Can we talk about diversion colitis?

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413
forever mountains
Dec 28, 2021 12:16 pm

Diversion Colitis. 

Not freaking out but what a mind-f*#k!

I got into this mess because of the bleeding. 

Now the cure for the bleeding is causing more bleeding and the cure for that is apparently... wait for it... a reversal. 

What the heck.

Anyone have experience with this?

Much Love

Bex3000
Mar 26, 2022 10:51 am

I have Diversion Colitis - colitis from lack of use!  And I have colitis when in use!  So what’s the use?  My dr wanted me to try multiple enemas a day to try and get the diversion colitis to stop.  I couldn’t do it.  I work.  I live.  I don’t feel bad so who cares?  That is probably the attitude that got me my illeostomy in the first place.

Posted by: Audrey Warren

This site is a godsend. As a newbie (colostomy on Nov 8, '21), I look at it every day for a number of reasons. Reading what people are going through makes me grateful that my elective surgery because of a severe case of IBS-C is nothing compared to what they have been through and are still living with.

I don't have to go to the hospital for anything related to my ostomy. I feel sorry for those who do and am in awe of those who can use humor to describe their ordeal. I identify with those who express their fears. I especially identify with those who are depressed because I am clinically depressed and have general anxiety disorder. How ironic that having a colostomy eliminated some of the depression and anxiety that the IBS created. I've been widowed twice and I'm on match.com.
I immediately included my operation in my profile and am pleased to say it doesn't seem to make a difference.

And there is much humor on this site and it's one of the reasons I enjoy it so much.

I could name numerous things I've learned from reading people's comments/questions/answers.

After months following on a daily basis, my only negative comment is I don't like listing the most popular members.
It's not that I don't like these people; I do. It's that I think it elicits some "Facebook"-like banter or comments that are gratuitous.

I don't do any social media and think that its merits are overshadowed by too much negativity.

Meetanostomate is in no way negative. I just think the gallery of "popularity" detracts from what is an excellent website that deals with a serious issue that causes a myriad of emotions.

Past Member
Mar 26, 2022 2:34 pm

I’m sorry to hear that you each are plagued with Diversion Colitis. Sounds awful, although I have no idea exactly what it is.  Time to educate me?  (I have a colostomy necessitated by sigmoid colon destruction by prednisone and 12 cases of diverticulitis.).