4 Weeks with a Stoma and I'm Ready to Talk

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332
stevefreedenburg
Oct 16, 2025 8:28 am

Short details. Bladder cancer diagnosis 2 years ago. BCG treatment worked, but cancer came back. Elective chemo before bladder removal (20 weeks of misery), pulmonary embolism from chemo/cancer, blood thinners, 8 weeks later surgery.

BCG was painful, chemo was being a Zen master to try and not throw up every 30 minutes. Surgery was painful cubed.

I just did my 4-week follow-up with my surgeon. Pathology was zero cancer in bladder, prostate, or lymph node. Surgeon says my stoma is beautiful. I think he's just admiring his work. It looks like a baboon butthole and a teapot spout mixed....

Scars? Don't care... my biggest issues are bowel movements and ripping hair out when I change my bag. The stoma is like an alien attached to me still, but I'm not scared to touch it or clean it.

I do feel like a freak and about as sexy as the Crypt Keeper and Jeepers Creepers combined.

Any tips for hair removal that aren't obvious like shaving?

IGGIE
Oct 16, 2025 10:34 am

G-Day Steve,

Welcome aboard. You seem to have had a rough time, but now's the time to get used to your new life. As for shaving, use a razor but not up close to the stoma. Right next to the stoma, you can use tweezers and pull the little suckers out. You will get used to it in time. I hope you start feeling a lot better than you have in the past.

Regards, IGGIE

Posted by: iMacG5

About seven years ago, just about every aspect of my life was ostomy related. From the moment I was told an ostomy might be needed until some months down the road I existed as a person afflicted with a colostomy. I feared someone other than my immediate family might find out I had a bag. Ugh! What could be worse? Suppose it filled real fast when I was out with no place to hide and take care of myself. God forbid should it leak in church! Suppose I roll over on it in bed. I was a lesser creature, destined to a life of emotional anguish and physical routines different from most of the rest of the world. I felt like a freak. Then I found folks like you guys here, read your stuff, really “listened” to what you had to say and I began looking at things differently. We know perception is everything and I began to understand how good things were relative to what they could’ve been. So many folks had it so much worse than I did. That didn’t make my discomfort go away but it exposed how fortunate I was to be dealing with my stuff and not their’s. I felt a little guilt, maybe selfishness but quickly forgave myself by understanding I just wasn’t smart enough to fix my feelings. Then, I wonder what smarts have to do with feelings. My perception was warped so my perspective toward my existence was warped.
I learned over the last few years with the help of lots of folks right here at MAO that I could be better at living just by accepting some facts. It is what it is and so what? It’s not the worst thing to happen to a person.
I think everything is, in some way, related to everything else. I just put the ostomy thing in the back seat and drive forward.
Respectfully,
Mike

AO166
Oct 16, 2025 10:37 am

For hair removal, you can use an epilator like Silk-épil 9. It removes from the roots, so you get a longer time in between. There are waxing strips too, but I think the epilator is gentler on the skin.

Axl
Oct 16, 2025 12:18 pm

I just use a razor, but I'm not a gorilla.

GoinWithTheFlow
Oct 16, 2025 12:19 pm

Hubz uses a small beard trimmer every other appliance change. It takes less than 30 seconds, makes removal much more comfortable, and gives him a better seal.

 

My Ostomy Journey: Ryan | Hollister

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ron in mich
Oct 16, 2025 12:58 pm

Hi all, I use the cheapest dollar store razors without the slippery strip on them.

AlexT
Oct 16, 2025 7:40 pm

One not-so-obvious way to eliminate hair is by blow torch. Hey, you said not the obvious way. 😁

TerryLT
Oct 16, 2025 9:08 pm

Welcome, Steve. Sounds like you've been through the ringer but have managed to maintain a healthy attitude and sense of humor! They will both serve you well. Welcome aboard.

Terry

bowsprit
Oct 16, 2025 9:57 pm

Warrior suggests a blow torch! But there is laser hair removal or electrolysis. You have been through a lot and can try them when you feel better. All the best wishes.

bowsprit
Oct 16, 2025 10:32 pm

Sorry, Warrior didn't suggest a blow torch; Alex did.

stevefreedenburg
Oct 18, 2025 8:43 am

I appreciate all the input. I'll pass on the blowtorch. The suggestions all confirm that a magic or secret way doesn't exist. I might actually look into laser hair removal for the long term, but for now, a razor it is.

I didn't want to reply to everyone individually and be weird. I really do appreciate the welcome.

Kyle
Oct 20, 2025 3:04 am

Steve, check out the Vegan Ostomy website, as the guy is pretty hairy and probably has some good tips.