not me

Well, I am truly happy for those people that have all of these IBD problems and ostomies, and are able to live with and still have a good life and a good outlook on life in spite of this messy... MESS! I lived a happy 25 years with my colostomy; I have been gifted with so many great people as friends and raised a son, and worked very hard through all of those years. But after my 2001 catastrophe, (see first blog) I have not been able to regain any quality of life, mainly because of contracting SEPSIS, going into septic shock, and dying for a while. Yeah, they got me back, but if you do some intense research on quality of life after sepsis, you will find the statistics to report that people that survive sepsis (an 80% mortality rate systemic infection where fecal matter gets into your bloodstream) do indeed have a much lesser QoL (quality of life) than non-infected persons do. I have been deteriorating physically and mentally for nearly eight years now, and the more I go to seek help from doctors, the less any of them even want to see my face because they know there is nothing they can do for me. Doctors do not like to admit to being unable to take care of the health of their clientele, though they will never admit it. They just continue to hee-haw around about whatever they can come up with to get you out the door and get paid! I have been battling lymphedema now for about two years; I have chronic renal failure, phase two. I would have never had to go through this if they had not destroyed my urinary tract jamming stents into my kidneys for the surgery. And if the surgery had not run three hours later than scheduled and my doctor was waiting to fly out of town as soon as I was done, maybe he would not have rushed through removing my colon and rectum and possibly not have damaged my pudendal nerves, which in combination with the stents has left me unable to urinate, impotent, and living in ungodly agonizing pain. And then write on all of my discharge papers that I was a narcotic abuser because I had been taking Lorcet and Xanax for the three years leading up to the surgery. All of my ICU records somehow went missing and I had to call in the Department of Human Resources to demand the hospital come up with answers to the issue. Of course, it all got swept under the rug. That is how the rich and powerful manipulate their way through the system and stay in business while human beings suffer and exist through life miserably. So what is my point here? I can't say. This is a blog, not a newfound resolution to all IBD or any disease. My advice to anyone is don't get sick to begin with if you can figure out how to avoid doing so. It can be a miserable existence for some of us, like it or not!