Sry this is so long but yall are the only ones i have to talk about this too. I've had my Loop sigmoid Colostomy since 642018. I had a bit of mucus with my Ileostomy 6 years ago, so i understand with a loop some stuff can pass to the rectum. Had a scare earlier, & i hope not TMI, but im worried! I had a "lot" of mucus & stool along with undigested food pass 2 times and both times it was a LOT!!!! I had a feeling this last 9th bottom fistula surgery had failed so i tried to prepare myself for the news. Saw my Colorectal surgeon on 9/4/18 & she confirmed my worries by saying there is nothing more she can do "dwn there". She is giving me until after the Holidays to remove my rectum & Make my C-Ostomy permanent. Like i sd i was worried about that but to hear her say it just confirmed my worst fear. I know there a lots of people that have them & lead full lives, but until its YOU, it different, at least for me anyway. i have total fecal incontinence so i suspect thats why ive been messing myself at times with just a bit of mucus and poo. i can't feel it come out and i have NO sphincter control at all in my rectum. So either perm C or the constant worry of shitting my bed with no control, or diapers at 43!!! Im sure someone here has the "Barbie Butt" She explained it would be a pretty big surgery. Any advice of recovery time, thoughts, or ways to help me try to cope?
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