Ostomy Topics

Hi all, I am new to this site and I'm looking for advice and support. I was involved in a car crash 6 weeks ago and was rushed to hospital for surgery and woke up with a colostomy bag. This has shocked and scared the hell out of me although the surgeon and doctors have said it's 100% reversible but I have spent the last 6 weeks thinking about 'what if it's not reversible and I have this for the rest of my life'. I am not sure what I am expecting from putting this on here but I'm scared and feel my life is in tatters I am just looking for s...

Hi Gang,   Figured I'd start a new post to tell you how my Marathon skin protectant adventure went......and it WAS an adventure.  So Marathon is basically SuperGlue or KrazyGlue or whatevery you want to call that fast setting Cyanoacrylate stuff.  It comes in little plasic tubes that have a hard plastic or glass tube inside it that you squeeze between your fingers to break, and the purple tinted protectant can then flow to the foam applicator tip.  It's expensive....like $40 for 5 tubes, and each tube is claimed to cov...

So I was looking on Amazon for pouch covers when Looking Foreard mentioned them in her post. They are expensive! So I thought I would whip up a few to see how it goes. They were so easy and took no time at all. A mask is more difficult! I put a pic of the ones I made in my pics here. It will not let me download them into this post for some reason. Says it is not allowed, anyhow, if you sew at all, may be worth making some. UTube has videos to make them. They are cute! Puppyluv

Hi Gang,   So during my last barrier change on Wednesday I used Marathon Skin Protectant under my bandage portion of my barrier.  I'll be changing my barrier tomorrow morning, so I just read the Marathon instructions on how to remove the product.  And it basically says not to worry, as it will not be sticking too well after 2 days.  But I'm wondering what I'll do if it is sticking well.  It's basically cyanoacrylate, ie., Krazy Glue, which is taken off with nail polish remover.  But if my skin underneath is s...

Does any one take or have been recommende to take to think output?

Greetings, I like to use my Medline night drainage bag. It is easy to drain and easy to rinse out. After it is drained, I just put the input tube under the faucet and let it mostly fill. Then, shake a bit and just drain it again. I do this every morning. So my question is, is this good enough to care for the night drainage bag? I have heard to use vinegar or some other chemical, but it seems that just rinsing it with water each time is good enough. Is it good enough??? (Urostomy) Gary

i have been looking for some plain but study bag covers. just want to mention amazon has the best. comes in a pack of 4.. very nice material

I had a bad reaction to the Covid vaccine, high temperature and aches. I also developed eczema under the phlange of my stoma bag. Has anyone else heard of this problem? I have had the ostomy for nearly three years with no skin irrritation at all. Any advise is welcome! 

Hi All Really new to the whole ostomy thing, I had surgery for bowel cancer a year and a bit ago and ended up with the life saving colostomy. I have been trying to sort irrigation for some time now, and keep getting put off for the training by my Stoma nurse who now doesnt even return my calls.  I really want to improve my quality of life, as I am a real outdoors person, enjoying sailing and motorcycling, gym etc. After a few pouch failures I have seemingly turned into a passive aggressive recluse. This really isnt me and I want to ...

Hi all,   New here- I'm about a month out from my rectum removal. A couple questions for those who have been through it before...  1) is it easier to sit once the stitches are removed or is it pretty much the same? I'm having a rough time wanting to do any sitting at all and mostly am stuck in bed.  2) my procedure wasn't laparoscopic so I have a pretty large vertical incision... currently I'm not supposed to lift more than 5 lbs but even when I do something like open a water bottle that torques my abs and it just feels ...

Tue Apr 06, 2021 1:48 pm< >Hi there , sounds like you need some advice on that annoying and painful problem. This happens to me if the sticky pink stuff ( I call it "Marzipan" ) on the Wafer wears out mor in one spot than another.< > If it wears out in just one spot the very destructive Stomach Acid in your output will have eaten away the protection on just that spot. I saw this just yeaterday with my Ostomy. The right side of the sticky Marzipan< > attached to the wafer was just gone , there was just the plastic of the wafer . When I ...

< > These are the Seals , give you great security.   I also use 2 inch Micropore Surgical Tape  on the four sides of the Wafer , gives even more security if travelling or hiking, biking etc ...Gfrest stuff  I have tried many different tape ands but the best one that I stick with  ( and it sticks with, sticks to me  ) is  3M  Brand , the best . I've used it swimming, Ocean and Pool, even if it peels a little it sticks right back even if wet !! just amazing stuff . Saved my shitty ass more than once...

I have a patch of weepy skin under the tape edge of my wafer (note it isn't in the center of the wafer near my stoma). The weepy skin patch is the size of a quarter and is big enough that it's affecting my wafer adhesion.  Because of the reduced adhesion some of the skin around my stoma is getting sore also.  If I could heal that weapy patch of skin on the wafer edge, I think the wafer would stick better.  I believe people use calamine lotion for this.  Will the lotion stick to the skin even though it's weepy?  Are...

New here- first post. Just had an ileostomy on March 22. Tried the convex seal (and the hollister barrier rings) but went through 3 bags a day. Started using the flat wafers and the hollister barrier rings, which started off okay (a day between changing). Saw the wound care nurse on Friday. There is a skin fold right by the stoma, so it's hard to seal and keep the bag on. We got the prescription powder for the fungus/yeast that is a result of the wound being irritated and the seal not being on the properly, so waste gets on the wound and i...

I had my surgery in March. Since then I haven't slept through the night. I'm so exhausted. I used to wake up every hour to dump but now it's longer...maybe 3-4 times a night. Will this ever change? How do you sleep through the night?