Managing Life After Ostomy: Experiences with Dattex Medication?

Replies
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609
Caros1
Mar 11, 2023 7:27 pm

Hi. I've been ostomy-free since 07/21. I only had an ileostomy bag for just one month short of a year. But living with SBS (Short Bowel Syndrome) which leaves me staying close to home, never knowing when or what might set off a rush of diarrhea. There are times when it's hard to determine which is the worst. At least with the bag, I didn't have to worry about having an accident.

I am in the process of starting a new medication, Dattex, to reduce the rush of bowel movement. Has anyone else used this med?

w30bob
Mar 11, 2023 10:42 pm

Hi Carlos,

Gattex has been discussed on here a few times, the last being just a few weeks ago. Try the search and see what comes up. I'm sending you a private message regarding your SBS.

;o)

Bob

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Drnjm
Mar 11, 2023 10:48 pm

That's tough!!! I have an ileostomy... I do have more leaks and explosions than I want to admit... but I have learned to control my food intake, to time periods when I am close to home. Before Ms. Stella, my ostomy, I had the same issue... so then and now... I have learned the timing of eating and when output happens... and if I want to go somewhere and not be too bothered with excessive output... I use the intermittent fasting methodologies and that has made more of a difference than anything... maybe with the medicine and just shifting the timing of eating you may have better luck??? Just a suggestion... I acknowledge what you are going through is horrible... no one dreams of this type of thing as a child... but you are stronger now... blessings.

Ostomate & woundr
Mar 11, 2023 11:55 pm

Even if you have a colostomy, a high output ileostomy bag can be a benefit. It runs down about 3/4 the way to my knee, but it does hold volume. Typically, they're only available in a two-piece, which is beneficial if you have formed stool. If you were liquidy at all, I would highly recommend them. I use Coloplast and can provide anybody who is interested with the product numbers. I also have Convatec product numbers because when I was younger, that product was the only one that would stick to me. I was an ostomy nurse for 8 years before I became a permanent ileostomate.

1333
Mar 14, 2023 2:35 am
Reply to Ostomate & woundr

Wow

 
Words of Encouragement from Ostomy Advocates I Hollister
Play
Mabsie Moll
Mar 14, 2023 9:36 am
Reply to Drnjm

I have only just caught on to that too 9 months on Drnjm!! But to be fair, it is all learning about the new way our body works. That said, I am due for reversal next month, and from the previous post by Caros, it seems you're never out of the woods with Crohn's/Colitis IBS! Thank God, and all the deities for MaO! Your advice and knowledge is a fantastic resource!&zwj