D-Ostomy Bags and Esdifan for Short Bowel Syndrome

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2
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670
JoelD
Sep 08, 2024 6:20 am

Hiya,

Has anyone else tried these new D-Ostomy 2-piece bags from the UK? Interesting approach and they look promising. They don't have convex yet, but I will be giving them a go for a few days.

https://medicalmonks.com/product/d-ostomy-flat-cut-to-fit-barrier/

Also, because of my struggles with Short Bowel Syndrome and difficulty getting approved for Gattex, I found this mineral-based supplement called Esdifan. So far, the results are pretty remarkable. I no longer need to take huge doses of Imodium and Lomotil. Anyone else tried this to slow down passage?

https://www.zeohealth.com/products/ESDIFAN.html

Cheers,

 

Kas
Sep 08, 2024 9:58 am

I also have SBS but get an Octreotide injection once a month to help slow things down. I went from 3500-4000 ml output a day and regular IV fluid infusions for constant dehydration to 1200-1500 ml a day. I do still have to use Imodium and avoid sugars. I've never heard of the Esdifan, but I'm gonna look it up.

Thank you for the info!

 

Posted by: Puppyluv56

Hi Deb,

As you can see, the outpouring of love and support from this website will help you to find the strength to lift yourself up and out of your current emotional situation. I am lucky to have my husband by my side through all of this, so I will not even pretend to know how you feel and what you're going through alone. I do know that I have great friends on this site and in my life that have been by my side, and hopefully you have many by your side as well. You do have a lot of new friends here. Please feel free to talk through anything that is on your mind. We all go through a confidence deficit when we go through an ostomy surgery. Our body has been marred and your mind feels that way sometimes too. It is tough to move on, but you will. You will be stronger once you realize that you are still the beautiful woman you were prior to your surgery. Hopefully, you can reach out to a local support group and find some additional friends in your same situation. It always helps to have a sounding board wherever you find it!

Puppyluv

JoelD
Sep 10, 2024 10:27 am

Thanks for the reply and that's great to hear! I'm starting IV next week. Definitely try the Esdifan and see if it can get you below 1200 ml per day. It's an otherwise harmless clay, so no risks involved.

Cheers!

Joel