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drkknight
Posts: 2

Managing Bag Interference During Intimate Moments

Dec 09, 2007 - Jul 19, 2023
Hi,

First post on here so, please be gentle. I was wondering, has anyone found a way of keeping that darn bag out of the way when they are having one of their most intimate moments? I've used techniques such as holding it under a t-shirt, etc... What do you do? It just plain can get in the way sometimes...

Thanks in advance.
150 replies | 97541 views
alex9
Posts: 1

Physical apperance

Aug 07, 2023 - Sep 30, 2023
Hi everyone, I'm new here and very glad that I found this forum. I was wondering if someone had a similar situation - I have a temporary colostomy bag and my whole lower stomach is slightly more bulged out from the rest of my stomach since I had my surgery. And if I try to suck my stomach in, I just cannot do that to that part of my stomach. Nothing hurts, everything is soft to the touch, but I...
13 replies | 474 views
HenryM
Posts: 2316

Ostomy Memories of Movies

Oct 18, 2022 - Sep 26, 2023
I’M ALWAYS RECOMMENDING MOVIES to my friend around the corner, but I know that he never watches them.  Some people, for some reason, aren’t keen on cinema.  Me, I’ve been going to the movies since I was old enough to ride my bike to the theatre to see ‘From Here to Eternity’ when it first came out in 1953, the year that I turned eleven.  Since the onset of the pandemic, all my movi...
16 replies | 940 views
Iamari
Posts: 7

Tell me I can eat a tootsie pop

Jul 28, 2023 - Sep 25, 2023
Hi everyone! Well I am 6 weeks post op of my ileostomy with a bunch of complications and two extra surgeries. I'm so nervous about another ileus and having an obstruction (the ng tube was terrifying) that I want to eat chewy things but I'm afraid of obstructing. Anyone think it's ok?by the way, I have a urostomy too. I've had that for two years. I'm a double bagger :)
44 replies | 1251 views
Okra
Posts: 10

Zucchini can cause ostomy problems!

May 17, 2023 - Sep 19, 2023
At a restaurant yesterday, I made the mistake of eating a veggie sandwich that had zucchini as one of the ingredients. Bad, bad mistake. For years I have known not to eat whole-grain bread; so the ;sandwich bread was plain white bread and was fine, but the zucchini was NOT. My ostomy got stopped up and then the backed-up contents burst out and caused the adhesive on the base holding the bag to my ...
21 replies | 875 views
csteven
Posts: 10

Pros/cons of ileostomy reversal at 60?

Feb 18, 2019 - Sep 10, 2023
I had a LAR with ileostomy in Dec 2018. After the post-surgery chemo, my doctor is pushing for a reversal. Prior to the LAR, I had radio/chemo. It was successful as the pathology report showed that cancer has been downgraded from stage 3b to stage 0. I had 27cm (10.6") removed, which included all my rectum and probably most, if not all, the sigmoid. I also had some burning/scarring in the 'back...
15 replies | 9942 views
Happytostillbehere
Posts: 48

Turning 80

Aug 15, 2023 - Aug 24, 2023
Never thought I'd reached 80, yet here I am. Numerically I can't deny that I'm 80 but my subjectively age ,that's a whole other thing altogether, don't know how old I feel and it's nowhere near that,not even close and that's a good thing! Some of the articles I've read about the subjective age say that good genes have a lot to do with it. Personally I prefer Wranglers and who would ever thunk t...
6 replies | 274 views
smeans59
Posts: 17

Needing Hope to Get Me through Tough Times

Aug 21, 2023 - Sep 04, 2023
I am 10 days post colostomy surgery, and I am really struggling. I am also battling ovarian cancer and thought I was doing really well until I ended up with a bowel blockage. I am used to being very active and now have another obstacle to overcome. My blockage was high in my colon so my ostomy is above my belly button on the left side. Basically, it’s impossible to hide. I’m a golfer and ...
30 replies | 671 views
Bubbles2010
Posts: 12

Pantyhose and Ostomy Pain: Seeking Advice

Dec 23, 2018 - Jul 26, 2023
Hello there fellow pantyhose wearers! I need some advice. In the winter months, I have no option but to wear tights or hosiery under dresses and it's causing me a lot of pain. I haven't had anything burst because I empty it a lot more frequently, but I definitely wear dresses for special occasions only due to the discomfort. Thigh highs aren't really an option because my legs aren't toned and t...
11 replies | 6716 views
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Kayakpixie
Posts: 6

Hernia Belts (prevention of hernias)

Aug 10, 2023 - Sep 27, 2023
Hi there! I had my lar loop ileostomy surgery on June 2/23. It was open surgery so I have a 15-20cm vertical incision.

I'm looking for a hernia belt to help prevent hernias. I've been back the gym for a few weeks now lifting light weights with no issues but the cardio class last weekend with the jumping made my stomach area very uncomfortable to the point I stopped and did step outs.

The belt th...
16 replies | 472 views
russellnotl
Posts: 3

Stoma protrusion

Aug 02, 2023 - Aug 22, 2023
Hello , had my surgery in april. Over the last two weeks my stoma has increased in size considerably. When I ly down it goes back to normal. Is this common
14 replies | 375 views
crappycolondiaries
Posts: 968

Happy National PET Day!

Apr 11, 2023 - Apr 15, 2023
Today isn't all about the dogs Drop a picture(s) of your pet(s)Mali the dog sleeping on Kenya




45 replies | 1228 views
SaharaToo
Posts: 19

Sweetcorn - safe or not - with an ileostomy

Aug 03, 2023 - Aug 23, 2023
I used to love eating corn on the cob and it's in season now in the UK. I have thought about trying it in earlier years but am afraid of ending up with a blockage. I could puree it, but it's not the same as gnawing on freshly cooked cob with butter.For perspective, I love black beans and have eaten those (home cooked with seaweed) with no problems - sometimes, if I ate a bit fast, a few beans h...
21 replies | 609 views
Freestyle
Posts: 12

The colostomy operation

Sep 08, 2023 - Sep 11, 2023
Hi everyone . Has anyone on here had a colostomy while having cirrhosis. My husband has this and also rectal cancer.we have been told that the operation has a 1 in 4 survival rate, so obviously we are terrified. We have also been told that if he survives the operation the recovery from the anal closure is going to be a problem healing. We just wondered if anyone has any help for us . Thank you...
17 replies | 315 views
Roch!!
Posts: 16

BCIR Surgery Availability in England?

Feb 09, 2016 - Jul 30, 2023
Does anyone know if the BCIR surgery is done in any hospitals in England?
15 replies | 6586 views
Violeteve2016
Posts: 1

Husband doesn't seem to want to be intimate now

Aug 23, 2023 - Sep 09, 2023
I had my permanent ileostomy surgery 7 weeks ago due to Crohn's disease and I've been talking about getting intimate again with my husband and he doesn't seem interested at all.... it almost seems like it makes him nervous and turned off...it just makes me feel worthless and I don't want him to be grossed out by me and not want me anymore. I just feel sad because I was worried this would happen...
15 replies | 719 views
Okra
Posts: 10

How much water to drink each day after you get an ileostomy?

Feb 06, 2023 - Sep 09, 2023
A man had posted on this site that after his ostomy surgery, his urine output had decreased, and he wanted to know if that happened to everyone.. Any person who has an ileostomy should be seeing a KIDNEY SPECIALIST. My surgeon sent me to a kidney specialist when I left the hospital because if tons of the liquid you drink is going out in your ostomy bag, you are NOT GETTING ENOUGH LIQUID GOING T...
6 replies | 427 views
canhambrian6
Posts: 7

Despising My Reversed Stoma - Anyone Else?

Aug 20, 2022 - Sep 10, 2023
Hate my stoma looking full reverse hate it with venom surgery plan soon anybody else feel the same
9 replies | 356 views
crappycolondiaries
Posts: 968

Happy National Puppy Day!!!!!

Mar 23, 2023 - Mar 28, 2023
Post a picture of your pup(s). I know we've had a few dog posts but really can you ever look at too many puppy/dog pictures? I think not.




32 replies | 1053 views
thebertonlagden
Posts: 18

Hernia belts..... Please advise

Aug 02, 2023 - Sep 26, 2023
Hello all, I had my surgery in April 2023 when Stanley my ileostomy was made. It has made an amazing improvement in my life.In the last few weeks I seem to have a bigger bulge in the mummy tummy on Stanley's side compared to the other side and a frequent heavy dragging feeling..... Hence I wonder if I am developing a hernia?Am due to see my stoma nurse next week but wondered if anyone could rec...
14 replies | 337 views
Mysterious Mose
Posts: 236

Rock & Roll

Sep 19, 2023 - Sep 28, 2023
Was out for my walk this morning plugged into Deezer and listening to my "walk mix". I am a big fan of get up and dance rock & roll. It helps me keep my preferred pace regardless of aching joints. So, I thought I would ask y'all a question as to who be your favorite rock & roll band/performer. I'm talking rock & roll here. Hard driving, get up and dance rock & roll. In my opinion, this leaves o...
32 replies | 403 views
joeycooper65
Posts: 2

How to slow down digestion and bag changes

Nov 14, 2022 - Jul 13, 2023
Hi All,New to the group and considering what's the best way to slow down our guts and intestines. Naturally with food and not naturally ie drugs like Imodium or codeine.Any advice on what you all do to control your diet and try for more solid stools. Thanks Joe
14 replies | 1189 views
Loulou80
Posts: 4

Gas and foamy output

Aug 25, 2023 - Aug 27, 2023
Hi everyone, I’m looking for some advice/reassurance. I had emergency surgery two weeks today and have been home only a few days. I had vomiting and water output yesterday from a stomach bug. I’ve now been experiencing nausea, gas, burping and extreme foamy output. I can’t get hold of any nurses and I’m getting worried any help greatly appreciated.
7 replies | 156 views
Abefroman1969
Posts: 576

Finally a bit of good news

Jul 13, 2023 - Sep 21, 2023
Hey everyone, My apologies for disappearing, I've been down after the chemo radiation didn't work.Got scans back today, for the first time in 10 months there was a reduction in tumor size.Continuing chemo with an added chemo drug that will force me to wear a pump for 3 days every treatment. I'm just glad to finally have some good news to share!Be well everyone Abe
24 replies | 692 views
Scotland44
Posts: 2

Best swimwear for ostomy bag?

Aug 19, 2020 - Sep 19, 2023
I know I can't wear a regular swimsuit over the ostomy bag, but what can I wear that is comfortable and doesn't look too bulky around my waist? I have tried swim shorts with t-shirts, but the t-shirts tend to blow up around the top of my torso with the movement of the water. Any ideas women who have been swimming with the bag would be much appreciated.Hazel.
21 replies | 2735 views
Hairdresser
Posts: 72

New Diet

Jul 11, 2023 - Jul 18, 2023
Hello everyone First of all I want to thank everyone who has ever posted on here, you are awesome! ;I got my ileostomy September 2001 so you would think I have nothing to learn but you all have helped me more than you will ever know! ;Also I would never had thought having an Ostomy could be funny but I have laughed quite often after reading some posts and I thank you for that too.Ok, so here's ...
7 replies | 400 views
kenpem
Posts: 6

Ileostomy : I'm not OK with this!

Mar 14, 2023 - Aug 29, 2023
Newish ostomate here. Permanent ileostomy courtesy of Pseudomyxoma Peritonei discovered late last year. Operated 17 November, five weeks later was discharged (just a couple of days before Christmas!)Physical recovery going OK. I have many of the same issues people here and elsewhere talk about, notably leakage which seems to come in groups of three in a row, bizarrely. I have to monitor my ener...
22 replies | 726 views
Feb9HH
Posts: 70

I’m thankful for my ostomy because now I can…

Feb 05, 2023 - Jul 28, 2023
Drink coffee and drive at the same time! I never thought I'd be able to do that again. Have a blessed Sunday friends!
18 replies | 654 views
Stephanie S
Posts: 14

Grateful To Be Here!

Dec 29, 2022 - Jan 03, 2023
I have so much to share about my personal experience and it begins here. I've been home from the hospital for 3 weeks and am still wrapping my head around exactly what happened. I have increasingly had food tolerances over the last 20 years or so. I've never been diagnosed with any digestive disorder or any food allergy. I've always had issues with regularity/constipation but never to the point...
18 replies | 987 views
HenryM
Posts: 2316

Ostomy Memories of Musical Taste

Jan 28, 2023 - Feb 01, 2023
SOMETIMES IT IS HARD TO PUT SOMETHING INTO WORDS.  When asked to define pornography, Supreme Court Justice Potter Stewart couldn’t do it, but claimed “I know it when I see it.”  Similarly, the great American composer Aaron Copland, on the subject of music, once offered this gem:  “The whole problem can be stated quite simply by asking, ‘Is there a meaning to music?’ My answer wou...
17 replies | 662 views
Casper9
Posts: 90

Electrolytes

Jun 21, 2023 - Aug 07, 2023
Hi all!I have had my ileostomy for many years and never really had a problem with hydration but recently have been diagnosed with an autonomic nervous system disorder. Because of this I really need to start drinking electrolyte beverages. Looking for something with flavour but not too much sugar. What's everyone's favorite?Casper
38 replies | 1026 views
livinnandlearnin
Posts: 37

Need advice for jacuzzi with ileostomy

Feb 16, 2015 - Sep 10, 2023
OK. So here's the deal. I've had an ileostomy for about 5 years and considering that I've had 9 surgeries in 4 years, I think I have a pretty good body image. Now I have unexpectedly found myself in a caring and committed relationship with a very supportive man, but it's new. Usually when I have sex, I tape my pouch (which is already the smaller "midi" type) up out of the way, and I use Colopla...
10 replies | 10407 views
Redondo
Posts: 202

How much fiber is too much?

Jul 30, 2023 - Aug 08, 2023
Two months ago, I started on a diet meal plan that incorporates eating5 healthy snacks every 2-3 hours along with 1 lean and green meal. I lost 17 pounds doing this. I thought all was good until I ended up in the hospital with a partial small intestinal bowel blockage. The snacks that I ate have 4-5 grams of fiber in them. The daily meal consisted of lean chicken, fish, or beef along with 3 ser...
10 replies | 279 views
Tatdude
Posts: 3

Depression

Feb 23, 2023 - Sep 17, 2023
How many people here suffer from Depression, since receiving their ostomy. A lot of people told me he that you should be happy you're still alive, which in some ways I am in other ways I am not. People also say it's a give-and-take all gave me some of my life back, but it took away more than I thought it was going to. I always liked having someone in my life and so far this ostomy has cost me m...
29 replies | 1485 views
iMacG5
Posts: 1422

A RHYME - 2019

Jul 17, 2023 - Jul 18, 2023
I'm not sure if I posted this before so please forgive me if I did. Hey folks,
I think it’s terrific you took the time
To express your thoughts in this little rhyme.
You certainly got some affirmation
From Bill’s written appreciation.
Lots of folks who contribute here
Are experts in various arenas.
Some are just learning but
Are way more than laughing hyenas.
We tend to be respectful 
And usu...
5 replies | 170 views
crappycolondiaries
Posts: 968

How has your spouse/partner/significant other (Past OR Present) handled your ostomy/surgeries?

Apr 15, 2023 - Sep 17, 2023
Curious how others in past/present relationships have navigated these surgeries and ostomies with a partner. I have a feeling experiences will be across the board and hopefully some whose experiences haven't been the best up to this point can find encouragement/support in other's stories.
67 replies | 2876 views
Beth22
Posts: 493

RED SOLO CUP

Jun 30, 2023 - Jul 05, 2023
Yup I said it RED SOLO CUP !! Grab that solo cup while rolling when changing and fill her up and HAVE A PARTY !!So i have an ileo and I literally never have a quiet time. So bag changes are super fun lol not really but hey that's ostomy life, takes me anywhere from 2-3 hours and after that a very short window of about 5 mins to slap on a bag . So while sitting there for over an hour trying catc...
31 replies | 1377 views
Ostomate & woundrn
Posts: 166

I'm thinking of writing another article

Jul 02, 2023 - Aug 18, 2023
I want us ostomates to stop being invisible. I want to write about why ostomates hate nurses in general and sometimes our frustrations with ostomy nurses as well. But I'd like to hear your thoughts. I don't want to just complain I want to find out what we as a group find most frustrating and upsetting CLARIFICATION:Because of my experience I have the desire to write an article aimed at the nurs...
27 replies | 916 views
dada12
Posts: 2

OstomyCure TIES System - Any success stories or feedback?

Jan 13, 2020 - Aug 02, 2023
With the TIES Solution, the patient can live a life without the need to constantly wear an ostomy bag.The solution is a titanium port with a lid and is implanted in place of the conventional ostomy. The lid bears a hatch that allows the evacuation of the waste without removing the lid. A bag holder that does not touch the skin allows the fixation of the bag when the waste needs to be evacuated....




18 replies | 3391 views
Riva
Posts: 89

Stoma Anniversary

Jul 07, 2023 - Jul 08, 2023
Nine years today. Happy Stomaversary to me
7 replies | 188 views
Briutz
Posts: 48

Problems with hair and the sticky wafer thingy

Jul 09, 2023 - Aug 07, 2023
When I arrived home from the hospital experience we've all had the pleasure of tasting, I was actually being launched into a new world order with a new born baby turd machine complete with it's own Artificial Intelligence. We've all got one or had one, you know,.. it's that adorable blossoming red thing trying to eat it's way out of your flipping trying to keep the language down a bit today ) a...
19 replies | 424 views
Daisy2023
Posts: 85

Ostomy Talk

Jul 26, 2023 - Sep 22, 2023
I'm really on the edge as I found out more bad news. I don't know what to do. No one seems to understand what I'm going though. I'm sure whoever if anyone is reading this will. I can't get a reversal. Maybe this isn't a big deal, maybe it is but I have not come to terms with it at all. Anyways just a shot in the dark posting here. Anyone else receive similar news and were crushed?
36 replies | 1284 views
Amanda6
Posts: 6

Making friends with an ileostomy

Apr 24, 2023 - Jun 17, 2023
Hi, I have had my ilesotomy for over 7 years now and have been suffering a little anxiety the last few years from it. When socialising with new friends I find that I can't even concentrate on their conversations as all I'm worrying about is my bag!! Making noises, eating with them as I have a high output and so have isolated myself the last few years. Does anyone else feel the same? Would love ...
37 replies | 1597 views
dmo101
Posts: 57

NEVER EVER had a leak

Jul 21, 2023 - Sep 10, 2023
HELLO everyone out there!I am constantly battling a leaky appliance or broken skin seal.I was curious has anyone out there ever NOT had a leak with their appliance?
26 replies | 576 views
gingerlee54
Posts: 33

GREEN Bile OUTPUT..

Jan 04, 2023 - Sep 06, 2023
Hi, Can anyone tell me about the green bile output? I NOTICE a grass-green to emerald green color may be every other day. Is this normal?Thanks
7 replies | 364 views
JCSunshine
Posts: 4

Best pouching system to filter air?

Oct 10, 2014 - Jul 29, 2023
Hi, everyone. I use Convatec Durahesive wafers and pouches, two-piece. The wafers are great, lasting a good 7-10 days! All is well, except I'm trying to find the best filter system. When my output is just right (not too liquidy), I can sometimes witness the benefits of a good filter. It is amazing how well keeping the air out is for cutting down on bathroom trips, waking up, etc. However, from ...
13 replies | 9356 views
Hisbiscus
Posts: 129

Ostomy deoderant

Jul 28, 2023 - Aug 29, 2023
Hi all, does anyone in the Cleveland Ohio area have a bottle of Ostomy deoderant I can purchase off of you?
my boss did not put our pay in on time and to order online it will take days to get to me. I'm almost totally out and need it for work at least.
12 replies | 342 views
xnine
Posts: 1103

Do you swear when you have a blow out

Aug 27, 2023 - Sep 26, 2023
I say lots of stuff I can not put on here. It bothers my wife but what does one say when there is shit all over the place?
31 replies | 649 views
MassMikMouse
Posts: 32

Update from the urostomy patient who is leaking like a White House intern for most of the year…

Aug 31, 2023 - Sep 02, 2023
Hi there I submitted a post, probably in June detailing my woes about my leaky ostomy due to my weight loss. I would like to let everybody know that everything has settled down. I am now using convatec products, and they seem to work much better than the coloplast products. (I’m not sure if it’s me, but I really think my urine made the adhesive for the Coloplast products break down a littl...
7 replies | 151 views
w30bob
Posts: 2619

Leak prevention for those with side facing stomas

Aug 08, 2023 - Aug 16, 2023
Hi Gang,Some time back someone was asking how to prevent their output from getting under their barrier or barrier ring because their stomy was flush and output shot out to the side. I replied there was a device that acted as a spout to direct output away from the skin/barrier junction if their stoma was like that............but couldn't remember the name of the product. I just ran across it onl...
8 replies | 377 views
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