This is really just a vent - LOL. I went through the training for the Gattex last week (with my husband since he would be helping). And the feeling that it just wasn't the right thing to do yet was overwhelming. I decided not to start the Gattex. I may later but right now I don't want to risk the many side effects, deal with daily shots and know that the success rate is not very high. Maybe if I was on fluids all day rather than just a couple hours each evening I would feel differently but I have a (tentative) balance in place right now -- it's not great but at least I can get to work and pay the bills.
Unfortunately, my IBD doctor is not happy with me at all. She has been really pushing for this medication (I was feeling very pressured which didn't help). Of course, when she suggested it she didn't mention it was daily shots or the many possible side effects, etc. When I brought it up she told me it was "worth the risk" and it would keep me out of the hospital. It could also put me in the hospital since it can (possibly) cause blockages and other issues. I am already dealing with side effects from the Crohn's infusion, do I really need more!
I'm just frustrated at not feeling heard and maybe I'm overreacting about this medication but it scares me and I'm not ready -- why is that so hard to understand? Sigh.