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Beatles0826
Posts: 10

Nausea and leakage

Jul 10, 2023 - Jul 12, 2023
Hi All, I have had my stoma since May of 2021. I have had many issues unfortunately with leakage and skin rawness. I honestly feel like I am losing my mind. It seems no matter how differently I cut my hole (larger, smaller) for some reason at the bottom of the appliance where it meets the stoma, there seems to always be a hole that opens up and lets leakage through. I tend to have to change my ...
6 replies | 234 views
Catlaw2
Posts: 9

Does anyone suffer from ileus

Jul 30, 2023 - Jul 31, 2023
Does anyone suffer from ileus
5 replies | 213 views
Abefroman1969
Posts: 576

Finally a bit of good news

Jul 13, 2023 - Sep 21, 2023
Hey everyone, My apologies for disappearing, I've been down after the chemo radiation didn't work.Got scans back today, for the first time in 10 months there was a reduction in tumor size.Continuing chemo with an added chemo drug that will force me to wear a pump for 3 days every treatment. I'm just glad to finally have some good news to share!Be well everyone Abe
24 replies | 692 views
Riva
Posts: 89

Stoma Anniversary

Jul 07, 2023 - Jul 08, 2023
Nine years today. Happy Stomaversary to me
7 replies | 188 views
Lovewins12
Posts: 8

Depressed and sad

Jun 05, 2023 - Aug 27, 2023
Happy Monday all!

Just looking for some words of encouragement. Had my surgery last Weds and I am at home still in some pain and realization as hit that I now have a bag of poop hanging on me! I realized it saved my life and I am grateful the surgery was a success. I see everyone outside in the sun while I am still recovering and changing and emptying the bag is getting to me.

Any support would ...
27 replies | 1192 views
RessaMarie
Posts: 2

New Member introduction

Jul 18, 2023 - Aug 08, 2023
Hello fellow ostomates. I hope you all are well. I look forward to getting to know you all.I am a recently new ostomate as of March of 2023. I hope I can build friendships with you all, gain and share ideas and advice, and meet new people, especially in my area, so I can build friendships with others who understand.One thing I have found is the no one in my circle seems to really understand the...
16 replies | 687 views
funnybonemarrow
Posts: 1

Belts

Feb 09, 2023 - Aug 06, 2023
I've had my ileostomy for nearly 20 years. I've only used a flange and drainable pouch.can someone explain the usefulness of using a belt?
9 replies | 401 views
Tatdude
Posts: 3

Depression

Feb 23, 2023 - Sep 17, 2023
How many people here suffer from Depression, since receiving their ostomy. A lot of people told me he that you should be happy you're still alive, which in some ways I am in other ways I am not. People also say it's a give-and-take all gave me some of my life back, but it took away more than I thought it was going to. I always liked having someone in my life and so far this ostomy has cost me m...
29 replies | 1485 views
Freestyle
Posts: 12

The colostomy operation

Sep 08, 2023 - Sep 11, 2023
Hi everyone . Has anyone on here had a colostomy while having cirrhosis. My husband has this and also rectal cancer.we have been told that the operation has a 1 in 4 survival rate, so obviously we are terrified. We have also been told that if he survives the operation the recovery from the anal closure is going to be a problem healing. We just wondered if anyone has any help for us . Thank you...
17 replies | 315 views
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Scotland44
Posts: 2

Best swimwear for ostomy bag?

Aug 19, 2020 - Sep 19, 2023
I know I can't wear a regular swimsuit over the ostomy bag, but what can I wear that is comfortable and doesn't look too bulky around my waist? I have tried swim shorts with t-shirts, but the t-shirts tend to blow up around the top of my torso with the movement of the water. Any ideas women who have been swimming with the bag would be much appreciated.Hazel.
21 replies | 2732 views
BaoBoo
Posts: 18

Mini Stoma Pouch from Convetac

Jul 20, 2023 - Aug 04, 2023
I think this product can share to all who are feeling very uncomfortable sleep with the regular bag size.

is from Convetac company and don't know if other company also have the similar items.
it is designed for intimacy but the outside material is plastic , no draining hole and actually I did wash and reuse it

let's talk!




8 replies | 259 views
stoma city
Posts: 18

Fave

Oct 16, 2022 - Oct 17, 2022
OK, so what is everyone's fave Halloween candy? I'll go first....Twix
24 replies | 893 views
Danno
Posts: 95

Almost 8 months out.

Aug 19, 2023 - Aug 25, 2023
That’s me.. :)  8 months out from what I thought was the worst moment of my life. As we all know, going through the trauma before and even after surgery, can be hard to recover from.  I haven’t been on here in a while but figured I’d swing by for an update.  Since the big day I took a few months off to focus on recovery. I followed the rules, didn’t lift anything heavy, and kept ...




17 replies | 731 views
Ostomate & woundrn
Posts: 166

I'm thinking of writing another article

Jul 02, 2023 - Aug 18, 2023
I want us ostomates to stop being invisible. I want to write about why ostomates hate nurses in general and sometimes our frustrations with ostomy nurses as well. But I'd like to hear your thoughts. I don't want to just complain I want to find out what we as a group find most frustrating and upsetting CLARIFICATION:Because of my experience I have the desire to write an article aimed at the nurs...
27 replies | 916 views
canhambrian6
Posts: 7

Despising My Reversed Stoma - Anyone Else?

Aug 20, 2022 - Sep 10, 2023
Hate my stoma looking full reverse hate it with venom surgery plan soon anybody else feel the same
9 replies | 356 views
Redondo
Posts: 202

Shy Stoma

Sep 10, 2023 - Sep 27, 2023
Just wondering if anyone has the same problem that I do. When I change my pouch, nothing flows out for hours. It's like the stoma is shy and everything stopped working. I always change first thing in the morning and within a half hour I have a light breakfast as always. But nothing seems to come out for hours. I don't know if the air gets to it or what happens?
32 replies | 463 views
smeans59
Posts: 17

Needing Hope to Get Me through Tough Times

Aug 21, 2023 - Sep 04, 2023
I am 10 days post colostomy surgery, and I am really struggling. I am also battling ovarian cancer and thought I was doing really well until I ended up with a bowel blockage. I am used to being very active and now have another obstacle to overcome. My blockage was high in my colon so my ostomy is above my belly button on the left side. Basically, it’s impossible to hide. I’m a golfer and ...
30 replies | 671 views
Daughter
Posts: 72

Advice on output

Aug 16, 2023 - Aug 29, 2023
Hi everyone, my mom’s colostomy surgery was a year ago yesterday (August 15,2022) and we both are looking for advice regarding her current output. Mom had to get colostomy bag because of a perforation from a polyp removal following her colonoscopy procedure.My mom doesn’t really have any big health issues except her colonoscopy revealed she has gastritis and mild diverticulosis of the sigmo...
8 replies | 198 views
Bees
Posts: 27

Managing an ileostomy in the great outdoors

Jan 24, 2022 - Jul 15, 2023
Question from a new ostomate: How do you handle emptying an ileostomy when outdoors for hours or all day and no bathroom is nearby? For example, on a boat ride, hiking in a group, just sitting with friends at sunset, sunrise, or around a campfire? How about when camping, either backpacking or car camping? Are my tenting days over?ThanksBruce
12 replies | 1225 views
LJB222
Posts: 30

Hot weather tip!

Aug 02, 2023 - Sep 10, 2023
Hi all, I met with my nurse yesterday who advised me to buy a little roll on deodorant and use it around my stoma during the hot weather. Apparently it helps the bag to stick and not come off as much during perspiration. I haven't tried it yet so I cannot vouch for it but I thought I would share it anyways!
10 replies | 278 views
Loulou80
Posts: 4

Gas and foamy output

Aug 25, 2023 - Aug 27, 2023
Hi everyone, I’m looking for some advice/reassurance. I had emergency surgery two weeks today and have been home only a few days. I had vomiting and water output yesterday from a stomach bug. I’ve now been experiencing nausea, gas, burping and extreme foamy output. I can’t get hold of any nurses and I’m getting worried any help greatly appreciated.
7 replies | 156 views
dada12
Posts: 2

OstomyCure TIES System - Any success stories or feedback?

Jan 13, 2020 - Aug 02, 2023
With the TIES Solution, the patient can live a life without the need to constantly wear an ostomy bag.The solution is a titanium port with a lid and is implanted in place of the conventional ostomy. The lid bears a hatch that allows the evacuation of the waste without removing the lid. A bag holder that does not touch the skin allows the fixation of the bag when the waste needs to be evacuated....




18 replies | 3391 views
HenryM
Posts: 2316

Ostomy Memories Gets Poetic

Oct 22, 2022 - Dec 02, 2022
                       ODE TO AGING   This aging business isn’t fun; it’s weighty; It hits me upside the head today, as I turn eighty. The aches and pains, the medicines; I once felt fine Back in my recent youth, when I was seventy-nine.   One knee is weak, my chronic kidneys balk. At young attractive women I no longer gawk. My doctor tells me how I’m doing great; ...
17 replies | 803 views
bowsprit
Posts: 639

Tell It To A Stranger

Sep 03, 2023 - Sep 14, 2023
Amazingly, In Japan you can rent people for uses beyond sex-professional guests, for instance, and whole rental families. Shoji Morimoto for a small fee will be there for you but do nothing. His memoir 'Rental Person Who Does Nothing' explains: " In one of Aesop's fables, a character longs to tell a secret and so tells it to the reeds. I'm just there, like those reeds." His jobs are simple like...
36 replies | 633 views
Beth22
Posts: 493

RED SOLO CUP

Jun 30, 2023 - Jul 05, 2023
Yup I said it RED SOLO CUP !! Grab that solo cup while rolling when changing and fill her up and HAVE A PARTY !!So i have an ileo and I literally never have a quiet time. So bag changes are super fun lol not really but hey that's ostomy life, takes me anywhere from 2-3 hours and after that a very short window of about 5 mins to slap on a bag . So while sitting there for over an hour trying catc...
31 replies | 1377 views
Lydia
Posts: 12

Colostomy and Wine: Anyone Else Experience This?

Nov 21, 2010 - Aug 19, 2023
Hello all,

I had my colostomy on the 7th of Oct, and since then have made great recovery from the operation.

Friday night, I decided to treat myself to some wine, I just wanted to take that next step to feeling more normal again.

But oh my goodness, my colon didn't like it at all. An hour after a couple of glasses, all it had in there kept coming out of Winnie (stoma) as runny as water. I had to c...
15 replies | 14914 views
bbazajou
Posts: 3

How to actually meet a nice woman on this site?

Mar 17, 2023 - Sep 07, 2023
I had an ileostomy placed in 2021 and since then, my 15 year relatonship has ended. I'm now comfortable enough with my physical condition to start dating again but having some trouble getting started. I'm thinking that looking to meet a woman with an ostomy also may be a good idea because we already have at least one thing in common, lol. I'm kind of shy at first, so any input on how to get out...
31 replies | 1685 views
Hairdresser
Posts: 72

New Diet

Jul 11, 2023 - Jul 18, 2023
Hello everyone First of all I want to thank everyone who has ever posted on here, you are awesome! ;I got my ileostomy September 2001 so you would think I have nothing to learn but you all have helped me more than you will ever know! ;Also I would never had thought having an Ostomy could be funny but I have laughed quite often after reading some posts and I thank you for that too.Ok, so here's ...
7 replies | 400 views
tomlang2434
Posts: 2

Intestinal yeast infection

Jul 15, 2023 - Jul 31, 2023
Hi I'm new to the group every time I end up in the hospital they tell me I have a intestinal yeast infection my original surgeon the only one that acted like he cared tried all the yeast meds nystatin and all the other ones I'm at a blank on all the other ones I've had 5 stomach surgeries due to uc I have an illiostomy plus they put me on high doses of prednisone which gave me something called ...
13 replies | 388 views
warrior
Posts: 435

ken and barbie butts need reply.

Aug 22, 2023 - Sep 28, 2023
Greetings All. The answers I need are related to restrictions when you have your rectum removed and your butt sewn up I am facing up proctolectomy very soon. Some of you know my story. I have had an ileostomy since 2016 and in the course of 6 years I continue to bleed my doctor was hoping for a reconnection so he left the stump and that stump over the years has Crohn's now. The medicationsÂ...
28 replies | 548 views
crappycolondiaries
Posts: 968

Happy National Puppy Day!!!!!

Mar 23, 2023 - Mar 28, 2023
Post a picture of your pup(s). I know we've had a few dog posts but really can you ever look at too many puppy/dog pictures? I think not.




32 replies | 1053 views
Feb9HH
Posts: 70

I’m thankful for my ostomy because now I can…

Feb 05, 2023 - Jul 28, 2023
Drink coffee and drive at the same time! I never thought I'd be able to do that again. Have a blessed Sunday friends!
18 replies | 654 views
royalrosepdx
Posts: 10

Fluid pockets causing severe stomach pain - anyone else experienced this?

Nov 12, 2020 - Sep 11, 2023
I have had some complications with severe stomach pain. I was recently admitted to the hospital for pain control. Imaging shows that there are fluid pockets that press on other organs. I am curious as to if I am the only one that has experienced this issue? I was told at first that it was a gynecology issue and that I have large cysts on my ovaries. The gynecologist says that is not what the ot...
10 replies | 1113 views
Bizzybeth
Posts: 3

Barrier ring melting

Sep 04, 2023 - Sep 11, 2023
Hi! New to this site. My husband has a very deep stoma and we have been using an eakin to seal wafer. This worked over the winter. It’s hot and now the eakin just melts and he leaks. Any suggestions? Note: he works outside all day
17 replies | 368 views
SaharaToo
Posts: 19

Sweetcorn - safe or not - with an ileostomy

Aug 03, 2023 - Aug 23, 2023
I used to love eating corn on the cob and it's in season now in the UK. I have thought about trying it in earlier years but am afraid of ending up with a blockage. I could puree it, but it's not the same as gnawing on freshly cooked cob with butter.For perspective, I love black beans and have eaten those (home cooked with seaweed) with no problems - sometimes, if I ate a bit fast, a few beans h...
21 replies | 609 views
Rlooker10
Posts: 2

High output and watery output after ileostomy surgery - seeking advice and experiences

Nov 07, 2020 - Aug 15, 2023
I am four weeks post-surgery for my ileostomy, and I am still having a high output compared to what is considered normal. I'm also still having spells of very watery output. As this is very new to me and wasn't anticipated, it concerns me as I was hoping to return to a normal life after the operation but am currently being hindered by this. I am now on a short-term spell of TPN to keep my nutri...
14 replies | 2543 views
HenryM
Posts: 2316

Ostomy Memories of Ethics vs. Morals

Jan 12, 2023 - Jan 27, 2023
ON SOME SUBJECTS, A DICTIONARY barely touches the surface.  Morals, my dictionary says, are a person’s standards of behavior, while ethics are said to be moral principles that govern behavior.  Sounds kind of the same, but in common usage they have come to be distinguishable.  Neither have any particular relationship with religion.  Some of the most ethical and moral people I’ve met are...
19 replies | 1035 views
Virgo68
Posts: 26

Coloplast Sensura Mio Convex Flip

Jun 29, 2023 - Aug 21, 2023
I know this question has been posted in the past, but I am testing out this new bag, Coloplast Sensura Mio Convex Flip because I have a hernia. So far, I don't particularly like it. I think it leaks too quickly because of the petal form. I use barrier seals and I've tried using those barrier strip tapes but the tape adhesive is stronger so that it is harder to remove, even with adhesive remover...
14 replies | 412 views
maddysexipolo101
Posts: 2

Abdomen cramping pain

Aug 20, 2023 - Aug 21, 2023
Hi I've been having severe cramping in my abdomen I find it's happening alot lately, most times right after urinating I will get these cramping also after I drain my pouch o get the cramping aswel this has been going on for 2months now maybe longer,the pain is horrible, I'm forced to take pain meds just to get through them. I'm not sure what's causing this has anyone else experienced this, so...
5 replies | 170 views
thebertonlagden
Posts: 18

Hernia belts..... Please advise

Aug 02, 2023 - Sep 26, 2023
Hello all, I had my surgery in April 2023 when Stanley my ileostomy was made. It has made an amazing improvement in my life.In the last few weeks I seem to have a bigger bulge in the mummy tummy on Stanley's side compared to the other side and a frequent heavy dragging feeling..... Hence I wonder if I am developing a hernia?Am due to see my stoma nurse next week but wondered if anyone could rec...
14 replies | 337 views
sur.sanchita
Posts: 7

Digestion Issues and Loose Stool After Acne Antibiotics

Jun 15, 2022 - Aug 17, 2023
Hello again,I am facing some problem and thought I check if anyone here could have faced similar issues.I had my tumor removed on November 21 and since then I have a stoma. In February, I had a sudden acne breakout on my face. The dermatologist gave some antibiotics. The acne is under control but I have started having loose motion. I consulted internal medicine and took a course of antibiotics ...
7 replies | 771 views
HenryM
Posts: 2316

Ostomy Memories of Magic White Powder

Apr 05, 2023 - May 22, 2023
I KEEP IT IN A LITTLE ROUND GLASS BOWL in my bathroom with a dipping tool for convenient use whenever I feel that I need a little of the magic white powder.  No, not cocaine.  It’s baking soda, aka sodium bicarbonate, a wondrous, multiuse item that we can all benefit from daily.  I stopped spending money for expensive ostomy deodorizers a long time ago.  Baking soda does a better job, and...
17 replies | 596 views
dmo101
Posts: 57

NEVER EVER had a leak

Jul 21, 2023 - Sep 10, 2023
HELLO everyone out there!I am constantly battling a leaky appliance or broken skin seal.I was curious has anyone out there ever NOT had a leak with their appliance?
26 replies | 575 views
Ostomate & woundrn
Posts: 166

Can you name the movies?

Apr 13, 2023 - Apr 17, 2023
Who can finish these sentences...or identify the picture? "Could be worse..." "I was going to make espresso" "You take the blonde I'll take the one in the toiban". "The staircase can be treacherous"Hello handsome, is that a ten-gallon hat or are you just enjoying the show". "Don't just stand there clasping your hands in pain... How about a round of applause for The Waco Kid?". "A man ...
21 replies | 544 views
R
Posts: 12

Colonoscopy in stoma

Mar 16, 2023 - Aug 20, 2023
Anyone have experience with colonoscopy in stoma and rear-end at same time?
11 replies | 287 views
rustykunk1949
Posts: 4

Need help with ostomy bag seal and barrier ring issues

Sep 03, 2022 - Sep 10, 2023
I have trouble getting my bag to seal around my stoma. It always puffs up and stool goes in around it. The barrier rings do not seem to help. What am I doing wrong?
13 replies | 517 views
Daisy2023
Posts: 85

Ostomy Talk

Jul 26, 2023 - Sep 22, 2023
I'm really on the edge as I found out more bad news. I don't know what to do. No one seems to understand what I'm going though. I'm sure whoever if anyone is reading this will. I can't get a reversal. Maybe this isn't a big deal, maybe it is but I have not come to terms with it at all. Anyways just a shot in the dark posting here. Anyone else receive similar news and were crushed?
36 replies | 1284 views
drkknight
Posts: 2

Managing Bag Interference During Intimate Moments

Dec 09, 2007 - Jul 19, 2023
Hi,

First post on here so, please be gentle. I was wondering, has anyone found a way of keeping that darn bag out of the way when they are having one of their most intimate moments? I've used techniques such as holding it under a t-shirt, etc... What do you do? It just plain can get in the way sometimes...

Thanks in advance.
150 replies | 97541 views
Roch!!
Posts: 16

BCIR Surgery Availability in England?

Feb 09, 2016 - Jul 30, 2023
Does anyone know if the BCIR surgery is done in any hospitals in England?
15 replies | 6586 views
riffael
Posts: 28

Spicy Food and Stoma: Any Similar Experiences?

Mar 23, 2022 - Sep 29, 2023
I'm coming up on a year as a colostomate, no significant problems.
My mottos were always "I like my food hotter than the hinges of hell" and "If you aren't blowing sparks the next morning, it wasn't hot enough last night."
Chemo in '96 for lymphoma made my tongue too sensitive for Taco Bell mild sauce. You know that was torture! I eventually grew out of that and my new-found curly hair.
I had chem...
12 replies | 647 views
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Bees
Berts dad