Stoma

Replies
31
Views
545
Mark1

Hi all just found this site bit bewildered as what to say 5 mths in wow life changing you feel so alone

Nini4

Hi Mark, 

I'm a little over 5 weeks post op. And yes, I am dealing with the loneliness. Part of it for me is this is still so new.  I'm trying to keep positive thoughts. I'm an anxious person by nature, so this whole situation has been a challenge. 

This site is amazing. So many kind people. And the Information I have learned is invaluable.  

Take care!

Gray Logo for MeetAnOstoMate
Top 5 Collections
Mark1
Reply to Nini4

Hi thanks for reply I will be on here as much as possible I went in for a routine  colonoscopy and the person performing the procedure walked away and left the camera inserted  thus causing damage so I have ended up with this bag and I have to say struggling is an understatement with such a life changing situation but you know is what it is I'm still here alive and kicking so have to come.to terms with the hand I have been delt 

Daisy2023

I’ve been trying to come to terms with it and accept it as who I am. Not sure if it’s taking me a long time to adjust or if this is normal. I had an ostomy as a child and the thought of going back had also been my worst nightmare. Some days I catch myself that I have forgot about it for just a moment, or I appreciate the fact that I’m here.. can’t forget that. I’m slowly coming along, it’s just lonely cause no one gets jt… but the awesome people on this site. It helps me be more positive and not feel as alone. 

imsafanwa

Hey Mark-

It's been a year and a half for me and I still feel like a freak, which is stupid as hell because nobody can tell that I've been modified. I would recommend humor as a way to get the mind right. Monty Python, online scare videos, whatever works. Laughter is the heathiest thing in my life right now. My radiation oncologist is the funniest person I know which blows my mind being in such a serious profession.

 
Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister
Mark1
Reply to Daisy2023

Thank I think is going to be a great site for me and a big thank you for welcoming me to your family group of friends 

Mark1
Reply to imsafanwa

Laughter is for free a so we can say a smile a day keeps the gremlins away thanks 

Morning glory

Welcome  to the site Mark1. I  am glad you found us. I am so sorry you had  such a life altering experience,  from pure negligence.  I think it's  perfectly  normal to feel alone at first but you have taken the first step to gain healing and acceptance.  We are all here for you. Reach out and ask any questions  you want and just vent if you need to. Try to keep busy if you can. 

Mark1
Reply to Morning glory

Thank you so much I don't know how others feel here but for me the worst thing is people's ignorance I was in a restaurant and passed wind in to my bag we all know it can't be controlled and I ended up having to explain myself and I don't think I should have had to its a personal thing I have no controll over 

Beachboy

Welcome Mark1.

Camera was left in, and technician/doctor walked away.  Unacceptable negligence.  Many good folks on this web site were damaged during routine colonoscopy or cancer imaging.  Resulting in an ostomy.

Is yours a colostomy or illeostomy?  Can you eventually get a reversal ?

I was at dinner tonight at a restaurant.  My little red beast was making loud sputtering noises.  Waiter stared at my stomach.  I smiled and said "oopsie."  Poor waiter looked confused. 

An ostomy does not define us.  I'm not embarrassed or give a hoot when people stare at my tummy bulge.  I survived a seriously nasty medical adventure.  Something relatively few people will ever experience.

Hang in there.  It's very hard at first, both mentally and physically.  But life does get better.

 

Bill

Hello Mark1.
Welcome to MaO and I see you already have had some great correspondence. 
I know from experience that coming to terms with medical negligence can make the emotional journey worse  than might be otherwise endured.
However, I hope that you will be strong  and adjust to the new set of circumstances as quickly and effectively as you can. 
Best wishes

Bill

IGGIE

G-Day Mark1, I hope you sued the crap out of the guy that caused this. I hear of so  much neglect from the medical personel I think they need re educating. Regards IGGIE

Morning glory
Reply to Mark1

Mark1 I  never apologize  for my noise. If someone  looks ; just let them look. Their problem not mine. 😂 

ron in mich

Hi M ark welcome to the site there,s lots of good folks here and great info, funny story i was at my daughters for thanksgiving and after a couple forks of food and a sip of water my stomach gurgle and then the pouch made the crackleing sound as gas passing into it,so i just commented my stomach wants more turkey and stuffing.

Mysterious Mose

Welcome to the site, Mark. I have to agree with IGGIE in saying I hope you sued the bejesus out of the idiot that left the camera in your colon. Accidents happen, but that sounds like pure negligence and the person should suffer consequences.

Lots of good people here with all kinds of different ways they ended up as an ostomate. There is always someone that has a situation similar to you. Don't feel shy to ask anything related to an ostomy. Someone here is bound to have an answer. :-)

Daniel

DexieB
Reply to Mark1

Hello.  I too have a similar story, so I can relate.  It’s a life changing experience but you will adjust.  Hang in there, it gets better!  Hugs! 

Mark1
Reply to Beachboy

Hi no for me not reversible tto much damage hey I alive there are so many others out there less fortunate sounds like a humbling thing to say when we're all at were we are 

Mark1
Reply to IGGIE

It is in thee hand of a legal team the hardest thing for me is the fact how it hasn't been taken seriously and the person involved wasn't even suspended pending an enquiry 

Mark1
Reply to Morning glory

Yes I get that the hardest thing for me is made me very defensive I had a poor man in a wheel chair ask me why I was using the disabled toilets my reply was why are you wearing trainers and this ain't me not made that way but I have become so very defensive 

Mark1
Reply to Mysterious Mose

I must ask if I may as you said I could I have a stoma and it bleeds so very much when I clean myself pls is this normal 

Morning glory
Reply to Mark1

It will get better; I promise. Try to not take it so hard. People just don't  know.

Mark1
Reply to Morning glory

Thank you 

Mark1

Thank you all for your kind words xx

Beachboy

Hi Mark1,

Stomas do bleed easily.  Only use a wet paper towel to clean the stoma.  Toliet tissue will stick to a stoma. 

Be careful.  Stomas have nerves that quickly become desensitized.  You can't tell how hard you are rubbing a stoma.  So take it easy.  It's not necessary to get the stoma super clean.  Just get the big bits off.

Takes time.  Healing, learning stoma care, changing wafer and bag.  Also finding the wafer and bag that work best for you.

I'm a year post op and have gotten to the point where I don't notice my stoma anymore.  I can "burp" my bag without looking.  

Take care and don't hesitate to ask questions.

Mark1
Reply to Beachboy

Thanks I since having op been thrown in a deep end only seen stoma nurse 2 times and been given no after care so I'm blind as what to do I was given the spray to remove the pouch and dry wipes that's it guys so any advice I would appreciate 

Bill

Hello Mark.

I use a plastic half-cup filled with warm water to rinse my stoma each day before gently wiping it. This rinsing gets rid of most of the residual output which is stuck on the stoma and softens the rest enough for it to wipe off easily. 

My half-cup was supplied many moons ago by one of the manufacturers, but I have found a spare, which is what my prawns were packed in from the supermarket. 
Best wishes

Bill

Beachboy

Hey Mark,

There is a lack of training for dealing with care of a stoma.  But there is a lot of experienced advice on this web site.  Doesn't take too long to discover what works for you and your unique situation.  Used to take me a long time to change the wafer and bag.    Can "git er done" now in 15 minutes.  

Mysterious Mose
Reply to Mark1

As far as blood from the stoma is concerned, Beachboy gave a pretty good answer to that. The stoma should be dabbed with a damp paper towel and not wiped. Even so, seeing a little blood is normal. Obviously, bleeding profusely would be a problem. :=)

Daniel

Mark1
Reply to Beachboy

Thanks for reply I'm getting more advice here than I have fro. The hospital over here in UK 

Mark1
Reply to Mysterious Mose

Won't post a pic but there is from what I think allot it covers a wipe in one wipe lots of little lumps on my stoma but have been told I'm early days 5 mths in and still going through the settling down stage and I have to be patient 

* Please, do not post contact information, personal information or advertising.
All times are GMT - 5 Hours