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BaoBoo
Posts: 18

Mini Stoma Pouch from Convetac

Jul 20, 2023 - Aug 04, 2023
I think this product can share to all who are feeling very uncomfortable sleep with the regular bag size.

is from Convetac company and don't know if other company also have the similar items.
it is designed for intimacy but the outside material is plastic , no draining hole and actually I did wash and reuse it

let's talk!




8 replies | 263 views
Lydia
Posts: 12

Colostomy and Wine: Anyone Else Experience This?

Nov 21, 2010 - Aug 19, 2023
Hello all,

I had my colostomy on the 7th of Oct, and since then have made great recovery from the operation.

Friday night, I decided to treat myself to some wine, I just wanted to take that next step to feeling more normal again.

But oh my goodness, my colon didn't like it at all. An hour after a couple of glasses, all it had in there kept coming out of Winnie (stoma) as runny as water. I had to c...
15 replies | 14920 views
thebertonlagden
Posts: 18

Hernia belts..... Please advise

Aug 02, 2023 - Sep 26, 2023
Hello all, I had my surgery in April 2023 when Stanley my ileostomy was made. It has made an amazing improvement in my life.In the last few weeks I seem to have a bigger bulge in the mummy tummy on Stanley's side compared to the other side and a frequent heavy dragging feeling..... Hence I wonder if I am developing a hernia?Am due to see my stoma nurse next week but wondered if anyone could rec...
14 replies | 339 views
HenryM
Posts: 2316

Ostomy Memories Gets Poetic

Oct 22, 2022 - Dec 02, 2022
                       ODE TO AGING   This aging business isn’t fun; it’s weighty; It hits me upside the head today, as I turn eighty. The aches and pains, the medicines; I once felt fine Back in my recent youth, when I was seventy-nine.   One knee is weak, my chronic kidneys balk. At young attractive women I no longer gawk. My doctor tells me how I’m doing great; ...
17 replies | 818 views
crappycolondiaries
Posts: 971

Happy National PET Day!

Apr 11, 2023 - Apr 15, 2023
Today isn't all about the dogs Drop a picture(s) of your pet(s)Mali the dog sleeping on Kenya




45 replies | 1232 views
tnshaye
Posts: 3

Weird pain?

Aug 29, 2023 - Sep 12, 2023
What does blockage feel like? I dont think that's the pain I'm feeling, since my output has been normal. I keep getting this weird pain under my ribs, last week it was on my left side, yesterday and today its on the right side. When it first started yesterday, it didnt hurt as much, but as the day went on, it got worse and when i finally got home and was able to lay down, there was alot of gas,...
9 replies | 291 views
clair.crowley83
Posts: 28

Two step reversal update

May 27, 2023 - Jul 06, 2023
Hey bag buddies,I thought I'd give an update on my situation. I had my colostomy reversed 12 days ago, and had a protective ileostomy created, with the goal to reverse that in 2 months.The surgery was more difficult than they anticipated, because they found a lot of large adhesions and damage from the peritonitis i had back in November. They also had to remove my rectum which I hadn't anticipat...
12 replies | 419 views
dmo101
Posts: 57

Disability- is an ostomy a disability

Jul 21, 2023 - Jul 30, 2023
I have filled out LOTS of job applications in the last 6 months.Every time I come to the question on an application, "Do you have a disability" I wondered if an ileostomy counts in todays world?
17 replies | 625 views
Redondo
Posts: 203

How much fiber is too much?

Jul 30, 2023 - Aug 08, 2023
Two months ago, I started on a diet meal plan that incorporates eating5 healthy snacks every 2-3 hours along with 1 lean and green meal. I lost 17 pounds doing this. I thought all was good until I ended up in the hospital with a partial small intestinal bowel blockage. The snacks that I ate have 4-5 grams of fiber in them. The daily meal consisted of lean chicken, fish, or beef along with 3 ser...
10 replies | 280 views
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Warrior24
Posts: 1

Clothing and hiding your ostomy

Jul 22, 2023 - Sep 06, 2023
Hello, I am wondering if everyone "hides" their ostomy bag? I've had my ostomy for a few months now and I'm still not comfortable tucking it under a waist band. I've been letting it hang out the bottom of my shirts but recently I've had a few strangers ask why I don't tuck it away. I don't know if it'll change your response but I had a Jejunostomy that is now an ileostomy recently, and I have t...
36 replies | 1453 views
xnine
Posts: 1106

Do you swear when you have a blow out

Aug 27, 2023 - Sep 26, 2023
I say lots of stuff I can not put on here. It bothers my wife but what does one say when there is shit all over the place?
31 replies | 655 views
Iamari
Posts: 7

Tell me I can eat a tootsie pop

Jul 28, 2023 - Sep 25, 2023
Hi everyone! Well I am 6 weeks post op of my ileostomy with a bunch of complications and two extra surgeries. I'm so nervous about another ileus and having an obstruction (the ng tube was terrifying) that I want to eat chewy things but I'm afraid of obstructing. Anyone think it's ok?by the way, I have a urostomy too. I've had that for two years. I'm a double bagger :)
44 replies | 1255 views
Happytostillbehere
Posts: 48

Turning 80

Aug 15, 2023 - Aug 24, 2023
Never thought I'd reached 80, yet here I am. Numerically I can't deny that I'm 80 but my subjectively age ,that's a whole other thing altogether, don't know how old I feel and it's nowhere near that,not even close and that's a good thing! Some of the articles I've read about the subjective age say that good genes have a lot to do with it. Personally I prefer Wranglers and who would ever thunk t...
6 replies | 276 views
HenryM
Posts: 2316

Ostomy Memories of Magic White Powder

Apr 05, 2023 - May 22, 2023
I KEEP IT IN A LITTLE ROUND GLASS BOWL in my bathroom with a dipping tool for convenient use whenever I feel that I need a little of the magic white powder.  No, not cocaine.  It’s baking soda, aka sodium bicarbonate, a wondrous, multiuse item that we can all benefit from daily.  I stopped spending money for expensive ostomy deodorizers a long time ago.  Baking soda does a better job, and...
17 replies | 598 views
gfk374
Posts: 10

Reversal surgery

Mar 30, 2023 - Jul 10, 2023
Five weeks ago, Feb 20,2023, I had ostomy reversal surgery. Met with my surgeon two days ago for follow up. He said everything looked great. Everything seems to be working properly. My bowel movements have returned to pretty much normal in amount, size and color. The main problems I've had is I'm still very swollen. He said that's normal and could be swollen for a while since I've had my abdome...
14 replies | 535 views
iMacG5
Posts: 1422

A RHYME - 2019

Jul 17, 2023 - Jul 18, 2023
I'm not sure if I posted this before so please forgive me if I did. Hey folks,
I think it’s terrific you took the time
To express your thoughts in this little rhyme.
You certainly got some affirmation
From Bill’s written appreciation.
Lots of folks who contribute here
Are experts in various arenas.
Some are just learning but
Are way more than laughing hyenas.
We tend to be respectful 
And usu...
5 replies | 172 views
maddysexipolo101
Posts: 2

Abdomen cramping pain

Aug 20, 2023 - Aug 21, 2023
Hi I've been having severe cramping in my abdomen I find it's happening alot lately, most times right after urinating I will get these cramping also after I drain my pouch o get the cramping aswel this has been going on for 2months now maybe longer,the pain is horrible, I'm forced to take pain meds just to get through them. I'm not sure what's causing this has anyone else experienced this, so...
5 replies | 172 views
warrior
Posts: 435

ken and barbie butts need reply.

Aug 22, 2023 - Sep 28, 2023
Greetings All. The answers I need are related to restrictions when you have your rectum removed and your butt sewn up I am facing up proctolectomy very soon. Some of you know my story. I have had an ileostomy since 2016 and in the course of 6 years I continue to bleed my doctor was hoping for a reconnection so he left the stump and that stump over the years has Crohn's now. The medications...
28 replies | 553 views
smeans59
Posts: 17

Needing Hope to Get Me through Tough Times

Aug 21, 2023 - Sep 04, 2023
I am 10 days post colostomy surgery, and I am really struggling. I am also battling ovarian cancer and thought I was doing really well until I ended up with a bowel blockage. I am used to being very active and now have another obstacle to overcome. My blockage was high in my colon so my ostomy is above my belly button on the left side. Basically, it’s impossible to hide. I’m a golfer and ...
30 replies | 679 views
Newhere
Posts: 22

Sleeping

Jul 23, 2023 - Aug 02, 2023
Has anyone with a ilostomy tried sleeping in a recliner chair to prevent leaks? I have a colstomy and only ever had leaks, a few times while i am in bed. looks like i have to have a temp ilostomy next.Wondering if anyone has tried a recliner for sleeping and if it helped with leaks, Thanks Bill.
10 replies | 380 views
krkb01
Posts: 20

Heat and skin barrier sheets

Jul 07, 2023 - Jul 12, 2023
So I've noticed, that when it's very hot out, skin barrier sheets are next to useless! Lol the wipes however work amazing. That is all....
7 replies | 352 views
Redondo
Posts: 203

Shy Stoma

Sep 10, 2023 - Sep 27, 2023
Just wondering if anyone has the same problem that I do. When I change my pouch, nothing flows out for hours. It's like the stoma is shy and everything stopped working. I always change first thing in the morning and within a half hour I have a light breakfast as always. But nothing seems to come out for hours. I don't know if the air gets to it or what happens?
32 replies | 471 views
gingerlee54
Posts: 33

GREEN Bile OUTPUT..

Jan 04, 2023 - Sep 06, 2023
Hi, Can anyone tell me about the green bile output? I NOTICE a grass-green to emerald green color may be every other day. Is this normal?Thanks
7 replies | 365 views
Danno
Posts: 95

Almost 8 months out.

Aug 19, 2023 - Aug 25, 2023
That’s me.. :)  8 months out from what I thought was the worst moment of my life. As we all know, going through the trauma before and even after surgery, can be hard to recover from.  I haven’t been on here in a while but figured I’d swing by for an update.  Since the big day I took a few months off to focus on recovery. I followed the rules, didn’t lift anything heavy, and kept ...




17 replies | 735 views
tomlang2434
Posts: 2

Intestinal yeast infection

Jul 15, 2023 - Jul 31, 2023
Hi I'm new to the group every time I end up in the hospital they tell me I have a intestinal yeast infection my original surgeon the only one that acted like he cared tried all the yeast meds nystatin and all the other ones I'm at a blank on all the other ones I've had 5 stomach surgeries due to uc I have an illiostomy plus they put me on high doses of prednisone which gave me something called ...
13 replies | 392 views
Freestyle
Posts: 12

The colostomy operation

Sep 08, 2023 - Sep 11, 2023
Hi everyone . Has anyone on here had a colostomy while having cirrhosis. My husband has this and also rectal cancer.we have been told that the operation has a 1 in 4 survival rate, so obviously we are terrified. We have also been told that if he survives the operation the recovery from the anal closure is going to be a problem healing. We just wondered if anyone has any help for us . Thank you...
17 replies | 318 views
Ostomate & woundrn
Posts: 166

I'm thinking of writing another article

Jul 02, 2023 - Aug 18, 2023
I want us ostomates to stop being invisible. I want to write about why ostomates hate nurses in general and sometimes our frustrations with ostomy nurses as well. But I'd like to hear your thoughts. I don't want to just complain I want to find out what we as a group find most frustrating and upsetting CLARIFICATION:Because of my experience I have the desire to write an article aimed at the nurs...
27 replies | 917 views
Violeteve2016
Posts: 1

Husband doesn't seem to want to be intimate now

Aug 23, 2023 - Sep 09, 2023
I had my permanent ileostomy surgery 7 weeks ago due to Crohn's disease and I've been talking about getting intimate again with my husband and he doesn't seem interested at all.... it almost seems like it makes him nervous and turned off...it just makes me feel worthless and I don't want him to be grossed out by me and not want me anymore. I just feel sad because I was worried this would happen...
15 replies | 725 views
Riva
Posts: 89

Stoma Anniversary

Jul 07, 2023 - Jul 08, 2023
Nine years today. Happy Stomaversary to me
7 replies | 189 views
Linyera
Posts: 3

Severe post-surgery pain after eating, seeking advice

Nov 20, 2019 - Sep 26, 2023
Hi, this is my first time here, thank you all for sharing. This forum has been a partner since I got my surgery. This is my story: 10 weeks ago, I had a hemicolectomy after an intestinal invagination and a tumor removed. In total, they removed about 20 cm. The surgery went well, but after a few days, the suture failed and they had to operate again, putting me an ileostomy to take care of the he...
23 replies | 1278 views
creinhart030805
Posts: 2

Post surgery by 6 weeks

Aug 07, 2023 - Sep 03, 2023
So i had my Ostomy right after my 18th birthday and after I graduated high school, I have a genetic dietary which caused a temporary pouch, my dad had he surgery before me and I thought okay I got this. I don't got this im scared. For a couple days I was sick cause of a bug and now im fine, but when I emptied my bag it looked like black stuff in my bag and so when I was cleaning it after I empt...
8 replies | 242 views
Mysterious Mose
Posts: 236

Rock & Roll

Sep 19, 2023 - Sep 28, 2023
Was out for my walk this morning plugged into Deezer and listening to my "walk mix". I am a big fan of get up and dance rock & roll. It helps me keep my preferred pace regardless of aching joints. So, I thought I would ask y'all a question as to who be your favorite rock & roll band/performer. I'm talking rock & roll here. Hard driving, get up and dance rock & roll. In my opinion, this leaves o...
32 replies | 414 views
Ostomy4life_22
Posts: 44

Super Bowl foods

Feb 08, 2023 - Feb 15, 2023
Hey there everyone!Super bowl is this Sunday. And for the first time in a while, I'll be able to enjoy some of the foods. I do hope that others are able to enjoy the food and game this Sunday. Have a great week and weekend stay safe.
22 replies | 806 views
funnybonemarrow
Posts: 1

Belts

Feb 09, 2023 - Aug 06, 2023
I've had my ileostomy for nearly 20 years. I've only used a flange and drainable pouch.can someone explain the usefulness of using a belt?
9 replies | 402 views
past member
Posts:

Traumatic Stress, " The Body Keeps the Score."

Mar 24, 2023 - Mar 27, 2023
My profile along with everyone else on this site speaks of trauma. Each one of us has been traumatized by everything leading up to the ostomy and things that have occurred afterwards. Some traumatic experiences may include, scopes, drains, NG tubes, multiple surgeries, pain, relationship breakups, lack of empathy by providers, and lonely hospital stays. The list goes on. As a clinical therapist...
16 replies | 751 views
Oh Me Oh My
Posts: 1

Hartmann's reversal ....symptoms, side fx???

Aug 27, 2023 - Sep 28, 2023
I had a colostomy reversal June 8th. 1 year and 2 days to getting my colostomy from emergency diverti ulitis bowel perforation, sepsis, c.diff....you name it I had it. 1 month in hospital and significant weight loss. My recovery and side effects are very different from this reversal surgery?? I was in hospital 9 days and recovery went well, successful. But almost 3 months later I have some u...
19 replies | 370 views
Loulou80
Posts: 4

Gas and foamy output

Aug 25, 2023 - Aug 27, 2023
Hi everyone, I’m looking for some advice/reassurance. I had emergency surgery two weeks today and have been home only a few days. I had vomiting and water output yesterday from a stomach bug. I’ve now been experiencing nausea, gas, burping and extreme foamy output. I can’t get hold of any nurses and I’m getting worried any help greatly appreciated.
7 replies | 157 views
Beth22
Posts: 493

RED SOLO CUP

Jun 30, 2023 - Jul 05, 2023
Yup I said it RED SOLO CUP !! Grab that solo cup while rolling when changing and fill her up and HAVE A PARTY !!So i have an ileo and I literally never have a quiet time. So bag changes are super fun lol not really but hey that's ostomy life, takes me anywhere from 2-3 hours and after that a very short window of about 5 mins to slap on a bag . So while sitting there for over an hour trying catc...
31 replies | 1380 views
SallyK
Posts: 1278

Under Desk Mini Bike Pedal Exerciser

Aug 01, 2023 - Aug 09, 2023
Has anyone used one of these (Under Desk Mini Bike Pedal Exerciser)?I am so worried about getting a hernia that I have only been walking and I do need something more.




22 replies | 532 views
Audrey Warren
Posts: 101

Most Popular of the Month

Oct 23, 2022 - Mar 04, 2023
This site is a godsend. As a newbie (colostomy on Nov 8,'21), I look at it every day for a number of reasons. Reading what people are going through makes me grateful that my elective surgery because of a severe case of IBS-C is nothing compared to what they have been ;through and are still living with.I don't have to go the hospital for anything related to my ostomy. I feel sorry for those who ...
21 replies | 1133 views
Roch!!
Posts: 16

BCIR Surgery Availability in England?

Feb 09, 2016 - Jul 30, 2023
Does anyone know if the BCIR surgery is done in any hospitals in England?
15 replies | 6588 views
Doe1mama
Posts: 84

Baby oil

Aug 02, 2023 - Aug 31, 2023
We used baby oil for the first time because we ran out of the usual lubricant. My husband was leaking and we really couldn't find where it was leaking from. It did not appear to be oozing around the flange. Has anyone ever had any issues with baby oil affecting the bag in any way? We put on a new bag without oil and waiting now to see what happens. Never a dull moment.
16 replies | 462 views
eefyjig
Posts: 582

It's all coming back to me......

Feb 19, 2023 - Feb 22, 2023
Hi all. I'm going through an interesting time and am wondering if anyone can relate. I know most of us still carry a lot of the trauma caused by our health-related experiences. I know I do, but I've been fortunate to be able to put it aside and be there for my friends and family through their medical challenges. I've visited them in the hospital and volunteered in my local one for six years, ab...
20 replies | 901 views
MassMikMouse
Posts: 32

Update from the urostomy patient who is leaking like a White House intern for most of the year…

Aug 31, 2023 - Sep 02, 2023
Hi there I submitted a post, probably in June detailing my woes about my leaky ostomy due to my weight loss. I would like to let everybody know that everything has settled down. I am now using convatec products, and they seem to work much better than the coloplast products. (I’m not sure if it’s me, but I really think my urine made the adhesive for the Coloplast products break down a littl...
7 replies | 153 views
Cinderella
Posts: 5

Stoma and Bowel Movements: Anyone Else Experience This?

Apr 15, 2020 - Sep 06, 2023
Hi, I have had my stoma for 6 years now. When I first had my stoma op, I had a small amount of bowel movements and still sometimes get the feeling that I need to sit on the toilet but nothing happens. I had this feeling today and two small amounts of something came out. Is this anything anyone else has had?
9 replies | 2304 views
Scotland44
Posts: 2

Best swimwear for ostomy bag?

Aug 19, 2020 - Sep 19, 2023
I know I can't wear a regular swimsuit over the ostomy bag, but what can I wear that is comfortable and doesn't look too bulky around my waist? I have tried swim shorts with t-shirts, but the t-shirts tend to blow up around the top of my torso with the movement of the water. Any ideas women who have been swimming with the bag would be much appreciated.Hazel.
21 replies | 2740 views
MassMikMouse
Posts: 32

I just can’t put the dang bag on correctly!

Jul 17, 2023 - Jul 24, 2023
Wow. First of all everything I typed has disappeared so I'm going to make this short and sweet.

I had my urostomy surgery 7 1/2 years ago and I seem to be running into problems with bag leakage. Using the Coloplast SenSura Mio deep convex one piece transparent bags. I have lost about 30 pounds, and I am wondering if this is a cause for change in my stoma. I also have multiple sclerosis, so "siti...




9 replies | 327 views
Daughter
Posts: 72

Advice on output

Aug 16, 2023 - Aug 29, 2023
Hi everyone, my mom’s colostomy surgery was a year ago yesterday (August 15,2022) and we both are looking for advice regarding her current output. Mom had to get colostomy bag because of a perforation from a polyp removal following her colonoscopy procedure.My mom doesn’t really have any big health issues except her colonoscopy revealed she has gastritis and mild diverticulosis of the sigmo...
8 replies | 199 views
LJB222
Posts: 30

Hot weather tip!

Aug 02, 2023 - Sep 10, 2023
Hi all, I met with my nurse yesterday who advised me to buy a little roll on deodorant and use it around my stoma during the hot weather. Apparently it helps the bag to stick and not come off as much during perspiration. I haven't tried it yet so I cannot vouch for it but I thought I would share it anyways!
10 replies | 279 views
HenryM
Posts: 2316

Ostomy Memories of Musical Taste

Jan 28, 2023 - Feb 01, 2023
SOMETIMES IT IS HARD TO PUT SOMETHING INTO WORDS.  When asked to define pornography, Supreme Court Justice Potter Stewart couldn’t do it, but claimed “I know it when I see it.”  Similarly, the great American composer Aaron Copland, on the subject of music, once offered this gem:  “The whole problem can be stated quite simply by asking, ‘Is there a meaning to music?’ My answer wou...
17 replies | 663 views
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