Members' Blogs

ESCAPING SMELLS. If there’s a stink that makes me gagI think it’s from my stoma bag,and every time I empty itmy home will fill with smells of shit. It seems there’s little I can doto mask the smell of putrid poo,for even spec...

7 years ago today my life changed forever... I realize now that I probably wouldn't be here today without the lifesaving surgery I had on November 16th, 2012! It's been a long road filled with plenty of setbacks and challenges. But I have learne...

I hate my urostomy.  When I found out the doctor removed my bladder for a little 0.6 superficial nodule without a root and the rest of my bladder was totally clear, I realized he lied to me.  How could a cancer doctor do this.  I ...

DIARRHOEA. Do not expect an epopoeia    (epic poem) to emerge from diarrhoea,  for though I’ll try to do my best this one will put me to the test.   This is a difficult concept,  which I ...

So on October 12th I was getting ready for my sister's wedding with my daughters. The day before my sister had told my mom her sister told her she wasn't going to be in her wedding. So my sister was stressing out about what to do. So I told my m...

Happy World Ostomy Day. Have a good one.

Had a scope on Monday (Sept 30) and all was good. Next one in 5 years. Things are coming along. That goop is still hard to take.

So I had my bladder removed in January of 2015. After all the researching and thinking it was the best decision I could've made for myself. It definitely wasn't an easy road and there were complications, but this surgery saved my life. Interstit...

SICK OF BEING SICK. Once, when I was young and healthyand maybe relatively wealthy,I liked to think that I was wiseand could potential maximise. Those were the days when I felt goodand I undoubtedly withstoodthe pressures that life put on me a...

AN HONOUR TO BE RECOGNISED. Today I had a big surprise  which I found hard to criticize because it was an exercise  to honour and to recognise.  Without warning, out of nowhere, someone, somewhere did declare...

GET OFF MY BACK! Bob recently reminded me that folks with disability can fall foul occasionally of those who think judgementally.  These folks are often ignorant  of anything that’s different. So, tend ...

I just want to wish everyone a happy Easter. Rebecca

Motivated by Angelicamarie. 'smile'. Hello world. I can't wax lyrical like many. After Sue 21/10/18 croaked, died, past, left or whatever your choice ofterminology suits you.. Some here may or may not know, I built her coffin, picked Su...

The first thing I need to do is to thank all you good people for your thoughts and well wishes during my period of discomfort.   I realise that having a heart attack and a triple bypass has little or nothing to do with stomas and, for this ...

Hi   i haven’t been on here for awhile.  I am still in remission from Metastatic Colorectal Cancer (in remission second time around)to my left lung.  Haven’t had treatment for over 3 years.   I still suffer from...