HELLO TO ALL. IS THERE ANYONE OUT THERE IN CYBER-LAND KNOW ANYTHING ABOUT PERISTOMAL HERNIA'S?? I'VE HAD MY HERNIA FOR BOUT 18MTHS NOW BUT THE LAST COUPLE OF MONTH'S THE HERNIA IS TWICE AS BIG,MY STOMA IS RETRACTING INSIDEME,I'M BLEEDING ALL THE TIME, THE PAIN IS UNBEARABLE, ALSO THE STOMA KEEP'S TURNING AN OFF WHITE COLOR?? COULD ANYONE GIVE ME SOME ADVISE ABOUT WHAT I SHOULD DO. THANKYOU VERY MUCH. jadegenie40........
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jadegenie, we have 2 nurses on this forum who should be along directly to help you out. you might want to post this same question in the ostomy{very top} section of this forum. i see this is your first post so welcome to the forum
I would get straight to your Docs or Hosp ASAP & get them to take a good look at it-----I it was me , I wouldnt wait!!!!!!
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Jadegenie40
Welcome to the forum
I would follow Vulcan's advice and see your surgeon as soon as possible...if he is going to postpone appt. (wks down the road), then go into urgent care. Peristomal hernias are usually more unslightly and a nusiance with clothing, pouching, etc than dangerous, but there can be exceptions. I don't know your history. I would advise keeping a low residue, low fiber diet and drinking plenty of fluids to prevent constipation. Stomas can change color, but to gray or whitish, I am concerned re: blood supply. Best to get it checked out.
The bleeding may be from your appliance opening being cut too small. I recommend measuring your stoma while in a sitting position as the stoma is usually at it's largest due to hernia pressure, then measuring and cutting the opening about 1/8th " larger.
Hernias do usually get larger in size over time, esp. if not usuing a support belt and if not cautious about preventing abdominal strain /pressure. Surgeon I work with says 50% of all ostomy patients get hernias. The surgeon can give you options re: repair.
good luck and let us know what happens.
Welcome to the forum
I would follow Vulcan's advice and see your surgeon as soon as possible...if he is going to postpone appt. (wks down the road), then go into urgent care. Peristomal hernias are usually more unslightly and a nusiance with clothing, pouching, etc than dangerous, but there can be exceptions. I don't know your history. I would advise keeping a low residue, low fiber diet and drinking plenty of fluids to prevent constipation. Stomas can change color, but to gray or whitish, I am concerned re: blood supply. Best to get it checked out.
The bleeding may be from your appliance opening being cut too small. I recommend measuring your stoma while in a sitting position as the stoma is usually at it's largest due to hernia pressure, then measuring and cutting the opening about 1/8th " larger.
Hernias do usually get larger in size over time, esp. if not usuing a support belt and if not cautious about preventing abdominal strain /pressure. Surgeon I work with says 50% of all ostomy patients get hernias. The surgeon can give you options re: repair.
good luck and let us know what happens.
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* Certified Wound and Ostomy Care Nurse
* Registered Nurse
* Bachelor of Science in Nursing
Jadegenie40...I'm so glad that you wrote in the forum. I've been watching for you since our little chat in the chat room. I know you filled me in on a little more than you did here, but don't ever hesitate to ask some of your other questions you had. Everyone in here is so helpful in one way or the other. If not for information, some of them can sure lift your spirits. And as I told you, the nurses information is very good in my opionion. Hopefully, the gal that's in your area here in the forum can give you some of the other information we were talking about.
Please take care of yourself and keep us informed. SandiB
Please take care of yourself and keep us informed. SandiB
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Jadegenie40, going to the doctors sounds like a plan to me...If my stoma changed to that colour I'd be freaking.And probably waiting at the door when they opened.Things that you have explained dont sound very normal to me...Please keep us informed on how you go..And I can only wish you the best of luck in getting it sorted real fast.
