I don't have a clue because I've really had no one tell me how a stoma is supposed to feel. Mine has always been painful. I've told my doctor for a year now when I visit. Is it almost always painful with an ileostomy? I had my husband take a photo today of it clean after a bag change. Is mine supposed to look like this? I don't know if I'm supposed to add a photo of it here directly or not? For suggestions, let me know. Please. I'm worried and don't know what I should do. In the beginning of this ordeal, the hospital didn't give me a specific ostomy nurse or anything. Basically showed me once how to change the appliance and sent me on my way.