I don't have a clue because I've really had no one tell me how a stoma is supposed to feel. Mine has always been painful. I've told my doctor for a year now when I visit. Is it almost always painful with an ileostomy? I had my husband take a photo today of it clean after a bag change. Is mine supposed to look like this? I don't know if I'm supposed to add a photo of it here directly or not? For suggestions, let me know. Please. I'm worried and don't know what I should do. In the beginning of this ordeal, the hospital didn't give me a specific ostomy nurse or anything. Basically showed me once how to change the appliance and sent me on my way.
Why Join MeetAnOstoMate?
First off, this is a pretty cool site with 33,478 members. Get inside and you will see.
It's not all about ostomy. Everything is being discussed.
Many come here for advice or to give advice 🗣, others have found good friends 🤗, and there are also those who have found love 💓. Most of all, people are honest and truly care.
Privacy is very important - the website has many features that are only visible to members.
Create an account and you will be amazed.
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Hollister
Are you a caregiver for a child with an ostomy? In the summer months, this can become more challenging, thanks to heat, humidity, water activities, and travel plans.
Learn more about caring for children with an ostomy on vacation.
Learn more about caring for children with an ostomy on vacation.
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Hollister
Read our tips to help you prepare for air, ground, or cruise travel with a stoma.