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Kayakpixie
Posts: 6

Hernia Belts (prevention of hernias)

Aug 10, 2023 - Aug 22, 2023
Hi there! I had my lar loop ileostomy surgery on June 2/23. It was open surgery so I have a 15-20cm vertical incision.

I'm looking for a hernia belt to help prevent hernias. I've been back the gym for a few weeks now lifting light weights with no issues but the cardio class last weekend with the jumping made my stomach area very uncomfortable to the point I stopped and did step outs.

The belt th...
15 replies | 422 views
MairiC
Posts: 8

Coloplast without barrier ring?

Jun 23, 2023 - Jul 03, 2023
Hey, anyone who uses Coloplast.....my pharmacy failed to reorder my supplies so now I have to wait until Monday for delivery. I am completely out of barrier rings but I have a couple of one piece pouches. I'm currently wearing a Convatec one piece that I had received as a sample a long time ago. I hate it, it's peeling off at the edges and my skin is getting itchy. Has anyone used Coloplast bas...
10 replies | 272 views
russellnotl
Posts: 3

Stoma protrusion

Aug 02, 2023 - Aug 22, 2023
Hello , had my surgery in april. Over the last two weeks my stoma has increased in size considerably. When I ly down it goes back to normal. Is this common


14 replies | 345 views
R
Posts: 12

Colonoscopy in stoma

Mar 16, 2023 - Aug 20, 2023
Anyone have experience with colonoscopy in stoma and rear-end at same time?


11 replies | 273 views
BaoBoo
Posts: 18

Mini Stoma Pouch from Convetac

Jul 20, 2023 - Aug 04, 2023


I think this product can share to all who are feeling very uncomfortable sleep with the regular bag size.



is from Convetac company and don't know if other company also have the similar items.


it is designed for intimacy but the outside material is plastic , no draining hole and actually I did wash and reuse it

let's talk!






8 replies | 250 views
OstoMorgan
Posts: 18

Finding Meaning in the Chaos: Exploring Existential Questions

Nov 28, 2020 - Jul 26, 2023
Originally I wrote this in responce to a subject Faith Hope and charity' forum entry, but think I should start a fresh. Thankyou Mike though for your insperation.

It actually made me feel better after i stopped typing and helped aligned my ducks slightly. Sorry if i seem to preach but i am talking to myself more so...

Here we go.... real deep breath in....

There is no real meaning to anything.. ev...
14 replies | 888 views
crappycolondiaries
Posts: 954

Looking for movie/tv show and/or Audible recommendations

Apr 13, 2023 - Aug 22, 2023
Hey, I need some ideas for things I can watch that don't require my complete attention while doing domestic stuff that is really boring for me

If a dog or child dies in it, I don't want to watch it. My taste is pretty eclectic but I do really like British tv. I like documentaries as well. Currently I have Netflix, Amazon Prime, Disney +, Paramount +, and Hulu.



Also open to book recommendations I...
29 replies | 589 views
crappycolondiaries
Posts: 954

How has your spouse/partner/significant other (Past OR Present) handled your ostomy/surgeries?

Apr 15, 2023 - Sep 17, 2023
Curious how others in past/present relationships have navigated these surgeries and ostomies with a partner. I have a feeling experiences will be across the board and hopefully some whose experiences haven't been the best up to this point can find encouragement/support in other's stories.


67 replies | 2818 views
HenryM
Posts: 2317

Ostomy Memories of Ethics vs. Morals

Jan 12, 2023 - Jan 27, 2023
ON SOME SUBJECTS, A DICTIONARY barely touches the surface.  Morals, my dictionary says, are a person’s standards of behavior, while ethics are said to be moral principles that govern behavior.  Sounds kind of the same, but in common usage they have come to be distinguishable.  Neither have any particular relationship with religion.  Some of the most ethical and moral people I’ve met are...
19 replies | 1015 views

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debbinmiller
Posts: 37

Having a Bit of a Meltdown?

Jun 22, 2023 - Jun 29, 2023
It'll be 6 months from my surgery in 2 days, and up until now I thought I was dealing and adjusting with all of this pretty well. Then all of a sudden, out of the blue I wasn't! I don't know what triggered it, maybe planning on seeing some relatives this weekend I haven't seen in 40 years? The fact that I not only have 2 stomas, but also now developed a hernia the size of a small watermelon? Wh...
31 replies | 989 views
clair.crowley83
Posts: 28

Two step reversal update

May 27, 2023 - Jul 06, 2023
Hey bag buddies,

I thought I'd give an update on my situation. I had my colostomy reversed 12 days ago, and had a protective ileostomy created, with the goal to reverse that in 2 months.

The surgery was more difficult than they anticipated, because they found a lot of large adhesions and damage from the peritonitis i had back in November. They also had to remove my rectum which I hadn't anticipat...
12 replies | 407 views
Beatles0826
Posts: 10

Nausea and leakage

Jul 10, 2023 - Jul 12, 2023
Hi All,

I have had my stoma since May of 2021. I have had many issues unfortunately with leakage and skin rawness. I honestly feel like I am losing my mind. It seems no matter how differently I cut my hole (larger, smaller) for some reason at the bottom of the appliance where it meets the stoma, there seems to always be a hole that opens up and lets leakage through. I tend to have to change my ...
6 replies | 217 views
rustykunk1949
Posts: 4

Need help with ostomy bag seal and barrier ring issues

Sep 03, 2022 - Sep 10, 2023
I have trouble getting my bag to seal around my stoma. It always puffs up and stool goes in around it. The barrier rings do not seem to help. What am I doing wrong?


13 replies | 509 views
Casper9
Posts: 90

Electrolytes

Jun 21, 2023 - Aug 07, 2023
Hi all!

I have had my ileostomy for many years and never really had a problem with hydration but recently have been diagnosed with an autonomic nervous system disorder. Because of this I really need to start drinking electrolyte beverages. Looking for something with flavour but not too much sugar. What's everyone's favorite?

Casper


38 replies | 994 views
pamala
Posts: 1

Challenges with indent from abcess

Apr 15, 2023 - Jul 13, 2023
I am having challenges with finding a bag that will stay on and not leak due to scars that are indebted on the right side of my stoma due to an abdominal wall abscess almost 2 years ago. 2 scars are under my appliance and one is just slightly outside the perimeter. When l move around or sit, the indents get deeper and my skin oulls away.



I have tried soooo many adhesives, but nothing has worked....
8 replies | 328 views
Newhere
Posts: 22

Sleeping

Jul 23, 2023 - Aug 02, 2023
Has anyone with a ilostomy tried sleeping in a recliner chair to prevent leaks? I have a colstomy and only ever had leaks, a few times while i am in bed. looks like i have to have a temp ilostomy next.

Wondering if anyone has tried a recliner for sleeping and if it helped with leaks, Thanks Bill.


10 replies | 364 views
maddysexipolo101
Posts: 2

Abdomen cramping pain

Aug 20, 2023 - Aug 21, 2023
Hi I've been having severe cramping in my abdomen I find it's happening alot lately, most times right after urinating I will get these cramping also after I drain my pouch o get the cramping aswel this has been going on for 2months now maybe longer,the pain is horrible, I'm forced to take pain meds just to get through them. I'm not sure what's causing this has anyone else experienced this, so...
5 replies | 158 views
bbazajou
Posts: 3

How to actually meet a nice woman on this site?

Mar 17, 2023 - Sep 07, 2023
I had an ileostomy placed in 2021 and since then, my 15 year relatonship has ended. I'm now comfortable enough with my physical condition to start dating again but having some trouble getting started. I'm thinking that looking to meet a woman with an ostomy also may be a good idea because we already have at least one thing in common, lol. I'm kind of shy at first, so any input on how to get out...
31 replies | 1653 views
Feb9HH
Posts: 70

Burning and Itching

May 18, 2023 - Jun 27, 2023
When your skin turn red after removing adhesive. ( I do use adhesive remover ) What do you guys do for the itching and burning? Does Benadryl help? I also cut my stoma on the wafer and it bleed profusely... I guess it's gonna be fine.




28 replies | 646 views
kclay1230
Posts: 4

Effects of opiates on output

Jul 18, 2023
I've had an ileostomy since 1988. I'm facing rotator/ bicep surgery soon. Will I be able to empty and change my bag on my own?I use a 1 pc. bag. Wondering if I should use a 2 pc system temporarily so it might be easier for my husband to assist me.

ALSO,will opiate pain meds cause constipation even without my colon?


8 replies | 279 views
Warrior24
Posts: 1

Clothing and hiding your ostomy

Jul 22, 2023 - Sep 06, 2023
Hello, I am wondering if everyone "hides" their ostomy bag? I've had my ostomy for a few months now and I'm still not comfortable tucking it under a waist band. I've been letting it hang out the bottom of my shirts but recently I've had a few strangers ask why I don't tuck it away. I don't know if it'll change your response but I had a Jejunostomy that is now an ileostomy recently, and I have t...
36 replies | 1413 views
dmo101
Posts: 56

NEVER EVER had a leak

Jul 21, 2023 - Sep 10, 2023
HELLO everyone out there!

I am constantly battling a leaky appliance or broken skin seal.

I was curious has anyone out there ever NOT had a leak with their appliance?


26 replies | 568 views
Virgo68
Posts: 26

Coloplast Sensura Mio Convex Flip

Jun 29, 2023 - Aug 21, 2023
I know this question has been posted in the past, but I am testing out this new bag, Coloplast Sensura Mio Convex Flip because I have a hernia. So far, I don't particularly like it. I think it leaks too quickly because of the petal form. I use barrier seals and I've tried using those barrier strip tapes but the tape adhesive is stronger so that it is harder to remove, even with adhesive remover...
14 replies | 403 views
Bees
Posts: 27

Managing an ileostomy in the great outdoors

Jan 24, 2022 - Jul 15, 2023
Question from a new ostomate: How do you handle emptying an ileostomy when outdoors for hours or all day and no bathroom is nearby? For example, on a boat ride, hiking in a group, just sitting with friends at sunset, sunrise, or around a campfire? How about when camping, either backpacking or car camping? Are my tenting days over?

Thanks

Bruce


12 replies | 1211 views
SallyK
Posts: 1276

Under Desk Mini Bike Pedal Exerciser

Aug 01, 2023 - Aug 09, 2023
Has anyone used one of these (Under Desk Mini Bike Pedal Exerciser)?

I am so worried about getting a hernia that I have only been walking and I do need something more.








22 replies | 511 views
Daisy2023
Posts: 85

Ostomy Talk

Jul 26, 2023 - Sep 06, 2023
I'm really on the edge as I found out more bad news. I don't know what to do. No one seems to understand what I'm going though. I'm sure whoever if anyone is reading this will. I can't get a reversal. Maybe this isn't a big deal, maybe it is but I have not come to terms with it at all. Anyways just a shot in the dark posting here. Anyone else receive similar news and were crushed?


35 replies | 1227 views
Cinderella
Posts: 5

Stoma and Bowel Movements: Anyone Else Experience This?

Apr 15, 2020 - Sep 06, 2023
Hi, I have had my stoma for 6 years now. When I first had my stoma op, I had a small amount of bowel movements and still sometimes get the feeling that I need to sit on the toilet but nothing happens. I had this feeling today and two small amounts of something came out. Is this anything anyone else has had?


9 replies | 2253 views
HenryM
Posts: 2317

Ostomy Memories of Magic White Powder

Apr 05, 2023 - May 22, 2023
I KEEP IT IN A LITTLE ROUND GLASS BOWL in my bathroom with a dipping tool for convenient use whenever I feel that I need a little of the magic white powder.  No, not cocaine.  It’s baking soda, aka sodium bicarbonate, a wondrous, multiuse item that we can all benefit from daily.  I stopped spending money for expensive ostomy deodorizers a long time ago.  Baking soda does a better job, and...
17 replies | 582 views
Ostomate & woundrn
Posts: 166

Can you name the movies?

Apr 13, 2023 - Apr 17, 2023
Who can finish these sentences...or identify the picture?

"Could be worse..." "I was going to make espresso" "You take the blonde I'll take the one in the toiban". "The staircase can be treacherous"

Hello handsome, is that a ten-gallon hat or are you just enjoying the show". "Don't just stand there clasping your hands in pain... How about a round of applause for The Waco Kid?". "A man ...
21 replies | 527 views
dada12
Posts: 2

OstomyCure TIES System - Any success stories or feedback?

Jan 13, 2020 - Aug 02, 2023
With the TIES Solution, the patient can live a life without the need to constantly wear an ostomy bag.

The solution is a titanium port with a lid and is implanted in place of the conventional ostomy. The lid bears a hatch that allows the evacuation of the waste without removing the lid. A bag holder that does not touch the skin allows the fixation of the bag when the waste needs to be evacuated....




18 replies | 3351 views
bubbaduffman
Posts: 9

Has anyone found their soulmate or best friend

May 11, 2023 - Aug 27, 2023
Hi everyone

I can't help wonder if anyone has actuallyfound someone specialthrough this site I ask as I find it so difficult to find even a friendin this crazy world

I am new here and don't really think it would work but I am an optimist so who knows.

I am a chrones disease person with an ileostomysince 1991was married for almost 30yrssingle for the last 5 years


16 replies | 991 views
bowsprit
Posts: 637

Tell It To A Stranger

Sep 03, 2023 - Sep 14, 2023
Amazingly, In Japan you can rent people for uses beyond sex-professional guests, for instance, and whole rental families. Shoji Morimoto for a small fee will be there for you but do nothing. His memoir 'Rental Person Who Does Nothing' explains: " In one of Aesop's fables, a character longs to tell a secret and so tells it to the reeds. I'm just there, like those reeds." His jobs are simple like...
36 replies | 578 views
Amanda6
Posts: 6

Making friends with an ileostomy

Apr 24, 2023 - Jun 17, 2023
Hi, I have had my ilesotomy for over 7 years now and have been suffering a little anxiety the last few years from it. When socialising with new friends I find that I can't even concentrate on their conversations as all I'm worrying about is my bag!! Making noises, eating with them as I have a high output and so have isolated myself the last few years. Does anyone else feel the same? Would love ...
37 replies | 1548 views
Passionileo7
Posts: 2

Wanting a tatoo around stoma, anyone else had this done?

Sep 03, 2023 - Sep 05, 2023
After everything stoma people go through. I was wondering has anyone had a tattoo around their's? Is it an obvious no, no. How did you stop stoma from leaking whilst having the surrounding tatoo'd. Did you cap it? Or not eat for several hours so output was zero? I am 8 weeks post surgery, have an ileo, on Chemo for x3-6 rounds, so whilst I'm waiting I can design a tattoo, if this is viable, and...
27 replies | 710 views
Audrey Warren
Posts: 93

Most Popular of the Month

Oct 23, 2022 - Mar 04, 2023
This site is a godsend. As a newbie (colostomy on Nov 8,'21), I look at it every day for a number of reasons. Reading what people are going through makes me grateful that my elective surgery because of a severe case of IBS-C is nothing compared to what they have been ;through and are still living with.

I don't have to go the hospital for anything related to my ostomy. I feel sorry for those who ...
21 replies | 1100 views
Rlooker10
Posts: 2

High output and watery output after ileostomy surgery - seeking advice and experiences

Nov 07, 2020 - Aug 15, 2023
I am four weeks post-surgery for my ileostomy, and I am still having a high output compared to what is considered normal. I'm also still having spells of very watery output. As this is very new to me and wasn't anticipated, it concerns me as I was hoping to return to a normal life after the operation but am currently being hindered by this. I am now on a short-term spell of TPN to keep my nutri...
14 replies | 2526 views
Violeteve2016
Posts: 1

Husband doesn't seem to want to be intimate now

Aug 23, 2023 - Sep 09, 2023
I had my permanent ileostomy surgery 7 weeks ago due to Crohn's disease and I've been talking about getting intimate again with my husband and he doesn't seem interested at all.... it almost seems like it makes him nervous and turned off...it just makes me feel worthless and I don't want him to be grossed out by me and not want me anymore. I just feel sad because I was worried this would happen...
15 replies | 655 views
jphendsby
Posts: 5

How do men continue on with dating (Urostomy)?

Jun 27, 2023 - Sep 15, 2023
Hi all I have had my bladder and prostate removed last June. I'm still trying to get to this life but need to talk to people with the same thing. I would prefer a male as the question is something only a man can answer. Sorry ladies. How do men continue on with dating knowing full well that without a prostate the male can not get stiff?


9 replies | 384 views
canhambrian6
Posts: 7

Despising My Reversed Stoma - Anyone Else?

Aug 20, 2022 - Sep 10, 2023
Hate my stoma looking full reverse hate it with venom surgery plan soon anybody else feel the same


9 replies | 340 views
krkb01
Posts: 20

Heat and skin barrier sheets

Jul 07, 2023 - Jul 12, 2023
So I've noticed, that when it's very hot out, skin barrier sheets are next to useless! Lol the wipes however work amazing. That is all....


7 replies | 335 views
delgrl525
Posts: 1752

Swollen Stoma and Pain

Apr 23, 2023 - Jun 26, 2023
Help!I've never experienced this before. I have an ileostomy, a loop that was created so that it might be temporary, but when I decided to stay with the ileo, I kept the same stoma instead of having an 'end' one created. So my stoma is kind of an oval shape, and bigger at the bottom. I noticed lately that I was 'feeling' it more and more aware when it was working, sometimes there was quite a bi...
16 replies | 604 views
markmd1112
Posts: 24

Long flights with a colostomy

Aug 12, 2023 - Aug 16, 2023
Hello! Does anyone with a colostomy have first hand experience with flights that are more than 14 hours nonstop? I know from my pre-colostomy days, those flights cause digestive issues such as bloating, dehydration, indigestion and constipation. Does having a colostomy worsen those and add other issues? If so, any suggestions for how to minimize and manage them? I'm hoping to travel to Australi...
16 replies | 640 views
rachelle1412
Posts: 2

Best convex baseplate? Trying to avoid 3rd surgery.

May 18, 2023 - Jul 10, 2023
I am looking for opinions on the best convex baseplate for a flush stoma (it also really retracts way below skin level when active)? Or techniques to help the seal? My first surgery was in 2020 and second in 2021 and I've never been able to get a good seal. Output always ends up under the barrier ring on my skin, regardless of ring brand. It leads to leaks past the ring reasonably often. I am q...
17 replies | 637 views
Bizzybeth
Posts: 3

Barrier ring melting

Sep 04, 2023 - Sep 11, 2023
Hi! New to this site. My husband has a very deep stoma and we have been using an eakin to seal wafer. This worked over the winter. It’s hot and now the eakin just melts and he leaks. Any suggestions? Note: he works outside all day


17 replies | 301 views
iMacG5
Posts: 1419

A RHYME - 2019

Jul 17, 2023 - Jul 18, 2023
I'm not sure if I posted this before so please forgive me if I did.

Hey folks,


I think it’s terrific you took the time
To express your thoughts in this little rhyme.
You certainly got some affirmation
From Bill’s written appreciation.


Lots of folks who contribute here
Are experts in various arenas.
Some are just learning but
Are way more than laughing hyenas.


We tend to be respectful 
And usu...
5 replies | 159 views
CraftyMom63
Posts: 6

Dates

Jun 11, 2023 - Aug 27, 2023
Anyone have any encouraging words regarding being able to get a date now that they have an ostomy? What has worked for you? Do you tell them early on in the day in process or do you wait a while or what?

Im happy by myself but it is so very lonely at times. This weekend I had a date cancel on me which only made the loneliness worse.

My heart hurts for others like myself and the boat we've all be...
26 replies | 1278 views
creinhart030805
Posts: 2

Post surgery by 6 weeks

Aug 07, 2023 - Sep 03, 2023
So i had my Ostomy right after my 18th birthday and after I graduated high school, I have a genetic dietary which caused a temporary pouch, my dad had he surgery before me and I thought okay I got this. I don't got this im scared. For a couple days I was sick cause of a bug and now im fine, but when I emptied my bag it looked like black stuff in my bag and so when I was cleaning it after I empt...
8 replies | 226 views
Ostomy4life_22
Posts: 44

Air to the skin

Jul 07, 2023 - Jul 11, 2023
Hello all you awesome people!!!

So this inquiring mind needs to know what some of you do to get air to your skin around the stoma? I was telling myself wouldn't it be great if there was something that a person with an ostomy could use over their stoma so air can get to the skin for let's say overnight or something. And if there is something please let me know.

Thank you for being awesome and help...
16 replies | 688 views
sur.sanchita
Posts: 7

Digestion Issues and Loose Stool After Acne Antibiotics

Jun 15, 2022 - Aug 17, 2023
Hello again,

I am facing some problem and thought I check if anyone here could have faced similar issues.

I had my tumor removed on November 21 and since then I have a stoma. In February, I had a sudden acne breakout on my face. The dermatologist gave some antibiotics. The acne is under control but I have started having loose motion. I consulted internal medicine and took a course of antibiotics ...
7 replies | 755 views
Freestyle
Posts: 12

The colostomy operation

Sep 08, 2023 - Sep 11, 2023
Hi everyone . Has anyone on here had a colostomy while having cirrhosis. My husband has this and also rectal cancer.we have been told that the operation has a 1 in 4 survival rate, so obviously we are terrified. We have also been told that if he survives the operation the recovery from the anal closure is going to be a problem healing. We just wondered if anyone has any help for us . Thank you...
17 replies | 266 views
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