Dealing with Granulomas Around an Ostomy

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cdm
Mar 15, 2021 12:40 pm
Very helpful

How do you deal with granulomas around your ostomy? My surgeon said to just leave them there but they bleed when I'm changing my bag and I have to cut the hole a little larger.

 

Bill
Mar 15, 2021 3:35 pm

Hello cdm.

For years I had to cut my flanges in peculiar shapes to accommodate the changes in my stoma. I just thought that it was a small price to pay for the comfort and convenience of having a stoma rather than the alternative.

Best wishes

Bill 

Posted by: Nini4

Well,  I  hit the two year mark. I went back and read my posts from when I first found this site. I was very fortunate in that I stumbled upon it only 4 weeks post op. I have said many times that this community really saved me. The first 2 weeks after my surgery I shut down completely. It wasn't until about the 3rd week that my son came in to my room, flicked on the light and told me I was going to have to get back to living because I was scaring him. I had fallen into such a depression.  He  ticked me off,  but it also made me stop and think- what was I going to do? Feel sorry for myself and sulk, or be grateful I was alive. 

I've re-read my journals from that time and it was after my son kicked my butt, so to speak, I took an honest inventory and had to dig deeper than I've ever had to. I mean, I had survived a pretty nasty divorce, after a pretty crappy marriage and that was tough. But this was different. I felt like I was now a handicapped person who would be limited in their life and be looked at as a freak. My mental state was precarious, at best. 

But then I found this site. I just lurked a bit before posting. I read so many of the other stories and I started to see just how full my life can be, I was not handicapped,  and certainly not a freak! The stories of survival, the sense of humor, the support and compassion was inspiring.  It was then I made myself get out of the dark, and get my sh*t together.  

Not all rainbows and sunshine at first, hardly! But with grace from myself - to myself, and the kindness and willingness of the folks here to be supportive, non judgemental and openly share intimate details about their life circumstances,  l not only survived but thrived. 

I think of all the years I had suffered with such extreme pain, barely functioning,  and the many hospital stays and how that is all behind me now.  (All fingers, toes, and legs crossed that I never have to go near a hospital for myself ever again. I think I'd rather have a fork stuck in my eye. I loathe every about them.)  

So, to everyone who has been a part of this journey with me, to say thank you is not enough. I'm forever grateful to know you all.  My Angels, each one of you. 

 And as the Grateful Dead famously said,

"what a long strange trip it's been!"

Im so happy I'm tripping with you all.


DisneyRN
Mar 15, 2021 10:24 pm
Very helpful

If you have any ability to see a WOCN -we usually treat granulomas with silver nitrate. It can take a few treatments depending on the size but since the stoma has no nerve endings it doesn't really hurt but can really help get rid of them by shrinking them back down 

to locate a WOCN in your area contact your local support group/Facebook group to see if they know who sees patients outpt or call your local hospital and ask to speak to the in- patient wocn and they should know who/where any outpt wocn are locally. Sometimes the inpt wocn will see you even though they don't advertise having a true clinic

WOCN nurse 👩‍⚕️ 

w30bob
Mar 15, 2021 11:44 pm

Hi cdm,

  The WOCN nurse above hit it on the head.  Silver Nitrate sticks.  I'm not agreeing with her on the "no nerve endings and it not hurting" part, but they will do the trick. Took me a about 5 or 6 barrier changes (every other day), but they did get rid of the granulomas.  You can get them pretty cheaply on Amazon, or other places online.....no prescription needed.  I ordered a hundred just to keep a bunch onhand, but you can order 5 or 10 or whatever.  They look like really long matchsticks and they can be reused a few times before all the silver nitrate is used up on each stick.  The silver nitrate will liquify when it contacts moisture, so you just touch the the head of the stick to each granuloma.  It does burn, but just for a couple seconds or so.  Maybe if the granulomas are on surrounding skin there's no pain, but mine were right on my stoma.......and it'll make you grit your teeth.  So have at it!!  

 

regards,

bob