Wow, am I glad it's summer! Love, love, love the weather! It's nice to get out and about! The only thing upsetting me is that I can't get my PICC line wet, and my little boy is 4 and I'm trying to teach him how to swim, but it seems nearly impossible not to get your arm wet. I recently got an infection in my PICC line, and the doctor who put it in (this was my 7th one) said it would be my last, so now we are looking for other ways to try and get TPN in my system without getting a feeding tube. Anyways, life is good. I've set a new record for myself - haven't been in the hospital since the end of April. That's a miracle! The TPN and Solu-Cortef (don't know how to spell it) - a steroid that goes directly into the PICC line - has made me able to be more active. I feel like a kid again. I told my doctor he couldn't wipe the shit-eating grin off my face if he wanted to....lol! It truly is the little things in life that matter - a smile from our children's face and a kiss from our spouse or significant other or family - heck, all the above. Life can be devastating, but if you search, you can find happiness no matter where you look. It's all in how you look at the "big picture" - sounds corny, but speaks truth. My husband and I are going to an exotic location for a vacation. We haven't had one since we eloped and got married in Florida on the beach 5 years ago. His only stipulation is to have a good hospital nearby. Great, anyone know of any, lol! Can't wait though. My husband says that this is our year. Oh, and we got disability after fighting for it for 3 years... so maybe he's right! Right now, I'm blessed and it's nice to be able to have good things on your mind instead of bad. I'll leave on a happy note - I gotta decide where we're going on vacation.... hopefully I won't get sick and have to postpone like usual. Knock on wood.
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