Practical Advice for Recovery After Discharge - Pelvic Floor Exercises and More!

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currentsitguy
Jan 28, 2020 3:52 pm

They tell me keeping healthy people in the hospital is insurance fraud :)

OK, some practical advice for reversal candidates that I have learned through this ordeal:

The most important thing you can do during your time with the bag is pelvic floor exercises. That will really help afterward in that you will have kept your anal sphincter muscles in shape and will not be in a position to have an accident if you are more than say a few steps from the bathroom. I saw yesterday that while it was frequent, it was never an emergency, more like "Again? Sigh".

I have been told by the surgical team that while initially frequent (more than 10) bowel movements a day is normal for post-surgical recovery, it should not be a permanent situation. If it persists, it can be a sign of some underlying infection and you should call your doctor. Assuming healthy tissue was reconnected, 2-3 times a day is normal, maybe less if you are lucky.

FOLLOW YOUR LOW FIBER DIET. You'll be on one after surgery. Follow it. It helps in recovery and healing.

The more you move around, the better and more quickly you'll feel better. GET UP AND WALK! I was up and down the halls here even before the NG Tube was out. Yeah, I know it feels weird walking with the catheter. Deal with it. You'll be grateful afterwards.

Don't be afraid of pain medication during your recovery. It's going to hurt like heck when you cough. The thing is you need to clear your lungs to prevent pneumonia. The meds help with this. I was rather liberal asking for morphine in the days following. I am not going home a raving junkie looking for my next fix of smack. I am also not stuck here with secondary lung issues.

The compression bandage helps prevent hernias. It is not foolproof. Don't be stupid in your movements, be gentle and conservative in your movement.

Jello is your friend. Get to like it, you'll be eating a lot of it in the first few days.

I am a Type 1 Diabetic. The food they will feed you is not going to be good for your blood glucose level. Hospitals have no idea what is good for us. It is what it is. Just make sure you are getting enough insulin.

Now, on a more personal level. Boredom is a mind killer. It's not conducive to healing. Like to read? Now is the time to catch up. Bring things to read or watch.

Be nice to your nurses. They have a hard job and a lot of patients are not pleasant. A little kindness and decency will go a long way when you really do need them. When you push that call button with every little ache, moan, and complaint, word gets around.

This one is going to sound silly. Do you own a Nannycam? Get one. Taking a look at home every now and then really helped me to keep my spirits up. I could check in on my new puppy. Mine has a speaker so I could even talk to him. I think it made him happy. I know it did for me.

Bill
Jan 28, 2020 4:24 pm

Congratulations! I hope everything keeps going well for you

Best wishes

Bill

d.b. mccrea
Jan 28, 2020 5:55 pm

Your insights were excellent, especially about being respectful of nurses. Despite my many health issues (4-time cancer survivor!), I always resolve that I will be polite and respectful toward all the healthcare providers. I strive to be the perfect patient!!

Posted by: infinitycastle52777

Yeah a year ago I wouldn't have known what to ask to find out I had a parastomal hernia. The only reason I knew about them is from this site. Thank goodness for this site. Otherwise I would still be clueless. If I hadn't though from stuff on here to ask my surgeon about having a hernia, then I would have never had the CT and I would have never known that she should have known about it a year ago. 

Puppyluv56
Jan 28, 2020 7:40 pm

Yay!!!! Congratulations and welcome home! Thanks for the great info. Especially for those that have a hope of a reversal in the future but also goes for any and all surgery.
You said it all! Thanks!

Puppyluv

w30bob
Jan 29, 2020 2:38 am

Currents,

Great insights. I'll second the "be nice to the help" comment. Each time I was in for an operation, I went out of my way to be "over the top" nice to everyone I dealt with. And I was always amazed at how "bitchy" other patients were and how bad they treated the people who managed their well-being. Not too smart to piss off the folks who are caring for you... yet many patients I saw treated them like crap. Be nice!

Glad you're home.

Regards,

Bob

 

My Ostomy Journey: LeeAnne | Hollister

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lovely
Jan 29, 2020 3:39 am

Glad you made it home and the advice about being good to the help goes for anything you may be in for. Thanks for the update.

britathrt60
Jan 29, 2020 6:06 am

Terrific news that you are home and....awwww I bet your little fur baby was thrilled to see you...best wishes.

Ange