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Hisbiscus
Posts: 127

Ostomy deoderant

Jul 28, 2023 - Aug 29, 2023
Hi all, does anyone in the Cleveland Ohio area have a bottle of Ostomy deoderant I can purchase off of you?
my boss did not put our pay in on time and to order online it will take days to get to me. I'm almost totally out and need it for work at least.
12 replies | 320 views
MassMikMouse
Posts: 32

I just can’t put the dang bag on correctly!

Jul 17, 2023 - Jul 24, 2023
Wow. First of all everything I typed has disappeared so I'm going to make this short and sweet.

I had my urostomy surgery 7 1/2 years ago and I seem to be running into problems with bag leakage. Using the Coloplast SenSura Mio deep convex one piece transparent bags. I have lost about 30 pounds, and I am wondering if this is a cause for change in my stoma. I also have multiple sclerosis, so "siti...




9 replies | 322 views
alex9
Posts: 1

Physical apperance

Aug 07, 2023 - Aug 23, 2023
Hi everyone, I'm new here and very glad that I found this forum. I was wondering if someone had a similar situation - I have a temporary colostomy bag and my whole lower stomach is slightly more bulged out from the rest of my stomach since I had my surgery. And if I try to suck my stomach in, I just cannot do that to that part of my stomach. Nothing hurts, everything is soft to the touch, but I...
11 replies | 434 views
HenryM
Posts: 2317

Ostomy Memories Turns Eighty

Feb 04, 2023 - Feb 05, 2023
LAST FALL, I TURNED EIGHTY.  I find that it has changed my life for the better.  First of all, as many of you can attest, getting old takes getting used to, like an obnoxious relative.  It’s not something that creeps up on you over the years; it shows up suddenly, a rather brutal realization that hits you upside the head in the dead of night and knocks you senseless.  Up till then, you se...
16 replies | 818 views
Freestyle
Posts: 12

The colostomy operation

Sep 08, 2023 - Sep 11, 2023
Hi everyone . Has anyone on here had a colostomy while having cirrhosis. My husband has this and also rectal cancer.we have been told that the operation has a 1 in 4 survival rate, so obviously we are terrified. We have also been told that if he survives the operation the recovery from the anal closure is going to be a problem healing. We just wondered if anyone has any help for us . Thank you...
17 replies | 284 views
thebertonlagden
Posts: 18

Hernia belts..... Please advise

Aug 02, 2023 - Aug 25, 2023
Hello all, I had my surgery in April 2023 when Stanley my ileostomy was made. It has made an amazing improvement in my life.In the last few weeks I seem to have a bigger bulge in the mummy tummy on Stanley's side compared to the other side and a frequent heavy dragging feeling..... Hence I wonder if I am developing a hernia?Am due to see my stoma nurse next week but wondered if anyone could rec...
13 replies | 303 views
Kiwi Al
Posts: 5

Any hobby beekeepers here

Aug 26, 2023 - Sep 19, 2023
Recent permanent Ileostomy may 25th 2023, I am a hobby beekeeper and am worried about being about to lift honey boxes, which can weigh up to 50 lbs anyone here have any ideas please?
9 replies | 265 views
Cheekymonkey111
Posts: 28

Body Confidence and Naturism with an Ostomy Bag

Jan 16, 2019 - Aug 21, 2023
Hi all, first post so please be kind. Prior to surgery in Sept 18, I was previously a bit of a closet naturist. Since surgery, which has knocked my body confidence, although still wanting to explore this lifestyle, my concern is how others would judge me with my bag obviously on show when at the beach or at a resort, etc. Has anyone had any experiences in this environment, good or bad?
26 replies | 6090 views
Redondo
Posts: 201

How much fiber is too much?

Jul 30, 2023 - Aug 08, 2023
Two months ago, I started on a diet meal plan that incorporates eating5 healthy snacks every 2-3 hours along with 1 lean and green meal. I lost 17 pounds doing this. I thought all was good until I ended up in the hospital with a partial small intestinal bowel blockage. The snacks that I ate have 4-5 grams of fiber in them. The daily meal consisted of lean chicken, fish, or beef along with 3 ser...
10 replies | 271 views
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markmd1112
Posts: 24

Long flights with a colostomy

Aug 12, 2023 - Aug 16, 2023
Hello! Does anyone with a colostomy have first hand experience with flights that are more than 14 hours nonstop? I know from my pre-colostomy days, those flights cause digestive issues such as bloating, dehydration, indigestion and constipation. Does having a colostomy worsen those and add other issues? If so, any suggestions for how to minimize and manage them? I'm hoping to travel to Australi...
16 replies | 644 views
AlexT
Posts: 2831

Best ostomy advice I can give….

Oct 03, 2022 - Mar 21, 2023
Here it is, all my wisdom wrapped up in 1 simple statement....This ostomy thingy you got has either saved your life or made it better in some form. You're not buried in dirt and hopefully you're feeling better, enjoy each and every day. It's not that bad in the big scheme of things. So, put your cape on and have a good Monday.




19 replies | 1327 views
HenryM
Posts: 2317

Ostomy Memories of Magic White Powder

Apr 05, 2023 - May 22, 2023
I KEEP IT IN A LITTLE ROUND GLASS BOWL in my bathroom with a dipping tool for convenient use whenever I feel that I need a little of the magic white powder.  No, not cocaine.  It’s baking soda, aka sodium bicarbonate, a wondrous, multiuse item that we can all benefit from daily.  I stopped spending money for expensive ostomy deodorizers a long time ago.  Baking soda does a better job, and...
17 replies | 583 views
mattwendzina
Posts: 2

White Substance from Stoma - Benign or Concerning?

Jun 30, 2017 - Sep 01, 2023
Hi there, I seem to get this white substance excreting out of the side of my stoma. I've attached a photo. I wondered if anyone has had a similar experience and knows whether this is benign or something I should be getting checked out? Many thanks




8 replies | 6623 views
gingerlee54
Posts: 33

GREEN Bile OUTPUT..

Jan 04, 2023 - Sep 06, 2023
Hi, Can anyone tell me about the green bile output? I NOTICE a grass-green to emerald green color may be every other day. Is this normal?Thanks
7 replies | 351 views
eefyjig
Posts: 575

Perfect dress!

Jun 24, 2023 - Jul 02, 2023
I have a tip for those looking for the perfect dress to work with an existing stoma. I found it on Amazon - tank dress with ruched tie waist. It's a mini but longer on




31 replies | 1284 views
livinnandlearnin
Posts: 37

Need advice for jacuzzi with ileostomy

Feb 16, 2015 - Sep 10, 2023
OK. So here's the deal. I've had an ileostomy for about 5 years and considering that I've had 9 surgeries in 4 years, I think I have a pretty good body image. Now I have unexpectedly found myself in a caring and committed relationship with a very supportive man, but it's new. Usually when I have sex, I tape my pouch (which is already the smaller "midi" type) up out of the way, and I use Colopla...
10 replies | 10372 views
SallyK
Posts: 1276

Hot Air Balloon Ride

Sep 10, 2023 - Sep 16, 2023
Our annual balloon fiesta is happening this weekend. I was wondering if anyone with an ostomy has ever gone up in one. And what was it like? Did the air pressure, etc affect your pouch?
21 replies | 298 views
Rlooker10
Posts: 2

High output and watery output after ileostomy surgery - seeking advice and experiences

Nov 07, 2020 - Aug 15, 2023
I am four weeks post-surgery for my ileostomy, and I am still having a high output compared to what is considered normal. I'm also still having spells of very watery output. As this is very new to me and wasn't anticipated, it concerns me as I was hoping to return to a normal life after the operation but am currently being hindered by this. I am now on a short-term spell of TPN to keep my nutri...
14 replies | 2530 views
BaoBoo
Posts: 18

Mini Stoma Pouch from Convetac

Jul 20, 2023 - Aug 04, 2023
I think this product can share to all who are feeling very uncomfortable sleep with the regular bag size.

is from Convetac company and don't know if other company also have the similar items.
it is designed for intimacy but the outside material is plastic , no draining hole and actually I did wash and reuse it

let's talk!




8 replies | 255 views
OstoMorgan
Posts: 18

Finding Meaning in the Chaos: Exploring Existential Questions

Nov 28, 2020 - Jul 26, 2023
Originally I wrote this in responce to a subject Faith Hope and charity' forum entry, but think I should start a fresh. Thankyou Mike though for your insperation.It actually made me feel better after i stopped typing and helped aligned my ducks slightly. Sorry if i seem to preach but i am talking to myself more so...Here we go.... real deep breath in....There is no real meaning to anything.. ev...
14 replies | 890 views
Iamari
Posts: 7

Tell me I can eat a tootsie pop

Jul 28, 2023 - Aug 19, 2023
Hi everyone! Well I am 6 weeks post op of my ileostomy with a bunch of complications and two extra surgeries. I'm so nervous about another ileus and having an obstruction (the ng tube was terrifying) that I want to eat chewy things but I'm afraid of obstructing. Anyone think it's ok?by the way, I have a urostomy too. I've had that for two years. I'm a double bagger :)
43 replies | 1190 views
jphendsby
Posts: 5

How do men continue on with dating (Urostomy)?

Jun 27, 2023 - Sep 15, 2023
Hi all I have had my bladder and prostate removed last June. I'm still trying to get to this life but need to talk to people with the same thing. I would prefer a male as the question is something only a man can answer. Sorry ladies. How do men continue on with dating knowing full well that without a prostate the male can not get stiff?
9 replies | 390 views
dmo101
Posts: 57

Disability- is an ostomy a disability

Jul 21, 2023 - Jul 30, 2023
I have filled out LOTS of job applications in the last 6 months.Every time I come to the question on an application, "Do you have a disability" I wondered if an ileostomy counts in todays world?
17 replies | 608 views
Violeteve2016
Posts: 1

Husband doesn't seem to want to be intimate now

Aug 23, 2023 - Sep 09, 2023
I had my permanent ileostomy surgery 7 weeks ago due to Crohn's disease and I've been talking about getting intimate again with my husband and he doesn't seem interested at all.... it almost seems like it makes him nervous and turned off...it just makes me feel worthless and I don't want him to be grossed out by me and not want me anymore. I just feel sad because I was worried this would happen...
15 replies | 670 views
joeycooper65
Posts: 2

How to slow down digestion and bag changes

Nov 14, 2022 - Jul 13, 2023
Hi All,New to the group and considering what's the best way to slow down our guts and intestines. Naturally with food and not naturally ie drugs like Imodium or codeine.Any advice on what you all do to control your diet and try for more solid stools. Thanks Joe
14 replies | 1175 views
7dragonflies.hm
Posts: 15

Silent observer

Sep 19, 2023 - Sep 20, 2023
Hello all of you magnificently beautiful people. I've been reading the forums and posts for months now and I just want to say what a bunch of awesome folks y'all are. I had emergency surgery April of this year, diverticulitis, perforated colon, septic, adhesions galore, almost died, had to have total hysterectomy as well as sigmoidectomy, hence the good ol bag. I can honestly say it has changed...
18 replies | 236 views
Danno
Posts: 95

Fitness

Apr 21, 2023 - Sep 20, 2023





25 replies | 872 views
delgrl525
Posts: 1756

Swollen Stoma and Pain

Apr 23, 2023 - Jun 26, 2023
Help!I've never experienced this before. I have an ileostomy, a loop that was created so that it might be temporary, but when I decided to stay with the ileo, I kept the same stoma instead of having an 'end' one created. So my stoma is kind of an oval shape, and bigger at the bottom. I noticed lately that I was 'feeling' it more and more aware when it was working, sometimes there was quite a bi...
16 replies | 608 views
drkknight
Posts: 2

Managing Bag Interference During Intimate Moments

Dec 09, 2007 - Jul 19, 2023
Hi,

First post on here so, please be gentle. I was wondering, has anyone found a way of keeping that darn bag out of the way when they are having one of their most intimate moments? I've used techniques such as holding it under a t-shirt, etc... What do you do? It just plain can get in the way sometimes...

Thanks in advance.
150 replies | 97463 views
JCSunshine
Posts: 4

Best pouching system to filter air?

Oct 10, 2014 - Jul 29, 2023
Hi, everyone. I use Convatec Durahesive wafers and pouches, two-piece. The wafers are great, lasting a good 7-10 days! All is well, except I'm trying to find the best filter system. When my output is just right (not too liquidy), I can sometimes witness the benefits of a good filter. It is amazing how well keeping the air out is for cutting down on bathroom trips, waking up, etc. However, from ...
13 replies | 9309 views
Ostomy4life_22
Posts: 44

Air to the skin

Jul 07, 2023 - Jul 11, 2023
Hello all you awesome people!!!So this inquiring mind needs to know what some of you do to get air to your skin around the stoma? I was telling myself wouldn't it be great if there was something that a person with an ostomy could use over their stoma so air can get to the skin for let's say overnight or something. And if there is something please let me know.Thank you for being awesome and help...
16 replies | 690 views
Riva
Posts: 89

Stoma Anniversary

Jul 07, 2023 - Jul 08, 2023
Nine years today. Happy Stomaversary to me
7 replies | 181 views
jalrein
Posts: 64

Dark lines on stoma

Sep 02, 2023 - Sep 03, 2023
I was emptying my bag and I noticed on my stoma at the top part, but it's at the base where it comes out of my abdomen, 3 dark red lines. Almost like the whole that I cut out in my 2 piece was too tight and these kindof look like blood vessels. The exit whole is at the bottom of my stoma however this it at the top but down at the bottom near my skin. ANYONE KNOW WHAT THIS IS OR WHAT IM TALKING ...
11 replies | 158 views
Cinderella
Posts: 5

Stoma and Bowel Movements: Anyone Else Experience This?

Apr 15, 2020 - Sep 06, 2023
Hi, I have had my stoma for 6 years now. When I first had my stoma op, I had a small amount of bowel movements and still sometimes get the feeling that I need to sit on the toilet but nothing happens. I had this feeling today and two small amounts of something came out. Is this anything anyone else has had?
9 replies | 2258 views
LJB222
Posts: 30

Hot weather tip!

Aug 02, 2023 - Sep 10, 2023
Hi all, I met with my nurse yesterday who advised me to buy a little roll on deodorant and use it around my stoma during the hot weather. Apparently it helps the bag to stick and not come off as much during perspiration. I haven't tried it yet so I cannot vouch for it but I thought I would share it anyways!
10 replies | 272 views
csteven
Posts: 10

Pros/cons of ileostomy reversal at 60?

Feb 18, 2019 - Sep 10, 2023
I had a LAR with ileostomy in Dec 2018. After the post-surgery chemo, my doctor is pushing for a reversal. Prior to the LAR, I had radio/chemo. It was successful as the pathology report showed that cancer has been downgraded from stage 3b to stage 0. I had 27cm (10.6") removed, which included all my rectum and probably most, if not all, the sigmoid. I also had some burning/scarring in the 'back...
15 replies | 9902 views
maddysexipolo101
Posts: 2

Abdomen cramping pain

Aug 20, 2023 - Aug 21, 2023
Hi I've been having severe cramping in my abdomen I find it's happening alot lately, most times right after urinating I will get these cramping also after I drain my pouch o get the cramping aswel this has been going on for 2months now maybe longer,the pain is horrible, I'm forced to take pain meds just to get through them. I'm not sure what's causing this has anyone else experienced this, so...
5 replies | 160 views
bubbaduffman
Posts: 9

Has anyone found their soulmate or best friend

May 11, 2023 - Aug 27, 2023
Hi everyone I can't help wonder if anyone has actuallyfound someone specialthrough this site I ask as I find it so difficult to find even a friendin this crazy world I am new here and don't really think it would work but I am an optimist so who knows.I am a chrones disease person with an ileostomysince 1991was married for almost 30yrssingle for the last 5 years
16 replies | 1000 views
Lydia
Posts: 12

Colostomy and Wine: Anyone Else Experience This?

Nov 21, 2010 - Aug 19, 2023
Hello all,

I had my colostomy on the 7th of Oct, and since then have made great recovery from the operation.

Friday night, I decided to treat myself to some wine, I just wanted to take that next step to feeling more normal again.

But oh my goodness, my colon didn't like it at all. An hour after a couple of glasses, all it had in there kept coming out of Winnie (stoma) as runny as water. I had to c...
15 replies | 14893 views
Beatles0826
Posts: 10

Nausea and leakage

Jul 10, 2023 - Jul 12, 2023
Hi All, I have had my stoma since May of 2021. I have had many issues unfortunately with leakage and skin rawness. I honestly feel like I am losing my mind. It seems no matter how differently I cut my hole (larger, smaller) for some reason at the bottom of the appliance where it meets the stoma, there seems to always be a hole that opens up and lets leakage through. I tend to have to change my ...
6 replies | 220 views
TempIleo
Posts: 3

Any advice appreciated

Aug 17, 2023 - Aug 20, 2023
Hello all,   My husband had surgery for rectal cancer one week ago today.  He has a temporary loop ileostomy.  He was discharged from the hospital yesterday evening.  He seems to be having lots of problems with gas.  He is having output from the ileostomy but can't seem to get relief.  Any advice or experiences would be helpful!
Thank you!
9 replies | 194 views
Kayakpixie
Posts: 6

Hernia Belts (prevention of hernias)

Aug 10, 2023 - Aug 22, 2023
Hi there! I had my lar loop ileostomy surgery on June 2/23. It was open surgery so I have a 15-20cm vertical incision.

I'm looking for a hernia belt to help prevent hernias. I've been back the gym for a few weeks now lifting light weights with no issues but the cardio class last weekend with the jumping made my stomach area very uncomfortable to the point I stopped and did step outs.

The belt th...
15 replies | 425 views
JamesArnod
Posts: 47

Male, no blaster, no erection…..no sex

Jul 10, 2023 - Aug 22, 2023
So 13 years ago I had my bladder ;removed along with my prostate and 16 lymph nodes. A Urostoma was installed. I was very lucky and for some reason I healed very quickly and was back to work in 3 weeks. Twice I had a nurse show me how to change my bag and I was discharged from the hospital in a week and never saw another nurse.But I then noticed I never got an erection of any kind. As it turns ...
18 replies | 991 views
crappycolondiaries
Posts: 954

How has your spouse/partner/significant other (Past OR Present) handled your ostomy/surgeries?

Apr 15, 2023 - Sep 17, 2023
Curious how others in past/present relationships have navigated these surgeries and ostomies with a partner. I have a feeling experiences will be across the board and hopefully some whose experiences haven't been the best up to this point can find encouragement/support in other's stories.
67 replies | 2834 views
Ostomate & woundrn
Posts: 166

I'm thinking of writing another article

Jul 02, 2023 - Aug 18, 2023
I want us ostomates to stop being invisible. I want to write about why ostomates hate nurses in general and sometimes our frustrations with ostomy nurses as well. But I'd like to hear your thoughts. I don't want to just complain I want to find out what we as a group find most frustrating and upsetting CLARIFICATION:Because of my experience I have the desire to write an article aimed at the nurs...
27 replies | 899 views
Hisbiscus
Posts: 127

Output smell different

Jun 20, 2023 - Jul 17, 2023
Lately I have been having diarrhea on and off and to me my output actually smells like a wild animal lol! Has anyone else ever experienced this? I was checked for Cdiff but another doc told me they might have to get a sample from a stoma scope.
10 replies | 297 views
royalrosepdx
Posts: 10

Fluid pockets causing severe stomach pain - anyone else experienced this?

Nov 12, 2020 - Sep 11, 2023
I have had some complications with severe stomach pain. I was recently admitted to the hospital for pain control. Imaging shows that there are fluid pockets that press on other organs. I am curious as to if I am the only one that has experienced this issue? I was told at first that it was a gynecology issue and that I have large cysts on my ovaries. The gynecologist says that is not what the ot...
10 replies | 1108 views
Ostomy4life_22
Posts: 44

Super Bowl foods

Feb 08, 2023 - Feb 15, 2023
Hey there everyone!Super bowl is this Sunday. And for the first time in a while, I'll be able to enjoy some of the foods. I do hope that others are able to enjoy the food and game this Sunday. Have a great week and weekend stay safe.
22 replies | 802 views
creinhart030805
Posts: 2

Post surgery by 6 weeks

Aug 07, 2023 - Sep 03, 2023
So i had my Ostomy right after my 18th birthday and after I graduated high school, I have a genetic dietary which caused a temporary pouch, my dad had he surgery before me and I thought okay I got this. I don't got this im scared. For a couple days I was sick cause of a bug and now im fine, but when I emptied my bag it looked like black stuff in my bag and so when I was cleaning it after I empt...
8 replies | 233 views
Loulou80
Posts: 4

Gas and foamy output

Aug 25, 2023 - Aug 27, 2023
Hi everyone, I’m looking for some advice/reassurance. I had emergency surgery two weeks today and have been home only a few days. I had vomiting and water output yesterday from a stomach bug. I’ve now been experiencing nausea, gas, burping and extreme foamy output. I can’t get hold of any nurses and I’m getting worried any help greatly appreciated.
7 replies | 145 views
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