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I am 73 years old and an ostomate with an iliostomy about a year ago. I have to empty my bag 6 times a day.

When you are out in public, how do you empty your bag? I can't kneel and I certainly can't straddle the toilet backwards! I pretty much stay home because I don't know what to do. I still have leaks at least once or twice a week. I have zero confidence in going out anywhere.

Help

Hi,

My first post and glad to be speaking with people going through the same challenges that I am. I have an issue, which has been there for almost two years now. I have tried a few things which I will cover, but wanted to know if anyone else has gone through this and has a fix.

On the very edge of my stomach skin and the Stoma, I have a sore patch about an inch long and a few cms wide t ...

Hello I'm new.will make story short.have immune disorder psoriasis, arthritis, collagous colitis. I'm 60 and move around pretty good but 15 years of the gut pain, accidents,and running to the bathroom 12 times a day .I made decision to have colon removed 5 months ago in NY by surgeon fenza remzi. All in all I would say life is better now then it was.no more gut cramps running to ba ...

Why hasn't anyone thought to make a ostomates cookbook? And a sub cookbook specifically for ileostomates...

Has anybody ever found one that works, to prevent odor? I've tried several with no good results.

Hey friends,

I just wanted to ask for your prayers for me. I have surgery on 2/29 to reverse my loop ileostomy. It was to be done in January but I had a stricture at the anastomosis, where they joined the colon back to the rectum. Well, after failed attempts to dilate during a colonoscopy and flex sigmoidoscopy in office, my surgeon said he wanted to "get in there with his hands" to try to d ...

Need help dealing with life with new ostomy. In hospital for 5 weeks or so (can't remember ) came home two days ago and having coping issues. Never thought I'd spend my "golden" years changing an ostomy bag all day

Thanks

Only one month to go. Then layoff, severance payday, and... chuckles as I shuffle off into the sunset and bid the working life.... Good riddance.

In my cozy "redeployment" cubicle, got plenty of snacks and music. My playlist for next week.

Blondie Rip her to shreads

B-52's Junebug

Paula Abdul Straight up

Led Zeppelin Whole L ...

Today is the big day. Surgery #2 of 3. Having my jpouch constructed resulting in a loop ileostomy for the recovery.

I’m much more calm going into this one with the experience I have from my first stoma. Fingers crossed no NGtube.

Overall the past year has been great. I’ve been able to eat and drink what ever I want, I’ve doubled in size (muscle) from pushing myself at the gym, I’ ...

Just curious if anyone who has had their reversal has run into complications at the anastomosis area where they connected? Mine is on the verge of failing.

Another update. So when I was there at the rheumatologist she listened to me about all of my symptoms and she saw my hands. She said this makes me think of scurvy and asked me if I was eating enough fruit like oranges etc. Well. With the ileostomy I told her I cant eat oranges but that I used to drink orange juice and V8 . It's been quite a while as I got busy with work not thinking to pay mor ...

I have been told to wear an ostomy support belt 24 hours a day for my temporary colostomy except for showers and such.

My question is about the slight pooching that appears around my stoma... is this normal? For context, I have seen many pictures of stoma hernias, and this is nothing like that, it's just a minor bulging that makes me question if this indicates risk of a hernia or other compl ...

Does anyone have any personal experience with esophageal dysphagia? If so, are(were) your issues motility or structural? And, what helped/fixed it?

Thanks!

As of today it’s been 14 years of having my life saving surgery. Though there have been ups and downs along with trial and errors I wouldn’t be here today.

Hey OstoMates! I have a question for the men of this site that I'm hoping someone may be able to help me with!

My body is fairly hairy in particular my abdomen which is obviously where my stoma is located. Obviously this can affect adhesion of the bags to the skin.

Do any of you have experience of having to remove hair around your stoma? I'm trying to figure out the best way to do it. I d ...

Well..... my 66th birthday is coming up this Sunday. So what does a soon to be laid off Ostemate do?????

VEGAS!!!

After a nice early morning drive from Beachbum HQ... Treasure Island resort hotel is my new fun spot. I'm on the 35th floor with a sweeping view of the strip. Across the street is the excellent Venetian. Where I'm now enjoying a fine Italian dinner with Ms Beachboy ..... ...

I almost missed the day.
Before the day is over, I want to celebrate Tommy the Ostomy.
Today marks eight years since I had my colostomy surgery.
I want to thank Dr. Bobby Rad for doing such a fantastic job.
Here is his link: https://bit.ly/4cC2wGf
Also, I appreciate the support of the United Ostomy Associations of America.
This photo was taken the day after surgery.

Was called for Jury Duty early May.

I have had my colostomy since August 2023. Still not comfortable leaving the house for more that 3 hours at a time. Will go longer if at a close friend's place or a relative. Basically people that understand my bathroom needs.

Output can be all over the place, (literally) anytime, all the time, sometimes.

The idea of jury duty at this point is frighten ...

Looking for other ostomates who are also vegan. Obviously some challenges, when it comes to fibre. Who has experience, tips, etc?

I haven’t been confident enough to swim in the pool or the ocean since my operation in 2022. Has anyone got any tips or tricks to make this a safe exercise. I just don’t want the bag or flange to fall off during swimming.

Please advise

I have had my colostomy for over 20 years. lately my output if erratic and watery. Sometime I don't have output for a couple of days and other times I have multiple output during the day. I would like to have, as much as possible, a more predictiable output.

My questions is, should I take a fibe supplement or change my eating habits (which I don't want to). I enjoy most f ...

I know whenever I ask here people say they eat everything without any problems. That is not the way with me though. I have a ileostomy and it is very cranky. Spits out everything. Doesn't matter how much I chew. Just loves to act out. I have heard that seeds are not recommended for ileostomates, but I was just wondering I mean poppy seeds are very small. If I ate a poppy seed muffin would that ...

Not to say I know there is actually an ostomy involved...

https://wapo.st/492c9uZ

I have very sore skin around my colostomy due to diarrhea, i've tried derma gard wipes that sting, any suggestions that help?

When I touch any cleaning chemicals or scented soaps etc.. anything really gasoline if it gets on my hand at the pump. I can literally taste and smell it. Also I have fragrance intolerance so it sets off a migraine and sinus. I've looked it up and it is some kind of issue for some. Anyone else ever experience this?

Also it seems to make its way to my pouch from of course using my hands to ...

Greetings Ostomates!

So… I’m new(ish) here, joined a while back but have never posted. Got my ileostomy May of last year after decades of Crohns & two bouts of colon cancer. Happy to report I’m doing well and still here! I think I’ve adjusted pretty well to the new routine, it took a few months of testing product to land on a good appliance that lasts a solid 7+ days before swapping ...

I'm in desperate need of ostomy supplies and accessories. I need.barrier rings,skin Seals, pouches any 38mm not picky,skin barrier wipes, adhesive remover spray or wipes, extenders, powder, ostomy scissors, tape. I recently had surgery can't work and have no insurance or income, don't qualify for assistance. Please please please help me out I'm new to this. I need supplies ASAP I'm running out ...

Just curious what are the worries or concerns when going out to eat at a restaurant or a party? My biggest worry now with my condition is eating something that doesn't agree with me and having an accident. So, i stick with safe foods but sometimes that misfires! My condition now is SCI with neurogenic (flaccid) bowel with possible future elected colostomy. Thanks

Anybody in there 30s having a hard time finding a partner. Maybe I'm not looking in the right places. Maybe I shouldn't be looking at all?. It gets lonely sometimes.

Hi All!! Just checking in. Today is the 32nd day since I had my colostomy reversed. For the most part I am pain free. I get twinges of pain every now and then in my rectum, at the ostomy site and on the side where my stoma is throughout the day. If I rub my hand over my lower belly about 3 inches from where the ostomy was, there is surface pain. I can’t quite describe it but it’s like if y ...

Since I've got a lot of free time at work now, I watch my favorite music videos on my personal jukebox smartphone.

Start out with my all time favorite....

"Once Bitten, twice shy" by Great White. I've listened to it over a hundred times. Never gets old.

Then it's the Rolling Stones. "Shattered" from the amazing "Some Girls" album from.... HELLO! ....1978. I'm bouncing in my s ...

Would like to make an informed decision whether to have it reversed. Am getting frequent urine infections due to the proximity of the bladder & the ostomy. Would very much appreciate hearing about your experiences with the reversal procedure & how you decided whether or not to have it reversed in your unique circumstances. Also if you decided to go back to having a colostomy after the reversal ...

Hi, I'm posting this on behalf of my son who's 12. He has a stoma and recently we've been struggling because he has a red raw very sore rash that covers the entire area of his stoma bag, to the point where some of the rash is weeping. Apart from the obvious discomfort and pain it's really starting to affect is ability to go to school or socialise in any way.

Is there anyone out there that h ...

I’m trying to help someone who is in need of supplies. She has an ileostomy (I have a colostomy). She said any ileostomy bags/supplies would help. Are they the same things or is there a difference?

Does anyone know of a protein bar that doesn't taste like sh-t? Also doesn't have nuts in it?

Lee

I feel I'd like to share a shift of priority following a 'visit' this morning:


Something rather special happened in the middle of the morning here in the hills .....


Whilst contemplating the grounds - and the many things that need 'attention' [as in maintenace/planting prep etc] here ....... SUDDENLY such bogging concerns evaporated .......


Two young wild deer had come into view wi ...

A TWO–PIECE split BAG TIP.

For those who use a two-piece set
for your stoma, I should let
you know what I have now found out
so, you may know what it’s about.

Some of you have complained of smell.
Well, as far as I can tell
the bags are fairly flimsy so
here’s something you ought to know.

I use my bags six weeks or more
before I throw them out’ the door
so, with any weaknesses I ...

Hi, it’s looking more and more like I will get an elective Colostomy! Any opinions on placement of the stoma?

I got my sigmoid colectomy in December. And I was going to get the reversal surgery as soon as I could. But tbh it’s been such a hassle and at this point I am debating if I should get it or just keep my ostomy. Can someone who has gotten a reversal tell me how it went and their experience. And can someone who decided not to get it let me know if it’s worth it?

thank y’all

https://www.instagram.com/reel/C5bMNXYLGeC/?igsh=MTd4aWwzcTM3OGdxNA==

Hi there-

Today marks my one week reversal anniversary. What a way easier recovery for me than the first time. I had a lot of nausea and vomiting at the hospital and ended up staying one night longer. But once that was over, I felt so much better. Less pain, easier to walk, good appetite. My mom had stayed 5 days last time and she went home after two days. I wasn’t needing my walker, I sho ...

Asparagus is on sale right now! Time for asparagus and cheese and shrimp casserole! Is asparagus a big bozo no no? 🫣

https://www.newsbreak.com/news/3382593802913-animal-lover-rushes-sick-baby-hedgehog-to-vet-only-to-find-out-she-s-been-caring-for-a-hat-pom-pom

Right now I am dealt with a life changing decision on whether to get a colostomy or just try to figure something else out like diet or ???

you see, I have a condition from a spinal cord injury at work that happened 27 years ago. I have a neurogenic bowel which is basically a flaccid bowel! On a good note, I am walking and for most part very active. The downside is the bowel issues! With no f ...

Hello all,

I'm brand new here! I have life-long slow transit constipation as well as pelvic floor dyssynergy with newer onset pudendal neuralgia from deep infiltrating endometriosis on my rectum and pelvic side walls.

I have failed all conservative pharmaceutical treatments for my constipation and have been in pelvic floor physical therapy for a year with minimal improvement. The surgeon ...

Hey friends,

I'm back home now as of the past couple days. Reversal was a success, to God be the glory. I want to sincerely, from the bottoms of my heart, thank you all for your prayers, thoughts, wishes and encouragement. The outpouring was overwhelming and so touching. Again I want to say how much you all mean to me.

So to sum things up, I now have a hole that's healing from the inside ...

I had ileostomy reversal 2 months ago. Prior to that I had ascending and transverse colon removed and then a few weeks later 18 inches of my small intestine w ileostomy. My surgeon said I would go to the bathroom 5-9 times a day. I go 20-30 times. Last night closer to 40. My ass hurts so much I found myself screaming in the shower this morning after not sleeping all night. I have absolut ...

Does anyone where there ostomy outside their clothing with a cover or inside your clothing? I wear mine inside my clothing. Just wondering what works for people.

DO WHAT? ( 3.narcissistic achievement)

There are some people who believe
that when they do things to achieve
it does not matter what they do
as long as to their goals they’re true.

Hence, many things that they get done
means you and me and everyone
become the victims of their aims,
their selfishness and devious games.

These people tend to be unkind
because the aims they have in min ...

My stoma hurts!

Output is good, no screaming runs, skin around the stoma looks good, got prescribed a steroid cream. Had a colostomy. Dr. wants me to put the steroid cream on the stoma

2 x a day. I use a 1 piece pouch. What in the round world could be making it hurt? Walking my 60 lb puppy? He does pull. This started last week.

Haven't eaten any spicy food. I don't drink the tap wate ...