Stoma and NG Tube Issues - Seeking Advice

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Jayfazer
Dec 11, 2022 12:51 am

Hi guys. New here. Looking forward to tips here. One quick question to the pros. I'm still in hospital 10 days after surgery. Stoma produced for a couple of days. Then froze up. NG tube in. Ever heard of this? Possible to start up in the next few days? Not sure how much more walking and chewing gum I can do here without throwing myself out a window. Thank you tons.

ron in mich
Dec 11, 2022 2:43 pm

Hi Jay, well, you mentioned what my surgeon told me to do 30 some years ago, and that was chew gum and also the ice chips in the glass of water. Good luck.

Posted by: Nini4

Well,  I  hit the two year mark. I went back and read my posts from when I first found this site. I was very fortunate in that I stumbled upon it only 4 weeks post op. I have said many times that this community really saved me. The first 2 weeks after my surgery I shut down completely. It wasn't until about the 3rd week that my son came in to my room, flicked on the light and told me I was going to have to get back to living because I was scaring him. I had fallen into such a depression.  He  ticked me off,  but it also made me stop and think- what was I going to do? Feel sorry for myself and sulk, or be grateful I was alive. 

I've re-read my journals from that time and it was after my son kicked my butt, so to speak, I took an honest inventory and had to dig deeper than I've ever had to. I mean, I had survived a pretty nasty divorce, after a pretty crappy marriage and that was tough. But this was different. I felt like I was now a handicapped person who would be limited in their life and be looked at as a freak. My mental state was precarious, at best. 

But then I found this site. I just lurked a bit before posting. I read so many of the other stories and I started to see just how full my life can be, I was not handicapped,  and certainly not a freak! The stories of survival, the sense of humor, the support and compassion was inspiring.  It was then I made myself get out of the dark, and get my sh*t together.  

Not all rainbows and sunshine at first, hardly! But with grace from myself - to myself, and the kindness and willingness of the folks here to be supportive, non judgemental and openly share intimate details about their life circumstances,  l not only survived but thrived. 

I think of all the years I had suffered with such extreme pain, barely functioning,  and the many hospital stays and how that is all behind me now.  (All fingers, toes, and legs crossed that I never have to go near a hospital for myself ever again. I think I'd rather have a fork stuck in my eye. I loathe every about them.)  

So, to everyone who has been a part of this journey with me, to say thank you is not enough. I'm forever grateful to know you all.  My Angels, each one of you. 

 And as the Grateful Dead famously said,

"what a long strange trip it's been!"

Im so happy I'm tripping with you all.


gentlejohn
Dec 11, 2022 5:19 pm

What kind of surgery? What kind of stoma? Sometimes ileostomies will have swelling and cause a temporary obstruction. This can be managed with a soft Robinson catheter placed in the ileostomy (personal experience). Post colostomy there is a worry about a small bowel obstruction someplace else. Sometimes people can have a prolonged ileus (bowel function not returned) but that is less likely at 10 days. Listen to your surgeon and do not depend much upon the Internet.

jetthumb
Dec 13, 2022 1:14 am

I agree about listening to your surgeon. I had an ostomy and was released from the hospital without it really functioning (major screw-up in recording data so they thought it was working and I didn't really know what to expect - there was a tiny bit of output in the hospital and they released me quickly). I was home for less than 24 hours and started throwing up because it wasn't working and there was a blockage and needed to come back to the hospital through ER and have a second surgery. It's not really clear to me why that ostomy didn't work, but it didn't. I now have a mucus fistula (original ostomy) that basically drains mucus and a "new" ostomy that actually works. Don't get released until you're sure that it is working! First passing gas and bile and then maybe they will remove ng tube and start you on a liquid diet. Keep walking and ask the surgery team what their plan is. Hang in there - I had an ng tube recently for a blockage and it's no fun.

Mom2Sons
Dec 13, 2022 1:51 am

Hi ... I was in that same situation about 4 years ago... NG tube and all. It was no fun but I have an ileostomy and I had post-surgery swelling causing the blockage. I agree, listen to your surgeon. I chewed a lot of gum and walked a lot. I was in the hospital 14 days. As much as I hated that tube it helped me feel better sooner. Good luck and hopefully you will feel better soon too.

 

My Ostomy Journey: Keyla | Hollister

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rpderose
Dec 13, 2022 10:27 am

I've had my stoma for over 30 years, 6 surgeries including one to move it. I've had an NG tube after all but one. I had a new surgeon that time and actually had to ask for an NG tube because I was so miserable. I'm one of those whose stomach doesn't wake up right away. Once it took 3 days, without the tube bile built up and has nowhere to go. The tube lets you pass it out of your system. My last 2 operations, I asked to have it in, and it was worth it for me. I know not everyone is the same but for me it worked until my stomach started working. Hope this helps and good luck.

Michael8257
Dec 13, 2022 2:49 pm

Hi. Better to stay in the hospital until your doctor is reasonably sure everything is working and you won't have to go back. I had the same situation. It seemed to be working and I went home after a week. I was back a few days later and in and out for the next four weeks before it all started to work consistently. It was brutal, but worth it as it's been six years and cancer-free.

schultzeterry
Dec 14, 2022 12:27 pm

Hi, sorry you're having trouble with your stoma. My first ileostomy was on January 6th, 2022, but even after a week, it wasn't working. So unfortunately, they went back in and made another stoma next to it. She works fine, spits everything out. She likes to hide sometimes, retreats like a turtle head, but eventually comes back out and works, sometimes too well. Hang in there, things tend to work out.