COVID-19 Guidance for UK Ileostomy Patients

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Scott Chance
Mar 22, 2020 8:34 am

Has anybody (particularly from the UK) with an ileostomy received guidance to adhere to the social distancing provisions and stay at home for three months during the Coronavirus outbreak?

 

I can't see that we're listed on the group of conditions that the UK government is advising social distancing for but wondered if anyone had received medical advice to stay at home? I wondered might having an ileostomy give us further affects of the virus over and above the persistent cough and high temperature? Like possible dehydration from having to empty the bag a ridiculous amount of times? My system seems to deal with infections by flushing them out.

 

I'm currently going in to work as usual. My job involves dealing with the public. My employer can make provision for socially distancing staff to work from home but so far I haven't gone down that route as I don't want to be seen as abusing their good will. I had my ileostomy some years ago due to severe ulcerative colitis but am not currently immunosupressed.

 

Any advice gratefully received.

 

Mark1070
Mar 22, 2020 1:08 pm

Risk of severe illness is low for a 40 year old with no health issues. Do you have reason for concern? 

Past Member
Mar 22, 2020 2:36 pm

Yes I have been told to stay at home for 12 weeks, I have no immune system from meds I take for a health problem. It's respiratory virus so wouldn't affect your ileostomy but saying that they say you have a very bad cough with it so the only other added risk I can see is of developing a hernia from coughing. GP's will be writting/phoning all vulnerable patients from Monday 23 March to advice on what to do

Posted by: Bagface

Angelica- As usual, you've written another interesting post. February 5th, 2019, was my reversal surgery after having an ileo for 6 months. I'm one of those fortunate success stories. Of course, things are different now, and I still have to be careful about what and how much I eat, as I don't have a colon. At first, I was afraid to leave the house. My biggest fear was having to use a public bathroom and have the toilet not flush! Even now, when I know that I'll be in someone else's home, I won't eat anything beforehand. I read other people's stories and sometimes feel guilty for having had it so easy, not to mention that I have a significant other who is 100 percent supportive. I've gotten so much out of this website and truly feel for those of you who have it so much worse than I. But I feel it necessary to let folks hear about the success stories.

iMacG5
Mar 22, 2020 7:53 pm

Hi Scott. Hydration is always a consideration, and dealing with the public within close proximity would be out of the question for me. I can't imagine your employer considering your decision to work from home an abuse of their goodwill. On the contrary, I think they would respect your decision to protect yourself and be there to do your job well in the future.

Just my thoughts,

Mike

Puppyluv56
Mar 24, 2020 1:59 am

Everyone is asked to Social Distance themselves here. I don't feel my immune system is suppressed BUT, I have had chemo and/or Raiation 5 times! Just like the bunny, I keep on ticking! Lol I am over 60 though and for some reason, people think that is old! NOT! Lol better to be safe than sorry. If the offer to work from home is available, why take a chance by exposing yourself! I am retired but staying home. 
My Husband used to have to trick me to go the grocery store, (hate shopping)  now I am ready any time! 
It will get worse before It gets better.

Puppyluv

 

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