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Jun 30, 2010

Switching from Colostomy to Ileostomy: Seeking Advice and Tips

This topic is about preparing for an ileostomy after having a colostomy, focusing on recovery time, irrigation, and choosing the right supplies. The person in question needs to have the rest of her colon removed due to severe health issues, and her surgery is scheduled for after July 1. She is concerned about the recovery process and hopes to be ready to return to teaching by early September. Here are some insights and advice shared by others:

- Returning to work: Many people feel that aiming to return to work in two months might be too optimistic. At eight weeks, it's common to still feel low on energy, need to eat small meals frequently, drink plenty of fluids, and tire easily. Some suggest considering a return in January if possible.

- Overall healing time: Recovery can often take three months or more, especially if there have been previous infections. Experiences vary; some have returned to a part-time office job in two months, while others have done so in three weeks after a later surgery, but they all adhered to strict lifting limits of 5 pounds.

- ET/Ostomy nurse: It's important to have a certified ET nurse before surgery. They can help choose the best stoma site and provide practical guidance for both physical and emotional recovery.

- Appliance and supply testing:
- Request free samples from various vendors, as most will send trial kits.
- Brands to consider include Hollister, ConvaTec, Nu-Hope, and Coloplast.
- Many people find that mixing products from different companies helps achieve the best seal and skin protection.

- Irrigation/“flushing”: Whether this is advisable depends on the underlying condition. For those with Crohn’s disease, many nurses and surgeons advise against it due to the risk of small-bowel irritation. It's best to discuss this with your surgeon and ET nurse.

- Supplements and immunity: Expect to feel weak initially. Vitamin B-12 and vitamin D are recommended to help boost energy and immunity.

- Hernia prevention: Follow post-op lifting restrictions carefully, usually between 5–8 pounds, to reduce the risk of a parastomal hernia. Even with precautions, hernias can occur, so it's important to be cautious.
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