Hey Mark,
So my colon wasn't moving at all, so it had to be removed. My colon not moving was due to some other issue.
Because of my pelvic floor dysfunction and severity, I knew my ileostomy was going to be permanent. I have had my ileo for a year. Now when I first had my ileo, my first surgeon did it as a loop ileo but was permanent. He did a loop because of the mucus and the rectum, with a loop the mucus is supposed to go into the bag vs the rectum. But that theory has been proven false. I ended up getting a second surgeon and got an end ileostomy and rectum removal. When he went to remove my rectum, it was so badly packed with mucus. To answer your question, yes, it hurts having mucus being stuck in there and your body wants to push it out but your muscles won't let it, so it just sits there and you can feel it all the time. (Well, I could, not to scare you, just want to be real and honest). Now he took my rectal stump but left my anus, so the healing was a little bit different than taking both the rectum and anus. The complications weren't as high, since I still have my anus, I didn't have an open wound. I did still have a drainage tube when I woke up from surgery. And no, I can't pass anything out, literally even water out of my bum.
I will tell you that if a surgeon is telling you not to take the rectal stump or both the rectum and anus and they know you have pelvic floor dysfunction, run away from them. They don't grasp the concept of the fact you won't be able to pass mucus and they will have to turn around and do it after, or you will fight with them trying to plead your case when you already know what your body is doing. Go for the doctor that listens and has some concept of pelvic floor dysfunction. Now I will tell you it isn't common, so a lot of doctors haven't had many cases. We are special and unique. Go with the doc that is listening to you. Do you feel comfortable with the doctor that brought up the surgery?
Don't be scared, think how your life will improve. Living with pelvic floor dysfunction sucks horribly bad and honestly it took them my entire life to find out what was wrong. I haven't been able to go to the bathroom since the day I was born, lived on laxatives in pain all the time, sick to my stomach. I honestly love my ileo and I now have a life where I couldn't hardly get out and go anywhere before. You got this, you are strong and brave, and God will carry you all the way. We are all here to support you, and if you ever need anything or need to talk, have questions, write me anytime! Ostomystrong, ostomywarrior