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SallyK

Ostomy-Friendly Dance Tips & Inspiring Interview

Jun 02, 2022 - Feb 23, 2023
I haven't been out dancing since I started my ostomy journey (Nov 2019 started chemo, radiation, surgery, recovery) and I used to love to dance! There is a dance next Saturday I want to go to, so I was doing some searches to make sure all is okay for that type of activity.
I also want to learn belly dancing and found this very inspirational interview. Thought I would share.

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40 replies | 3859 views
Bumba

Longevity of Life with an Ileostomy

Oct 24, 2011 - Nov 10, 2023
I have had an ileostomy for 51 years. Does anyone have any information on how long a person has lived with an ostomy? Also, any information about conditions that are caused by having an ileostomy for so many years would be appreciated.

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38 replies | 64670 views
Highlander15

Recovery time for urostomy surgery?

Jan 30, 2012 - Feb 06, 2023
Hi there, I have to go out of state for a urostomy. Can someone give me a rough idea of recovery time after surgery, all going well with no complications? I will ask my surgeon, but like I said, he is out of state and would like a rough idea as I need to board my pets. Thanking you in advance. I will have to fly back but can get a direct flight, about a four-hour flight.
Meg

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36 replies | 30744 views
Beth22

New Ostomate Seeking Support

May 09, 2022 - Jun 03, 2022
Hi everyone, I just joined. I am a pretty new ostomate. I had my surgery in Jan. of this year.

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36 replies | 2001 views
StaceyLee

Adapting to Life with a Stoma: Experiences and Tips?

Nov 03, 2016 - Jul 18, 2022
Hi everyone, I've joined this community to try and mentally prepare myself for surgery and life with an ostomy bag. I have been battling Crohn's for 14 years with no relief from meds, the next step is surgery that I'm ready to undergo as I have no quality of life. Having an ostomy bag would be the lesser of two evils. I'm interested in how everyone adapted to having a stoma and the experiences ...
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36 replies | 8080 views
Danno

Surgery and NG Tube: Common Experience?

May 17, 2023 - Jun 09, 2023
Hey all.
Just curious how common the stupid NG tube is when having one of our surgeries?
I have a temp Ileostomy and my system was asleep for two days following my surgery. They tried to NG tube me and I pulled that sucker out both times. Worst feeling I've experienced in life so far. Do not recommend...
SOOOOO I told them to go away and I spent the next 24 hours throwing up green bile and che ...
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36 replies | 1177 views
w30bob

How long until an ostomy feels natural?

Jan 12, 2020 - Jan 16, 2020
Hi gang,
I've had my ostomy for 5 years this past September and I still don't consider it "part of me" to the point where I don't give it much thought (like my hands and feet, etc). Does it ever just become "part of you" such that it's not on your mind 24/7... or is this "the new normal"? If it does become part of you, then how long does it take? I realize that's a complicated question, as it ...
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35 replies | 3907 views
gutenberg

Bowel Makeup After Colon Removal?

Jun 18, 2011 - Jul 23, 2014
There must be somebody out there who knows something about the makeup of the bowels. So I've got an Ileostomy, lost all my colon, so between the illium and the colon they make up 100%. Now when the complete colon is removed what percentage of the bowel are we left with??? And also I thought I remembered reading that after losing the colon part of the ilium takes on a bit of what the colon used ...
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35 replies | 18754 views
past member

Finding Love After an Ostomy: A Heartwarming Story

Sep 17, 2009 - Jul 23, 2019
A year and a half ago, I had an ileostomy done and became a widow at about the same time. I never thought that I'd meet a man willing to be with an ostomate. Boy, was I wrong!
I met the greatest man a month and a half ago while I was fishing. That's fishing for fish, hehe, not a man. We spent the day fishing side by side. He was a widower, and we became friends. I think I met my soul mate... I ...
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34 replies | 17276 views
lottagelady

Huge hernia repair and stoma resite: Need advice!

Sep 27, 2011 - Dec 21, 2011
Sorry, I haven't been around much recently - here in the shadows, but I have been having a very down time with loads of added stresses... Anyway, guys and gals... I need your help. I went for my pre-op assessment today... (waste of time, but that's another story...)
I have a HUGE hernia, which is to be repaired with mesh, with a probable resite of stoma - and a possible hysterectomy due to end ...
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34 replies | 19064 views
w30bob

Why are there so many ostomates in the UK?

Jul 28, 2021 - Sep 08, 2021
Hi guys,
I always thought it odd that so many ostomates are from the UK. Just from a percentage of the population sort of thing. I noticed it on here first, when I look at the ladies' pics....but I also noticed it recently on the "other" ostomy dating site. I was looking at the "new members" pics and the majority of the gals are from the UK. What am I missing about ostomies and Great Britain? ...
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34 replies | 3824 views
RaenotRay

Seeking Advice on Fistula Repair, Reversal, and Midline Incision

Mar 15, 2022 - Aug 08, 2022
Hi friends!
I have surgery coming up on April 14th to repair a rectovaginal fistula at the point of anastomosis. (Where my sweet ileostomy started) If the surrounding tissue looks good, my surgeon may reverse my ileostomy. (I know, shock and disappointment..) ‍ I'm also in need of having my midline incision taken down, reinforced, and repaired. I have a few questions I hope y'all might have ...
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34 replies | 2787 views
Scord

New to ileostomy - seeking advice/friends/help/sanity lol

May 17, 2014 - Dec 30, 2014
I am sorry to start a new post, just easier than trying to find answers in older ones. I am 32 and had surgery 3/4/14 - ileostomy. I had suffered with Crohn's for 10 years, then developed cancer for which I am about to undergo 6 months of chemo.
I have always been a very positive person but am struggling with this situation. And I just want to get back to work as a teacher.
Basically, I just w ...
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34 replies | 15905 views
Happy Cheeks

Choosing Surgery for Ulcerative Colitis: Permanent or Temporary Ileostomy?

May 25, 2014 - Jan 02, 2018
Hiya everyone. I am soon to have surgery for ulcerative colitis. I'm just very confused about which surgical option to choose.
- I can either choose to have a total colectomy with removal of rectum and anus and have a permanent bag.
- I can have a j-pouch formed and have a temporary ileostomy while it heals and then have it reconnected later on.
- Or if undecided, they said they can leave the ...
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33 replies | 26696 views
riffael

Rectal Mucus and Urges: Is This Normal?

Sep 21, 2021 - Mar 13, 2024
New member/colostomy recipient (5/25/21) here. Hi!
My doc said that my remaining 4" of rectum would collect mucus. Shortly after I got home from the hospital, a blob of mucus landed in the toilet, but only that once.
Frequently, I have a powerful urge to eliminate normally from the rectum, but no means to do so. It feels like I'm going to soil my drawers, but nothing ever happens. Is this norm ...
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33 replies | 4367 views
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