Members' Blogs

I'm being told by Aetna that my ConvaTec durable stoma barrier #421040 is not covered but the pouch #416420 is. I am down to 6 bags now and by the time I get my insurance and the new medical supply company to come to an agreement on my supplies ...

Since moving to Kansas City I am having issues with Aetna Medicare covering my colostomy supplies that were always 100% covered when I just had regular original Medicare. I have Medicare but I now have primary as Aetna Medicare and Kansas Medica...

SING A SONG OF SADNESS. I sing a song of sadnessMy heart is full of sighsMy head is full of questionsAnd these are mostly whys. Why, oh why, oh why am I So choked with melancholyThere must be many reasons whyI never quite feel jolly. I sing m...

CHRONIC ILLNESS & BULLYING. Whilst managing my chronic stateI sometimes pause to contemplatethe essence of what life’s aboutso, I can try to work it out. And then, the thought occurred to me,that there’s some similaritybetween ...

  - - OPINION IN RHYME - -  They say we’re all entitledTo our own opinion.Even if our own Is one in a billion. I wonder if that’s differentFrom one’s own perspective If it’s formed from one’s perception...

First off, I'm a gay man with a very healthy mojo who was diagnosed with anal cancer in 2015. My colostomy was not made permanent and my surgeon has indicated that he will be willing to see if he can surgically remove scar tissue that could poss...

I try to welcome all new Canadians to the site. Many of my notes are not even read. If you go through the trouble of registering, read your mail. I do not expect a reply but I have got a few. Is it that you check my profile first to see if you w...

ESCAPING SMELLS. If there’s a stink that makes me gagI think it’s from my stoma bag,and every time I empty itmy home will fill with smells of shit. It seems there’s little I can doto mask the smell of putrid poo,for even spec...

7 years ago today my life changed forever... I realize now that I probably wouldn't be here today without the lifesaving surgery I had on November 16th, 2012! It's been a long road filled with plenty of setbacks and challenges. But I have learne...

I hate my urostomy.  When I found out the doctor removed my bladder for a little 0.6 superficial nodule without a root and the rest of my bladder was totally clear, I realized he lied to me.  How could a cancer doctor do this.  I ...

DIARRHOEA. Do not expect an epopoeia    (epic poem) to emerge from diarrhoea,  for though I’ll try to do my best this one will put me to the test.   This is a difficult concept,  which I ...

So on October 12th I was getting ready for my sister's wedding with my daughters. The day before my sister had told my mom her sister told her she wasn't going to be in her wedding. So my sister was stressing out about what to do. So I told my m...

Happy World Ostomy Day. Have a good one.

Had a scope on Monday (Sept 30) and all was good. Next one in 5 years. Things are coming along. That goop is still hard to take.

So I had my bladder removed in January of 2015. After all the researching and thinking it was the best decision I could've made for myself. It definitely wasn't an easy road and there were complications, but this surgery saved my life. Interstit...