This topic is about building confidence and positivity after having an emergency ileostomy, which is a type of surgery where an opening is made in the abdomen to allow waste to exit the body. The person had planned surgery, followed by an emergency one, resulting in a temporary ileostomy. Now, five weeks post-operation, they are finding recovery challenging due to negative thoughts, fear of leaks, and needing help with pouch changes. They are looking for practical tips and encouragement to regain a positive outlook and resume normal activities.
Here are some helpful insights and advice:
1. **Mental and Emotional Strategies**
- Create a daily gratitude list to focus on what you can do rather than what you can't.
- Read forum posts for humor and shared experiences to realize you're not alone.
- Accept that occasional leaks may happen; knowing you can handle them reduces fear.
- Start with short, low-risk outings like sitting in the car or having a quick coffee to rebuild confidence, gradually extending the time.
- Night-time worry is common; some find short-term anxiety or antidepressant medications helpful, along with limiting exposure to negative media.
2. **Leak-Prevention and Emergency Tactics**
- Use an ostomy belt to keep the wafer secure and have micropore tape or barrier extenders ready in case an edge lifts.
- Carry a small "go-bag" with a spare pouch, wafer, barrier ring, wipes, scissors, and paper towels; keep tape and a large towel in the car.
- Wear a sweater or jacket, or choose dark or brown clothing for quick cover-up if a leak occurs.
- Some prefer stoma underwear for comfort and support instead of a belt.
- Practice timed changes at home to build confidence as you get quicker (members report 4–10 minutes).
3. **Appliance and Product Suggestions**
- Consider trying a convex wafer/flange to help push the stoma out and reduce leaks; free samples are available from various suppliers.
- A mini drainable pouch with a flexible flange might work well for a low stoma.
- A convex light pouch with a moldable ring can help with near-flush stomas.
- Using a single barrier ring with a one-piece pouch often seals better than stacking two rings.
- Moldable rings and elastic tapes can provide extra security around the wafer edge.
- A hernia/support belt is recommended for preventing parastomal hernias.
- For sore skin, frequent changes, using skin-protective rings, and ensuring no output contacts the skin are important; many find daily changes help until the skin heals.
4. **Surgical and Anatomical Points**
- Ideally, the stoma should protrude at least 19 mm (¾ inch); a stoma below skin level can cause leaks, and surgical revision might be an option if issues persist.
- Before considering reversal or further surgery, research the pros and cons thoroughly.
5. **Encouragement from Long-Term Ostomates**
- Many have traveled, exercised, worked, and lived fully after the initial adjustment period.
- Several report only a few leaks over many years, which were manageable and quickly forgotten.
- Remember, "Six months from now you’ll wonder why you stressed so much" – confidence comes with time and practice.
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