Seeking Ostomy Belt Advice - Best Options and Trusted Websites?

Replies
20
Views
17637
kevs1981
Mar 20, 2014 11:16 pm

Hi all, I've been reading through this site's many useful posts and I'm still unclear as to the use, pros, and cons of the ostomy belt.

I've been to many websites and there are dozens to choose from. I've been nearly six weeks post-op for my stoma and am starting to get out more, with a view to returning to work in a month or so. The advice given is helpful, but as an ostomy 'noob', I'm still unclear as to the benefits of using a belt.
My care nurse never mentioned anything to me about belts or mufflers. She wasn't very helpful with most things, actually. I've learned more from this site than from any discussion with my doctor or stoma nurse.

I would like to ask any and all the ostomates what their choice of support belt is and why. I would love some added security that isn't too bulky or restrictive, and you, my friends, are the best to ask.
I've been to websites that sell them, but the reviews seem a little biased and some just sound made up altogether ("This changed my life"... says the young man on the jet ski. "I wouldn't be without it"... the young attractive woman on a rock climbing wall).

I would also love any links to trusted websites that sell belts... (as cheap as possible would be fantastic)

Hope you're all well and thanks in advance.

Bill
Mar 21, 2014 6:49 am
Hello kevs1981.  I use a belt as both a hernia support and prevention. I have tried all sorts and none of them are entirely satisfactory. The main hernia that causes a problem is just behind my stoma and the normal belts do not offer enough support with this. I have made my own out of a small piece of skirting board shaped to my own requirements and held on with elastic belts butchered from other equipment. The hernia-prevention belt best suited to my purpose was one that does up with velcro and is manufactured by CUI.  They were also  very helpful in making me one up to my own specification.  The problem I found with most belts is that they are not adjustable enough to cater for the change in stomach size over time. (this can change for me in the course of a day!) so although they may fit snuggly at first, if I lost weight they were too loose and if I gained weight they were too tight.  The CUI belts allow me to instantly adjust the belt to what is needed at the time.
I hope this is helpful.  Best wishes Bill
Immarsh

Hi All, If you have an " old" or recent ostomy, this is the place for you. I think I've been a member for more than 15 years, but I have had my surgery, since I was a kid of 15 ( do the math-that's more than 60 years ago). As a teen, with a new ostomy ( for Ulcerative colitis) my parents dragged me off to my first ostomy association meeting. I wasn't happy, but in the long run, it's the best thing that happened to me. I met others, older, and teens like me, adjusting to the changes. A group of us started a Young adult group, and helped each other, and even visited kids who were new to the world of ostomies. But soon I married, and moved out of state, and although made some connections with other NJ ostomates, I became pretty much isolated. Until I discovered MaO. By then, I was having a myriad of other medical issues, and my aging stoma " wasn't doing well". I received a lot of help and support from members! I was pleased that I was also back to supporting others. I met a gal on line (from Papua New Guinea) who was trying to help ostomates in her country. There is a scarcity of supplies in some other countries, and unlike the US, insurance to pay for supplies isn't available. When my son followed his "love" twenty years ago, and moved to Australia I took advantage of an opportunity to help other ostomates. On one of my first visits to Oz, I brought a suitcase full of Ostomy supplies, handed them off to an Ostomy assoc. On the Gold Coast, who then had a friend take them to PNG. They were grateful for the help, and Janet and I still write.. This is the place to be, if you need help, and it also gives you the opportunity to provide help and support to others. Feel free to write, if you'd like to chat, about things ostomy, or life in general. Best REgards to all.. Marsha

Monsieur Le President
Mar 21, 2014 8:51 pm

I just wear a Hollister belt that simply clips on to the flange of my two-piece Convatec Sensura bag.
It is a simple elasticated adjustable belt about 30mm wide.
It just adds security for if the bag gets a bit full and feels like it may pull away.
It doesn't add any "protection".

Virgo
Mar 23, 2014 10:28 am

Hi Kev
As Monsieur le President, I wear the same belt. I find it helps to support the bag if it fills and is unable to empty. I also find that it stops the poop from seeping in under the flange when it 'mushrooms'. The belt is very comfortable and gives me a better sense of safety, knowing that there won't be any "shitty" incidents out in public. The belt will only be supplied 6 weeks after surgery.

fb202
Mar 23, 2014 4:43 pm

I use a stealth belt when I'm going to be active. Very comfortable and supportive. Hold the bag to the side so you don't pinch the bag.

 

Staying Hydrated with an Ostomy with LeeAnne Hayden | Hollister

Play
cruznby
Mar 23, 2014 4:49 pm

At first, I didn't think it was really needed, but as years went by, I realized how important it really was. The weight of the pouch will eventually create a skin issue below the stoma. At least, this was my take on it. Now, I even wear it to bed for that insurance! Good luck.

Past Member
Mar 23, 2014 6:06 pm

I still use it quite often, but mostly when going out for sexy time. I do not use it for hernia prevention, and I'm not even sure it's designed to be used as such.



One note though: while they do have a vertical stealth belt, the traditional style is horizontal and many pouching systems don't allow the pouch to be rotated easily. I use Coloplast Sensura Click and it works well.



For basic support, a maternity wrap is cheap and easy to use.

cornwallp
Mar 23, 2014 6:06 pm
Hi,

It is essential to get some colostomy support. There is a 50% chance of getting a sub-stomal hernia, and the odds are far greater if no support is worn. I did not wear one, and now I have to put up with a hernia. Most companies will let you try and buy, or you could just try a sports support belt. Don't make the belt too tight; it must be comfortable - adjust it so the stoma still works properly.

If I could afford a stoma 'armor belt' - look up - http://www.ostomyarmor.com/ - I would certainly buy one if I could afford it. There are pages showing how they are constructed. I'm planning to make one from a piece of polycarbonate - called acrylic in the UK.

Finally, go back to your Stoma Nurse and ask for some advice - it's important.

All the best,

Paul
cee
Mar 23, 2014 7:21 pm

Hi,
I was told by my ostomy nurse post-op to wear a Convatec ostomy belt all the time. This is the kind that clips to the pouch. I have a skin "dip" very close to the opening and the belt pulls it flatter to try and protect the skin there. I also have a cover wrap for intimacy...5 years in and I have never gotten a hernia of any sort. Three bowel obstructions but no belt helps with that.

Wilski
Mar 23, 2014 7:49 pm

I used Nu-Hope colostomy and ileostomy belts for 8 years. They come in different sizes and widths. I do agree that wearing one in the beginning is essential to preventing a peristomal hernia. I had the hernia and 7 years later I had an obstruction which led to an ileostomy and colostomy closure. I'm happy to say, I am bag free now after my recent reversal. Good luck!

TB Cat
Mar 23, 2014 9:04 pm

I use a two-piece pouching system with a belt when I have problems caused by leaks and my skin is raw or weeping. There are two types of systems using belts. One is like the Hollister system where the belt attaches to the pouch wherein the belt must be removed if you change just the pouch and not the flange against your skin.
The other system, (my preference) is the type where the belt attaches to the flange that is against your skin. This is the Convatec Sensura System. In any case, I also use an additional seal such as a Hollister Adapt no. 7805 for added confidence.
When I'm all healed up, I use the Cymed MicroSkin single pouch system which is very comfortable and provides me 5-6 days of wear time.

Claire59
Mar 24, 2014 9:26 pm

Because of leaks, I have tried various manufacturers and also need a belt. I have found it's best to use the belt of the manufacturer you are using; otherwise, it's impossible to hook up. Good luck.

Monsieur Le President
Mar 24, 2014 10:16 pm

I use a Hollister belt with Sensura bags because I can't find any Convatec.

Any ideas?

kbd
Mar 25, 2014 10:37 pm

During the day I wear a Nu-Hope 4" ostomy belt. It provides support for the skin around my stoma. Hopefully, it will also help prevent a hernia. At night, I wear a little 1" elastic belt for support when I sleep. It's more comfortable than the 4" belt for sleeping.

kevs1981
Mar 26, 2014 2:45 am

Thanks for the response everyone, it's been so helpful in choosing a product. I've found several websites that sell them, but some are way out of my price range at the moment.

I did find a U.K. company that sells the products suggested pretty cheap and for those of us living in England, we can actually get them on prescription.

http://www.ostomart.co.uk/home/

I've ordered some free samples of products and a brochure from them, so I will post how this goes.

Now all I have to do is ask my doctor to write me up a prescription for the ostomy belt. Hopefully, I should have it in time for my return to work.

Thanks again, guys.

kevs1981
Mar 26, 2014 2:52 am

And on closer inspection of the home page of Ostomart..........I've found that their company headquarters is 5 mins from my house.......

kbd
Mar 26, 2014 3:03 am

Cool

MarianC
Jun 07, 2016 9:13 pm

I will have to ask my ostomy nurses about this hernia possibility. No one said anything to me about that. I had a colostomy.

Marian

kbd
Jun 07, 2016 11:08 pm

With a hole in your stomach, and the weight of the bag pulling at that area, an ostomy belt is a very good idea.

Cragg
Jul 31, 2018 5:42 pm

Thank you

Little Red
Jul 31, 2018 7:11 pm

I am almost new to this. A year or so has gone by since surgery. I have already had a hernia repair when my gallbladder was removed. A year after my bowel surgery, I have never been told anything about hernias or belts. They were never mentioned. I now have developed an umbilical hernia. So I will be checking into a belt and thanks for all the information.