Seeking Advice on Managing Peristomal Hernia Issues

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jadegenie40
Jan 16, 2009 9:07 am

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HELLO TO ALL. IS THERE ANYONE OUT THERE IN CYBER-LAND KNOW ANYTHING ABOUT PERISTOMAL HERNIA'S?? I'VE HAD MY HERNIA FOR BOUT 18MTHS NOW BUT THE LAST COUPLE OF MONTH'S THE HERNIA IS TWICE AS BIG,MY STOMA IS RETRACTING INSIDEME,I'M BLEEDING ALL THE TIME, THE PAIN IS UNBEARABLE, ALSO THE STOMA KEEP'S TURNING AN OFF WHITE COLOR?? COULD ANYONE GIVE ME SOME ADVISE ABOUT WHAT I SHOULD DO. THANKYOU VERY MUCH. jadegenie40........
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Past Member
Jan 17, 2009 12:49 pm
jadegenie, we have 2 nurses on this forum who should be along directly to help you out. you might want to post this same question in the ostomy{very top} section of this forum. i see this is your first post so welcome to the forum  
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Justbreathe

MeetAnOstoMate website turned out to be a lifesaver for me. I say this because, for me, this ostomy journey was a devastating event both physically and mentally.
Here, I found folks who understood my feelings even better than my family or friends could. Only a fellow ostomate can understand how you really feel.

Information sharing is key, as well as support and understanding, to ultimately bring more harmony into our ostomy life journey. I found here, virtually no ostomy questions that are not touched upon. Questions which some might feel, may be too trivial to contact a doctor about or even too shy or embarrassed to ask their own doctor about. They are all addressed here.

For me, anonymity was very helpful in seeking answers to each phase of this life changing medical and mental event. Sharing initial trauma feelings, ongoing support and finally acceptance was what I found with my membership here. I am not sure what my mental and physical attitude would be today without having found this site.

Additional benefits included: finding products and ideas to help with daily maintenance, innovative ideas and as a bonus - some great humor.
After all “laughter IS the best medicine”.

I have been a member for 3 years, an ostomate for 4 years - yes, I certainly wish I would have found it immediately after surgery but so very thankful I finally found it when I did as I truly believe it turned my troubled depression and situation into a more positive attitude and acceptance.

Sincerely,
An Ileostomate nicknamed Justbreathe 🫶🏼

vulcanBMk2
Jan 17, 2009 10:23 pm
I would get straight to your Docs or Hosp ASAP & get them to take a good look at it-----I it was me , I wouldnt wait!!!!!!
Whoa
Jan 18, 2009 8:56 pm
Jadegenie40
Welcome to the forum

I would follow Vulcan's advice and see your surgeon as soon as possible...if he is going to postpone appt. (wks down the road), then go into urgent care.    Peristomal hernias are usually more unslightly and a nusiance with clothing, pouching, etc than dangerous, but there can be exceptions.  I don't know your history.  I would advise keeping a low residue, low fiber diet and drinking plenty of fluids to prevent constipation.  Stomas can change color, but to gray or whitish, I am concerned re: blood supply.   Best to get it checked out.

The bleeding may be from your appliance opening being cut too small.  I recommend measuring your stoma while in a sitting position as the stoma is usually at it's largest due to hernia pressure, then measuring and cutting the opening about 1/8th " larger.

  Hernias do usually get larger in size over time, esp. if not usuing a support belt and if not cautious about preventing abdominal strain /pressure.  Surgeon I work with says 50% of all ostomy patients get hernias.   The surgeon can give you options re: repair.

good luck and let us know what happens.
sandib
Jan 19, 2009 2:35 am
Jadegenie40...I'm so glad that you wrote in the forum.  I've been watching for you since our little chat in the chat room.  I know you filled me in on a little more than you did here, but don't ever hesitate to ask some of your other questions you had.  Everyone in here is so helpful in one way or the other. If not for information, some of them can sure lift your spirits. And as I told you, the nurses information is very good in my opionion.   Hopefully, the gal that's in your area here in the forum can give you some of the other information we were talking about.
Please take care of yourself and keep us informed.  SandiB
 

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tarababy
Jan 22, 2009 3:10 am
Jadegenie40, going to the doctors sounds like a plan to me...If my stoma changed to that colour I'd be freaking.And probably waiting at the door when they opened.Things that you have explained dont sound very normal to me...Please keep us informed on how you go..And I can only wish you the best of luck in getting it sorted real fast.    
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