I suffered for many decades with Crohn's Disease. In 2014, I was diagnosed with stage 3 (the low end) colon cancer. Most of my colon was removed, and I had a resection. I was given the option of an ileostomy back then but resisted; I was just not ready for it. For the most part, it was okay, but if I had a Crohn's flare-up, it would send me to the toilet 15-20 times a day. Very exhausting, to say the least. This lasted a good nine years, and then there were signs the cancer was returning. This time, there was no option, and an ileostomy it had to be. I had that done in the spring of 2023.
After two plus years, I can tell you my quality of life is much better. No abdominal cramping or desperate runs for the toilet. I can hop in the car for a long ride without stopping or get out for a hike without the stress of not knowing if I'll make it the whole way. I even did the "Slotzilla" Zip Line in Las Vegas! (Look it up; it was a real thrill.) I would not reverse my ileostomy even if that were an option.
I've done pretty well so far, but I was determined from the start not to have this situation make me miserable. Just a new routine to get used to. I do try to have fun with it sometimes. If we're going out and someone asks if I need the bathroom?
"No thanks - I'm going right now!"