Hi, new to this site. Sure wish I had found this site back in 2010 when I had to have my rectum removed for Stage II cancer. I had an ileostomy for 13 months then had a reversal at my ex-husband's insistence. I stumbled through wearing bags, accidents, embarrassments, then after the reversal I managed to survive...on loperamide. I take 3 2mg tabs every 4 hours, but it allows me to live a semi-normal life as long as I stick close to home. The frustrating part of all this was the lack of information out there, or anywhere for that matter. I was pretty much left to figure things out on my own. Everyone seemed to be of the opinion that I had survived, what more did I want? Well, even though I have survived for 10 years after my reversal, I never really got answers to my questions. I experienced a few bouts of intestinal blockage and trips to ER taught me that all they do is hook you up to morphine for the pain and an IV so you don't dehydrate on their watch, then send you home after they determine you have passed the blockage. Which left me with the impression that they didn't know what to do about it either. I stopped going to ER. Does anyone know where I can find real information on intestinal blockage, causes, treatments, etc. I'd appreciate any information, probably as much as anyone reading this wishes I had just asked this at the beginning. Sorry about that, but thanks for any information.

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Your stoma care nurse can be a valuable resource when you need help.
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We sat down with two influential people in the ostomy community, to find out how they cope during challenging times.
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