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maddysexipolo101
Posts: 2

Abdomen cramping pain

Aug 20, 2023 - Aug 21, 2023
Hi I've been having severe cramping in my abdomen I find it's happening alot lately, most times right after urinating I will get these cramping also after I drain my pouch o get the cramping aswel this has been going on for 2months now maybe longer,the pain is horrible, I'm forced to take pain meds just to get through them. I'm not sure what's causing this has anyone else experienced this, so...
5 replies | 168 views
SaharaToo
Posts: 19

Sweetcorn - safe or not - with an ileostomy

Aug 03, 2023 - Aug 23, 2023
I used to love eating corn on the cob and it's in season now in the UK. I have thought about trying it in earlier years but am afraid of ending up with a blockage. I could puree it, but it's not the same as gnawing on freshly cooked cob with butter.For perspective, I love black beans and have eaten those (home cooked with seaweed) with no problems - sometimes, if I ate a bit fast, a few beans h...
21 replies | 606 views
Danno
Posts: 95

Fitness

Apr 21, 2023 - Sep 20, 2023





25 replies | 879 views
Daisy2023
Posts: 85

Ostomy Talk

Jul 26, 2023 - Sep 22, 2023
I'm really on the edge as I found out more bad news. I don't know what to do. No one seems to understand what I'm going though. I'm sure whoever if anyone is reading this will. I can't get a reversal. Maybe this isn't a big deal, maybe it is but I have not come to terms with it at all. Anyways just a shot in the dark posting here. Anyone else receive similar news and were crushed?
36 replies | 1271 views
eefyjig
Posts: 579

Perfect dress!

Jun 24, 2023 - Jul 02, 2023
I have a tip for those looking for the perfect dress to work with an existing stoma. I found it on Amazon - tank dress with ruched tie waist. It's a mini but longer on




31 replies | 1298 views
SpaceCowgirl
Posts: 5

Rectal stump removal?

May 04, 2023 - Jul 24, 2023
Today is my 10 year Ostomy-anniversary. I have long avoided serious consideration of reversal surgery because it's difficult to imagine my quality of life being more comfortable than it is today with a bag. I am left with a rectal stump to deal with however, and it feels overdue for a decision. I don't presently have any issues but it has atrophied and narrowed last I had it examined 2 years ag...
13 replies | 478 views
Warrior24
Posts: 1

Clothing and hiding your ostomy

Jul 22, 2023 - Sep 06, 2023
Hello, I am wondering if everyone "hides" their ostomy bag? I've had my ostomy for a few months now and I'm still not comfortable tucking it under a waist band. I've been letting it hang out the bottom of my shirts but recently I've had a few strangers ask why I don't tuck it away. I don't know if it'll change your response but I had a Jejunostomy that is now an ileostomy recently, and I have t...
36 replies | 1435 views
Briutz
Posts: 48

Problems with hair and the sticky wafer thingy

Jul 09, 2023 - Aug 07, 2023
When I arrived home from the hospital experience we've all had the pleasure of tasting, I was actually being launched into a new world order with a new born baby turd machine complete with it's own Artificial Intelligence. We've all got one or had one, you know,.. it's that adorable blossoming red thing trying to eat it's way out of your flipping trying to keep the language down a bit today ) a...
19 replies | 422 views
Okra
Posts: 10

Zucchini can cause ostomy problems!

May 17, 2023 - Sep 19, 2023
At a restaurant yesterday, I made the mistake of eating a veggie sandwich that had zucchini as one of the ingredients. Bad, bad mistake. For years I have known not to eat whole-grain bread; so the ;sandwich bread was plain white bread and was fine, but the zucchini was NOT. My ostomy got stopped up and then the backed-up contents burst out and caused the adhesive on the base holding the bag to my ...
21 replies | 869 views
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bballman54
Posts: 15

Just a fun question

May 02, 2023 - Sep 14, 2023
How many of us name our ostomy a name of the opposite sex of us?
23 replies | 771 views
SallyK
Posts: 1276

Hot Air Balloon Ride

Sep 10, 2023 - Sep 16, 2023
Our annual balloon fiesta is happening this weekend. I was wondering if anyone with an ostomy has ever gone up in one. And what was it like? Did the air pressure, etc affect your pouch?
21 replies | 320 views
Redondo
Posts: 202

Shy Stoma

Sep 10, 2023 - Sep 27, 2023
Just wondering if anyone has the same problem that I do. When I change my pouch, nothing flows out for hours. It's like the stoma is shy and everything stopped working. I always change first thing in the morning and within a half hour I have a light breakfast as always. But nothing seems to come out for hours. I don't know if the air gets to it or what happens?
32 replies | 445 views
Okra
Posts: 10

How much water to drink each day after you get an ileostomy?

Feb 06, 2023 - Sep 09, 2023
A man had posted on this site that after his ostomy surgery, his urine output had decreased, and he wanted to know if that happened to everyone.. Any person who has an ileostomy should be seeing a KIDNEY SPECIALIST. My surgeon sent me to a kidney specialist when I left the hospital because if tons of the liquid you drink is going out in your ostomy bag, you are NOT GETTING ENOUGH LIQUID GOING T...
6 replies | 420 views
Kiwi Al
Posts: 5

Any hobby beekeepers here

Aug 26, 2023 - Sep 19, 2023
Recent permanent Ileostomy may 25th 2023, I am a hobby beekeeper and am worried about being about to lift honey boxes, which can weigh up to 50 lbs anyone here have any ideas please?
9 replies | 289 views
Roch!!
Posts: 16

BCIR Surgery Availability in England?

Feb 09, 2016 - Jul 30, 2023
Does anyone know if the BCIR surgery is done in any hospitals in England?
15 replies | 6581 views
HenryM
Posts: 2316

Ostomy Memories of Ethics vs. Morals

Jan 12, 2023 - Jan 27, 2023
ON SOME SUBJECTS, A DICTIONARY barely touches the surface.  Morals, my dictionary says, are a person’s standards of behavior, while ethics are said to be moral principles that govern behavior.  Sounds kind of the same, but in common usage they have come to be distinguishable.  Neither have any particular relationship with religion.  Some of the most ethical and moral people I’ve met are...
19 replies | 1033 views
Ostomy4life_22
Posts: 44

Super Bowl foods

Feb 08, 2023 - Feb 15, 2023
Hey there everyone!Super bowl is this Sunday. And for the first time in a while, I'll be able to enjoy some of the foods. I do hope that others are able to enjoy the food and game this Sunday. Have a great week and weekend stay safe.
22 replies | 803 views
Amanda6
Posts: 6

Making friends with an ileostomy

Apr 24, 2023 - Jun 17, 2023
Hi, I have had my ilesotomy for over 7 years now and have been suffering a little anxiety the last few years from it. When socialising with new friends I find that I can't even concentrate on their conversations as all I'm worrying about is my bag!! Making noises, eating with them as I have a high output and so have isolated myself the last few years. Does anyone else feel the same? Would love ...
37 replies | 1582 views
Beth22
Posts: 492

RED SOLO CUP

Jun 30, 2023 - Jul 05, 2023
Yup I said it RED SOLO CUP !! Grab that solo cup while rolling when changing and fill her up and HAVE A PARTY !!So i have an ileo and I literally never have a quiet time. So bag changes are super fun lol not really but hey that's ostomy life, takes me anywhere from 2-3 hours and after that a very short window of about 5 mins to slap on a bag . So while sitting there for over an hour trying catc...
31 replies | 1373 views
Redondo
Posts: 202

How much fiber is too much?

Jul 30, 2023 - Aug 08, 2023
Two months ago, I started on a diet meal plan that incorporates eating5 healthy snacks every 2-3 hours along with 1 lean and green meal. I lost 17 pounds doing this. I thought all was good until I ended up in the hospital with a partial small intestinal bowel blockage. The snacks that I ate have 4-5 grams of fiber in them. The daily meal consisted of lean chicken, fish, or beef along with 3 ser...
10 replies | 278 views
bowsprit
Posts: 638

Tell It To A Stranger

Sep 03, 2023 - Sep 14, 2023
Amazingly, In Japan you can rent people for uses beyond sex-professional guests, for instance, and whole rental families. Shoji Morimoto for a small fee will be there for you but do nothing. His memoir 'Rental Person Who Does Nothing' explains: " In one of Aesop's fables, a character longs to tell a secret and so tells it to the reeds. I'm just there, like those reeds." His jobs are simple like...
36 replies | 619 views
Hairdresser
Posts: 72

New Diet

Jul 11, 2023 - Jul 18, 2023
Hello everyone First of all I want to thank everyone who has ever posted on here, you are awesome! ;I got my ileostomy September 2001 so you would think I have nothing to learn but you all have helped me more than you will ever know! ;Also I would never had thought having an Ostomy could be funny but I have laughed quite often after reading some posts and I thank you for that too.Ok, so here's ...
7 replies | 397 views
JCSunshine
Posts: 4

Best pouching system to filter air?

Oct 10, 2014 - Jul 29, 2023
Hi, everyone. I use Convatec Durahesive wafers and pouches, two-piece. The wafers are great, lasting a good 7-10 days! All is well, except I'm trying to find the best filter system. When my output is just right (not too liquidy), I can sometimes witness the benefits of a good filter. It is amazing how well keeping the air out is for cutting down on bathroom trips, waking up, etc. However, from ...
13 replies | 9335 views
Linyera
Posts: 3

Severe post-surgery pain after eating, seeking advice

Nov 20, 2019 - Sep 26, 2023
Hi, this is my first time here, thank you all for sharing. This forum has been a partner since I got my surgery. This is my story: 10 weeks ago, I had a hemicolectomy after an intestinal invagination and a tumor removed. In total, they removed about 20 cm. The surgery went well, but after a few days, the suture failed and they had to operate again, putting me an ileostomy to take care of the he...
23 replies | 1274 views
Tatdude
Posts: 3

Depression

Feb 23, 2023 - Sep 17, 2023
How many people here suffer from Depression, since receiving their ostomy. A lot of people told me he that you should be happy you're still alive, which in some ways I am in other ways I am not. People also say it's a give-and-take all gave me some of my life back, but it took away more than I thought it was going to. I always liked having someone in my life and so far this ostomy has cost me m...
29 replies | 1479 views
Abefroman1969
Posts: 576

Back to the cottage

Nov 22, 2022 - Apr 18, 2023
Well, last night after letting my surgeon have it for listening but not hearing me I felt two very sharp pains a few inches to my left of the ileostomy. They went away and I thought nothing more of it.I have alarms set overnight to remind me that I'm on TPN and need to empty usually 3 times overnight. Last night I only had to empty once. The alarms still went off I just wasn't having any output...
32 replies | 1887 views
HenryM
Posts: 2316

Ostomy Memories Gets Poetic

Oct 22, 2022 - Dec 02, 2022
                       ODE TO AGING   This aging business isn’t fun; it’s weighty; It hits me upside the head today, as I turn eighty. The aches and pains, the medicines; I once felt fine Back in my recent youth, when I was seventy-nine.   One knee is weak, my chronic kidneys balk. At young attractive women I no longer gawk. My doctor tells me how I’m doing great; ...
17 replies | 797 views
joeycooper65
Posts: 2

How to slow down digestion and bag changes

Nov 14, 2022 - Jul 13, 2023
Hi All,New to the group and considering what's the best way to slow down our guts and intestines. Naturally with food and not naturally ie drugs like Imodium or codeine.Any advice on what you all do to control your diet and try for more solid stools. Thanks Joe
14 replies | 1185 views
drkknight
Posts: 2

Managing Bag Interference During Intimate Moments

Dec 09, 2007 - Jul 19, 2023
Hi,

First post on here so, please be gentle. I was wondering, has anyone found a way of keeping that darn bag out of the way when they are having one of their most intimate moments? I've used techniques such as holding it under a t-shirt, etc... What do you do? It just plain can get in the way sometimes...

Thanks in advance.
150 replies | 97513 views
crappycolondiaries
Posts: 966

How has your spouse/partner/significant other (Past OR Present) handled your ostomy/surgeries?

Apr 15, 2023 - Sep 17, 2023
Curious how others in past/present relationships have navigated these surgeries and ostomies with a partner. I have a feeling experiences will be across the board and hopefully some whose experiences haven't been the best up to this point can find encouragement/support in other's stories.
67 replies | 2860 views
Iamari
Posts: 7

Tell me I can eat a tootsie pop

Jul 28, 2023 - Sep 25, 2023
Hi everyone! Well I am 6 weeks post op of my ileostomy with a bunch of complications and two extra surgeries. I'm so nervous about another ileus and having an obstruction (the ng tube was terrifying) that I want to eat chewy things but I'm afraid of obstructing. Anyone think it's ok?by the way, I have a urostomy too. I've had that for two years. I'm a double bagger :)
44 replies | 1241 views
Bees
Posts: 27

Managing an ileostomy in the great outdoors

Jan 24, 2022 - Jul 15, 2023
Question from a new ostomate: How do you handle emptying an ileostomy when outdoors for hours or all day and no bathroom is nearby? For example, on a boat ride, hiking in a group, just sitting with friends at sunset, sunrise, or around a campfire? How about when camping, either backpacking or car camping? Are my tenting days over?ThanksBruce
12 replies | 1219 views
Mysterious Mose
Posts: 230

Rock & Roll

Sep 19, 2023 - Sep 24, 2023
Was out for my walk this morning plugged into Deezer and listening to my "walk mix". I am a big fan of get up and dance rock & roll. It helps me keep my preferred pace regardless of aching joints. So, I thought I would ask y'all a question as to who be your favorite rock & roll band/performer. I'm talking rock & roll here. Hard driving, get up and dance rock & roll. In my opinion, this leaves o...
31 replies | 372 views
Marco789
Posts: 76

Which direction do you sit to empty?

Oct 25, 2022 - Aug 21, 2023
I know it sounds funny, but I much prefer to sit on the toilet backwards when emptying my pouch. It gives me 3 advantages.

It gives me more room to empty and clean up, as I don't have a toilet tank against my back.
It allows me to better control where the output lands in the toilet, so I can keep the splashing to a minimum.
It makes irrigation so much easier because I can set my water container on...
33 replies | 1353 views
Scotland44
Posts: 2

Best swimwear for ostomy bag?

Aug 19, 2020 - Sep 19, 2023
I know I can't wear a regular swimsuit over the ostomy bag, but what can I wear that is comfortable and doesn't look too bulky around my waist? I have tried swim shorts with t-shirts, but the t-shirts tend to blow up around the top of my torso with the movement of the water. Any ideas women who have been swimming with the bag would be much appreciated.Hazel.
21 replies | 2708 views
kclay1230
Posts: 4

Effects of opiates on output

Jul 18, 2023
I've had an ileostomy since 1988. I'm facing rotator/ bicep surgery soon. Will I be able to empty and change my bag on my own?I use a 1 pc. bag. Wondering if I should use a 2 pc system temporarily so it might be easier for my husband to assist me.ALSO,will opiate pain meds cause constipation even without my colon?
8 replies | 289 views
Ice
Posts: 39

Cold weather hiking

Oct 24, 2022 - Feb 05, 2023
Evening all, I'm from upstate New York and winter is coming!!  Just got an ostomy bag a week ago and was wondering if anyone has hiked in cold weather with their bag. I mean cold, like 30 degrees below zero!  Worried it may freeze?
17 replies | 788 views
swimfit
Posts: 10

Seeking Replacement for Hollister 7730 - Water-Resistant Adhesive

Jan 06, 2022 - Sep 04, 2023
So the title says it all really.I've been advised by my local ostomy supplier that Hollister 7730 adhesive spray is being discontinued. I promptly phoned the local Hollister agents and they confirmed that it's a global withdrawal by the manufacturer. They didn't know why, but it's presumably either due to material regulation or because it's not profitable. I'd be happy to pay double the price -...
18 replies | 5123 views
RessaMarie
Posts: 2

New Member introduction

Jul 18, 2023 - Aug 08, 2023
Hello fellow ostomates. I hope you all are well. I look forward to getting to know you all.I am a recently new ostomate as of March of 2023. I hope I can build friendships with you all, gain and share ideas and advice, and meet new people, especially in my area, so I can build friendships with others who understand.One thing I have found is the no one in my circle seems to really understand the...
16 replies | 681 views
tnshaye
Posts: 3

Weird pain?

Aug 29, 2023 - Sep 12, 2023
What does blockage feel like? I dont think that's the pain I'm feeling, since my output has been normal. I keep getting this weird pain under my ribs, last week it was on my left side, yesterday and today its on the right side. When it first started yesterday, it didnt hurt as much, but as the day went on, it got worse and when i finally got home and was able to lay down, there was alot of gas,...
9 replies | 287 views
Virgo68
Posts: 26

Coloplast Sensura Mio Convex Flip

Jun 29, 2023 - Aug 21, 2023
I know this question has been posted in the past, but I am testing out this new bag, Coloplast Sensura Mio Convex Flip because I have a hernia. So far, I don't particularly like it. I think it leaks too quickly because of the petal form. I use barrier seals and I've tried using those barrier strip tapes but the tape adhesive is stronger so that it is harder to remove, even with adhesive remover...
14 replies | 410 views
livinnandlearnin
Posts: 37

Need advice for jacuzzi with ileostomy

Feb 16, 2015 - Sep 10, 2023
OK. So here's the deal. I've had an ileostomy for about 5 years and considering that I've had 9 surgeries in 4 years, I think I have a pretty good body image. Now I have unexpectedly found myself in a caring and committed relationship with a very supportive man, but it's new. Usually when I have sex, I tape my pouch (which is already the smaller "midi" type) up out of the way, and I use Colopla...
10 replies | 10397 views
clair.crowley83
Posts: 28

Two step reversal update

May 27, 2023 - Jul 06, 2023
Hey bag buddies,I thought I'd give an update on my situation. I had my colostomy reversed 12 days ago, and had a protective ileostomy created, with the goal to reverse that in 2 months.The surgery was more difficult than they anticipated, because they found a lot of large adhesions and damage from the peritonitis i had back in November. They also had to remove my rectum which I hadn't anticipat...
12 replies | 415 views
MassMikMouse
Posts: 32

Update from the urostomy patient who is leaking like a White House intern for most of the year…

Aug 31, 2023 - Sep 02, 2023
Hi there I submitted a post, probably in June detailing my woes about my leaky ostomy due to my weight loss. I would like to let everybody know that everything has settled down. I am now using convatec products, and they seem to work much better than the coloplast products. (I’m not sure if it’s me, but I really think my urine made the adhesive for the Coloplast products break down a littl...
7 replies | 151 views
Loulou80
Posts: 4

Gas and foamy output

Aug 25, 2023 - Aug 27, 2023
Hi everyone, I’m looking for some advice/reassurance. I had emergency surgery two weeks today and have been home only a few days. I had vomiting and water output yesterday from a stomach bug. I’ve now been experiencing nausea, gas, burping and extreme foamy output. I can’t get hold of any nurses and I’m getting worried any help greatly appreciated.
7 replies | 155 views
Beatles0826
Posts: 10

Nausea and leakage

Jul 10, 2023 - Jul 12, 2023
Hi All, I have had my stoma since May of 2021. I have had many issues unfortunately with leakage and skin rawness. I honestly feel like I am losing my mind. It seems no matter how differently I cut my hole (larger, smaller) for some reason at the bottom of the appliance where it meets the stoma, there seems to always be a hole that opens up and lets leakage through. I tend to have to change my ...
6 replies | 231 views
Audrey Warren
Posts: 100

Most Popular of the Month

Oct 23, 2022 - Mar 04, 2023
This site is a godsend. As a newbie (colostomy on Nov 8,'21), I look at it every day for a number of reasons. Reading what people are going through makes me grateful that my elective surgery because of a severe case of IBS-C is nothing compared to what they have been ;through and are still living with.I don't have to go the hospital for anything related to my ostomy. I feel sorry for those who ...
21 replies | 1114 views
SallyK
Posts: 1276

Under Desk Mini Bike Pedal Exerciser

Aug 01, 2023 - Aug 09, 2023
Has anyone used one of these (Under Desk Mini Bike Pedal Exerciser)?I am so worried about getting a hernia that I have only been walking and I do need something more.




22 replies | 523 views
rustykunk1949
Posts: 4

Need help with ostomy bag seal and barrier ring issues

Sep 03, 2022 - Sep 10, 2023
I have trouble getting my bag to seal around my stoma. It always puffs up and stool goes in around it. The barrier rings do not seem to help. What am I doing wrong?
13 replies | 517 views
iMacG5
Posts: 1422

A RHYME - 2019

Jul 17, 2023 - Jul 18, 2023
I'm not sure if I posted this before so please forgive me if I did. Hey folks,
I think it’s terrific you took the time
To express your thoughts in this little rhyme.
You certainly got some affirmation
From Bill’s written appreciation.
Lots of folks who contribute here
Are experts in various arenas.
Some are just learning but
Are way more than laughing hyenas.
We tend to be respectful 
And usu...
5 replies | 168 views
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