like herself-postop

Oct 27, 2023 - Nov 06, 2023
Hello all. I would say that I am looking for advice here though I really am not. More reassurance I believe. My wife of 21 years has had an emergency ileostomy this week. This was combined with a full hysterectomy. While this was unexpected I could never have been ready for what was next. The last few days she has been kissing me like we kissed 20 years ago. Started making sexual advances tow ...
14 replies | 970 views
rambleonrose80

Clothing. Pants to be specific

Oct 26, 2023 - Nov 27, 2023
First, Id like to say that I have so much respect for you all... my close friend who's a bit older than me has a stoma resulting from cancer/emergency surgery so I see that it is a huge lifestyle adjustment and change in so much I'd never even know about until this happened with her. okay so she has really struggled with what is comfortable for her to wear. She does not wear much of anything o ...
14 replies | 670 views
Bumba

Longevity of Life with an Ileostomy

Oct 24, 2011 - Nov 10, 2023
I have had an ileostomy for 51 years. Does anyone have any information on how long a person has lived with an ostomy? Also, any information about conditions that are caused by having an ileostomy for so many years would be appreciated.

38 replies | 63711 views
Daughter

Stoma blockage

Oct 29, 2023 - Nov 12, 2023
My mom had a stoma blockage a few days ago but is okay now. I took her to the emergency room Wednesday and she got discharged Friday.

The cat scan confirmed she had a small bowel blockage. The doctor said they can put an NG tube in but I asked if they could do a less aggressive approach of having her not eat or drink anything. This is what the hospital did last time.

Just a little back in ...
10 replies | 266 views
Ostoberry

Cera rings

Nov 08, 2023 - Nov 20, 2023
After the surgeon lifted all restrictions, I went back to my exercise routine. I always use a Hollister two piece changing every five days. Eventually with increased activity I had a few minor leaks and I could smell them. There would be poo around the stoma when I changed wafers. So I tried rings and then paste with my changes and also extenders. Paste didn't work so well but the rings kept t ...
13 replies | 318 views
terrizajdel

191 days Carnivore with an Ostomy

Dec 03, 2023 - Dec 04, 2023
Hey there, I hope all is well?!

Today is day 191 of Carnivore and Im still feeling great! My weight loss since June 1st is 36 lbs without exercising or calorie counting. The weight loss has slowed down but not stopped.

I'm using lotion on my skin now because we are so cold and dry in Alberta in the winter but otherwise my skin is doing great. My face did rash up in the shower but I think ...
11 replies | 114 views
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domingo

Love Found on a Stoma Support Site

Dec 26, 2014 - Nov 22, 2023
Hello fellow ostomates, my life has changed since I met this wonderful French Canadian lady on this site on 3-17-2013. We were married on 12-20-2014 in Phoenix, AZ.

19 replies | 4462 views
JamesArnod

Male, no blaster, no erection…..no sex

Jul 10, 2023 - Nov 01, 2023
So 13 years ago I had my bladder ;removed along with my prostate and 16 lymph nodes. A Urostoma was installed. I was very lucky and for some reason I healed very quickly and was back to work in 3 weeks. Twice I had a nurse show me how to change my bag and I was discharged from the hospital in a week and never saw another nurse.
But I then noticed I never got an erection of any kind. As it turn ...
20 replies | 1410 views
Daisy2023

Ostomy talk on social media

Nov 22, 2023 - Nov 23, 2023
Hey there…. I was wondering if anyone follows or have their own social media like tiktok etc. chronicling their journey. I wish I did something like this. I find them very informative and interesting. Any good accounts out there?

6 replies | 156 views
cmort4short

How to Wear a Tux Shirt with a Stoma Bag?

Dec 04, 2021 - Nov 17, 2023
Hi guys,
So I have a wedding to attend in March (so lots of time to prepare) and it is a formal event. So even here in the most southern tip of darkest Africa (yes we are having power outages again), formal means jacket and tie as opposed to khaki shorts and sandals.
Problem is, does wearing your tux shirt hanging loose to conceal your Jiffy bag (or as I refer to mine - Sakkie), still classed ...
7 replies | 1531 views
Ree

Hi everyone

Nov 16, 2023 - Nov 26, 2023
I am new to the site and just want to thank everyone for letting me join. I have a new colostomy stoma that I received about six weeks ago. Just been struggling a little and hoping that I start to feel a little better soon. Found this site and all of you are wonderful for the good vibes and support. Thank you everyone.

28 replies | 415 views
Nini4

Time is your friend

Dec 04, 2023 - Dec 07, 2023
Hello all,

I am 6 weeks post op, and today is the first day I have felt comfortable. My anxiety has lessened tremendously and mentally I am in a better place.

I also feel more confident in changing my bag and wafer. I have a great ostomy nurse and she has really helped me get the right equipment.

Still a little self conscious when I am out, but honestly I'm sure nobody is looking at me ...
11 replies | 134 views
sreese12

Seeking advice: Helping a dog adjust to a urostomy bag

Jun 25, 2022 - Nov 21, 2023
Hi! I'm caring for someone who is about a month out from bladder removal surgery. He has a urostomy bag with a stoma. He has a five-year-old golden retriever whom he adores! I've been caring for Maverick (golden retriever) at my house while he recovers from surgery. He's doing okay physically. All stitches dissolved and just getting his strength back. Mentally, he is a wreck. He doesn't think ...
10 replies | 1103 views
drkknight

Bag Interference During Intimate Moments: Any Solutions?

Dec 09, 2007 - Nov 11, 2023
Hi,
First post on here so, please be gentle. I was wondering, has anyone found a way of keeping that darn bag out of the way when they are having one of their most intimate moments? I've used techniques such as holding it under a t-shirt, etc... What do you do? It just plain can get in the way sometimes...
Thanks in advance.
151 replies | 98251 views
jamie

Aging with an ostomy

Nov 05, 2023 - Nov 19, 2023
Hello!
I am 66 years old, and I’ve had an ileostomy since I was 10 years old. I’ve had a long and gratifying career, a successful marriage for the past 37 years, raised two wonderful daughters, and am on the brink (finally!) of becoming a grandparent. In other words, I believe I’ve managed this whole thing pretty well, despite challenges along the way. Now, I am truly worried for the fir ...
18 replies | 641 views
Beth22

Too cute not to share

Jul 17, 2023 - Dec 05, 2023
So I was sitting withmy youngest niece she is 7 and we were coloring, well briella (my stoma) starting making noises ya know passing gas and gurgling . She knows fully well what my stoma. And has seen it. Anywho she was giggling because of the noise but made herself try and stop because she didn't want to offend me by laughing.. but everytime the noise came a giggle then straight face .. I sai ...
16 replies | 522 views
Nikkiflower

I'm a newbie

Nov 13, 2023 - Nov 26, 2023
Hi I am very new here. I am from the UK. Had emergency surgery as had a blood clot in small bowel. And currently have an ilyostomy bag (temporary) but my, do I struggle with keeping the output down and keeping hydrated.

Hoping to making some new friends here x

16 replies | 365 views
Siouxsee

Hello friends

Nov 16, 2023 - Dec 06, 2023
Thank you warriors for sharing your highs an lows along this journey we share.

Today is the 1 year anniversary of the assault on my body.

I had a routine, preventative e colonoscopy. I am a single mom, a daughter and sister. It was the right thing to do.

My colon was pierced and I sat in sepsis and peritonitis for a week. Dr's thought a cyst on my ovary was the cause. 6 days later I had ...
11 replies | 347 views
Daughter

Convatec supplies for those with low income

Nov 12, 2023 - Nov 19, 2023
Hi everyone,

For anyone who uses 180 Medical and has low income and health insurance, you can apply for financial aid!! They don’t publicly advertise this but I found out when I expressed my concerns about not being able to pay for the supplies.

Initially, my mom was using Medline as her supplier. Then we switched in April of this year because they no longer accepted her insurance. We we ...
5 replies | 143 views
NancyCat

Best Paper Towels

Oct 07, 2023 - Nov 21, 2023
Everyone always talks about using wet paper towels, but, it has to be the "right" paper towel. My fellow ostomate, Pat, told me right in the beginning that the best paper towel to use with our ostomies is Viva! They are super soft so much better than the usual "rough' paper towels!

BTW--I celebrated my 6 year stoma-versary on 9/29! So yay me!

27 replies | 550 views
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