Hey all, cheers to each of you. I hope everyone is doing well! I know only a few are comfortable enough to reply on some of these subjects, and many are reserved about their privacy, and I totally respect and understand that. Xoxo .... But for those of you who don't mind discussing it, I'm tossing this question out there because I would really love to get your input.... If you've been on Remicade in the past or currently receiving the infusions... Or know someone who has been on it, etc..... I am hoping to hear of experiences and any personal side effects you may have had....... I was on the IV meds for approximately 3 years, and it did wonders for me. It healed me and saved me from having another surgery and put me back in remission with only minor side effects.... BUT.... I have been off it for nearly three years now, and I realize it is a HIGHLY risky med to begin with, but also discovered through medical study sites that NO ONE who has been off Remicade for 16 months or longer should ever be put back on the stuff because our risks of severe reactions and..... Fatal reactions...... Are "significantly higher," and it is very dangerous..... Everything from heart problems to blood cancers, liver damage, nerve damage, and an entire VERY long list of other horrific things..... Yet, my Crohn's is currently flaring like a demon, and my doc, despite the warnings, is urging me to begin Remicade treatments again by the 18th of this month actually.......... I am not at all comfortable with this :/ .......... My sweet friends, I am really having a difficult time deciding what to do............ 'Yes' to Remicade again ...or 'no'........ ??????? The severe reactions are wild, and the med is still quite controversial. I see it as a 'double-edged sword' .............. I also discovered legal websites describing in detail the dramatic increase of lawsuits due to the serious and life-threatening perm probs Remicade has caused patients....... And they are winning their cases...... Not to mention the deaths Rem has caused ......... YIKES. .... If you've had personal experience with Remicade OR if you know the facts about the meds, or simply have a gut feeling you'd like to share, I would deeply appreciate your personal opinions on the matter......... Much love to you all!! Please stay healthy and well .....xoxo ~Your Doe

Experiences with Remicade: Good or Bad?

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Marco789

How did this work out for you? I was on Remicade for 2 years. It worked great for me until it suddenly caused an LLR (Lupus like reaction). Almost all of the bones and joints in my entire body were in severe pain for several weeks. It was horrible. I'll never use the stuff again.

Peace and love

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