Ostomy Topics

Hello Everyone and I’m trying to figure out a few things and just ask a few questions first! Is that ok

Hows Everyone feeling and I’m never here but came in to say hello to everyone and maybe we can text and chat about a couple things on my mind!
1. Does anyone do protein shakes? What do you use? What is your diet? I have issues with everything I eat and I’m not new just haven’t be ...

Hi...Sorry for this question, as it is embarrassing but wondered if anyone else has/is experiencing this...

I had a colostomy for about 1 year, and about 8 weeks ago had a reversal. Everything seems to be healing properly and really have had no serious issues.

Prior to going into reversal surgery, I was given instructions/paperwork on doing exercises to target my anal sphincter called 'an ...

Curious what has been found helpful for pursuing high-impact sports with an ileostomy. I was looking at Stealth Belt, which is expensive and has mixed reviews. I feel I can probably come up with a solution that is less expensive. Swimming, downhill mountain biking, running, volleyball, waterskiing, and backcountry skiing are my faves. Thanks.

Has anyone had a poor experience with TSA? I recently went on a plane for the first time since surgery. I had a really tough time with TSA they had me lifting my shirt in front of a large group of people and probed me for a good 5 minutes. I fully understand security and how it need to be enforced but I was truly harassed. Has anyone else had an experience like this and does anyone have advice ...

Has anyone had this issue? I am 8wks post op for ileostomy and the pressure to pass a bowel motion (although there is nothing there) is so strong and uncomfortable that lying down is the only way to get any relief. Can anyone suggest any help?

Hello
My question of the Membership should not be viewed as a negative one - BUt rather as a discussion concerning the elements involved and at what points a personal 'get on / get off' come about.
My own circumstances are those whereby I am conyinuing to have intermittant blockage symptoms, despite careful diet and routine management over time - ie I am an experienced Patient having h ...

Hi,

I had my total colectomy and loop ileostomy surgery on November 21 2024. It included the creation of a JPouch, but I opted not to go for the pouch just yet, as I was feeling quite healthy and I wanted to live it up after all of the colitis flares. And I did until March.

In March I did some travelling for work. Could be unrelated, but I flew to another state and stayed for only a day. N ...

Hello all,
I am new to this forum because I had an ileostomy about 7 weeks ago now. It was a shock as I went to A and E for stomach pains and only came out of the hospital nearly a month later!
My main problem at the moment is that the bags are causing me a lot of discomfort. All the bags I've tried feel like they are literally pulling me down and like a vacuum sucking my skin where the basepl ...

Well that was no walk in the park. I had my surgery, spent about 3 days in the hospital, came hope and started vomiting. A lot. All the time. Every time I ate, when I went to bed at night, when I went to the doctor's office. I went back in the hospital and they stuck and NG tube up my nose and down my throat. I hate those things. Anyway they said my ostomy didn't wake up after surgery. That is ...

Hi All, I got a permanent colostomy 8 months ago. I recently have experienced partial blockage possibly from fried crab shell. It’s been 3-4 days and I can only produce output with the use of laxatives. It all comes out at once and I experience abdominal pain. I’m staying hydrated with Gatorade and plenty of water. Anyone else ever have this problem? Am I being foolish by not going to ...

I had my ileostomy in March of 2024, and I have not had one day without abdominal pain. I will not go back to the surgeon (or resident, as I don't believe he did the surgery), and I don't think surgery was warranted. I have had abdominal scans, MRIs, and they can't find anything wrong with the surgery. When I shower (I also have a PICC line, as I have 4 leukemias as well), it takes me 1-1/2 ho ...

Two years later with my ileostomy, what about corn on the cob? Anyone ever tried it? If so, how did it go?

A staple magically appeared at the bottom of my stoma 2 days ago. I went to the doctor today, and they said it should work itself out. As long as I don't have any issues and am still pooping properly, and it isn't causing me any discomfort, I should leave it alone. Have any of you ever experienced something like this? I still feel a little nervous about it.

I have been using Orabase Protective Paste (by ConvaTec) used for the relief of minor irritations - in my case the stoma. The ST Nurse advised me some months ago they are discontinuing and there is no replacement product. Does anyone know of another product that is similar. I've found one that deals with mouth ulcers but I don't think it's the same product.

Anxious about flying for the first time with a stoma. Anyone got any tips?