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I BADLY NEED Y'ALL'S OPINION...HELP

Gus
Sat Dec 19, 2009 12:52 am
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Txgirl wrote:
lmao..y'all are rediculous!!  lol....now, I actually  TRIED to highlight and I don't know how!! lol

I am feeling better since my kids are here for Christmas. It's been nice.
Saw my doc and didn't get good news for the reversal. He said it was goinbg to be very very difficult to do.  He said my risk for complications and leaks are pretty high. So....what do I do with that bit of info? Well, what I have done is just decided to enjoy NOW and tey not to think of the future. lol  Denial, it works for me. lol

I got released to go back to work on the 4th of Jan for 4 and a half hr shifts for the 1st month. He told me to watch for increased pain around the stoma and constipation which i have all the time.

I have a question...is it normal to have so much pain around the surgical site of the stoma? (not the irritated skin but a large area around the stoma)
Also, is it normal to have constipation for several days and then have horrible, copious amounts of diahrreah?  what a nice Christmas topic, I know...lol

Loive and hugs and inappropiate touches, Hannah Banana


I still get pain babnana lady. Sometimes around the stome some times deeper. And your surgery is fairly recent. Give it more time and frankly if the doc says its gonna be hard to do I person ally would bite the bullet and keep what i got. But thats my way of thinkin. What have you lost if you keep your stoma? and how has it changed my life. For the runs I reckon maybe increase the fibre, even take a bit of bran with your cereal. Avoid the foods you know are causing you to get the squirts and evereything should settle down eventually. Patience is the key.

oh,, and any inappropriate touches are truly wellcome hehehe,, just watch the sword ok?
These are the top 5 issues ostomates face:

1. Dating and relationships
2. Concealing the pouch
3. Foods to eat and avoid
4. Losing or gaining weight
5. Pouch ballooning

Check out this video from MeetAnOstoMate.
Sat Dec 19, 2009 4:39 am
Hi Hannah.... Ummm, constipation followed by copious amounts of diarrhoea doesn't sound right to me? Maybe you have overflow constipation, where only liquid is passing through past a 'blockage' of constipated stool? Pain around the site might also be due to that, remind me... ileo or colostomy and are you taking anything to regulate things?
Glad to hear you are feeling a good bit better than you were though, and nice that you are able to get back to work for a bit of normality. Take care
Rachel xx
Gus
Sat Dec 19, 2009 5:25 am
                                 
lottagelady wrote:
Hi Hannah.... Ummm, constipation followed by copious amounts of diarrhoea doesn't sound right to me? Maybe you have overflow constipation, where only liquid is passing through past a 'blockage' of constipated stool? Pain around the site might also be due to that, remind me... ileo or colostomy and are you taking anything to regulate things?
Glad to hear you are feeling a good bit better than you were though, and nice that you are able to get back to work for a bit of normality. Take care
Rachel xx


Silly me I overlooked that Rachel, what a dope i is,,
Sat Dec 19, 2009 12:07 pm
                                 
Txgirl wrote:
lmao..y'all are rediculous!!  lol....now, I actually  TRIED to highlight and I don't know how!! lol

I am feeling better since my kids are here for Christmas. It's been nice.
Saw my doc and didn't get good news for the reversal. He said it was goinbg to be very very difficult to do.  He said my risk for complications and leaks are pretty high. So....what do I do with that bit of info? Well, what I have done is just decided to enjoy NOW and tey not to think of the future. lol  Denial, it works for me. lol

I got released to go back to work on the 4th of Jan for 4 and a half hr shifts for the 1st month. He told me to watch for increased pain around the stoma and constipation which i have all the time.

I have a question...is it normal to have so much pain around the surgical site of the stoma? (not the irritated skin but a large area around the stoma)
Also, is it normal to have constipation for several days and then have horrible, copious amounts of diahrreah?  what a nice Christmas topic, I know...lol

Loive and hugs and inappropiate touches, Hannah Banana


Ah man!   I've got to put my 'serious' hat on again!!!!   Hold on.... o.k. I'm ready.

about the reversal.....   Hopefully  this is not the kooky doc who messed things up the first time around. I feel soooo strongly about second and even third opinions when it comes to going under the knife.  My first surgeon was a butcher and I kicked him to the curb immediately.  Thank God, otherwise, I'd be unnecessarily stuck with a permenant ostomy, a hysterectomy (which I did not need), AND an incorrect cancer staging diagnosis.   I did my research and found the very best surgeon at Johns Hopkins.  She is brilliant AND she has bedside manners one would expect from family. I thank God every day for her.  Perhaps your doc is right and the complications would make the reversal too risky, but ........ perhaps he/she is not privy to all the latest technologies and/or techniques to successfully perform the reversal. I'd be happy to forward my surgeon's contact info if you'd like; I trust her implicitly! It's such an important decision and one that will impact you for the rest of your life. O.k I'm finished with my surgeon/second opinion soapbox! Smile

now about the pain around the surgical site of the stoma.....and the constipation.  Yikes....I had neither so I can't speak from experience.  Are you getting enough water(to alleviate constipation, that is)? I'm sure you are....  it just doesn't sound right...I'd be concerned too.  Is your stoma nurse helping you?  He/she should be coaching you through this transition you're going through.  I was fortunate enough to have a stoma nurse come to my home once a week for 2 months during that transistion. ..... but I never had pain.  

Hang in there girl and let me know if you want my surgeon's info... I know you have a lot on your plate right now.  take one step at a time!
Sharon
Past Member
Sat Dec 19, 2009 12:50 pm
                                 
Txgirl wrote:


I have a question...is it normal to have so much pain around the surgical site of the stoma? (not the irritated skin but a large area around the stoma)
Also, is it normal to have constipation for several days and then have horrible, copious amounts of diahrreah?


quite possible you still have some swelling that might be restricting things. also quite possible, since you are new, you are avoiding foods you might think will cause excessive output{dont we all}. anyhow if you go a few days without output...your body will produce a
lubricant...and your system will then empty...ie you will "go" till you think you can go no more...this is often{always for me} preceded by cramping that will remain "sore" for possibly a few days. a sure sign is the lubricant... it will look "oily" in the toliet when you empty things....are you seeing this?? anyhow...once this process starts...no amount of any anti-diahrrea meds will have any effect...you will go till your system is empty...and will be a day or 2 till you go again. again with the cramps and resulting soreness {and stress} you will feel a bit "wrung out".... is any of this "ringing a bell"??
might possibly want to run this by whoa in the "ostomy questions" forum{top of page}
since my opinion is based soley on my own experiences. i would strongly suggest that you ask dr. when and if you could irrigate as this will help you beyond what you can imagine.
good luck and keep us posted of your progress. do not give up....do not give in....peace
Sat Dec 19, 2009 9:22 pm
Hey sweet Hannah Banana .... In my experience, it's not uncommon to have that pain in stoma area for a few reasons, it sometimes takes a long time for that to reduce ...the discomfort and pain...it's not been that long since your surgery and of course everyone is different....but if it gets worse just make sure you tell your doc honey.........as for the constipation (another reason for some of that pain of course) the more you drink, the better ... 100% grape juice and 100% apple juice and lots of water and organic caffine free teas...stay away from soda...nibble on things like capers they are known to help reduce inflammation as a natural method.......and then as for the sudden letting lose of it all....again, in MY experience, episodes like that have to do with fluctuation in intestinal inflammation...........best thing is get as much rest as you can and watch what you eat yet for awhile.....when things get squirty and watery try some cream of wheat 'n toast (stay away from white breads, helps me anyway...make sure you drink, drink, drink...keep yourself hydrated well when that happens....keep us all up-to-date with how you're doing, I betcha you can tell how much we care! Smile  muah!  hugs from your crazzzeeee sistah Doe!
Gus
Sat Dec 19, 2009 9:29 pm
Wow i never knew FMF had a serious hat,,learnin things all the time,,

How ya feelin Hannah,,

Hya FMF, and g'day to the rest of yas,, I still have FB lol
Sat Dec 19, 2009 11:33 pm
...all very good answers! Thanks guys. Smile

Here's some more info, I should clarify some stuff...I have a colostomy. The output has been very regulated, between 9 & 11 am every day. Consistancy of toothpaste  normally ( sorry, too much info ). It has happened several times, I won't have any output at all, loads of gas for a couple days. Then BAM...poo galore..cramps and all!!! I had to completely change the bag out 4 times throughout the night 2 nights ago. No output except tiny hard poos early this morning and thats it.
The doctor that I saw is not the one that is doing my reversal. He is the one that gave me the colsotomy after the gyn doc cut my colon, a large 4 cm perforation. He said he is glad I am not having him do the reversal, he said he doesn't feel capable since it will be so difficult.
He also told me to NOT eat fiber, he told me to stick with low rewsidue foods..is that the same thing? lol Anyhoo.....he told me to call him asap if I go longer than 3-4 days with constipation....seems an odd request. Why is this?
Oh, also, the pain is a deep, boring pain deep under and around the stoma area...it bores into my back as well.

Kisses to all.....Me
Sun Dec 20, 2009 5:40 am
Hiya girl, yeah low residue = low fibre, though how that gonna shift it all not sure - drink, drink, drink like Doe says i think is a good idea, but sounds like you may have some narrowing somewhere behind the stoma where its all sticking and giving you the pain - I get it when I've eaten stuff and not chewed as much as I should, though have been given some stuff called Colofac (Mebeverine) which has helped with and lessened the spasms, think they use it for IBS generally. Good luck with it all, Rachel xx
Sun Dec 20, 2009 12:27 pm
awesome, thanks Rachel.
That's what I am wondering too. This morning, nada, except a teeny, tiny, narrow hard piece of poo...lol..
I drink all the time, lol, that sounded bad, I drink water, juice, etc. I think I have a rogue stoma!!!!
How long do I go without any poos before I know I have issues? lol
Sun Dec 20, 2009 1:14 pm
                                 
Txgirl wrote:
awesome, thanks Rachel.
That's what I am wondering too. This morning, nada, except a teeny, tiny, narrow hard piece of poo...lol..
I drink all the time, lol, that sounded bad, I drink water, juice, etc. I think I have a rogue stoma!!!!
How long do I go without any poos before I know I have issues? lol


I suspect you have issues now! I would try see someone before the holidays to check it out, you don't want to be bad on Christmas Day! xxxxxxxx
Sun Dec 20, 2009 1:23 pm
Rachel,
            That's very true, I don't want to have issues on Christmas. THAT'S THE DAY I TURN 40!!!! AAGHHHHHHHHH....lmao   
I know you can relate to this, I DREAD going to the doctor and having to go BACK into the hospital. I hate it so much. It makes my whole demeanor change. I am normally pretty gung ho and confident but when I go into the hospital, I feel like a wimpy mouse. I hate that. lol

How are YOU doing Rachel? Are you feeling good through these crazy holidays??  

Much love, Hannah
Sun Dec 20, 2009 2:18 pm
Thanks for asking Hannah - at the moment I am having good and bad days - generally more to do with my fibromyalgia I think, but I have so many different chronic illnesses with vague symptoms treated with different medication that they all tend to blur into one, so I am never sure why/which/what is going on half the time! I also tend to do too much on my good days to compensate for the bad - otherwise, nothing at all would ever get done, but, that then has a knock on effect and so and so on...... Have to go to London on Tuesday, which for me nowadays is a huge thing, wouldn't have batted an eyelid about it a few years ago, but now I get a bit panicky just in case something happens! Hopefully it will help in the long run as I am going to see a different specialist about my fistula - whether or not it is worth repairing any more or should I just give up and go 'permanent' with my stinky friend and all the choices that will entail! Suspect on Christmas Day I will be directing the kids on how to cook the dinner as I will be exhausted.... ho hum.... will let you know........! xxxxxxxx
Sun Dec 20, 2009 3:01 pm
Wow, it certainly is so much crap to deal with isn't it??? You sound like a strong woman!

Christmas should be relaxing and a joyous occasion to see your family...never turns out that that, does it??  

I am currently on Lyrica for nerve damage pain and "possible Fibromyalgia". BUT, I have leisions on my brain that COULD signify MS....so I know how you feel. lol Silly doctors just need to diagnose us and be done with it!!!
What are your symptoms for the Fibromyalgia if you don't mind me asking?
I have a herniated disc inmy neck and I broke my back years ago in a horse riding accident so I have a lot of numbness and tingling in my arms and legs. I also have a huge amount of pain in my legs and hips..?? Do you get that?

Hugs to you~~~Hannah
Gus
Sun Dec 20, 2009 3:18 pm
hey,, anyone usin the chatroom??? could be a crazy place
Sun Dec 20, 2009 3:19 pm
theres a F'n chat room????? Let's do this!!!!! lmao  
Gus
Sun Dec 20, 2009 3:27 pm
Where are ya Tx?
Sun Dec 20, 2009 3:39 pm
well, wheres the bloody chat room???? lmao Im lost......where do i go to chat?
Gus
Sun Dec 20, 2009 3:42 pm
go to the home page and it will show in small print that there is someone in chat,, look closely you'll see it,,
Tue Dec 22, 2009 12:25 am
hi
Tue Dec 22, 2009 6:19 pm
Hi to you all

I have been reading what you all have to say about how you are feeling before, during and after surgery.
It brought tears to my eyes, and memories about how I felt after surgery.
I was devastated and tried to rip the thing from my body, thought I would never be able to live with it.
Time is a great healer, and I came to terms with it, and now live with it, with out it affecting my daily life.
I still get my ups and downs, but more ups than downs now.
I used to fear about the bag leaking while I was out, but now I just go to the nearest loo, change and get on with my life.
I count my blessings every day, and thank God I am alive.
It is one hell of a struggle to get our lives back on track after surgery, and it takes a lot of time effort and courage, but eventually we do get there.
Take one day at a time, and persevere, keep talking, no matter how difficult it may seem.
We are all on this site to help each other.

Hugs to you all
Jean
Tue Dec 22, 2009 6:22 pm
Hi to you all

I have been reading what you all have to say about how you are feeling before, during and after surgery.
It brought tears to my eyes, and memories about how I felt after surgery.
I was devastated and tried to rip the thing from my body, thought I would never be able to live with it.
Time is a great healer, and I came to terms with it, and now live with it, with out it affecting my daily life.
I still get my ups and downs, but more ups than downs now.
I used to fear about the bag leaking while I was out, but now I just go to the nearest loo, change and get on with my life.
I count my blessings every day, and thank God I am alive.
It is one hell of a struggle to get our lives back on track after surgery, and it takes a lot of time effort and courage, but eventually we do get there.
Take one day at a time, and persevere, keep talking, no matter how difficult it may seem.
We are all on this site to help each other.

Hugs to you all
Jean
Gus
Tue Dec 22, 2009 7:53 pm
                                 
tiger227 wrote:
Hi to you all

I have been reading what you all have to say about how you are feeling before, during and after surgery.
It brought tears to my eyes, and memories about how I felt after surgery.
I was devastated and tried to rip the thing from my body, thought I would never be able to live with it.
Time is a great healer, and I came to terms with it, and now live with it, with out it affecting my daily life.
I still get my ups and downs, but more ups than downs now.
I used to fear about the bag leaking while I was out, but now I just go to the nearest loo, change and get on with my life.
I count my blessings every day, and thank God I am alive.
It is one hell of a struggle to get our lives back on track after surgery, and it takes a lot of time effort and courage, but eventually we do get there.
Take one day at a time, and persevere, keep talking, no matter how difficult it may seem.
We are all on this site to help each other.

Hugs to you all
Jean



Aww we been spoilt Tiger double posted lol. Hope you have a great Chrissy tiger

Steve xoxo
Wed Dec 23, 2009 3:16 am
well at lest she didnt highlight it!! lol
Gus
Wed Dec 23, 2009 3:18 am
Thats true Hannah,, so very true hehehe
Wed Dec 23, 2009 10:37 am
I have an idea stevo....if i accidentally highlight again, you can ERASE MY MISTAKE WITH YOUR SWORD!! lmao it'll be like your own version on "white out".....lmao...ahhh, I slay me!!



Hannah




Gus
Wed Dec 23, 2009 4:19 pm
                                 
Txgirl wrote:
I have an idea stevo....if i accidentally highlight again, you can ERASE MY MISTAKE WITH YOUR SWORD!! lmao it'll be like your own version on "white out".....lmao...ahhh, I slay me!!



Hannah






You one crazy lady lol,, Are you gona clean up any excess white out seeing as it's your suggestion??? Love it so funny
Thu Dec 24, 2009 8:20 pm
...I shall....I shall indeed.
Gus
Thu Dec 24, 2009 9:29 pm
                                 
Txgirl wrote:
...I shall....I shall indeed.


Rurowll, I love this woman lol
Thu Dec 24, 2009 10:55 pm
..and honestly, how could you NOT???? lol  MERRY CHRISTMAS!! ( pssttttt..and Happy Birthday to me tomorrow on Christmas Day)
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