This topic is about someone who has been living with a loop ileostomy for nearly six years. This was initially meant to be a temporary solution to help heal a recto-vaginal fistula. However, over time, they have experienced several complications and are now concerned about the long-term viability of their colon and the potential for toxic buildup due to severe constipation.

Here are some key points and advice related to their situation:

- The ileostomy was supposed to be temporary, but it has been in place for almost six years. During this time, stool has sometimes bypassed the stoma, causing severe pain and incontinence through the vagina/fistula, leading to multiple hospital visits.

- Recently, they have noticed a "very lumpy colon" filled with stool, which can be felt through a large parastomal hernia. Oral laxatives only work through the ileostomy, and rectal agents exit through the fistula/vagina, making both methods ineffective.

- They are experiencing systemic symptoms such as a foul taste in the mouth, suspected to be reflux, prolonged nausea (which improved in mid-March), and extreme fatigue.

- Upcoming medical tests will determine if their pelvic floor can handle more surgery and if the fistula can be repaired. They have important questions for their doctors, including whether the colon can still function normally after six years of inactivity and if prolonged fecal stasis is causing their symptoms.

- A recent visit to the GP was due to tenderness and cramping. The GP suggested using a glycerine suppository in the "inactive" limb of the stoma to stimulate movement, but it hasn't worked yet. Some improvement in cramps was noted, but abdominal tenderness remains.

- One person's experience suggests that a colon can be reconnected even after 17 years of diversion, indicating that the length of time alone may not prevent anastomosis. The decision will depend on individual factors related to the pelvic area and fistula.

- It might be helpful to seek advice from an ostomy nurse who can provide support and management options. Bringing detailed questions to such professionals could be beneficial.

- Keeping a detailed record of symptoms and concerns is important for future consultations with the GP and colorectal consultant.