Talk to others with an Ostomy

wildheart
member

About
I'm from a small town in Virginia...was diagnosed with UC at 12 and had a full colectomy at 13. At 18 I had the Koche pouch/ continent ileostomy ... I don't know anyone else with this surgery and none of the doctors here have ever seen it before and don't know how to treat me when I have issues.

Looking for other ostomates to talk to....its gets lonely being the only one..
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