Barbie Butt advice/ Perm C-Ostomy Surgery

Sry this is so long but yall are the only ones i have to talk about this too. I've had my Loop sigmoid Colostomy since 642018. I had a bit of mucus with my Ileostomy 6 years ago, so i understand with a loop some stuff can pass to the rectum. Had a scare earlier, & i hope not TMI, but im worried! I had a "lot" of mucus & stool along with undigested food pass 2 times and both times it was a LOT!!!! I had a feeling this last 9th bottom fistula surgery had failed so i tried to prepare myself for the news. Saw my Colorectal surgeon on 9/4/18 & she confirmed my worries by saying there is nothing more she can do "dwn there". She is giving me until after the Holidays to remove my rectum & Make my C-Ostomy permanent. Like i sd i was worried about that but to hear her say it just confirmed my worst fear. I know there a lots of people that have them & lead full lives, but until its YOU, it different, at least for me anyway. i have total fecal incontinence so i suspect thats why ive been messing myself at times with just a bit of mucus and poo. i can't feel it come out and i have NO sphincter control at all in my rectum. So either perm C or the constant worry of shitting my bed with no control, or diapers at 43!!! Im sure someone here has the "Barbie Butt" She explained it would be a pretty big surgery. Any advice of recovery time, thoughts, or ways to help me try to cope?

That was one of the main reasons I chose to have my surgery done, mind you it appears you're suffering a fair bit worse, but needles to say it's definitely nice to not have to worry about leaking out my arse anymore!  I'm just over 4 months post op, back to everything normal.  Mine was an open surgery, as oposed to laproscopically. Just how it goes.  If and when you do it, I recommend Epsom salt baths to help your butt heal...as soon as you can, I heard about it after 4 weeks of real butt tendernous, and they made a huge difference.  

Best wishes, and let me know if you have tquestions.

I'm getting ready to have my take-down surgery next Thursday, which will reverse the ileostomy. My surgeon has already warned me there may be "accidents" from time to time. But, I just read this and I'm wondering if it might help any of us now or in the future. It seems there is a series of 4 injections of something called Solesta (sounds like a sleep med!) and it supposedly reduces fecal incontinance by 50%, or so they clamined in their clinical trials. It sounds as though it's available now, and I intend to ask my surgeon about it this week.

I get my colon and rectum removed tomorrow...hello Barbie butt and ileostomy bag. Can't say I am excited but...at least the fecal incontinence will be gone so there's the silver lining for us both

I had a permanent colostomy with the Barbie butt. If it is a possibility have it done using robotic surgery, that lessens recovery time. I am a firefighter and from surgery to return to work was six months, I was taking chemo during those six months also. Within 3 weeks of getting home I was pain free except for my bottom which took about 6 weeks to heal fully. If you have most of you colon I would ask about irrigation which will give you back some control.

Yes I know exactly how you feel.. I go to bed everything is fine, then it fills up and I am up and down constantly changing it.. after one appalling night when my partner was fast asleep I had to change all the bed linen and was terrified he would wake up/ thankfully he didn’t but it took almost an hour to change everything.. since then, like you, sleep is v difficult.. but if I am having a bad time, I sleep with a towel under me. I have also found that supporting my abdoman with a pillow when I lie in my side and keeping it more in a set position, reduces leaks massively.. it’s very very hard and do empathise with you enormously.. the worst for me is when I am driving and it suddenly blows out..

I had Sepsis after my colon burst open and was in a coma on life support with multiple organ failure. That was Nov 2016.. still have the bag and now 7 hernias.. they want to repair the hernias and reconnect in January, but I am terrified of everything going wrong, yet the hernias have to be repaired as they are very bad and I get into terrible pain.. v low about it all. Anyone had similar experiences or been through a reversal and reconnection with hernias who can offer any advice. I still have little energy and stamina and am still suffering from post Sepsis syndrome and ptsd...thanks 

Medic361- that's awesome you're on here, I'm in the same line of work near Vancouver in Canada.  Nice to see a fellow brother or sister in here!

Shy, they also told me mine was a huge surgery because they had to remove a rectal tumor that had grown into the vaginal wall, do the Barbie Butt and permanent Colostomy and reconstruction surgery of the vagonal wall. They removed the muscle from my stomach, your 6 pk, mine is now a 3 pk! Lol

it was a huge surgery but the worst part was having the foley and the two drainage tubes that I had to go home with. Was I  hospital 7 days and a week after release, the Dr. Removed the foley and two weeks later the drainage tubes. After 6 weeks, the staples came out and once I got there, I was good. Now I am retired so I did not have to go to work and could rest when I needed.  My surgery was April15th this year and the Not thing I have is the Barbie Butt sometimes feels like it is tearing if I move wrong. It is not but the feeling is painful. Hope all goes well for you! 

I had a total proctocolectomy with permanent end ileostomy almost 3 years ago ... and of course that included a Barbie Butt.  So I was able to get adjusted to everything at one time.  The Barbie Butt has been no issue at all.  What I would suggest is to get a waffle cushion (not a donut or anything like that) to sit on after surgery.  I purchased mine at the manufacturer's website which is www.ehob.com but you can get them on Amazon and at Walmart.  I got the portable sitz bath that you use on the toilet that was helpful, too.  I drove 3 weeks after my surgery so obviously it was not that long of a recovery ... although there may be a twinge here and there for a while, maybe up to 6 months but nothing excruciating. 

All that being said, like I said before, I had everything done at one time and I have no idea if having the surgery you are anticipating by itself makes a difference.  Good luck! 

Also good to see another brother firefighter!

I had a permanent colostomy 8 years ago due to stage 3 cancer. Surgery took 7 hours,  in hospital for 11 days, then 3 months to get back to running.  Life is different after and sometimes sucks, but mostly great - comes down to what you individually choose to make of all this.  Keep your chin up, smile, be happy to be alive.  Live your life,  there isn't much you can't do after surgery.  Eat well, learn to listen to your own body and cry when you have to 😥🙂

What is a Barbie butt? How do I know if I have a hernia by my colostomy? I am too scared to have the take down surgery. I have a low pain tolerance and surgeon said it is bigger surgery than first one when my intestines burst and it was emergency surgery. Also the stoma seems to protude or be a little bigger than it was. I wear a 6" ace bandage, cut in to two, around my stomach t smooth out my clothes over the bag and the round ring from the plastic snap on Bag I wear. Its ok but not ideal. So is the surgeon who I should be talking to about hernias, what kind of exercises se I can do etc? I gained 23 lbs this past year and Ive had my colostomy over 2 years. E okayed me for the reversal but I dont knowmif its more trouble than its worth. Also I am thinking colostomy might be handier as i get much older, its easy in the front. Thanks for any advice!

What is it that your having a problem with? You don't actually say. What are you doing all night and what's the accident? You shouldn't be going all night with proper management and a good seal, if you have a pouch. Let me know because I know I can help.  😁😁

An x-ray would show any Hernias, for me a MRI was ideal. I think a Hernia would give you pain just beneath your stoma.

If I was about 70 years old I would choose not to have a reversal purely for old age convenience.

Subdermal fat around my Stoma has never reduced and Surgeon won't do Liposuction as it might damage pouch seal.

They kept my stoma in the same spot yes, I did not have a hernia though,so I'm not sure how that would have affected things.  Hernia aside I don't know if it's common to move the stoma, let alone when a hernia is present.  No clue how your surgeon will do it all, but sounds like they've got a plan.  Don't blame you fornjist wanting to get it done.  Sorry I'm not much help on that but best of luck!

The less stomach fat the better so the Stoma is less likely to Herniate.

Surgeons don't like moving a Stoma, unless its going from a Colostomy on the left  to a Ileostomy on the right.

It's very important not to get constipation as outflow can get restricted and cause..... "all sorts of problems".

I appreciate ur input very much! Thx for ur reply!

Hi guys, Maybe it’s useful to compare notes!  I had an ileostomy in January which went badly from the start.  9 weeks ago I had the ileostomy converted to a colostomy and the hernia and prolapse that I had developed repaired.  I had my rectum and anus removed and everything below the colostomy.  

I have had no life since January with dreadful problems with an overactive ileostomy and huge rectal discharge issues.  I am just begining to feel a little more normal again but still exhausted and not able to do much without being sore.  

The surgery was extremely difficult and painfull but I have spinal issues and much metal work in my lumbar spine as well as a reconstructed neck so all my aches and pains got out of control when I had the surgery.  This was not an easy process and I’m not sure I could face any more surgery now.

The colostomy bag is I think less pleasant to deal with than the ileostomy and needs changing often as it tends to pancake and get very sticky.  I miss not being able to empty it easily.  The barbie butt has healed but is tightand uncomfortable in some places and there are skin flaps hanging in  others which get sore.

 Overall I guess I am improved as I could not have kept going with the rectum problems and I had angry polyps of a malignant kind which needed removing so I guess I had no other options.  My colon hasn’t worked properly for years since my spinal issues so I have no idea now what normal is or should b

e.  I’d just say go into the surgery with your eyes open and don’t let the medical professional fob you off, ask lots of questions! The surgeon put my stoma exactly on my waist band whichis very uncomfortable and difficult to dress normally with.              

So I had my entire colon and most of my rectum removed but somewhere between 5-10cm of the very end is still in me. I get that removed in 3 months...I get a Barbie butt for Christmas. And then chemo, the heavy hard stuff. After the Barbie butt surgery, how will a 2 hour drive home feel on my rear end?

I had a 1 hour 20 min drive home from hospital, a friend came for me who had lovely old Volvo with leather seats that reclined right back so we packed cushions and pillows and I virtually laid down in the front seat.  My friend who’s husband was driving kept the chat going and they distracted me and put up with my complaining hospital stories about the dramas of the previous two weeks and that got me home.  I was exhausted but so pleased to have escaped the hospital I didn’t care.  The hospital would have kept me longer but I just wanted to get out of there, and I’m very glad that I made that decision to get home.  I am 10 weeks post op now and it has not been easy.  I have only just now started to feel closer to me and without serious pain although some lingering and I’m still on a soup of medication.  My barbie butt healed reasonably well although still some tight sore places and a couple of uncomfortable random skin tags.  My stomach wound got infected so I needed antibiotics and the district nurse for quite a few weeks.  Now I’m just surprised how little stamina I have and I just seem to be exhausted all the time but I’m told that is normal. I had a ileostomy converted to a colostomy and I must say I dislike the colostomy to manage and am struggling with sticky pancaking all the time and constant bag changing as a result whereas with the ileostomy I could just drain and empty it so it never really got bulky the colostomy is much more obvious in my mind although friends assure me it is not a problem I am very conscious of it but it is right on my waist line which is a nuisance as well.  I don’t think the journey will be too much for you so long as you can put the seat back and get in a position to keep your weight off your bum as little sideways!  hope this helps..good luck

Hi 👋 

I had Barbie butt done on June 28th was in hospital for two weeks and now im pretty much healed. Can’t sit on hard chair but otherwise im good. Glad I had it done