Seeking Recent Scientific Journals on J-Pouch

Hi all, first time posting here.

I wanted to get more scientific information about J-pouch and wanted to know if there are any recent journals in the past 5 years that discuss the subject.

Anecdotes are okay, but not what I'm looking for.

Welcome from Oz 🇦🇺

What is it you are specifically looking for?

Successes, failures, post-op complaints.

There are no "scientific journals" here, just people's own firsthand experiences.

Hmm... me thinks she's looking for medical journals? Those very specific journals on J-pouches from surgeons who do the operation.

The New England Medical Journal, for example.

All kinds of links to that subject via Google.

You will not find journals here. But in some way, we members write the book.

Now the short question: are you considering a J-pouch?

You won't need journals to make that decision.

You are in the right place for those answers.

Welcome and good luck.

Don't bother reading about it; personal reply, stay with the ileostomy.

Regards, IGGIE

I wouldn't do it if you have Crohn's disease because that can affect all through your digestive tract and your bowels and intestines. My surgeon told me that because of that, I wasn't a good candidate. I knew someone who had this done, and she had many problems and then actually died as a result. It sounds tempting, but you need to really check into this procedure before you do it.

Words of Encouragement from Ostomy Advocates I Hollister

I have a K pouch, and it changed my life. I had a conventional ileostomy for thirty years and converted to K pouch. I have met a few people with J pouch, and only one is happy. Several changed to K pouch. I would explore that too.

JWOCN, Journal of Wound Ostomy Continence Nursing, is one suggestion. World Journal of Colorectal Surgery is another. ASCRS, Annual Scientific Meeting, is the leading educational event in the field of colon and rectal surgery; they have a section on their site for patient resources. Hope this aligns with what you were asking!

Thank you, yes, these suggestions are great! :)

Mt. Sinai Hospital in Toronto has an IBD patient support program that at one time was just for J-Pouch patients.

Brenda O'Connor runs it. They have regular in-person and Zoom meetings. After many years with a J-Pouch, mine

failed, but it was very good for a long time.

Hello,

You could try perplexity.ai and just ask the specific questions - as an in-depth point-by-point inquiry - ask it to access the papers written and peer-reviewed - and also access the research directly on, say, ResearchGate - you can join as a lay member .......

Good luck, by the way .......... the nice addition [stating the obvious once you start to use it] about perplexity.ai, for example, is that you can be as detailed as you like - and ask for various different perspectives too - for sometimes the medical inferences are hard - and to extrapolate as a lay person is not always ideal ...... however, to iterate, you can ask for simplification on the heavy data when it becomes less easy to interpret [and also to check one has understood correctly].

Do not be put off by using AI for a purpose such as this ...... If you log in using a private browser, one can access the data without leaving a trail of any research that you have done.

BW

~ ~ ~ ~ ~ ~Jayne ~~ ~ ~ ~ ~~