I have had my colostomy "Colin" for a couple of months now after a blood clot stopped blood flowing to my colon and large intestines. I spent 16 nights in hospital, 3 in intensive care, and 10 x blood transfusions. I was bleeding out....
I'm recovering pretty well. But apparently my stoma site is high up and I am having problems with pancaking which blocks up around the stoma site and has led to blowouts. The worst was at a fine dining restaurant where only a tiny portion of my seal was intact. It was terrible.
I have tried adding more adapt oil into the bag before attaching, using the little dot to half cover the vent but they are not really helping greatly.
I have tried to drink more and have even resorted to Movicol to try to loosen the stool.
My surgeon suggested taking Benefiber each day but again I'm still having problems.
I am really active but my confidence is really taking a battering. I'm worrying all the time that I'm going to have a blowout. I had to change my bag two extra times a couple of days ago as I caught two very close calls.
Anatomically, there are no folds or issues why I'm having problems. The stoma opening is okay. The seal works each time but is forced up with the pancaking.
I don't know if I need to see a dietitian to find a better diet ....
As you can tell by my ramblings, I'm really concerned. I would really appreciate your advice, please.
Thank you, Gena