Trending Forum Topics

Anyone willing to recommend a good book they’ve read recently? I’m open to most genres. 

Intimacy between two ostinates at first at least for us was just getting past the shyness of showing your body with your ostomy appliance attached.  

Although I am no longer and a relationship with this man it had nothing to do with our ostomies as a matter of fact because of our ostomies we thought that we were more compatible than we actually were

The first step is showing your partner yo...

Those with a colostomy- can you eat popcorn? Regular corn?

Since I am sans colon I was told no popcorn except for Heirloom but that’s hard to find around me. Popcorn used to be my favorite salty snack.  It’s probably one of the things I miss the most. 

Just was curious if y’all get to eat popcorn

Hi guys,

So bit of a head scratcher but I am on my 3rd stoma and they all have retracted.. anyone else have had this issue? And if so what caused it 

Was just chatting with an old high school mate about the opening bars of which songs that used to make us go YEAHHHHHH, AWWWRIGHT and get up on the dance floor!

These were ours (and remember, it was the early 80's, LOL!)



and of course....

Things have improved, but my problem has not been solved.  Here is what I have tried so far; Calamine lotion (made it worse), Cavilon spray with and without powder, no improvement, barrier ring, now we are getting somewhere, but still not gone.  The interesting thing is that after the barrier ring, the skin around my stoma is healed quite nicely, but there is still a small crescent shaped are...

7:00 am 15th

For my reversal surgery.  17 months .

It's long awaited and now nervous time. I'm having a good lunch today

Hi all, I’m new to this site. I’m here trying to get other people’s experiences that might be similar to my mom’s. My mom is 78 and has been living with a colostomy bag for about six months now as a result of having a perforation in the distal sigmoid colon. We are discussing the possibility of reversing the bag. We just met with a colon and rectal surgeon to get a second opinion and sh...

Looking for adhesive remover wipes (on Amazon) and thought I would try the Convatec brand.   While scrolling thru I saw the photo of the young lady and child on a beach.  Well I would LOVE to conduct a poll and see how many people run around in public with their bag out flopping unsecure in the breeze.  I am confused.  This young lady may or may not be an ostomate. If she is an ostomate wh...

Has anyone else w/out a colon tried these? I wanted to have something that was easy on the go and I can’t stand sweet hydration drinks. I had to put post it notes on them that said “Mom” so my kids wouldn’t think they were candy

This one had me at raccoon . Which are you?

I'm new here and just trying to figure the site out. I currently have an illeostomy, I had had one when I was younger and then got a j pouch. Fast forward many years and my jpouch failed and I had my surgery in January.  Feeling alone at times, so thought I would make a post. So hello!

Post a picture of your pup(s). I know we’ve had a few dog posts but really can you ever look at too many puppy/dog pictures? I think not.

I had an ileostomy placed in 2021 and since then, my 15 year relatonship has ended.  I'm now comfortable enough with my physical condition to start dating again but having some trouble getting started.  I'm thinking that looking to meet a woman with an ostomy also may be a good idea because we already have at least one thing in common, lol.  I'm kind of shy at first, so any input on how to g...

I have started to play golf again after having my illeostomy for 2 1/2 years. I have never tucked my bag into my pants, EVER. I wear long shirts. Does anyone here tuck in their bag? Any golfers here tuck in? I'm wondering if it's something I should try. I've never tucked cause I've always had a fear of poking a hole, having the bag come off and I wouldn't even know it. And God knows what else c...

Hi. I am considering having this surgery because of continuing ulcerative colitis in my rectum. I guess my question is for people that have had this surgery. My doctor is telling me I should be fully recovered in two months but I have heard some people took longer that two months. If you don’t mind sharing your experiences I would appreciate knowing if the two months is realistic and what if ...

How many people here suffer from Depression, since receiving their ostomy. A lot of people told me he that you should be happy you’re still alive, which in some ways I am in other ways I am not. People also say it’s a give-and-take all gave me some of my life back, but it took away more than I thought it was going to. I always liked having someone in my life and so far this ostomy has cost ...

Ladies, this is for you.  After having Barbie Butt surgery, how do you pee? This sounds like a very painful surgery, so wondering how you even manage to make it to the toilet.  And if you do, how do you not pee on your new tush?  Surgery is happening this coming Monday, and it seems all I do is think about what I am going to be facing!

So I am new, just had surgery last week and been feeling down. Doctor said there is a good chance of being reverse so that made me hopeful. Thing I dislike is wearing a bag and grossed it is. And how my bf is now support. 

Hi everyone! I’m new to this forum and I’m so excited to have found a group of people that I can talk to. I used to attend an ostomy support group once a month at the Mayo hospital here in Phoenix but I kinda stopped going. The Mayo has been my home since 2018. Long story… I’ve had Chron’s since 2005. Had a flare up about once a year but I always got through it. I got married around t...

Yikes ..... anxiety is setting in y'all.... ain't gonna lie.....

Find the 6 hidden words in the picture…..

Hi All I have a 6 month old ileostomy  and this is ust a question regarding hydration with an ileostomy.  I am drinking lots of fluid I including at least 1 litre of ORS daily. I have noticed that my urine output is nowhere near as much as it was before my ileostomy despite all the fluids. I tend to have pale to straw coloured urine and don't feel dehydrated. I did read that ileostomates do h...

Hello again. I’m still fairly new with an colostomy and always have questions. I’m using Adapt barrier rings for my Hollister bag but it still leaks under the ring. I’ve tried the thicker one and also the slim, and even the paste. Is there a better barrier ring? Besides it still leaking under the barrier, I’m having a hard time getting the “glued” adhesive off my skin. Other than th...

OK, so Naked Running.

Apparently this means running without GPS, music and any other technology.

I wish I knew this an hour ago...

Boogity, boogity

I'm curious about something. My illeostomy/stoma is on the right side of my stomach. Does everyone have their ostomy on the right side too? Anyone have it on the left? Dumb question, but im curious. 

Hello all,

My mom has a colostomy and we have been using Medline to order supplies since she was discharged from hospital/rehab back in September of this year. The visiting nurse helped us create an account with Medline and verified that they were in network with mom’s insurance.

Just a couple days ago, we received an automated phone call from Medline that starting April 1, 2023, they will ...

You've been going out on some dates with someone you really like, and you only have one quarter for the Juke box. What love song would you choose?

A couple people have mentioned they use the above shampoo when showering? I have the impression it's not used hot hair on head.
Why used?

Had a screening colonoscopy on November 17th. 

Good news:  No polyps

Bad news:  Rectal mass.  (I had absolutely no symptoms.)

Followed up with body CAT scan and pelvic MRI, both completely clean except for the MRI, which of course picked up the rectal mass.  Radiologist read the mass as Stage T2, 2.8 (1.10236 inches). 

So I had a Laparoscopic LAR (Lower Anterior Resection with Creation of...

Hey all

Just had laparoscopic surgery on Jan 19 and now have an Ileostomy. I was diagnosed with Ulcerative Colitis about 6 years ago out of nowhere and every thing went downhill from there. Thankfully, the last 6 years I really focused on health and fitness so I had a decent physical build leading up to my surgery. 

honestly, the surgery wasn’t that bad. I needed a few days for my system to...

I give up..  i just don't think i can do this anymore.   It's so overwhelming and it's ruining my life

I’m trying to gauge if this is common or not. After I had my colon removed this summer, foods/drinks that were my favorite changed drastically. I don’t know if it’s the same for people who still have some of their colon… I started craving salt above everything else. I never used to like club soda but now I do. I used to love sneaking leftover cake for breakfast (hiding it from my kids) ...

Hey there everyone!

Super bowl is this Sunday. And for the first time in a while, I’ll be able to enjoy some of the foods. I do hope that others are able to enjoy the food and game this Sunday. Have a great week and weekend stay safe.

I'm going to add a picture to this it was taken two year after I had ostomy surgery.  I had permanent ileostomy surgery and total colectomy over 12 years ago.  I posted it on Facebook showing folks that an ostomy is not obvious even in a swimsuit depending on the swimsuit. I got off of disability and resumed work as a wound & ostomy nurse twice.  I frequently tell my patients about many famo...

It seems like my stoma gets smaller after I change it. When I do a change everything fits properly, but then it seems to shrink down under the barrier. I don't want to have to change it every day. Anyone hear of something like this before? It just started acting like this the past week, I've had it since January. 

Thanks for any advice. 

 

Edit: I think it's the barrier not sticking prope...

Probably seems trival to most of you but at 3 months post op I still get some anxiety over whether my barrier is cut right as i have an odd shaped stoma not oval or circular.  I worry is it cut too large or too small.  Most info is 1/8 inch of skin showing but that 1/8 inch of skin gets red and sore.  Just recently I had a stoma nurse say she cuts the with no skin showing.  If it is cut too...

Happy Valentine’s Day to everyone out there. 
Love yourself and accept who you are and how you are and love will be with you forever. 
open your mind and it will open your heart and find happiness.

Enjoy your special day …everyday.

Ritz

Guys Advice please. I have an ileostomy and love going on long hikes in the countryside.  Downside is I hate having to find somewhere discrete when i need to pee out in the open. Would I be ok limiting my fluid intake for a few hours (maybe 3-4 hours) to avoid having to pee and then really topping up with the fluids again at home? Thanks.

 

.

too cute not to share, this happened today in south oz 

I have had to remind several ostomy nurses of the following facts:

The top layer of your skin is called epidermis has a top layer of its own called the stratum corneum It is essentially dead. (It is The armor that is your first layer of defense against any kind of infection)This top layer of skin is constantly being replaced.  Normal healthy dry intact skin that is exposed to air and not expo...

I POSTED RECENTLY ABOUT TAKING A BREAK from watching the news.  I’d become a news junkie.  The news pissed me off.  It was disturbing, upsetting, inexplicable.  So, I quit cold turkey.  It didn’t go well.  Before very long, I got jittery.  My hands didn’t shake, but I think I began blinking more often.  It was eye flutter as a symptom of feeling uninformed.  I found that I couldn...

Hey all!

I’m 6 weeks out from temp Ileostomy (laparoscopic) surgery and feel great. I’ve been given the green light from my surgeon to hit the gym and eat whatever I want. 

I’ve been eating pretty unhealthy without fruits and veggies in my life. Mainly burgers and fries, tacos, tons of chips, cookies, etc. haha. It will be nice to get some green back in my diet.

I’m curious. The surge...

Part 1

Y’all can zoom but I can go into more details in a bit, actually I realized that was a lot of work, if you think it’s something you might want ask me and I’ll get the details then. I can also get you a shipping quote ahead of time b/c I have all that stuff at home for when I go through selling/shipping stages. Shipping cost prob wouldn’t be worth it for overseas.

I had a colostomy placed 3 months ago. Lost a 1/3 of my body weight and now look like a walking skeleton. The doctors can’t figure out why they had to cut out 9 cm of in their words “concrete” and they say I’m lucky to be alive. Funny I rarely feel lucky. 3 hospitalizations later and running out of medical days, I wonder what my future holds. Will I die early? Will I leave a young child...

This is really just a vent - LOL.  I went through the training for the Gattex last week (with my husband since he would be helping).  And the feeling that it just wasn't the right thing to do yet was overwhelming.  I decided not to start the Gattex.  I may later but right now I don't want to risk the many side effects, deal with daily shots and know that the success rate is not very high. ...

Hi all. I'm going through an interesting time and am wondering if anyone can relate. I know most of us still carry a lot of the trauma caused by our health-related experiences. I know I do, but I've been fortunate to be able to put it aside and be there for my friends and family through their medical challenges. I've visited them in the hospital and volunteered in my local one for six years, ab...

Has anyone had a colostomy because you couldn't expel stool through the ano-rectal passage due to your pelvic floor muscles contracting rather than relaxing when you wanted to poop?  If so, has it worked out for you?  Any challenges or complications?  Did you get it reversed at some point or do you hope to get it reversed?  What are you doing to see if you can reverse it? I know it's a lot ...

Newish ostomate here. Permanent ileostomy courtesy of Pseudomyxoma Peritonei discovered late last year.  Operated 17 November, five weeks later was discharged (just a couple of days before Christmas!)

Physical recovery going OK. I have many of the same issues people here and elsewhere talk about, notably leakage which seems to come in groups of three in a row, bizarrely. I have to monitor my ...